The Edge of Every Day: Sketches of Schizophrenia


Marin Sardy - 2019
    Composed of exquisite, self-contained chapters that, cumulatively, take us through three generations of this adventurous, artistic, and often haunted family, The Edge of Every Day is an inquiry into our assumptions about how the mind can and should work—and a referendum on the treatment of the mentally ill in our society. As she explores the contours of cognition, Sardy also pushes the boundaries of her prose: one chapter is composed of quotes from family members talking about her mother. Another leads us through "loops" of past memory and current experience as she and her husband begin to merge their lives together.

The Lives They Left Behind: Suitcases from a State Hospital Attic


Darby Penney - 2008
     It is a remarkable portrait, too, of the life of a psychiatric asylum--the sort of community in which, for better and for worse, hundreds of thousands of people lived out their lives.More than four hundred abandoned suitcases filled with patients’ belongings were found when Willard Psychiatric Center closed in 1995 after 125 years of operation. They are skillfully examined here and compared to the written record to create a moving—and devastating—group portrait of twentieth-century American psychiatric care.

Never Enough: The Neuroscience and Experience of Addiction


Judith Grisel - 2019
    With more than one in every five people over the age of fourteen addicted, drug abuse has been called the most formidable health problem worldwide. If we are not victims ourselves, we all know someone struggling with the merciless compulsion to alter their experience by changing how their brain functions.Drawing on years of research--as well as personal experience as a recovered addict--researcher and professor Judy Grisel has reached a fundamental conclusion: for the addict, there will never be enough drugs. The brain's capacity to learn and adapt is seemingly infinite, allowing it to counteract any regular disruption, including that caused by drugs. What begins as a normal state punctuated by periods of being high transforms over time into a state of desperate craving that is only temporarily subdued by a fix, explaining why addicts are unable to live either with or without their drug. One by one, Grisel shows how different drugs act on the brain, the kind of experiential effects they generate, and the specific reasons why each is so hard to kick.Grisel's insights lead to a better understanding of the brain's critical contributions to addictive behavior, and will help inform a more rational, coherent, and compassionate response to the epidemic in our homes and communities.

Names for the Sea: Strangers in Iceland


Sarah Moss - 2012
    In 2009, she saw an advertisement for a job at the University of Iceland and applied on a whim, despite having two young children and a comfortable life in an English cathedral city. The resulting adventure was shaped by Iceland's economic collapse, which halved the value of her salary, by the eruption of Eyjafjallajökull and by a collection of new friends, including a poet who saw the only bombs fall on Iceland in 1943, a woman who speaks to elves and a chef who guided Sarah's family around the intricacies of Icelandic cuisine.Sarah was drawn to the strangeness of Icelandic landscape, and explored hillsides of boiling mud, volcanic craters and fissures, and the unsurfaced roads that link remote farms and fishing villages in the far north. She walked the coast path every night after her children were in bed, watching the northern lights and the comings and goings of migratory birds. As the weeks and months went by, the children settled in local schools and Sarah got to know her students and colleagues, she and her family learned new ways to live.

Between Two Kingdoms: A Memoir of a Life Interrupted


Suleika Jaouad - 2021
    She had fallen in love and moved to Paris to pursue her dream of becoming a war correspondent. The real world she found, however, would take her into a very different kind of conflict zone.It started with an itch—first on her feet, then up her legs, like a thousand invisible mosquito bites. Next came the exhaustion, and the six-hour naps that only deepened her fatigue. Then a trip to the doctor and, a few weeks shy of her twenty-third birthday, a diagnosis: leukemia, with a 35 percent chance of survival. Just like that, the life she had imagined for herself had gone up in flames. By the time Jaouad flew home to New York, she had lost her job, her apartment, and her independence. She would spend much of the next four years in a hospital bed, fighting for her life and chronicling the saga in a column for The New York Times.When Jaouad finally walked out of the cancer ward—after three and a half years of chemo, a clinical trial, and a bone marrow transplant—she was, according to the doctors, cured. But as she would soon learn, a cure is not where the work of healing ends; it’s where it begins. She had spent the past 1,500 days in desperate pursuit of one goal—to survive. And now that she’d done so, she realized that she had no idea how to live.How would she reenter the world and live again? How could she reclaim what had been lost? Jaouad embarked—with her new best friend, Oscar, a scruffy terrier mutt—on a 100-day, 15,000-mile road trip across the country. She set out to meet some of the strangers who had written to her during her years in the hospital: a teenage girl in Florida also recovering from cancer; a teacher in California grieving the death of her son; a death-row inmate in Texas who’d spent his own years confined to a room. What she learned on this trip is that the divide between sick and well is porous, that the vast majority of us will travel back and forth between these realms throughout our lives. Between Two Kingdoms is a profound chronicle of survivorship and a fierce, tender, and inspiring exploration of what it means to begin again.

Sitting Pretty: The View from My Ordinary Resilient Disabled Body


Rebekah Taussig - 2020
    None of this felt right; and as she got older, she longed for more stories that allowed disability to be complex and ordinary, uncomfortable and fine, painful and fulfilling.Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life.Disability affects all of us, directly or indirectly, at one point or another. By exploring this truth in poignant and lyrical essays, Taussig illustrates the need for more stories and more voices to understand the diversity of humanity. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write an entirely different story.

Mozart and the Whale: An Asperger's Love Story


Jerry Newport - 2007
    A musical genius and a mathematical wonder, the two shared astronomical IQs, but they also shared something else -- they both were diagnosed with Asperger's syndrome, a form of autism that affects millions of Americans and makes social contact painfully unbearable. Finding each other after a lifetime of loneliness was a miracle. When Jerry and Mary married, they were catapulted into the limelight. They appeared on 60 Minutes and soon were known as "superstars in the world of autism," shining examples of two people who refused to give up in the face of their mutual challenges.But just when it appeared that their lives would enjoy a fairy-tale ending, their marriage fell apart. The Hollywood feeding frenzy was too much to handle, and they divorced. After years of heartache, soul searching, and personal growth, Jerry and Mary remarried. Today, with their union stronger than ever, they have dedicated themselves to helping countless other people with Asperger's and autism lead lives of dignity. Mozart and the Whale is an unforgettable love story, the incredible chronicle of their journey together -- and apart.

This Close to Happy: A Reckoning with Depression


Daphne Merkin - 2017
    She recounts the travails of growing up in a large, affluent family where there was a paucity of love and of basics such as food and clothing despite the presence of a chauffeur and a cook. She goes on to recount her early hospitalization for depression in poignant detail, as well as her complex relationship with her mercurial, withholding mother.Along the way Merkin also discusses her early, redemptive love of reading and gradual emergence as a writer. She eventually marries, has a child, and suffers severe postpartum depression, for which she is again hospitalized. Merkin also discusses her visits to various therapists and psychopharmocologists, which enables her to probe the causes of depression and its various treatments. The book ends in the present, where the writer has learned how to navigate her depression, if not “cure” it, after a third hospitalization in the wake of her mother’s death.

The Immortal Life of Henrietta Lacks


Rebecca Skloot - 2010
    She was a poor Southern tobacco farmer who worked the same land as her enslaved ancestors, yet her cells—taken without her knowledge—became one of the most important tools in medicine. The first “immortal” human cells grown in culture, they are still alive today, though she has been dead for more than sixty years. If you could pile all HeLa cells ever grown onto a scale, they’d weigh more than 50 million metric tons—as much as a hundred Empire State Buildings. HeLa cells were vital for developing the polio vaccine; uncovered secrets of cancer, viruses, and the atom bomb’s effects; helped lead to important advances like in vitro fertilization, cloning, and gene mapping; and have been bought and sold by the billions.Yet Henrietta Lacks remains virtually unknown, buried in an unmarked grave.Now Rebecca Skloot takes us on an extraordinary journey, from the “colored” ward of Johns Hopkins Hospital in the 1950s to stark white laboratories with freezers full of HeLa cells; from Henrietta’s small, dying hometown of Clover, Virginia — a land of wooden quarters for enslaved people, faith healings, and voodoo — to East Baltimore today, where her children and grandchildren live and struggle with the legacy of her cells.Henrietta’s family did not learn of her “immortality” until more than twenty years after her death, when scientists investigating HeLa began using her husband and children in research without informed consent. And though the cells had launched a multimillion-dollar industry that sells human biological materials, her family never saw any of the profits. As Rebecca Skloot so brilliantly shows, the story of the Lacks family — past and present — is inextricably connected to the history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we are made of.Over the decade it took to uncover this story, Rebecca became enmeshed in the lives of the Lacks family—especially Henrietta’s daughter Deborah, who was devastated to learn about her mother’s cells. She was consumed with questions: Had scientists cloned her mother? Did it hurt her when researchers infected her cells with viruses and shot them into space? What happened to her sister, Elsie, who died in a mental institution at the age of fifteen? And if her mother was so important to medicine, why couldn’t her children afford health insurance?Intimate in feeling, astonishing in scope, and impossible to put down, The Immortal Life of Henrietta Lacks captures the beauty and drama of scientific discovery, as well as its human consequences.

Ask Me Why I Hurt: The Kids Nobody Wants and the Doctor Who Heals Them


Randy Christensen - 2011
    Randy Christensen. Trained as a pediatrician, he works not in a typical hospital setting but, rather, in a 38-foot Winnebago that has been refitted as a doctor’s office on wheels. His patients are the city’s homeless adolescents and children. In the shadow of one affluent American city, Dr. Christensen has dedicated his life to caring for society's throwaway kids—the often-abused, unloved children who live on the streets without access to proper health care, all the while fending off constant threats from thugs, gangs, pimps, and other predators. With the Winnebago as his moveable medical center, Christensen and his team travel around the outskirts of Phoenix, attending to the children and teens who need him most. With tenderness and humor, Dr. Christensen chronicles everything from the struggles of the van’s early beginnings, to the support system it became for the kids, and the ultimate recognition it has achieved over the years. Along with his immense professional challenges, he also describes the trials and joys he faces while raising a growing family with his wife Amy. By turns poignant, heartbreaking, and charming, Dr. Christensen's story is a gripping and rich memoir of his work and family, one of those rare books that stays with you long after you’ve turned the last page.

The Broken Cord


Michael Dorris - 1989
    Winner of the 1989 National Book Critics Circle Award.

Better: A Surgeon's Notes on Performance


Atul Gawande - 2007
    But nowhere is this drive to do better more important than in medicine, where lives are on the line with every decision. In his new book, Atul Gawande explores how doctors strive to close the gap between best intentions and best performance in the face of obstacles that sometimes seem insurmountable. Gawande's gripping stories of diligence, ingenuity, and what it means to do right by people take us to battlefield surgical tents in Iraq, to labor and delivery rooms in Boston, to a polio outbreak in India, and to malpractice courtrooms around the country. He discusses the ethical dilemmas of doctors participation in lethal injections, examines the influence of money on modern medicine, and recounts the astoundingly contentious history of hand washing. And as in all his writing, Gawande gives us an inside look at his own life as a practicing surgeon, offering a searingly honest firsthand account of work in a field where mistakes are both unavoidable and unthinkable. At once unflinching and compassionate, Better is an exhilarating journey narrated by arguably the best nonfiction doctor-writer around (Salon). Gawande's investigation into medical professionals and how they progress from merely good to great provides rare insight into the elements of success, illuminating every area of human endeavor.

Group: How One Therapist and a Circle of Strangers Saved My Life


Christie Tate - 2020
    Why then was she driving through Chicago fantasizing about her own death? Why was she envisioning putting an end to the isolation and sadness that still plagued her in spite of her achievements?Enter Dr. Rosen, a therapist who calmly assures her that if she joins one of his psychotherapy groups, he can transform her life. All she has to do is show up and be honest. About everything—her eating habits, childhood, sexual history, etc. Christie is skeptical, insisting that that she is defective, beyond cure. But Dr. Rosen issues a nine-word prescription that will change everything: “You don’t need a cure, you need a witness.So begins her entry into the strange, terrifying, and ultimately life-changing world of group therapy. Christie is initially put off by Dr. Rosen’s outlandish directives, but as her defenses break down and she comes to trust Dr. Rosen and to depend on the sessions and the prescribed nightly phone calls with various group members, she begins to understand what it means to connect.Group is a deliciously addictive read, and with Christie as our guide—skeptical of her own capacity for connection and intimacy, but hopeful in spite of herself—we are given a front row seat to the daring, exhilarating, painful, and hilarious journey that is group therapy—an under-explored process that breaks you down, and then reassembles you so that all the pieces finally fit.

What Color is Monday? How Autism Changed One Family for the Better


Carrie Cariello - 2013
    “What?” I said distractedly, turning from the oven to slice some potatoes at the counter. It was late afternoon, and I was preparing dinner while also managing the demands of homework and tired toddlers. “Do you see days as colors?”Raising five children would be challenge enough for most parents, but when one of them has been diagnosed with Autism Spectrum Disorder, the adventures become even more fascinating. In this moving--and often funny--memoir, author Carrie Cariello invites us to take a peek into exactly what it takes to get through each day with four boys and one girl, and shows us the beauty and wonder of a child who views the world through a different lens.

Daniel Isn't Talking


Marti Leimbach - 2006
    What sets it apart from most fiction about difficult subjects such as autism, is the author's ability to write about a sad and frightening situation with a seamless blend of warmth, compassion and humor.Marti Leimbach's first novel, Dying Young, was called "a masterpiece of details that always ring true, with the sad, funny and fascinating unpredictability of real life." With the same talent and perception, Leimbach's new novel takes the reader to London, to the home of the Marshes: Stephen Marsh, a true Brit; Melanie, a transplanted American; and their two children, four-year-old Emily and Daniel, just three. When it is conveyed that Daniel is autistic, the orderly life of the Marsh family is shattered.Melanie is determined to fight to teach Daniel to speak, play and become as "normal" as possible. Her enchanting disposition has already helped her weather other of life's storms, but Daniel's autism may just push her over the brink, destroying her resolute optimism and bringing her unsteady marriage to an inglorious end. The situation is not helped by Stephen's far-from-supportive parents, who proudly display the family tree with Melanie's name barely penciled in, and who remain disconcertingly attached to Stephen's ex-fiancée, a woman apparently intent on restaking her claim on Stephen. Melanie does have one strong ally in Andy, a talented and off-the-wall play therapist who specializes in teaching autistic children. Andy proves that Daniel is far more capable than anyone imagined, and Melanie finds herself drawn to him even as she staggers toward resolving her marriage.Daniel Isn't Talking is a moving, deeply absorbing story of a family in crisis. What sets it apart from most fiction about difficult subjects is the author's ability to write about a sad and frightening situation with a seamless blend of warmth, compassion and humor.