Book picks similar to
Beyond the Wall: Personal Experiences with Autism and Asperger Syndrome by Stephen M. Shore
autism
non-fiction
nonfiction
asd
Ask Me About My Uterus: A Quest to Make Doctors Believe in Women's Pain
Abby Norman - 2018
She was repeatedly hospitalized in excruciating pain, but the doctors insisted it was a urinary tract infection and sent her home with antibiotics. Unable to get out of bed, much less attend class, Norman dropped out of college and embarked on what would become a years-long journey to discover what was wrong with her. It wasn't until she took matters into her own hands--securing a job in a hospital and educating herself over lunchtime reading in the medical library--that she found an accurate diagnosis of endometriosis.In Ask Me About My Uterus, Norman describes what it was like to have her pain dismissed, to be told it was all in her head, only to be taken seriously when she was accompanied by a boyfriend who confirmed that her sexual performance was, indeed, compromised. Putting her own trials into a broader historical, sociocultural, and political context, Norman shows that women's bodies have long been the battleground of a never-ending war for power, control, medical knowledge, and truth. It's time to refute the belief that being a woman is a preexisting condition.
I Am Intelligent: From Heartbreak to Healing--A Mother and Daughter's Journey Through Autism
Peyton Goddard - 2012
Robbed of speech and bodily control, and despite her loving parents' best efforts to help her, Peyton Goddard suffered neglect and ongoing abuse by many who dismissed her as autistic and severely mentally retarded. Peyton's violent outbursts and bizarre, self-destructive behavior left her parents terrified at the prospect of having to institutionalize their daughter. No one could have imagined that she possessed a brilliant mind in her uncooperative body until her first opportunity to communicate electronically at age 22 when she typed "I AM INTLGENT," a breakthrough reminiscent of "The Miracle Worker." After two decades, mother and daughter are finally able to communicate, and Peyton goes on to graduate valedictorian from college. Her story challenges assumptions that any child, regardless of competence, can be less of a human being. Today Peyton is following through on her vow to be an advocate on behalf of other devalued people. Her inspirational life helps readers transcend stereotypes and join her in the radical notion that, as she says, "All people are vastly valuable. Treasure all because great is each."
Asperkids: An Insider's Guide to Loving, Understanding, and Teaching Children with Asperger's Syndrome
Jennifer Cook O'Toole - 2012
She shows how to help children on the spectrum by understanding how they think and by exploiting their special interests to promote learning. Her strategies work because she thinks like the children that she teaches.This exciting book is full of effective and fun ways of engaging with children with Asperger syndrome. Jennifer explains how theory of mind difficulties create the need for concrete forms of communication, and provides original methods to inspire imagination through sensorial experiences. In particular she reveals the untapped power of special interests, showing how to harness these interests to encourage academic, social and emotional growth.Affirming that different doesn't mean defective, this book offers the insight and guidance that parents, educators, and other professionals need to connect with the Asperkids in their life and get them excited about learning.
The Man Who Couldn't Stop
David Adam - 2014
In this captivating fusion of science, history and personal memoir, writer David Adam explores the weird thoughts that exist within every mind, and how they drive millions of us towards obsessions and compulsions.David has suffered from OCD for twenty years, and The Man Who Couldn’t Stop is his unflinchingly honest attempt to understand the condition and his experiences. What might lead an Ethiopian schoolgirl to eat a wall of her house, piece by piece; or a pair of brothers to die beneath an avalanche of household junk that they had compulsively hoarded? At what point does a harmless idea, a snowflake in a clear summer sky, become a blinding blizzard of unwanted thoughts? Drawing on the latest research on the brain, as well as historical accounts of patients and their treatments, this is a book that will challenge the way you think about what is normal, and what is mental illness.Told with fierce clarity, humour and urgent lyricism, this extraordinary book is both the haunting story of a personal nightmare, and a fascinating doorway into the darkest corners of our minds.
In Shock: My Journey from Death to Recovery and the Redemptive Power of Hope
Rana Awdish - 2017
Rana Awdish never imagined that an emergency trip to the hospital would result in hemorrhaging nearly all of her blood volume and losing her unborn first child. But after her first visit, Dr. Awdish spent months fighting for her life, enduring consecutive major surgeries and experiencing multiple overlapping organ failures. At each step of the recovery process, Awdish was faced with something even more unexpected: repeated cavalier behavior from her fellow physicians—indifference following human loss, disregard for anguish and suffering, and an exacting emotional distance.Hauntingly perceptive and beautifully written, In Shock allows the reader to transform alongside Awidsh and watch what she discovers in our carefully-cultivated, yet often misguided, standard of care. Awdish comes to understand the fatal flaws in her profession and in her own past actions as a physician while achieving, through unflinching presence, a crystalline vision of a new and better possibility for us all.As Dr. Awdish finds herself up against the same self-protective partitions she was trained to construct as a medical student and physician, she artfully illuminates the dysfunction of disconnection. Shatteringly personal, and yet wholly universal, she offers a brave road map for anyone navigating illness while presenting physicians with a new paradigm and rationale for embracing the emotional bond between doctor and patient.
Autistic blessings and Bipolar me.: A Frank and Brutally Honest Diary of a Mother with Bipolar and Her Two Autistic Boys
E.J. Plows - 2015
Throughout the period between 2004 to 2009 myself Noah and Moses were all given a diagnosis of something life changing, but as a mother I refused to be labelled and judged by a medical condition. I am Emma Plows; I am not Emma Plows with Bipolar. It’s my understanding that when you discover your child is on the autistic spectrum you really need to accept the diagnosis. Accept it, let it grow and don’t hinder its development. Autistic people cannot understand how the world works like we can and have difficulty understanding how people think, but we can. We have that capacity to understand them, if we choose too we should take advantage of that capacity. If we don’t accept that our children are autistic, then we are only condemning ourselves and our children to a life of frustrating misery. Work with it, not against it, it doesn’t matter why they behave the way they do as we cannot change it, but we must find the beauty in the condition and all the positives it has to offer, if we try, it gets easier and can become very rewarding.
A Place for Everything
Anna Wilson - 2020
They knew to keep things clean, to stay quiet, and to look the other way when things started to get ‘a bit much for your mum’.It’s only when her mother reaches her 70s, and Anna has a family of her own, that the cracks really start to appear. More manic. More irrational. More detached from the world. And when her father, the man who has calmed and cajoled her mother through her entire life is diagnosed with cancer, the whole world turns upside down.This is a story of a life lived with undiagnosed Aspergers, about the person behind the disorder, those big unspoken family truths, and what it means to care for our parents in their final years.
Ten Things Every Child with Autism Wishes You Knew
Ellen Notbohm - 2005
Framed with both humor and compassion, the book defines the top ten characteristics that illuminate the minds and hearts of children with autism. Ellen's personal experiences as a parent, an autism columnist, and a contributor to numerous parenting magazines coalesce to create a guide for all who come in contact with a child on the autism spectrum. Don't buy just one of this book- buy one for everyone who interacts with your child! Give the gift of understanding. Helpful chapters include:My sensory perceptions are disordered Distinguish between won’t and can’t I am a concrete thinker. I interpret language literally Be patient with my limited vocabulary Because language is so difficult for me, I am very visually oriented Focus and build on what I can do rather than what I can’t do Help me with social interactions Identify what triggers my meltdowns
Autism By Hand
Lorca Damon - 2011
It feels as though I’m holding her hand as she dangles above certain death and the only thing that will keep her from falling is my ability to hang on. If I’m too weak and I let go, she’s gone. And she’s not able to do her part to help me. She’s looking at my struggling face and smiling, but the whole time I’m screaming at her to hold on, to climb up, to try to reach the branch above her. And she won’t, because she doesn’t know how. It’s up to me to save her."Autism By Hand is the laundry list I wrote for the first eight years of Carrie's life, from diagnosis to preschool to public school. It's about the brutal truth and the absolute love I use to help her navigate our world. It contains no research or theories but it's full of the tools I used to help Carrie live in my universe.
Asperger Syndrome and Long-Term Relationships
Ashley Stanford - 2002
She explains how behaviours that may have appeared odd - or even downright irritating - are the manifestation of AS, and shows how understanding can lead to greater tolerance, or to change. Stanford provides a wealth of strategies for living successfully with the more uncompromising aspects of AS, pointing out that AS also brings enormous strengths to a relationship, and emphasizing the value of understanding. Including many quotes from people in long-term AS relationships, the book describes many positive solutions that have worked for other couples.
Everyday Aspergers
Samantha Craft - 2016
A former schoolteacher and mother of three boys, Craft doesn't experience ordinary everyday happenings like most. In her vivid world, nothing is simple and everything appears pertinent. Even an average trip to the grocery store is a feat and cause for reflection. From being a dyslexic cheerleader with dysgraphia going the wrong direction, to bathroom stalking, to figuring out if she can wear that panty-free dress, Craft explores the profoundness of daily living through hilarious anecdotes and heartwarming childhood memories. When she's not laughing at the bizarreness of her days or reflecting back, then she's sharing the serious and relevant challenges of everyday living on the autism spectrum. Ten years in the making, Craft's revealing memoir brings Asperger's Syndrome into a spectrum of brilliant light-exposing the day-to-day interactions and complex inner workings of an autistic female from childhood to midlife.
Prognosis: A Memoir of My Brain
Sarah Vallance - 2019
The next morning, things take a sharp turn as she’s led from work to the emergency room. By the end of the week, a neurologist delivers a devastating prognosis: Sarah suffered a traumatic brain injury that has caused her IQ to plummet, with no hope of recovery. Her brain has irrevocably changed.Afraid of judgment and deemed no longer fit for work, Sarah isolates herself from the outside world. She spends months at home, with her dogs as her only source of companionship, battling a personality she no longer recognizes and her shock and rage over losing simple functions she’d taken for granted. Her life is consumed by fear and shame until a chance encounter gives Sarah hope that her brain can heal. That conversation lights a small flame of determination, and Sarah begins to push back, painstakingly reteaching herself to read and write, and eventually reentering the workforce and a new, if unpredictable, life.In this highly intimate account of devastation and renewal, Sarah pulls back the curtain on life with traumatic brain injury, an affliction where the wounds are invisible and the lasting effects are often misunderstood. Over years of frustrating setbacks and uncertain triumphs, Sarah comes to terms with her disability and finds love with a woman who helps her embrace a new, accepting sense of self.
A Real Boy: How Autism Shattered Our Lives and Made a Family from the Pieces
Christopher Stevens - 2008
He is unable to speak more than a few words, barely capable of expressing his most basic needs, oblivious to danger and blind to other people’s emotions. This is the heart-wrenching story of bringing up a child who will always be a little boy and an account of both the heartbreak and the unexpected joy of autism. With raw and sometimes brutal honesty, Christopher and Nicola Stevens lay bare their experiences, which are by turns harrowing, funny, and inspirational. As David’s story unfolds, his parents reveal how the condition has both tested their limits, and helped to forge an unbreakable bond of love.
The Lives They Left Behind: Suitcases from a State Hospital Attic
Darby Penney - 2008
It is a remarkable portrait, too, of the life of a psychiatric asylum--the sort of community in which, for better and for worse, hundreds of thousands of people lived out their lives.More than four hundred abandoned suitcases filled with patients’ belongings were found when Willard Psychiatric Center closed in 1995 after 125 years of operation. They are skillfully examined here and compared to the written record to create a moving—and devastating—group portrait of twentieth-century American psychiatric care.
Ido in Autismland: Climbing Out of Autism's Silent Prison
Ido Kedar - 2012
In his pithy essays, author Ido Kedar, a brilliant sixteen year old with autism, challenges what he believes are misconceptions in many theories that dominate autism treatment today while he simultaneously chronicles his personal growth in his struggles to overcome his limitations.Ido spent the first half of his life locked internally, in silence, trapped in a remedial educational system that presumed he lacked the most basic comprehension, and unable to show the world that he understood everything. But at the age of seven, Ido was finally able to show that he had an intact mind and could understand. This led to the quest to find a system of communication that he could use despite his impaired motor control. Through the use of a letter board, and now an iPad, Ido has triumphed communicatively, enabling him to flourish in a regular high school in all general education classes.But Ido has a larger goal. He does not want to be seen as an isolated autistic exception with miraculously advanced cognitive and communication abilities. He wants people to see that thousands of other severely autistic individuals have the same capacity, but remain trapped and locked-in, as he was, unable to show their true capacities. These individuals desperately need new theories and new methods to help them break free too. Of importance to neuro-researchers, educators, psychologists, doctors, parents, friends, family and people with autism, Ido in Autismland will change our collective understanding of severe autism.PRAISE FOR Ido in Autismland "There are doubtless many Idos in this world, unable to speak, yet possessing good intellectual ability and, most certainly, a rich emotional life. And yet, precisely because they cannot communicate, nonverbal individuals with autism are nearly always consigned to the junk heap of mental deficiency, branded as incapable of understanding language or even having feelings... We need to help change things for this terribly neglected group... Reading Ido's book is a good beginning." - Portia Iversen, Co-founder, Cure Autism Now and the Autism Genetic Resource Exchange Gene Bank. Author of Strange Son"Ido is a brilliant communicator. His words bring us inside the world of autism. His gift of writing enlightens, inspires, educates. Every person who loves or works with someone with autism - educator, therapist, karent, grandparent, neighbor - should read Ido in Autismland." - Elaine Hall, Author of Now I See the Moon, co-author of Seven Keys to Unlock Autism. Featured in Autism: The Musical"Ido's book touches any heart, not only because it is well written, but because it reveals a mind that has learned how to speak to the world through spelling every word on a letter board and keyboard. His book is indeed a great gift to the world. Thank you, Ido." - Soma Mukhopadhyay, Executive Director of Education, HALO, Author of Understanding Autism through Rapid Prompting Method