Book picks similar to
Positive: One Doctor's Personal Encounters with Death, Life, and the US Healthcare System by Michael Saag
non-fiction
medical
memoir
healthcare
Because We Are Bad: OCD and a Girl Lost in Thought
Lily Bailey - 2016
She had killed someone with a thought, spread untold disease, and ogled the bodies of other children. Only by performing an exhausting series of secret routines could she make up for what she’d done. But no matter how intricate or repetitive, no act of penance was ever enough.Beautifully written and astonishingly intimate, Because We Are Bad recounts a childhood consumed by obsessive compulsive disorder. As a child, Bailey created a second personality inside herself—"I" became "we"—to help manifest compulsions that drove every minute of every day of her young life. Now she writes about the forces beneath her skin, and how they ordered, organized, and urged her forward. Lily charts her journey, from checking on her younger sister dozens of times a night, to "normalizing" herself at school among new friends as she grew older, and finally to her young adult years, learning—indeed, breaking through—to make a way for herself in a big, wide world that refuses to stay in check.Charming and raw, harrowing and redemptive, Because We Are Bad is an illuminating and uplifting look into the mind and soul of an extraordinary young woman, and a startling portrait of OCD that allows us to see and understand this condition as never before.
Baby ER: The Heroic Doctors and Nurses Who Perform Medicine's Tiniest Miracles
Edward Humes - 2000
For the parents of sick and premature babies, some weighing less than a pound and no bigger than a can of cola, the Neonatal Intensive Care Unit -- the "Baby ER" -- is their one bastion of hope during the most terrifying moments of their lives, when their children's very survival hangs in the balance. Given unprecedented access to this normally private world, Humes witnesses the midnight deliveries, the harrowing Code Blues, the heart-wrenching setbacks; be there when a young mother first holds her son as he finally emerges from the incubator, and for the triumphant day of discharge, when families are at last made whole.Set in Southern California's Long Beach Memorial Medical Center, home to one of the largest and most respected neonatal units in the nation, "Baby ER" also describes the inspiring and dramatic efforts of the uniquely gifted physicians, nurses and other healers who work medicine's tiniest miracles, bringing life to a place where, for all but a minute fraction of human history, death has reigned supreme. The neonatal unit has been transformed in recent years by revolutionary advances that have enabled impossibly small preemies not only to survive but to thrive. Children born so early they would have been considered miscarriages fifteen years ago are now going home in their car seats thanks to state-of-the-art care; parents who would have faced unspeakable lossnow have diapers to change.But there is also a cost to the wonders of technology and skill that preserve such fragile lives. Though joy is most often the result of this remarkable brand of medicine called neonatology, a life saved does not always lead to a life worth living. The accompanying burdens -- sometimes grievous ones -- raise difficult moral, ethical and financial questions. In a narrative both lyrical and intense, Humes does not skirt these tough questions, nor do the talented physicians at the center of "Baby ER," who must ask themselves not only how far they can go to save a child, but how far they should go. In an era when aggressive new fertility treatments have created an epidemic of high-risk multiple births, and one in ten babies in the U.S. is born premature, "Baby ER" provides a timely and compelling portrait of medicine's brave new world.
Betrayal of Trust: The Collapse of Global Public Health
Laurie Garrett - 2000
Garrett also exposes the ungoverned world of biological terrorism.
Between Expectations: Lessons from a Pediatric Residency
Meghan MacLean Weir - 2011
Meghan Weir first dons her scrubs and steps onto the floor of Children’s Hospital Boston as a newly minted resident, her head is packed with medical-school-textbook learning. She knows the ins and outs of the human body, has memorized the correct way to perform hundreds of complicated procedures, and can recite the symptoms of any number of diseases by rote. But none of that has truly prepared her for what she is about to experience. From the premature infants Dr. Weir is expected to care for on her very first day of residency to the frustrating teenagers who visit the ER at three in the morning for head colds, each day brings with it new challenges and new lessons. Dr. Weir learns that messiness, fear, and uncertainty live beneath the professional exterior of the doctor’s white coat. Yet, in addition to the hardships, the practice of medicine comes with enormous rewards of joy, camaraderie, and the triumph of healing. The three years of residency—when young doctors who have just graduated from medical school take on their own patients for the first time—are grueling in any specialty. But there is a unique challenge to dealing with patients too young to describe where it hurts, and it is not just having to handle their parents. In Between Expectations: Lessons from a Pediatric Residency, Dr. Weir takes readers into the nurseries, ICUs, and inpatient rooms of one of the country’s busiest hospitals for children, revealing a world many of us never get to see. With candor and humility, she explores the many humbling lessons that all residents must learn: that restraint is sometimes the right treatment option, no matter how much you want to act; that some patients, even young teenagers, aren’t interested in listening to the good advice that will make their lives easier; that parents ultimately know their own children far better than their doctors ever will. Dr. Weir’s thoughtful prose reveals how exhaustion and doubt define the residency experience just as much as confidence and action do. Yet the most important lesson that she learns through the months and years of residency is that having a good day on the floor does not always mean that a patient goes home miraculously healed—more often than not, success is about a steady, gradual discovery of strength. By observing the children, the parents, and other hospital staff who painstakingly provide care each day, Dr. Weir finds herself finally developing into the physician (and the parent) she hopes to become. These stories—sometimes funny, sometimes haunting—expose the humanity that is so often obscured by the doctor’s white coat.
Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand
Julie Rehmeyer - 2017
The top specialists in the world were powerless to help, and scientific research on her disease was at a near standstill. She was running out of money. And she was all alone, with no one to care for her.Having exhausted the plausible ideas, Rehmeyer turned to an implausible one. She followed the advice of strangers she'd met on the Internet. They struck her as crazy but they had recovered from chronic fatigue syndrome as severe as hers. Leaving behind everything she owned, she drove into the desert, testing the theory that mold in her home and belongings was making her sick. Stripped of the life she'd known and the future she'd imagined, Rehmeyer felt as though she were going to the desert to die.But she didn't die. She used her scientific savvy and investigative journalism skills to find a path to wellness and uncovered how shocking scientific neglect and misconduct had forced her, and millions of others, to go it alone. In stunning prose, Rehmeyer describes how her illness transformed her understanding of science, medicine, and spirituality. Through the Shadowlands will bring scientific authority to a misunderstood disease while telling an incredible and compelling story of tenacity, resourcefulness, acceptance, and love.
The Soul of Care: The Moral Education of a Husband and a Doctor
Arthur Kleinman - 2019
Arthur Kleinman, an eminent Harvard psychiatrist and social anthropologist, began caring for his wife, Joan, after she was diagnosed with early-onset Alzheimer's disease, he found just how far the act of caregiving extended beyond the boundaries of medicine. In The Soul of Care: The Moral Education of a Husband and a Doctor, Kleinman delivers a deeply humane and inspiring story of his life in medicine and his marriage to Joan, and he describes the practical, emotional and moral aspects of caretaking. He also writes about the problems our society faces as medical technology advances and the cost of health care soars but caring for patients no longer seems important.Caregiving is long, hard, unglamorous work--at moments joyous, more often tedious, sometimes agonizing, but it is always rich in meaning. In the face of our current political indifference and the challenge to the health care system, he emphasizes how we must ask uncomfortable questions of ourselves, and of our doctors. To give care, to be present for someone who needs us, and to feel and show kindness are deep emotional and moral experiences, enactments of our core values. The practice of caregiving teaches us what is most important in life, and reveals the very heart of what it is to be human.
Concussion
Jeanne Marie Laskas - 2015
Bennet Omalu, the pathologist who made one of the most significant medical discoveries of the twenty-first century, a discovery that challenges the existence of America’s favorite sport and puts Omalu in the crosshairs of football’s most powerful corporation: the NFL. Jeanne Marie Laskas first met the young forensic pathologist Dr. Bennet Omalu in 2009, while reporting a story for GQ that would go on to inspire the movie Concussion. Omalu told her about a day in September 2002, when, in a dingy morgue in downtown Pittsburgh, he picked up a scalpel and made a discovery that would rattle America in ways he’d never intended. Omalu was new to America, chasing the dream, a deeply spiritual man escaping the wounds of civil war in Nigeria. The body on the slab in front of him belonged to a fifty-year-old named Mike Webster, aka “Iron Mike,” a Hall of Fame center for the Pittsburgh Steelers, one of the greatest ever to play the game. After retiring in 1990, Webster had suffered a dizzyingly steep decline. Toward the end of his life, he was living out of his van, tasering himself to relieve his chronic pain, and fixing his rotting teeth with Super Glue. How did this happen?, Omalu asked himself. How did a young man like Mike Webster end up like this? The search for answers would change Omalu’s life forever and put him in the crosshairs of one of the most powerful corporations in America: the National Football League. What Omalu discovered in Webster’s brain—proof that Iron Mike’s mental deterioration was no accident but a disease caused by blows to the head that could affect everyone playing the game—was the one truth the NFL wanted to ignore. Taut, gripping, and gorgeously told, Concussion is the stirring story of one unlikely man’s decision to stand up to a multibillion-dollar colossus, and to tell the world the truth. Advance praise for Concussion “A gripping medical mystery and a dazzling portrait of the young scientist no one wanted to listen to . . . a fabulous, essential read.”—Rebecca Skloot, author of The Immortal Life of Henrietta Lacks“The story of Dr. Bennet Omalu’s battle against the NFL is classic David and Goliath stuff, and Jeanne Marie Laskas—one of my favorite writers on earth—makes it as exciting as any great courtroom or gridiron drama. A riveting, powerful human tale—and a master class on how to tell a story.”—Charles Duhigg, author of The Power of Habit “Bennet Omalu forced football to reckon with head trauma. The NFL doesn’t want you to hear his story, but Jeanne Marie Laskas makes it unforgettable. This book is gripping, eye-opening, and full of heart.”—Emily Bazelon, author of Sticks and Stones
The Invisible Kingdom: Reimagining Chronic Illness
Meghan O'Rourke - 2022
Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, O’Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color. Blending lyricism and erudition, candor and empathy, O’Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.
No Man's Land: The Trailblazing Women Who Ran Britain’s Most Extraordinary Military Hospital During World War I
Wendy Moore - 2020
Although, prior to the war, female doctors were restricted to treating women and children, Flora and Louisa's work was so successful that the British Army asked them to set up a hospital in the heart of London. Nicknamed the Suffragettes' Hospital, Endell Street soon became known for its lifesaving treatments and lively atmosphere.In No Man's Land, Wendy Moore illuminates this turbulent moment when women were, for the first time, allowed to operate on men. Their fortitude and brilliance serve as powerful reminders of what women can achieve against all odds.
The Code Breaker: Jennifer Doudna, Gene Editing, and the Future of the Human Race
Walter Isaacson - 2021
As she sped through the pages, she became enthralled by the intense drama behind the competition to discover the code of life. Even though her high school counselor told her girls didn’t become scientists, she decided she would.Driven by a passion to understand how nature works and to turn discoveries into inventions, she would help to make what the book’s author, James Watson, told her was the most important biological advance since his co-discovery of the structure of DNA. She and her collaborators turned a curiosity of nature into an invention that will transform the human race: an easy-to-use tool that can edit DNA. Known as CRISPR, it opened a brave new world of medical miracles and moral questions. The development of CRISPR and the race to create vaccines for coronavirus will hasten our transition to the next great innovation revolution. The past half-century has been a digital age, based on the microchip, computer, and internet. Now we are entering a life-science revolution. Children who study digital coding will be joined by those who study genetic code. Should we use our new evolution-hacking powers to make us less susceptible to viruses? What a wonderful boon that would be! And what about preventing depression? Hmmm…Should we allow parents, if they can afford it, to enhance the height or muscles or IQ of their kids? After helping to discover CRISPR, Doudna became a leader in wrestling with these moral issues and, with her collaborator Emmanuelle Charpentier, won the Nobel Prize in 2020.
Auschwitz: A Doctor's Eyewitness Account
Miklós Nyiszli - 1946
A Jew and a medical doctor, the prisoner Dr. Miklos Nyiszli was spared death for a grimmer fate: to perform "scientific research" on his fellow inmates under the supervision of the man who became known as the infamous "Angel of Death" - Dr. Josef Mengele. Nyiszli was named Mengele's personal research pathologist. In that capactity he also served as physician to the Sonderkommando, the Jewish prisoners who worked exclusively in the crematoriums and were routinely executed after four months. Miraculously, Nyiszli survived to give this horrifying and sobering account.
Past Mortems: Life and Death Behind Mortuary Doors
Carla Valentine - 2017
She spent ten years training and working as an Anatomical Pathology Technologist: where the mortuary slab was her desk, and that day's corpses her task list.Past Mortems tells Carla's stories of those years, as well as investigating the body alongside our attitudes towards death - shedding light on what the living can learn from dead and the toll the work can take on the living souls who carry it out. Fascinating and insightful, Past Mortems reveals the truth about what happens when the mortuary doors swing shut or the lid of the coffin closes . . .
In the Wars: A Story of Conflict, Survival and Saving Lives
Waheed Arian - 2021
What a life and what an inspiration.' Stephen Fry__________Born in war-torn Afghanistan, Waheed Arian's earliest memories are of bombs. Fleeing the conflict with his family, he spent much of his childhood in refugee camps in Pakistan, living sometimes ten to a room without basic sanitation or access to education. After he contracted tuberculosis, his first-hand experience of the power of medicine inspired Waheed to dedicate his life to healing others. But how does a boy with nothing hope to become a doctor?Waheed largely taught himself, from textbooks bought from street-sellers, and learned English from the BBC World Service. Smuggled to the UK at fifteen with just $100 in his pocket, he found a job in a shop. He was advised to set his sights on becoming a taxi driver. But the boy from Kabul had bigger ambitions.Working through PTSD and anxiety, he studied all hours to achieve his vocation. He was accepted to read medicine at Cambridge University, Imperial College and Harvard, and went on to become a doctor in the NHS. But he wanted to do more. In 2015 he founded Arian Teleheal, a pioneering global charity that connects doctors in war zones and low-resource countries with their counterparts in the US, UK, Europe and Australia. Together, learning from each other, they save and change lives - the lives of millions of people just like Waheed.For readers of Educated and War Doctor, this is the extraordinary memoir of a boy who recognized the power of education and dreamed about helping others. It's a tale of courage, ambition and unwavering resilience in the face of all the challenges that life can throw in your way.
He Wanted the Moon: The Madness and Medical Genius of Dr. Perry Baird, and His Daughter's Quest to Know Him
Mimi Baird - 2015
Perry Baird was a rising medical star in the late 1920s and 1930s. Early in his career, ahead of his time, he grew fascinated with identifying the biochemical root of manic depression, just as he began to suffer from it himself. By the time the results of his groundbreaking experiments were published, Dr. Baird had been institutionalized multiple times, his medical license revoked, and his wife and daughters estranged. He later received a lobotomy and died from a consequent seizure, his research incomplete, his achievements unrecognized.Mimi Baird grew up never fully knowing this story, as her family went silent about the father who had been absent for most of her childhood. Decades later, a string of extraordinary coincidences led to the recovery of a manuscript which Dr. Baird had worked on throughout his brutal institutionalization, confinement, and escape. This remarkable document, reflecting periods of both manic exhilaration and clear-headed health, presents a startling portrait of a man who was a uniquely astute observer of his own condition, struggling with a disease for which there was no cure, racing against time to unlock the key to treatment before his illness became impossible to manage.Fifty years after being told her father would forever be “ill” and “away,” Mimi Baird set off on a quest to piece together the memoir and the man. In time her fingers became stained with the lead of the pencil he had used to write his manuscript, as she devoted herself to understanding who he was, why he disappeared, and what legacy she had inherited. The result of his extraordinary record and her journey to bring his name to light is He Wanted the Moon, an unforgettable testament to the reaches of the mind and the redeeming power of a determined heart.Soon to be a major motion picture, from Brad Pitt and Tony Kushner
Blood, Sweat and Tea
Tom Reynolds - 2006
He has kept a blog of his daily working life since 2003 and his award-winning writing is, by turn, moving, cynical, funny, heart-rending, and compassionate. From the tragic to the hilarious, the stories Tom tells give a fascinatingand at times alarming picture of life in inner-city Britain, and the people who are paid to mop up after it.