At Peace: Choosing a Good Death After a Long Life
Samuel Harrington - 2018
Most people say they would like to die quietly at home. But overly aggressive medical advice, coupled with an unrealistic sense of invincibility or overconfidence in our health-care system, results in the majority of elderly patients misguidedly dying in institutions. Many undergo painful procedures instead of having the better and more peaceful death they deserve.At Peace outlines specific active and passive steps that older patients and their health-care proxies can take to ensure loved ones live their last days comfortably at home and/or in hospice when further aggressive care is inappropriate. Through Dr. Samuel Harrington's own experience with the aging and deaths of his parents and of working with patients, he describes the terminal patterns of the six most common chronic diseases; how to recognize a terminal diagnosis even when the doctor is not clear about it; how to have the hard conversation about end-of-life wishes; how to minimize painful treatments; when to seek hospice care; and how to deal with dementia and other special issues. Informed by more than thirty years of clinical practice, Dr. Harrington came to understand that the American health-care system wasn't designed to treat the aging population with care and compassion. His work as a hospice trustee and later as a hospital trustee drove his passion for helping patients make appropriate end-of-life decisions.
Times Two
Kristen Henderson - 2011
Times Two is about two women meeting, falling madly in love, and realizing that they are so crazy about each other that they want to have a family together. The fact that they both get pregnant at the exact same time is where things start to get interesting. Sarah Kate Ellis, a high-powered magazine executive, and Kristen Henderson, a laid-back rock star, decide it’s time to start their family. After determining that Sarah should get pregnant first while Kristen works on her band’s new CD, they head to a fertility doctor to start the process. But after months of drug treatments, miscarriages, and heartbreak, Kristen decides to start trying, too. That’s when the utterly improbable happens: Sarah and Kristen find out that they are both pregnant—and are due three days apart. Overjoyed by the news that they are both expecting, Sarah and Kristen are also overwhelmed by all that lies ahead. Both have successful, demanding careers. Both have large, close-knit families nearby, including two strongly opinionated mothers who immediately want to be involved with everything. And both are completely clueless about the challenges they’re about to face. They soon realize that none of their previous accomplishments has prepared them for the highs and lows of impending motherhood: not Kristen’s stint touring with The Rolling Stones, nor Sarah’s march up the corporate ladder in the world of women’s magazines. They go through everything first-time parents-to-be experience—but twice over. They’re producing double the hormones, double the morning sickness, double the cravings, and have double the ups and downs. From the start, Sarah and Kristen think of their babies as twins, each woman carrying half of a set. But for two women who’ve always finished each other’s sentences, they suddenly find themselves on opposite ends of the mothers-to-be spectrum, with different opinions on almost everything. One wants a drug-free birth, while the other wants an epidural at the first sign of a contraction. One is dying to know the baby’s gender, but the other refuses to find out until she hears the baby’s first cry in the delivery room. The difficulties of having two pregnant women under the same roof are multiplied by the legal and social obstacles of being a gay couple. Told from Kristen and Sarah’s insightful and hilarious she said/she said perspective, this touching, modern family adventure will entertain, enlighten, and resonate with readers of all stripes.
Odes to Lithium
Shira Erlichman - 2019
With inventiveness, compassion, and humor, she thrusts us into a world of unconventional praise. From an unexpected encounter with her grandmother's ghost, to a bubble bath with Bjӧrk, to her plumber's confession that he, too, has Bipolar, Erlichman buoyantly topples stigma against the mentally ill. These are necessary odes to self-acceptance, resilience, and the jagged path toward healing. With startling language, and accompanied by her bold drawings and collages, she gives us a sparkling, original view into what makes us human.
Let's Talk About Death (over Dinner)
Michael Hebb - 2018
Yet few of these conversations are actually happening. Inspired by his experience with his own father and countless other stories from others who regret not having these conversations, Michael Hebb cofounded Death Over Dinner--an organization that encourages people to pull up a chair, break bread, and really talk about the one thing we all have in common. Death Over Dinner has been one of the most effective end-of-life awareness campaigns to date; in just three years, it has provided the framework and inspiration for more than a hundred thousand dinners focused on having these end-of-life conversations. As Arianna Huffington said, "We are such a fast-food culture, I love the idea of making the dinner last for hours. These are the conversations that will help us to evolve."Let's Talk About Death (over Dinner) offers keen practical advice on how to have these same conversations--not just at the dinner table, but anywhere. There's no one right way to talk about death, but Hebb shares time- and dinner- tested prompts to use as conversation starters, ranging from the spiritual to the practical, from analytical to downright funny and surprising. By transforming the most difficult conversations into an opportunity, they become celebratory and meaningful--ways that not only can change the way we die, but the way we live.
Shame Is an Ocean I Swim Across
Mary Lambert - 2018
In verse that deals with sexual assault, mental illness, and body acceptance, Ms. Lambert's Shame Is an Ocean I Swim Across emerges as an important new voice in poetry, providing strength and resilience even in the darkest of times.
Desert Sky
Ellie Green - 2021
The only downside? When the nearest neighbour is hundreds of kilometres away, it’s hard to date.Newly qualified teacher, Grace, can’t wait to start a life away the town where she’s only known for one thing. Travelling across the country to take a job as a governess is about as far as she can get.Grace and Ari are easy friends, spending their time riding horses, swimming in waterholes and watching their favourite movies late into the night.But Ari’s feelings begin to extend beyond friendship. Ari has a crush, no matter how much she tries to talk herself out of it. What she doesn’t know is Grace is harbouring feelings of her own. And in close confines, the attraction is becoming difficult to ignore.Their connection is strong, but if they want to build a relationship, they will need to move beyond the shadows of the past.Can they find a way to each other’s hearts?
Radical Acts of Love: How We Find Hope at the End of Life
Janie Brown - 2020
Each conversation uncovers a different perspective on, and experience of death, while at the same time exploring its universalities. Offering extremely sensitive and wise insight into our final moments, Brown shows practical ways to facilitate the shift from feeling helpless about death to feeling hopeful; from fear to acceptance; from feeling disconnected and alone, to becoming part of the wider, collective story of our mortality.As Janie Brown writes, "Most people now under sixty have never seen a person die, and so have become deeply fearful about death, their own and the deaths of their beloved others. They have had no role models to show them how to care for a dying person, and therefore no confidence in being able to do so. My hope is that the baby boomer cohort who pushed for the return of the midwives to de-medicalize birth will also be instrumental in reclaiming the death process. This book is my contribution to the re-empowerment of all of us to take charge of our lives and our deaths, remembering that we know how to die, just as we knew how to come into this world. We also know how to heal, and to settle our lives as best we can, before we die. In my view, this is the greatest gift we could give our loved ones: to be prepared and open and accepting when the time comes for us to leave this world."
I Will Survive
Leow Yangfa - 2011
Prefacing these stories are contributions from 5 local commentators who share their personal reflections on the gay, lesbian, bisexual and transgender communities in Singapore. They are: Mrs Juliana Toh, Executive Director of Counselling and Care Centre; Reverend Yap Kim Hao, former Methodist Bishop of Singapore; transgender activist Ms Leona Lo; and former Nominated Members of Parliament Ms Braema Mathi and Mr Siew Kum Hong. The book also contains a glossary of the common terms used to describe the diversity within the gay, lesbian, bisexual and transgender communities, and a listing of relevant community and professional resources in Singapore. The editor’s proceeds from sales of the ebook will be donated to Oogachaga, a counselling and support service.
Last Rights: Rescuing the End of Life from the Medical System
Stephen P. Kiernan - 2006
But in the past three decades, medical advances have extended our lives and changed the way we die. In "Last Rights," Stephen Kiernan reveals the disconnect between how patients want to live the end of life--pain free, functioning mentally and physically, surrounded by family and friends--and how the medical system continues to treat the dying--with extreme interventions, at immense cost, and with little regard to pain, human comforts, or even the stated wishes of patients and families. Backed with surveys, interviews, and intimate portraits of people from all walks of life, from the dying and their families to the doctors and nurses who care for them, this book will be for our time what Elizabeth Kubler-Ross's books were for a previous generation.
Extreme Measures: Finding a Better Path to the End of Life
Jessica Nutik Zitter - 2017
She elected to specialize in critical care--to become an ICU physician--and imagined herself swooping in to rescue patients from the brink of death. But then during her first code she found herself cracking the ribs of a patient so old and frail it was unimaginable he would ever come back to life. She began to question her choice. Extreme Measures charts Zitter's journey from wanting to be one kind of hero to becoming another--a doctor who prioritizes the patient's values and preferences in an environment where the default choice is the extreme use of technology. In our current medical culture, the old and the ill are put on what she terms the End-of-Life Conveyor belt. They are intubated, catheterized, and even shelved away in care facilities to suffer their final days alone, confused, and often in pain. In her work Zitter has learned what patients fear more than death itself: the prospect of dying badly. She builds bridges between patients and caregivers, formulates plans to allay patients' pain and anxiety, and enlists the support of loved ones so that life can end well, even beautifully.
I'm Just a Person
Tig Notaro - 2016
Hit with this devastating barrage, Tig took her grief onstage. Days after receiving her cancer diagnosis, she broke new comedic ground, opening an unvarnished set with the words, “Good evening. Hello. I have cancer. How are you? Hi, how are you? Is everybody having a good time? I have cancer.” Word of the set went viral instantly. This set was ultimately released as Tig’s sophomore album, Live, which sold 100,000 units in just six weeks and was nominated for a Grammy. Now, the wildly popular star takes stock of that no good, very bad year—a difficult yet astonishing period in which tragedy turned into absurdity and despair into joy. An inspired combination of the deadpan silliness of her comedy and the open-hearted vulnerability that has emerged in the wake of that dire time, Untitled is a moving and often hilarious look at this very brave, very funny woman’s journey through the darkness and her thrilling return.
Taking Turns: Stories from HIV/AIDS Care Unit 371
M.K. Czerwiec - 2017
Taking Turns pulls back the curtain on life in the ward.A shining example of excellence in the treatment and care of patients, Unit 371 was a community for thousands of patients and families affected by HIV and AIDS and the people who cared for them. This graphic novel combines Czerwiec’s memories with the oral histories of patients, family members, and staff. It depicts life and death in the ward, the ways the unit affected and informed those who passed through it, and how many look back on their time there today. Czerwiec joined Unit 371 at a pivotal time in the history of AIDS: deaths from the syndrome in the Midwest peaked in 1995 and then dropped drastically in the following years, with the release of antiretroviral protease inhibitors. This positive turn of events led to a decline in patient populations and, ultimately, to the closure of Unit 371. Czerwiec’s restrained, inviting drawing style and carefully considered narrative examine individual, institutional, and community responses to the AIDS epidemic—as well as the role that art can play in the grieving process.Deeply personal yet made up of many voices, this history of daily life in a unique AIDS care unit is an open, honest look at suffering, grief, and hope among a community of medical professionals and patients at the heart of the epidemic.
Chronicle of a Plague, Revisited: AIDS and Its Aftermath
Andrew Holleran - 2008
Chronicle of a Plague, Revisited features ten pieces never previously republished outside Christopher Street, as well as a new introduction keenly describing and evaluating a historical moment that still informs and defines today’s world-particularly its community of homosexuals, which, arguably, is still recovering from the devastation of AIDS.
A Life Worth Living: A Doctor's Reflections on Illness in a High-Tech Era
Robert Martensen - 2008
Even those of us who enjoy decades of good health are touched by it eventually, either in our own lives or in those of our loved ones. And when this happens, we grapple with serious and often confusing choices about how best to live with our afflictions. "" "A Life Worth Living "is a book for people facing these difficult decisions. Robert Martensen, a physician, historian, and ethicist, draws on decades of experience with patients and friends to explore the life cycle of serious illness, from diagnosis to end of life. He connects personal stories with reflections upon mortality, human agency, and the value of "cutting-edge" technology in caring for the critically ill. Timely questions emerge: To what extent should efforts to extend human life be made? What is the value of nontraditional medical treatment? How has the American health-care system affected treatment of the critically ill? And finally, what are our doctors responsibilities to us as patients, and where do those responsibilities end? Using poignant case studies, Martensen demonstrates how we and our loved ones can maintain dignity and resilience in the face of lifes most daunting circumstances.