Book picks similar to
Affirming Disability: Strengths-Based Portraits of Culturally Diverse Families by Janet Story Sauer
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Show Me Where It Hurts: Living with Invisible Illness
Kylie Maslen - 2020
I work the way I do because of my body, I vote the way I do because of my body and I live the way I do because of my body. It is not my body that is at fault, but society's failure to deal with bodies like mine. I might be in pain, but I am whole. I refuse to have the difficult parts cropped out.Kylie Maslen has been living with invisible illness for twenty years-more than half her life. Its impact is felt in every aspect of her day-to-day existence- from work to dating; from her fears for what the future holds to her struggles to get out of bed some mornings. Drawing on pop music, art, literature and online culture, Maslen explores the lived experience of invisible illness with sensitivity and wit, drawing back the veil on a reality many struggle-or refuse-to recognise. Show Me Where it Hurts- Living with Invisible Illness is a powerful collection of essays that speak to those who have encountered the brush-off from doctors, faced endless tests and treatments, and endured chronic pain and suffering. But it is also a bridge reaching out to partners, families, friends, colleagues, doctors- all those who want to better understand what life looks like when you cannot simply show others where it hurts.
Hysteria: A memoir of illness, strength and women's stories throughout history
Katerina Bryant - 2020
Reacting the only way she knew how, she immersed herself in books, reading her way through her own complicated diagnosis and finding a community of women who shared similar experiences.In the tradition of Siri Hustvedt’s The Shaking Woman, Bryant blends memoir with literary and historical analysis to explore women’s medical treatment. Hysteria retells the stories of silenced women, from the ‘Queen of Hysterics’ Blanche Wittmann to Mary Glover’s illness termed ‘hysterica passio’ a panic attack caused by the movement of the uterus — in London in 1602 and more. By centring these stories of women who had no voice in their own diagnosis and treatment, Bryant finds her own voice: powerful, brave and resonant.
O Positive
Joe Dunthorne - 2019
Adopting a sunny, genial tone, Dunthorne lures the reader to darker places, exploring death and dread, failure and regret - the 'lounge of our suffering'. Often, he catches us off-guard: a 'whiplash' effect where poems shift from laughter to slaughter in a moment. Impertinent owls, an immersive theatre troupe, ancient men from the Great War and idiot balloonists - such characters dramatise our human fancies and foibles, joining the protagonist in scenarios both humorously bizarre and all-too-familiar. These performances serve to probe and unpeel the layers of the self - all the way down to the raw.
Teenage Wasteland: Suburbia's Dead End Kids
Donna Gaines - 1991
A powerful indictment of the often manipulative media coverage of youth crises and so-called alternative programs designed to help "troubled" teens, Teenage Wasteland draws new conclusions and presents solid reasons to admire the resilience of suburbia's dead end kids."A powerful book."—Samuel G. Freedman, New York Times Book Review"[Gaines] sheds light on a poorly understood world and raises compelling questions about what society might do to help this alienated group of young people."—Ann Grimes, Washington Post Book World"There is no comparable study of teenage suburban culture . . . and very few ethnographic inquiries written with anything like Gaines's native gusto or her luminous eye for detail."—Andrew Ross, Transition"An outstanding case study. . . . Gaines shows how teens engage in cultural production and how such social agency is affected by economic transformations and institutional interventions."—Richard Lachman, Contemporary Sociology"The best book on contemporary youth culture."—Rolling Stone
Together: A Memoir of a Marriage and a Medical Mishap
Judy Goldman - 2019
Together
is her unforgettable account of the struggle to regain their "normal" life and a nuanced portrait of a marriage tested.
When Judy Goldman's husband of almost four decades reads a newspaper ad for an injection to alleviate back pain, the outpatient procedure sounds like the answer to his longtime backaches. But rather than restoring his tennis game, the procedure leaves him paralyzed from the waist down--a phenomenon none of the doctors the family consults can explain. Overnight, Goldman's world is turned upside down. Though she has always thought of herself as the polite, demure wife opposite her strong, brave husband, Goldman finds herself thrown into a new role as his advocate, navigating byzantine hospital policies, demanding and refusing treatments, seeking solutions to help him win back his independence. Along the way, Goldman flashes back to her memories of their life together. As she tries envision her family's future, she discovers a new, more resilient version of herself. Together is a story of the life we imagine versus the life we lead--an elegant and empathetic meditation on partnership, aging, and, of course, love.
A Slant of Sun: One Child's Courage
Beth Kephart - 1998
Like Operating Instructions and The Liars' Club, A Slant of Sun is a contemporary classic.Nearly one in five children grow up facing a developmental or behavioral challenge, and like them, Beth Kephart's son, Jeremy, showed early signs of being different: language eluded him, he preferred playing alone to an afternoon on the jungle gym. Doctors diagnosed Jeremy with a mild form of autism called Pervasive Developmental Disorder Not Otherwise Specified. A Slant of Sun is a passionate memoir about how Kephart, guided by the twin tools of intuition and imagination, helped lead her son toward wholeness. Pulsing with the questions, "Is normal possible? Definable?" A Slant of Sun speaks to everyone not just parents of the redemptive power of love.
Spectrum Women: Walking to the Beat of Autism
Barb CookJeanette Purkis - 2018
Michelle Garnett's comments validate and expand the experiences described from a clinician's perspective, and provide extensive recommendations.Autistic advocates including Liane Holliday Willey, Anita Lesko, Jeanette Purkis, Artemisia and Samantha Craft offer their personal guidance on significant issues that particularly affect women, as well as those that are more general to autism. Contributors cover issues including growing up, identity, diversity, parenting, independence and self-care amongst many others. With great contributions from exceptional women, this is a truly well-rounded collection of knowledge and sage advice for any woman with autism.
Being There: Why Prioritizing Motherhood in the First Three Years Matters
Erica Komisar - 2017
Based on more than two decades of clinical work, established psychoanalytic theory, and the most current and cutting-edge neurobiological research on caregiving, attachment, and brain development, the book explains: How to establish emotional connection with a newborn or young child-regardless of whether you're able to pause your career to stay home How to select and train quality childcare if necessary-and how to ease transitions and minimize stress for your baby or toddler What's true and false about widely held beliefs like "babies are resilient" and how to combat feelings of post-partum depression or boredom Why three months of maternity leave is not long enough-and how women and their partners can take control of their choices to provide for their family's emotional needs in the first three years
Irritable Hearts: A PTSD Love Story
Mac McClelland - 2015
I dissociated... Changes in self-perception and hallucinations-those are some of my other symptoms. You are poison, I chanted silently to myself. And your poison is contagious."So begins Mac McClelland's powerful, unforgettable memoir, Irritable Hearts.When thirty-year-old, award-winning human rights journalist Mac McClelland left Haiti after reporting on the devastating earthquake of 2010, she never imagined how the assignment would irrevocably affect her own life. Back home in California, McClelland cannot stop reliving vivid scenes of violence. She is plagued by waking terrors, violent fantasies, and crippling emotional breakdowns. She can't sleep or stop crying. Her life in shambles, it becomes clear that she is suffering from Post-Traumatic Stress Disorder. Her bewilderment about this sudden loss of control is magnified by the intensity of her feelings for Nico, a French soldier she met in Port-au-Prince and with whom she connected instantly and deeply.With inspiring fearlessness, McClelland tackles perhaps her most harrowing assignment to date: investigating the damage in her own mind and repairing her broken psyche. She begins to probe the depths of her illness, exploring our culture's history with PTSD, delving into the latest research by the country's top scientists and therapists, and spending time with veterans and their families. McClelland discovers she is far from alone: while we frequently associate PTSD with wartime combat, it is more often caused by other manner of trauma and can even be contagious-close proximity to those afflicted can trigger its symptoms. As she confronts the realities of her diagnosis, she opens up to the love that seems to have found her at an inopportune moment.Irritable Hearts is a searing, personal medical mystery that unfolds at a breakneck pace. But it is also a romance. McClelland fights desperately to repair her heart so that she can give it to the kind, patient, and compassionate man with whom she wants to share a life. Vivid, suspenseful, tender, and intimate, Irritable Hearts is a remarkable exploration of vulnerability and resilience, control and acceptance. It is a riveting and hopeful story of survival, strength, and love.
Accessing the Future: A Disability-Themed Anthology of Speculative Fiction
Kathryn AllanMargaret Killjoy - 2015
Teeming with space pirates, battle robots, interstellar travel and genetically engineered creatures, every story and image is a quality, crafted work of science fiction in its own right, as thrilling and fascinating as it is worthy and important. These are stories about people with disabilities in all of their complexity and diversity, that scream with passion and intensity. These are stories that refuse to go gently.
An Anatomy of Pain: How the Body and the Mind Experience and Endure Physical Suffering
Abdul-Ghaaliq Lalkhen - 2021
We hurt ourselves, we feel pain, we seek help from a professional or learn to avoid certain behaviors that cause pain. But the story of what goes on in our body is far from simple. Even medical practitioners themselves often fail to grasp the complexities between our minds and bodies and how they interact when dealing with pain stimulus. Throughout history we’ve tried to prevent and mediate the effects of pain—which has only resulted in a highly medicated population and a booming opiates industry. Written by a medical expert trained as an anesthesiologist, An Anatomy of Pain is the first book to clearly explain the current issues and complexities surrounding the treatment of pain and how society deals with those in pain, as well as how our bodies relate to pain. Common conception still equates pain with tissue damage but that is only a very small part of the story—the organ which produces pain is the brain. Case studies show that a woman who has undergone a c-section reports dramatically less pain than a patient who has had kidney stones removed in a similarly invasive operation. The soldier who drags himself or herself to safety after being shot deals with pain in a remarkably different way from someone suffering a similar injury on a street. The truth is that pain is a complex mix of nerve endings, psychological state, social preconceptions, and situational awareness. Filled with case studies and medical history, this enlightening book offers a crash course in all aspects of pain, from chronic to acute, and walks us through the current landscape of pain treatments—from medication (including opioids) to electrical nerve stimulation. Whether it’s a mild ache or severe discomfort, we all encounter pain in our lives and “this splendid book—informative, empathic, and wise—about a universal experience will surely promote healing” (Booklist, starred review).
Criptiques
Caitlin Wood - 2014
Exploring themes of gender, sexuality, disability/crip culture, identity, ableism and much more, this important anthology provides much needed space for thought-provoking discourse from a highly diverse group of writers. Criptiques takes a cue from the disability rights slogan "Nothing About Us Without Us," illuminating disability experiences from those with firsthand knowledge. Criptiques is for people invested in crip culture, the ones just discovering it, and those completely unfamiliar with the term.Authors who contributed to this collection include: Elsa S. Henry, Ibby Grace, Leroy Moore, Anna Hamilton, Rachel Cohen-Rottenberg, Eva Sweeney, Emily Ladau, Cheryl Green, Mia Mingus, Stefanie Snider, Cara Liebowitz, Nitika Raj, Nina G Comedian, Ben G., Kay Ulanday Barrett, Cat Moran, William Alton, Lydia Brown, Robin Tovey, Alyssa Hillary, Bethany Stevens, Jen Rinaldi, Samantha Walsh, Danine Spencer, Riva Lehrer.
How Can I Talk If My Lips Don't Move: Inside My Autistic Mind
Tito Rajarshi Mukhopadhyay - 2008
When he was three years old, Tito was diagnosed as severely autistic, but his remarkable mother, Soma, determined that he would overcome the problem by teaching him to read and write. The result was that between the ages of eight and eleven he wrote stories and poems of exquisite beauty, which Dr. Oliver Sacks called amazing and shocking. Their eloquence gave lie to all our assumptions about autism.Here Tito goes even further and writes of how the autistic mind works, how it views the outside world and the normal people he deals with daily, how he tells his stories to the mirror and hears stories back, how sounds become colors, how beauty fills his mind and heart. With this work, Tito whom Portia Iversen, co-founder of Cure Autism Now, has described as a window into autism such as the world has never seen gives the world a beacon of hope. For if he can do it, why can't others?Brave, bold, and deeply felt, this book shows that much we might have believed about autism can be wrong. Boston Globe
Taking Charge of Adult ADHD
Russell A. Barkley - 2010
Fortunately, effective help is out there. No one is a better guide to how to get the best care—and what sufferers can do for themselves—than renowned ADHD researcher/clinician Russell A. Barkley. Dr. Barkley provides step-by-step strategies for managing symptoms and reducing their harmful impact. Readers get hands-on self-assessment tools and skills-building exercises, plus clear answers to frequently asked questions about medications and other treatments. Specific techniques are presented for overcoming challenges in critical areas where people with the disorder often struggle—work, finances, relationships, and more. Finally, an authoritative one-stop resource for adults with ADHD who are ready to take back their lives.See also Dr. Barkley's bestselling resource on childhood ADHD, Taking Charge of ADHD, Third Edition: The Complete, Authoritative Guide for Parents.
In Sheep's Clothing: Understanding and Dealing with Manipulative People
George K. Simon Jr. - 1996
"This book clearly illustrates the true nature of disturbed characters, exposes the tactics the most manipulative characters use to pull the wool over the eyes of others, and outlines powerful, practical ways to deal more effectively with manipulative people."