Caring for the Dying: The Doula Approach to a Meaningful Death


Henry Fersko-Weiss - 2017
    It explores how the dying and their families can bring deep meaning and great comfort to the care given at the end of a life. Created by Henry Fersko-Weiss, the end-of-life doula model is adapted from the work of birth doulas and helps the dying to find meaning in their life, express that meaning in powerful and beautiful legacies, and plan for the final days. The approach calls for around-the-clock vigil care, so the dying person and their family have the emotional and spiritual support they need along with guidance on signs and symptoms of dying. It also covers the work of reprocessing a death with the family afterward and the early work of grieving.Emphasis is placed on the space around the dying person and encourages the use of touch, guided imagery, and ritual during the dying process. Throughout the book Fersko-Weiss tells amazing and encouraging stories of the people he has cared for, as well as stories that come from doulas he has trained and worked with over the years.What is unique about this book is the well-conceived and thorough approach it describes to working skillfully with the dying. The guidance provided can help a dying person, their family, and caregivers to transform the dying experience from one of fear and despair into one that is uplifting and even life affirming. You will see death in a new light and gain a different perspective on how to help the dying. It may even change the way you live your life right now.

A Beginner's Guide to the End: Practical Advice for Living Life and Facing Death


B.J. Miller - 2019
    “There is nothing wrong with you for dying,” hospice physician B.J. Miller and journalist and caregiver Shoshana Berger write in A Beginner’s Guide to the End. “Our ultimate purpose here isn’t so much to help you die as it is to free up as much life as possible until you do.” Theirs is a clear-eyed and big-hearted action plan for approaching the end of life, written to help readers feel more in control of an experience that so often seems anything but controllable. Their book offers everything from step-by-step instructions for how to do your paperwork and navigate the healthcare system to answers to questions you might be afraid to ask your doctor, like whether or not sex is still okay when you’re sick. Get advice for how to break the news to your employer, whether to share old secrets with your family, how to face friends who might not be as empathetic as you’d hoped, and how to talk to your children about your will. (Don’t worry: if anyone gets snippy, it’ll likely be their spouses, not them.) There are also lessons for survivors, like how to shut down a loved one’s social media accounts, clean out the house, and write a great eulogy. An honest, surprising, and detail-oriented guide to the most universal of all experiences, A Beginner’s Guide to the End is “a book that every family should have, the equivalent of Dr. Spock but for this other phase of life” (New York Times bestselling author Dr. Abraham Verghese).

The Art of Dying Well: A Practical Guide to a Good End of Life


Katy Butler - 2019
    Packed with extraordinarily helpful insights and inspiring true stories, award-winning journalist and prominent end-of-life speaker Katy Butler shows how to thrive in later life (even when coping with a chronic medical condition), how to get the best from our health system, and how to make your own “good death” more likely. This handbook of step by step preparations—practical, communal, physical, and sometimes spiritual—will help you make the most of your remaining time, be it decades, years, or months. Butler explains how to successfully age in place, why to pick a younger doctor and how to have an honest conversation with her, when not to call 911, and how to make your death a sacred rite of passage rather than a medical event. This down-to-earth manual for living, aging, and dying with meaning and even joy is based on Butler’s own experience caring for aging parents, as well as hundreds of interviews with people who have successfully navigated a fragmented health system and helped their loved ones have good deaths. It also draws on interviews with nationally recognized experts in family medicine, palliative care, geriatrics, oncology, hospice, and other medical specialties. Inspired by the medieval death manual Ars Moriendi, or the Art of Dying, The Art of Dying Well is the definitive update for our modern age, and illuminates the path to a better end of life.

Changing the Way We Die: Compassionate End of Life Care and The Hospice Movement


Fran Smith - 2013
    More than 1.5 million Americans a year die in hospice care—nearly 44 percent of all deaths—and a vast industry has sprung up to meet the growing demand. Once viewed as a New Age indulgence, hospice is now a $14 billion business and one of the most successful segments in health care. Changing the Way We Die, by award-winning journalists Fran Smith and Sheila Himmel, is the first book to take a broad, penetrating look at the hospice landscape.Changing the Way We Die is a vital resource for anyone who wants to be prepared to face life’s most challenging and universal event. You will learn:— Hospice use is soaring, yet most people come too late to get the full benefits.— With the age tsunami, it becomes even more critical for families and patients to choose end-of-life care wisely.— Hospice at its best is much more than a way to relieve the suffering of dying. It is a way to live.

Dying Well: Peace and Possibilities at the End of Life


Ira Byock - 1997
    Nobody should have to die alone. This is Ira Byock's dream, and he is dedicating his life to making it come true. Dying Well brings us to the homes and bedsides of families with whom Dr. Byock has worked, telling stories of love and reconciliation in the face of tragedy, pain, medical drama, and conflict. Through the true stories of patients, he shows us that a lot of important emotional work can be accomplished in the final months, weeks, and even days of life. It is a companion for families, showing them how to deal with doctors, how to talk to loved ones—and how to make the end of life as meaningful and enriching as the beginning.Ira Byock is also the author of The Best Care Possible: A Physician's Quest to Transform Care Through the End of Life.

Final Journeys: A Practical Guide for Bringing Care and Comfort at the End of Life


Maggie Callanan - 2007
    Now the coauthor of the classic bestseller Final Gifts passes along the lessons she has learned from the experts—her patients. Here is the guide we all need to understanding the special needs of the dying and those who care for them. In her work with thousands of families, Maggie Callanan has witnessed the tears, the love—and the confusion and conflict—this final passage can evoke. Now, with honesty, compassion, and even humor, she empowers patients and their families to write the last chapter of their lives with less fear, less pain, and more control—so that all involved can focus their energies on creating the best possible ending. From supporting a husband or wife faced with the loss of a spouse, to helping a dying mother prepare her children to carry on without her, Callanan’s poignant stories illustrate new ways to meet the physical, emotional, and spiritual challenges of this difficult and precious time. She brings welcome clarity to medical and ethical concerns, explaining what to expect at every stage. Each brief chapter also conveys a home truth about making crucial treatment decisions, supporting the patient’s dignity and individuality, and lightening the burden on caregivers. Final Journeys is designed to be your companion, resource, and advocate. From diagnosis through the final hours, it will help you keep the lines of communication open, get the help you need, and create the peaceful end we all hope for.From the Hardcover edition.

Cruise Control: Understanding Sex Addiction in Gay Men


Robert Weiss - 2005
    A timely and important contribution to the body of recovery literature, Cruise Control provides understanding, empathy and encouragement to gay men seeking healthy sexual expression.

Nature's Domain: Anne Lister and the Landscape of Desire


Jill Liddington - 2003
    Betrayed once again by another woman’s marriage plans, she knew her romantic youth was over. So many of her female friends had married and settled. Anne cast around forlornly for the life-companion she had so long sought. She held melancholy spirits at bay by reading new geology and new gardening books in Shibden’s well-stocked library.
 Then a chance re-acquaintance with neighbouring heiress Ann Walker changed all that. Anne Lister is best known to us as a lesbian diarist. Nature’s Domain tracks her intense courtship of Ann Walker, vividly and candidly recorded in Anne’s daily journals - and partly written in her own secret code. This influential Anne Lister book also documents how she began redesigning the Shibden landscape and playing a powerful new role in the local political tumult after the passing of the great Reform Bill. This dramatic story, hitherto unknown and never before unpublished, unfolds to New Year’s Eve 1832. It records how Anne Lister’s indomitable will enabled her to mould nature to her own powerful desires. “Nature’s Domain gives a compelling overview of a key time in Anne Lister’s remarkable life. Jill Liddington guides us knowledgeably through the diaries of 1832, offering crucial insight into Anne’s private and candour observations about love, sex, money and politics.” Laura Johansen, Cultural Destinations Manager, Halifax. Jill Liddington is co-author of One Hand Tied Behind Us (1978) which became a suffrage classic. She is author of Presenting the Past: Anne Lister of Halifax 1791-1840 (1994) and of Female Fortune: the Anne Lister diaries 1833-36 (1998). She is an Honorary Research Fellow at the University of Leeds, and lives in Mytholmroyd near Halifax. Sally Wainwright’s BBC1 drama series, Gentleman Jack was inspired by Female Fortune and Nature’s Domain

Tintinalli's Emergency Medicine: A Comprehensive Study Guide


Judith E. Tintinalli - 1978
    It is more concise and easier to read than some, yet it covers the breadth of emergency medicine practice more comprehensively than others. The bottom line is that I like this book. Just as previous editions did, the seventh presents all of the most pertinent and up-to-date information in a well-organized format that is comprehensive yet easy to read. That and many of the attractive new features in this current edition will ensure its place on my bookshelf for years to come."--JAMAWith 418 contributors representing over 120 medical centers around the world, Tintinalli’s Emergency Medicine is the most practical and clinically rigorous reference of its kind. It covers everything from prehospital care, disaster preparedness, and basic resuscitative techniques, to all the major diseases requiring emergency treatment, such as pulmonary emergencies, renal and GU disorders, and hemophilia. This authoritative, in-depth coverage makes this classic text indispensible not only in emergency departments, but also for residents and practitioners when studying or preparing for any exam they may face.While continuing to provide the most current information for acute conditions, the Seventh Edition of Tintinalli’s Emergency Medicine has been substantially revised and updated to cover all of the conditions for which patients seek emergency department care in a concise and easy-to-read-manner.NEW Features• Full-color design with more figures and tables than ever• Reader-friendly chapter presentation makes it easy to find important material.• Updated tables covering drugs and important clinical information• Patient safety considerations and injury prevention are integrated into chapters, as appropriate• Total revision of the dermatology section enables diagnosis by lesion description and body area affected, and provides current treatment• Organ systems sections reorganized to reflect considerations for actual clinical practice.• New chapters: New adult chapters include Natural Disasters, Aneurysms of the Aorta and Major Arteries; Hip and Knee Pain, Aortic Dissection; Acute Urinary Retention; Subarachnoid Hemorrhage and Intracranial Bleeding; Clotting Disorders; Community –acquired Pneumonia and Noninfectious Pulmonary Infiltrates; Type I Diabetes; Type II Diabetes; Anemia; Tests of Hemostasis; Clotting Disorders; Head Injury in Adults and Children; the Transplant Patient; Grief, Death and Dying; and Legal Issues in Emergency Medicine. Twelve new pediatric chapters including The Diabetic Child, Hematologic-Oncologic Emergencies, Ear and Mastoids, Eye Problems in Infants and Children, Neck Masses, GI Bleeding, Nose and Sinuses, Urologic and Gynecologic Procedures in children, Renal emergencies in children, Behavioral and Psychiatric Disorders in children, Pediatric Procedures, Pediatric ECG Interpretation• Greater coverage of procedures throughout for the most common conditions seen in the emergency department.• Companion DVD features an additional 17 chapters, such as Hyperbaric Oxygen Therapy, Principles of Imaging, Prison Medicine, Military Medicine, The Violent Patient, Forensics, Wound Ballistics, and Drug Interactions.• Companion DVD also features videos and animations for teaching and learning performance of important procedures, especially Ultrasound-Guided Procedures

The Conversation: A Revolutionary Plan for End-of-Life Care


Angelo E. Volandes - 2015
    Two thirds of Americans die in healthcare institutions tethered to machines and tubes at bankrupting costs, even though research shows that most prefer to die at home in comfort, surrounded by loved ones.Dr. Angelo E. Volandes believes that a life well lived deserves a good ending. Through the stories of seven patients and seven very different end-of-life experiences, he demonstrates that what people with a serious illness, who are approaching the end of their lives, need most is not new technologies but one simple thing: The Conversation. He argues for a radical re-envisioning of the patient-doctor relationship and offers ways for patients and their families to talk about this difficult issue to ensure that patients will be at the center and in charge of their medical care.It might be the most important conversation you ever have.

Being with Dying: Cultivating Compassion and Fearlessness in the Presence of Death


Joan Halifax - 1997
    Inspired by traditional Buddhist teachings, her work is a source of wisdom for all those who are charged with a dying person's care, who are facing their own death, or who are wishing to explore and contemplate the transformative power of the dying process. Halifax offers lessons from dying people and caregivers, as well as guided meditations to help readers contemplate death without fear, develop a commitment to helping others, and transform suffering and resistance into courage. She says, "Why wait until we are actually dying to explore what it may mean to die with awareness?" A world-renowned pioneer in care of the dying, Joan Halifax founded the Project on Being with Dying, which helps dying people to face death with courage and trains professional and family caregivers in compassionate and ethical end-of-life care.

All the Young Men


Ruth Coker Burks - 2020
    She witnesses nurses drawing straws to see who would tend to the patient inside, all of them reluctant to enter the room. Out of impulse, Ruth herself enters the quarantined space and immediately begins to care for the young man who cries for his mother in the last moments of his life. Before she can even process what she's done, word spreads in the community that Ruth is the only person willing to help these young men afflicted by AIDS, and is called upon to nurse them. As she forges deep friendships with the men she helps, she works tirelessly to find them housing and jobs, even searching for funeral homes willing to take their bodies - often in the middle of the night. She cooks meals for tens of people out of discarded food found in the dumpsters behind supermarkets, stores rare medications for her most urgent patients, teaches sex-ed to drag queens after hours at secret bars, and becomes a beacon of hope to an otherwise spurned group of ailing gay men on the fringes of a deeply conservative state.Throughout the years, Ruth defies local pastors and nurses to help the men she cares for: Paul and Billy, Angel, Chip, Todd and Luke. Emboldened by the weight of their collective pain, she fervently advocates for their safety and visibility, ultimately advising Governor Bill Clinton on the national HIV-AIDS crisis.This deeply moving and elegiac memoir honors the extraordinary life of Ruth Coker Burks and the beloved men who fought valiantly for their lives with AIDS during a most hostile and misinformed time in America.

Love & Other Carnivorous Plants


Florence Gonsalves - 2018
    She's failing pre-med and drifting apart from her best friend. One by one, Danny is losing all the underpinnings of her identity. When she finds herself attracted to an older, edgy girl who she met in rehab for an eating disorder, she finally feels like she might be finding a new sense of self. But when tragedy strikes, her self-destructive tendencies come back to haunt her as she struggles to discover who that self really is.

Just Add Hormones: An Insider's Guide to the Transsexual Experience


Matt Kailey - 2005
    Though happy as a social worker and teacher, he knew something wasn't right. Then he made some changes. With the help of a good therapist, chest surgery, and some strong doses of testosterone, Kailey began his journey toward becoming a man. As his body morphed and his voice dropped, Kailey began noticing subtle shifts in the way he was treated. Men suddenly stopped offering to change flat tires for him but insisted on talking to him about women and bodily functions. Women got nervous when he baby-talked to their infants but routinely asked him to move heavy things around the office. In these everyday exchanges, Kailey recognized the many ways we define what it means to be male. He also realized that, with few role models, he had to learn to accept himself as a person between two genders.As he writes about his transition from female to male, Kailey answers all the questions you've ever had about what it's like to live as a transsexual. From the fear of public restrooms to deciding whether to "pack" his pants, Kailey explains what the world looks like from his new vantage point-a position more people are discovering as gender transitions become increasingly common. More than a memoir, Just Add Hormones is full of sound advice for those who may be questioning their gender. And through his story, Kailey offers valuable insights to the families and friends of those who have started a transition. Funny, fresh, and incredibly candid, Just Add Hormones can help us all consider-and even laugh at-our own notions of what it means to be a man or a woman.

With the End in Mind: Dying, Death, and Wisdom in an Age of Denial


Kathryn Mannix - 2017
    Kathryn Mannix has studied and practiced palliative care for thirty years. In With the End in Mind , she shares beautifully crafted stories from a lifetime of caring for the dying, and makes a case for the therapeutic power of approaching death not with trepidation, but with openness, clarity, and understanding. Weaving the details of her own experiences as a caregiver through stories of her patients, their families, and their distinctive lives, Dr. Mannix discusses the universal, but deeply personal, process of dying. With meditations on life, death, and the space between them, With the End in Mind describes the possibility of meeting death gently, with forethought and preparation, and shows the unexpected beauty, dignity, and profound humanity of life coming to an end.