Book picks similar to
Affirming Disability: Strengths-Based Portraits of Culturally Diverse Families by Janet Story Sauer
social-sciences
sped
counseling
disability
Haldol and Hyacinths: A Bipolar Life
Melody Moezzi - 2013
When at eighteen, she began battling a severe physical illness, her community stepped up, filling her hospital rooms with roses, lilies, and hyacinths. But when she attempted suicide and was diagnosed with bipolar disorder, there were no flowers. Despite several stays in psychiatric hospitals, bombarded with tranquilizers, mood-stabilizers, and antipsychotics, she was encouraged to keep her illness a secret—by both her family and an increasingly callous and indifferent medical establishment. Refusing to be ashamed, Moezzi became an outspoken advocate, determined to fight the stigma surrounding mental illness and reclaim her life along the way.Both an irreverent memoir and a rousing call to action, Haldol and Hyacinths is the moving story of a woman who refused to become torn across cultural and social lines. Moezzi reports from the front lines of the no-man’s land between sickness and sanity, and the Midwest and the Middle East. A powerful, funny, and poignant narrative told through a unique and fascinating cultural lens, Haldol and Hyacinths is a tribute to the healing power of hope, humor, and acceptance.
Moving Violations: War Zones, Wheelchairs, and Declarations of Independence
John Hockenberry - 1995
It is a story of obstacles--physical, emotional, and psychic--overcome again, and again, and again. Whether riding a mule up a hillside in Iraq surrounded by mud-stained Kurdish refugees, navigating his wheelchair through intractable stretches of Middle Eastern sand, or auditioning to be the first journalist in space, John Hockenberry, ace reporter, is determined not only to bring back the story, but also to prove that nothing can hold him back from death-defying exploits. However, he will never be a poster boy for a Jerry Lewis telethon. A paraplegic since an auto accident at age nineteen, Hockenberry holds nothing back in this achingly honest, often hilarious chronicle that ranges from the Ayatollah's funeral (where his wheelchair is pushed by a friendly Iranian chanting "Death to all Americans"), to the problems of crip sex and the inaccessibility of the New York City subway system. In this immensely moving chronicle--so filled with marvelous storytelling that it reads like a novel--John Hockenberry finds that the most difficult journey is the one that begins at home, as he confronts the memories of his beloved one-armed grandfather, and finally meets his institutionalized Uncle Peter, whose very existence was long a secret buried in the family history.Moving Violations is a sometimes harrowing but ultimately joyful ride.
Crazy Like Us: The Globalization of the American Psyche
Ethan Watters - 2009
But is it possible America's most troubling impact on the globalizing world has yet to be accounted for? In "Crazy Like Us," Ethan Watters reveals that the most devastating consequence of the spread of American culture has not been our golden arches or our bomb craters but our bulldozing of the human psyche itself: We are in the process of homogenizing the way the world goes mad. America has been the world leader in generating new mental health treatments and modern theories of the human psyche. We export our psychopharmaceuticals packaged with the certainty that our biomedical knowledge will relieve the suffering and stigma of mental illness. We categorize disorders, thereby defining mental illness and health, and then parade these seemingly scientific certainties in front of the world. The blowback from these efforts is just now coming to light: It turns out that we have not only been changing the way the world talks about and treats mental illness -- we have been changing the mental illnesses themselves.For millennia, local beliefs in different cultures have shaped the experience of mental illness into endless varieties." Crazy Like Us" documents how American interventions have discounted and worked to change those indigenous beliefs, often at a dizzying rate. Over the last decades, mental illnesses popularized in America have been spreading across the globe with the speed of contagious diseases. Watters travels from China to Tanzania to bring home the unsettling conclusion that the virus is us: As we introduce Americanized ways of treating mental illnesses, we are in fact spreading the diseases.In post-tsunami Sri Lanka, Watters reports on the Western trauma counselors who, in their rush to help, inadvertently trampled local expressions of grief, suffering, and healing. In Hong Kong, he retraces the last steps of the teenager whose death sparked an epidemic of the American version of anorexia nervosa. Watters reveals the truth about a multi-million-dollar campaign by one of the world's biggest drug companies to change the Japanese experience of depression -- literally marketing the disease along with the drug.But this book is not just about the damage we've caused in faraway places. Looking at our impact on the psyches of people in other cultures is a gut check, a way of forcing ourselves to take a fresh look at our own beliefs about mental health and healing. When we examine our assumptions from a farther shore, we begin to understand how our own culture constantly shapes and sometimes creates the mental illnesses of our time. By setting aside our role as the world's therapist, we may come to accept that we have as much to learn from other cultures' beliefs about the mind as we have to teach.
About Us: Essays from the Disability Series of the New York Times
Peter Catapano - 2019
Speaking not only to those with disabilities, but also to their families, coworkers and support networks, the authors in About Us offer intimate stories of how they navigate a world not built for them.Since its 2016 debut, the popular New York Times’ “Disability” column has transformed the national dialogue around disability. Now, echoing the refrain of the disability rights movement, “Nothing about us without us,” this landmark collection gathers the most powerful essays from the series that speak to the fullness of human experience—stories about first romance, childhood shame and isolation, segregation, professional ambition, child-bearing and parenting, aging and beyond.Reflecting on the fraught conversations around disability—from the friend who says “I don’t think of you as disabled,” to the father who scolds his child with attention differences, “Stop it stop it stop it what is wrong with you?”—the stories here reveal the range of responses, and the variety of consequences, to being labeled as “disabled” by the broader public.Here, a writer recounts her path through medical school as a wheelchair user—forging a unique bridge between patients with disabilities and their physicians. An acclaimed artist with spina bifida discusses her art practice as one that invites us to “stretch ourselves toward a world where all bodies are exquisite.” With these notes of triumph, these stories also offer honest portrayals of frustration over access to medical care, the burden of social stigma and the nearly constant need to self-advocate in the public realm.In its final sections, About Us turns to the questions of love, family and joy to show how it is possible to revel in life as a person with disabilities. Subverting the pervasive belief that disability results in relentless suffering and isolation, a quadriplegic writer reveals how she rediscovered intimacy without touch, and a mother with a chronic illness shares what her condition has taught her young children.With a foreword by Andrew Solomon and introductory comments by co-editors Peter Catapano and Rosemarie Garland-Thomson, About Us is a landmark publication of the disability movement for readers of all backgrounds, forms and abilities.Topics Include: Becoming Disabled • Mental Illness is not a Horror Show • Disability and the Right to Choose • Brain Injury and the Civil Right We Don’t Think • The Deaf Body in Public Space • The Everyday Anxiety of the Stutterer • I Use a Wheelchair. And Yes, I’m Your Doctor • A Symbol for “Nobody” That’s Really for Everybody • Flying While Blind • My $1,000 Anxiety Attack • A Girlfriend of My Own • The Three-Legged Dog Who Carried Me • Passing My Disability On to My Children • I Have Diabetes. Am I to Blame? • Learning to Sing Again • A Disabled Life is a Life Worth Living
Six Months to Live: The Dawn Rochelle Series, Book One (Lurlene McDaniel Books: 1)
Lurlene N. McDaniel - 2010
Dawn Rochelle is about to face the toughest fight of her life—a fight she has to win. Otherwise, she has only six months to live.
Brilliant Imperfection: Grappling with Cure
Eli Clare - 2017
It saves lives, manipulates lives, and prioritizes some lives over others. It provides comfort, makes profits, justifies violence, and promises resolution to body-mind loss. Clare grapples with this knot of contradictions, maintaining that neither an anti-cure politics nor a pro-cure worldview can account for the messy, complex relationships we have with our body-minds.The stories he tells range widely, stretching from disability stereotypes to weight loss surgery, gender transition to skin lightening creams. At each turn, Clare weaves race, disability, sexuality, class, and gender together, insisting on the nonnegotiable value of body-mind difference. Into this mix, he adds environmental politics, thinking about ecosystem loss and restoration as a way of delving more deeply into cure.Ultimately Brilliant Imperfection reveals cure to be an ideology grounded in the twin notions of normal and natural, slippery and powerful, necessary and damaging all at the same time.
Too Late to Die Young: Nearly True Tales from a Life
Harriet McBryde Johnson - 2005
Born with a congenital neuromuscular disease, Johnson has never been able to walk, dress, or bathe without assistance. With assistance, she passionately celebrates her life's richness and pleasures and pursues a formidable career as an attorney and activist. Whether rolling on the streets of Havana, on the floor of the Democratic National Convention in Chicago, or in an auditorium at Princeton debating philosopher Peter Singer, Harriet McBryde Johnson defies every preconception about people with disabilities, and shows how a life, be it long or short, is a treasure of infinite value.
But God, Wouldn't I Be More Useful to You If I Were Healthy? (Chronic Pain and the Christian Life)
Esther Smith - 2016
Perhaps no questions cause more confusion than the ones that arise when you are pulled out of a thriving life of work that benefits the world, only to spend your hours, days, and weeks languishing in bed. It just doesn’t make sense. Why, God? Why would you take away my thriving career when it took me years to get to this point? Why would you take away my ability to serve and help and contribute? In this first book in the Chronic Pain and the Christian Life series, explore what it looks like to live a life of work, service, and rest, even when the pain doesn’t go away.
There's No Place Like Hope: A Guide to Beating Cancer in Mind-Sized Bites: A Book of Hope, Help and Inspiration for Cancer Patients and Their Families
Vickie Girard - 2001
According to Girard, Cancer is a beatable, treatable, survivable disease.
Waist-High in the World: A Life Among the Nondisabled
Nancy Mairs - 1997
In a blend of intimate memoir and passionate advocacy, Nancy Mairs takes on the subject woven through all her writing: disability and its effect on life, work, and spirit.
Knowing Why: Adult-Diagnosed Autistic People on Life and Autism
Elizabeth Bartmess - 2018
Odasso writes in this anthology: "You spend a lot of time wondering what's wrong without ever knowing why." This anthology includes essays from a diverse group of adult-diagnosed autistic people. Our essays reflect the value of knowing why--why we are different from so many other people, why it can be so hard to do things others can take for granted, and why there is often such a mismatch between others' treatment of us and our own needs, skills, and experiences. Essay topics include recovering from burnout, exploring our passions and interests, and coping with sensory overload, especially in social situations. If you know you're autistic, are beginning to wonder, share similarities with autistic people, or want to support an adult autistic friend or family member--or if you simply want to know why it's so important that autistic adults know we're autistic--this book is for you.
Don't Call Me Inspirational: A Disabled Feminist Talks Back
Harilyn Rousso - 2013
She addresses the often absurd and ignorant attitudes of strangers, friends, and family. Rousso also examines her own prejudice toward her disabled body, and portrays the healing effects of intimacy and creativity, as well as her involvement with the disability rights community. She intimately reveals herself with honesty and humor and measures her personal growth as she goes from "passing" to embracing and claiming her disability as a source of pride, positive identity, and rebellion. A collage of images about her life, rather than a formal portrait, Don't Call Me Inspirational celebrates Rousso's wise, witty, productive, outrageous life, disability and all.
Resistance and Hope: Essays by Disabled People
Alice Wong - 2018
This is crip wisdom for the people. Edited by Alice Wong, founder of the Disability Visibility Project, Resistance and Hope will transform the way you think about activism, leadership and social justice. How do we fight back in an era of uncertainty, institutionalized cruelty, and widespread tolerance for ableism and hate? Written in 2017, the authors explore resistance, hope, self care, disability rights and justice, and the politics of Trump in a series of provocative, challenging essays. They bring the power of intersectional cross-platform organizing and the strength found through mutual accountability to words that will help you define the resistance you want to fight for, not just the harm you want to react against. Dare to dream bigger and create space for all with this visionary essay anthology from multiply marginalized disabled people redefining an inclusive climate of resistance. The time is NOW! "Get this book right now! Resistance and Hope is the disability justice Bible you've been waiting for. If you want to read a book chock full of disabled Black, brown, queer, trans genius, real talk and vision, this book will give you comrades reassurances that we are brilliant revolutionaries and a plethora of tools and visions for how we make the road by limping, crutching, rolling, signing and stimming. I am so grateful for Alice Wong for doing the cultural work of putting this together and for every single writer in this book." — Leah Piepzna-Samarasinha, performer, community organizer, and author of Care Work: Dreaming Disability Justice (Arsenal Pulp Press, October 1, 2018) “Until our movements are fully intersectional, we will not make the progress necessary to build the equitable society we all deserve. Resistance and Hope is a necessary manual for all of us as we learn how to build movements that are as inclusive as the world we hope to see.” — Brittany Packnett, activist, educator, writer, Co-Founder of Campaign Zero and Co-Host of Pod Save the People “Resistance and Hope: Essays by Disabled People is a timely and must-read collection of essays by some of the most cutting edge leaders in the Disability Rights Movement. If you are interested in learning more about disability rights and justice, activism, and current times we are living in today take the time to read and may these pieces evoke discussions in your communities as we fight for justice and equity.” — Judy Heumann, Disability Activist “It is so necessary for people who have been historically marginalized to tell their own stories. I am proud to know Alice Wong, who is someone dedicated to telling these stories with authenticity and integrity.” — Blair Imani, Author of Modern HERstory and Founder of Equality for HER ANTHOLOGY CONTRIBUTORS Lydia X. Z. Brown Anita Cameron Cyree Jarelle Johnson DJ Kuttin Kandi Mari Kurisato Talila A. Lewis Noemi Martinez Stacey Milbern Mia Mingus Lev Mirov Leroy Moore Shain M. Neumeier Naomi Ortiz Victoria Rodríguez-Roldán Vilissa K. Thompson Aleksei Valentín Maysoon Zayid Editorial Assistant: Robin M.
Stigma: Notes on the Management of Spoiled Identity
Erving Goffman - 1963
Disqualified from full social acceptance, they are stigmatized individuals. Physically deformed people, ex-mental patients, drug addicts, prostitutes, or those ostracized for other reasons must constantly strive to adjust to their precarious social identities. Their image of themselves must daily confront and be affronted by the image which others reflect back to them.Drawing extensively on autobiographies and case studies, sociologist Erving Goffman analyzes the stigmatized person’s feelings about himself and his relationship to “normals” He explores the variety of strategies stigmatized individuals employ to deal with the rejection of others, and the complex sorts of information about themselves they project. In Stigma the interplay of alternatives the stigmatized individual must face every day is brilliantly examined by one of America’s leading social analysts.
In Sickness and in Health: Love, Disability, and a Quest to Understand the Perils and Pleasures of Interabled Romance
Ben Mattlin - 2018
On one of their earliest dates, he persuaded her to ride on his lap in his wheelchair on their way home from an Elvis Costello concert. Thirty years later, they still travel like this from time to time, undaunted by the curious stares following them down the street.But In Sickness and in Health is more than an "inspiring" story of how a man born with spinal muscular atrophy--a congenital and incurable neuromuscular condition--survived childhood, graduated from Harvard, married an able-bodied woman, built a family with two daughters and a cat and a turtle, established a successful career in journalism, and lived happily ever after. As Mattlin considers the many times his relationship has been met with surprise or speculation by outsiders--those who consider his wife a "saint" or him just plain "lucky" for finding love--he issues a challenge to readers: why should the idea of an "interabled" couple be regarded as either tragic or noble?Through conversations with more than a dozen other couples of varying abilities, ethnic backgrounds, and orientations, Mattlin sets out to understand whether these pairings are as unusual as onlookers seem to think. Reflecting on his own experience he wonders: How do people balance the stresses of personal-care help with the thrill of romance? Is it possible that the very things that appear to be insurmountable obstacles to a successful relationship--the financial burdens, the physical differences, the added element of an especially uncertain future--could be the building blocks of an enviable level of intimacy and communication that other couples could only dream of?We meet Shane Burcaw, a twenty-three-year-old writer, who offers a glimpse of his first forays into dating with a disability. There's Rachelle Friedman, the "paralyzed bride," as the media refers to her, and her husband, discussing the joys and challenges of a new marriage and a growing family. And Christina Crosby and her partner, Janet Jakobsen, reflect on how Crosby's disabling accident called for them to renegotiate their roles and expectations in their long-term relationship. What emerges is a candid glimpse into the challenges and joys of interabled love--from the first blush of sexual awakening to commitment and marriage and through to widowhood.