Book picks similar to
The Private Worlds of Dying Children by Myra Bluebond-Langner
non-fiction
nonfiction
anthropology
textbooks
Night Falls Fast: Understanding Suicide
Kay Redfield Jamison - 1999
Night Falls Fast is tragically timely: suicide has become one of the most common killers of Americans between the ages of fifteen and forty-five.An internationally acknowledged authority on depressive illnesses, Dr. Jamison has also known suicide firsthand: after years of struggling with manic-depression, she tried at age twenty-eight to kill herself. Weaving together a historical and scientific exploration of the subject with personal essays on individual suicides, she brings not only her remarkable compassion and literary skill but also all of her knowledge and research to bear on this devastating problem. This is a book that helps us to understand the suicidal mind, to recognize and come to the aid of those at risk, and to comprehend the profound effects on those left behind. It is critical reading for parents, educators, and anyone wanting to understand this tragic epidemic.
With the End in Mind: Dying, Death, and Wisdom in an Age of Denial
Kathryn Mannix - 2017
Kathryn Mannix has studied and practiced palliative care for thirty years. In With the End in Mind , she shares beautifully crafted stories from a lifetime of caring for the dying, and makes a case for the therapeutic power of approaching death not with trepidation, but with openness, clarity, and understanding. Weaving the details of her own experiences as a caregiver through stories of her patients, their families, and their distinctive lives, Dr. Mannix discusses the universal, but deeply personal, process of dying. With meditations on life, death, and the space between them, With the End in Mind describes the possibility of meeting death gently, with forethought and preparation, and shows the unexpected beauty, dignity, and profound humanity of life coming to an end.
The Boy Who Was Raised as a Dog: And Other Stories from a Child Psychiatrist's Notebook
Bruce D. Perry - 2007
In The Boy Who Was Raised as a Dog, he tells their stories of trauma and transformation through the lens of science, revealing the brain's astonishing capacity for healing. Deftly combining unforgettable case histories with his own compassionate, insightful strategies for rehabilitation, Perry explains what exactly happens to the brain when a child is exposed to extreme stress-and reveals the unexpected measures that can be taken to ease a child's pain and help him grow into a healthy adult. Through the stories of children who recover-physically, mentally, and emotionally-from the most devastating circumstances, Perry shows how simple things like surroundings, affection, language, and touch can deeply impact the developing brain, for better or for worse. In this deeply informed and moving book, Bruce Perry dramatically demonstrates that only when we understand the science of the mind can we hope to heal the spirit of even the most wounded child.
If I Get to Five: What Children Can Teach Us about Courage and Character
Fred Epstein - 2000
The medical world knows him as Fred Epstein, M.D., the neurosurgeon who pioneered life-saving procedures for previously inoperable tumors in children. His patients and their families know him simply as Dr. Fred, the "miracle man" who has extended them both a healing hand and an open heart.Throughout his career Epstein's young patients have been his most important teachers and trusted guides. They are children who--often by sheer force of will--have refused to relinquish life and all its gifts. In this inspiring book, these children teach us the lessons we all need to learn in order to live life to the fullest--lessons about seizing the moment and facing our deepest fears, about embracing the joy and wonder of everyday life. Most of all, they teach lessons about uncommon courage--the courage to do what's hardest, to believe in what we don't understand, to love without boundaries.If I Get to Five takes us inside a world unlike any other, from the high-stakes, high-tech operating room where life and death are separated by a heartbeat to the sickrooms and recovery rooms where parents discover the limits and power of their faith. But most compelling of all is the journey inside the hearts, minds, and souls of the wisest children you will ever encounter.No one who reads this remarkable book will ever look at children--or adversity--in the same way.
The Death Class: A True Story About Life
Erika Hayasaki - 2014
Each year, Kean University in Union, New Jersey, offers an exclusive class called Death in Perspective. Led by Professor Norma Bowe, the objective of the class is to “develop an understanding of the nature and experiences of the stages of dying, death, and bereavement.” It has a three-year waiting list.But as acclaimed journalist Erika Hayasaki discovers, by teaching mortality, Dr. Bowe is quietly rescuing students from tragedy. As she takes her students to cemeteries, prisons, morgues, and hospitals, she shows how the contemplation of the end can change an adult’s beginning. Over the course of two years, she intervenes with one student and her suicidal mother, mentors another with a mentally ill brother, and redeems a third from his life in a gang. And in the end, the students themselves heal Dr. Bowe herself from the lingering pain of a childhood she has long repressed. On one level, The Death Class is about the loss of life; on another level, it’s a celebration of what the human spirit can conquer. It’s about how we can survive and learn to live a meaningful life.
The American Way of Death Revisited
Jessica Mitford - 1963
When first published in 1963 this landmark of investigative journalism became a runaway bestseller and resulted in legislation to protect grieving families from the unscrupulous sales practices of those in "the dismal trade."Just before her death in 1996, Mitford thoroughly revised and updated her classic study. The American Way of Death Revisited confronts new trends, including the success of the profession's lobbyists in Washington, inflated cremation costs, the telemarketing of pay-in-advance graves, and the effects of monopolies in a death-care industry now dominated by multinational corporations. With its hard-nosed consumer activism and a satiric vision out of Evelyn Waugh's novel The Loved One, The American Way of Death Revisited will not fail to inform, delight, and disturb.
Trauma Stewardship: An Everyday Guide to Caring for Self While Caring for Others
Laura Van Dernoot Lipsky - 2007
We may feel tired, cynical, numb, or like we can never do enough. These, and other symptoms, affect us individually and collectively, sapping the energy and effectiveness we so desperately need if we are to benefit humankind, other animals, and the planet itself. Through Trauma Stewardship, we are called to meet these challenges in an intentional way--not by becoming overwhelmed but by developing a quality of mindful presence. Joining the wisdom of ancient cultural traditions with modern psychological research, Lipsky offers a variety of simple and profound practices that will allow us to remake ourselves--and ultimately the world.
Dying Well: Peace and Possibilities at the End of Life
Ira Byock - 1997
Nobody should have to die alone. This is Ira Byock's dream, and he is dedicating his life to making it come true.
Dying Well
brings us to the homes and bedsides of families with whom Dr. Byock has worked, telling stories of love and reconciliation in the face of tragedy, pain, medical drama, and conflict. Through the true stories of patients, he shows us that a lot of important emotional work can be accomplished in the final months, weeks, and even days of life. It is a companion for families, showing them how to deal with doctors, how to talk to loved ones—and how to make the end of life as meaningful and enriching as the beginning.Ira Byock is also the author of The Best Care Possible: A Physician's Quest to Transform Care Through the End of Life.
The Two Kinds of Decay
Sarah Manguso - 2008
In this captivating story, Manguso recalls her struggle: arduous blood cleansings, collapsed veins, multiple chest catheters, depression, the deaths of friends and strangers, addiction, and, worst of all for a writer, the trite metaphors that accompany prolonged illness. A book of tremendous grace, The Two Kinds of Decay transcends the very notion of what an illness story can and should be.
Far from the Tree: Parents, Children, and the Search for Identity
Andrew Solomon - 2012
He writes about families coping with deafness, dwarfism, Down's syndrome, autism, schizophrenia, or multiple severe disabilities; with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, and Solomon documents triumphs of love over prejudice in every chapter.All parenting turns on a crucial question: to what extent should parents accept their children for who they are, and to what extent they should help them become their best selves. Drawing on ten years of research and interviews with more than three hundred families, Solomon mines the eloquence of ordinary people facing extreme challenges.Elegantly reported by a spectacularly original and compassionate thinker, Far from the Tree explores how people who love each other must struggle to accept each other—a theme in every family’s life.
The Good Death: An Exploration of Dying in America
Ann Neumann - 2016
From church basements to hospital wards to prison cells, Neumann charts the social, political, religious, and medical landscape to explore how we die today. The Good Death weaves personal accounts with a historical exploration of the movements and developments that have changed the ways we experience death. With the diligence of a journalist and the compassion of a caregiver, Neumann provides a portrait of death in the United States that is humane, beautifully written, and essential to our greater understanding of the future of end-of-life care.
In a Different Key: The Story of Autism
John Donvan - 2016
Beginning with his family’s odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, and of the civil rights battles waged by the families of those who have it. Unfolding over decades, it is a beautifully rendered history of ordinary people determined to secure a place in the world for those with autism—by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different. It is the story of women like Ruth Sullivan, who rebelled against a medical establishment that blamed cold and rejecting “refrigerator mothers” for causing autism; and of fathers who pushed scientists to dig harder for treatments. Many others played starring roles too: doctors like Leo Kanner, who pioneered our understanding of autism; lawyers like Tom Gilhool, who took the families’ battle for education to the courtroom; scientists who sparred over how to treat autism; and those with autism, like Temple Grandin, Alex Plank, and Ari Ne’eman, who explained their inner worlds and championed the philosophy of neurodiversity. This is also a story of fierce controversies—from the question of whether there is truly an autism “epidemic,” and whether vaccines played a part in it; to scandals involving “facilitated communication,” one of many treatments that have proved to be blind alleys; to stark disagreements about whether scientists should pursue a cure for autism. There are dark turns too: we learn about experimenters feeding LSD to children with autism, or shocking them with electricity to change their behavior; and the authors reveal compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death.<
The Best Practice: How the New Quality Movement Is Transforming Medicine
Charles C. Kenney - 2008
But starting in the late 1990s, shocking reports emerged that showed this was far from the truth. Treatment-related deaths or “complications” were found to be the fifth leading cause of death for Americans, and hundreds of thousands of patients were being harmed by botched medical procedures.Spurred by the quality crisis, a group of visionary physicians led by Donald Berwick and Paul Batalden embarked on a study of industrial “quality improvement” techniques, daring to apply them to the practice of medicine despite resistance from the medical community. The Best Practice tells the story of this burgeoning movement, and of how the medical landscape is being radically transformed—for the better.
I Wasn't Strong Like This When I Started Out: True Stories of Becoming a Nurse
Lee Gutkind - 2013
Here, nurses remember their first “sticks,” first births, and first deaths, and reflect on what gets them though long, demanding shifts, and keeps them in the profession. The stories reveal many voices from nurses at different stages of their careers: One nurse-in-training longs to be trusted with more “important” procedures, while another questions her ability to care for nursing home residents. An efficient young emergency room nurse finds his life and career irrevocably changed by a car accident. A nurse practitioner wonders whether she has violated professional boundaries in her care for a homeless man with AIDS, and a home care case manager is the sole attendee at a funeral for one of her patients. What connects these stories is the passion and strength of the writers, who struggle against burnout and bureaucracy to serve their patients with skill, empathy, and strength.
Advice for Future Corpses (And Those Who Love Them): A Practical Perspective on Death and Dying
Sallie Tisdale - 2018
Informed by her many years working as a nurse, with more than a decade in palliative care, Tisdale provides a frank and compassionate meditation on the inevitable.From the sublime (the faint sound of Mozart as you take your last breath) to the ridiculous (lessons on how to close the sagging jaw of a corpse), Tisdale leads readers through the peaks and troughs of death with a wise and humorous hand. This is more than a how-to manual or a spiritual bible: it is a graceful compilation of honest and intimate anecdotes based on the deaths Tisdale has witnessed in her work and life, as well as stories from cultures, traditions, and literature around the world.