Book picks similar to
At the Will of the Body: Reflections on Illness by Arthur W. Frank
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Salt in My Soul: An Unfinished Life
Mallory Smith - 2019
Despite the daily challenges of endless medical treatments and a deep understanding that she'd never lead a normal life, Mallory was determined to "live happy," a mantra she followed until her death. Mallory worked hard to make the most out of the limited time she had, graduating Phi Beta Kappa from Stanford University, becoming a cystic fibrosis advocate well-known in the CF community, and embarking on a career as a professional writer. Along the way, she cultivated countless intimate friendships and ultimately found love.An eloquent writer, Mallory recorded her thoughts and observations for more than ten years about struggles and feelings too personal to share during her life, leaving instructions for her mother to publish her work posthumously. She hoped that her writing would offer insight to those living with, or loving someone with, chronic illness.What emerges is a powerful and inspiring portrait of a brave young woman who did not allow herself to be defined by disease. Her words offer comfort and hope to readers, even as she herself was facing death. Salt in My Soul is a beautifully crafted, intimate, and poignant tribute to a short life well lived--and a call for all of us to embrace our own lives as fully as possible.
Final Exit: The Practicalities of Self-deliverance & Assisted Suicide for the Dying
Derek Humphry - 1991
It helped thousands by giving clear instructions to doctors, nurses, and families on how to handle a patient's request for euthanasia.In the wake of court cases and legislative mandates, this revised and updated third edition goes far beyond the original to provide new information about the legality of euthanasia and assisted suicide, and a thoughtful examination of the personal issues involved. It has become the essential source to help loved ones and supportive doctors remain within existing laws and keep a person's dying intimate, private, and dignified.With deep compassion and sensitivity, it spells out why a living will may not be sufficient to have a person's wishes carried out—and what document is a better alternative. It updates where to get proper drugs and exactly how to carry out the quickest, most peaceful way to make a final exit. Finally, it gently talks to a person considering self-deliverance about alternatives, planning, and the means to make every death a "good death" at our time of greatest need.
The Shift: One Nurse, Twelve Hours, Four Patients' Lives
Theresa Brown - 2015
In the span of twelve hours, lives can be lost, life-altering medical treatment decisions made, and dreams fulfilled or irrevocably stolen. In Brown’s skilled hands--as both a dedicated nurse and an insightful chronicler of events--we are given an unprecedented view into the individual struggles as well as the larger truths about medicine in this country, and by shift’s end, we have witnessed something profound about hope and healing and humanity. Every day, Theresa Brown holds patients' lives in her hands. On this day there are four. There is Mr. Hampton, a patient with lymphoma to whom Brown is charged with administering a powerful drug that could cure him--or kill him; Sheila, who may have been dangerously misdiagnosed; Candace, a returning patient who arrives (perhaps advisedly) with her own disinfectant wipes, cleansing rituals, and demands; and Dorothy, who after six weeks in the hospital may finally go home. Prioritizing and ministering to their needs takes the kind of skill, sensitivity, and, yes, humor that enable a nurse to be a patient’s most ardent advocate in a medical system marked by heartbreaking dysfunction as well as miraculous success.
Embodied Hope: A Theological Meditation on Pain and Suffering
Kelly M. Kapic - 2017
. . . If you are looking for a book that boasts triumphantly of conquest over a great enemy, or gives a detached philosophical analysis that neatly solves an absorbing problem, this isn't it.
Original Wisdom: Stories of an Ancient Way of Knowing
Robert Wolff - 2001
Deep in the mountainous jungle of Malaysia the aboriginal Sng'oi exist on the edge of extinction, though their way of living may ultimately be the kind of existence that will allow us all to survive. The Sng'oi--pre-industrial, pre-agricultural, semi-nomadic--live without cars or cell phones, without clocks or schedules in a lush green place where worry and hurry, competition and suspicion are not known. Yet these indigenous people--as do many other aboriginal groups--possess an acute and uncanny sense of the energies, emotions, and intentions of their place and the living beings who populate it, and trustingly follow this intuition, using it to make decisions about their actions each day. Psychologist Robert Wolff lived with the Sng'oi, learned their language, shared their food, slept in their huts, and came to love and admire these people who respect silence, trust time to reveal and heal, and live entirely in the present with a sense of joy. Even more, he came to recognize the depth of our alienation from these basic qualities of life. Much more than a document of a disappearing people, Original Wisdom: Stories of an Ancient Way of Knowing holds a mirror to our own existence, allowing us to see how far we have wandered from the ways of the intuitive and trusting Sng'oi, and challenges us, in our fragmented world, to rediscover this humanity within ourselves.
Witches, Midwives and Nurses: A History of Women Healers
Barbara Ehrenreich - 1972
This pamphlet explores two important phases in the male takeover of health care: the suppression of witches in medieval Europe and the rise of the male medical profession in the United States. The authors conclude that despite efforts to exclude them, the resurgence of women as healers should be a long-range goal of the women’s movement.
Diagnostic and Statistical Manual of Mental Disorders
American Psychiatric Association - 2013
Their dedication and hard work have yielded an authoritative volume that defines and classifies mental disorders in order to improve diagnoses, treatment, and research.The criteria are concise and explicit, intended to facilitate an objective assessment of symptom presentations in a variety of clinical settings -- inpatient, outpatient, partial hospital, consultation-liaison, clinical, private practice, and primary care. New features and enhancements make DSM-5 easier to use across all settings:- The chapter organization reflects a lifespan approach, with disorders typically diagnosed in childhood (such as neurodevelopmental disorders) at the beginning of the manual, and those more typical of older adults (such as neurocognitive disorders) placed at the end. Also included are age-related factors specific to diagnosis. - The latest findings in neuroimaging and genetics have been integrated into each disorder along with gender and cultural considerations.- The revised organizational structure recognizes symptoms that span multiple diagnostic categories, providing new clinical insight in diagnosis. - Specific criteria have been streamlined, consolidated, or clarified to be consistent with clinical practice (including the consolidation of autism disorder, Asperger's syndrome, and pervasive developmental disorder into autism spectrum disorder; the streamlined classification of bipolar and depressive disorders; the restructuring of substance use disorders for consistency and clarity; and the enhanced specificity for major and mild neurocognitive disorders).- Dimensional assessments for research and validation of clinical results have been provided.- Both ICD-9-CM and ICD-10-CM codes are included for each disorder, and the organizational structure is consistent with the new ICD-11 in development.The Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition, is the most comprehensive, current, and critical resource for clinical practice available to today's mental health clinicians and researchers of all orientations. The information contained in the manual is also valuable to other physicians and health professionals, including psychologists, counselors, nurses, and occupational and rehabilitation therapists, as well as social workers and forensic and legal specialists.
The Nordic Theory of Everything: In Search of a Better Life
Anu Partanen - 2016
She found that navigating the basics of everyday life—from buying a cell phone and filing taxes to education and childcare—was much more complicated and stressful than anything she encountered in her homeland. At first, she attributed her crippling anxiety to the difficulty of adapting to a freewheeling new culture. But as she got to know Americans better, she discovered they shared her deep apprehension. To understand why life is so different in the U.S. and Finland, Partanen began to look closely at both.In The Nordic Theory of Everything, Partanen compares and contrasts life in the United States with life in the Nordic region, focusing on four key relationships—parents and children, men and women, employees and employers, and government and citizens. She debunks criticism that Nordic countries are socialist “nanny states,” revealing instead that it is we Americans who are far more enmeshed in unhealthy dependencies than we realize. As Partanen explains step by step, the Nordic approach allows citizens to enjoy more individual freedom and independence than we do.Partanen wants to open Americans’ eyes to how much better things can be—to show her beloved new country what it can learn from her homeland to reinvigorate and fulfill the promise of the American dream—to provide the opportunity to live a healthy, safe, economically secure, upwardly mobile life for everyone. Offering insights, advice, and solutions, The Nordic Theory of Everything makes a convincing argument that we can rebuild our society, rekindle our optimism, and restore true freedom to our relationships and lives.
Raising Henry: A Memoir of Motherhood, Disability, and Discovery
Rachel Adams - 2013
She had an adoring husband, a beautiful two-year-old son, a sunny Manhattan apartment, and a position as a tenured professor at Columbia University. Everything changed with the birth of her second child, Henry. Just minutes after he was born, doctors told her that Henry had Down syndrome, and she knew that her life would never be the same. In this honest, self-critical, and surprisingly funny book, Adams chronicles the first three years of Henry’s life and her own transformative experience of unexpectedly becoming the mother of a disabled child. A highly personal story of one family’s encounter with disability, Raising Henry is also an insightful exploration of today’s knotty terrain of social prejudice, disability policy, genetics, prenatal testing, medical training, and inclusive education. Adams untangles the contradictions of living in a society that is more enlightened and supportive of people with disabilities than ever before, yet is racing to perfect prenatal tests to prevent children like Henry from being born. Her book is gripping, beautifully written, and nearly impossible to put down. Once read, her family’s story is impossible to forget.
To Heaven and Back: The True Story of a Doctor's Extraordinary Walk with God
Mary C. Neal - 2011
Mary Neal's walk with God has been both ordinary and extraordinary, brimming with the gift and privilege of being touched by God in visible and very tangible ways. She is a practicing orthopaedic surgeon, a wife, and a mother who has experienced joy as well as great sorrow and death. She experienced life after death and, despite her scientific training, she believes the answer to each one of these questions is a definitive yes. She drowned on a South American river and went to Heaven. She conversed with angels. She returned to Earth, in part, to tell her story to others and help them find their way back to God. In this book , Dr. Neal shares the captivating details of her life in which she has experienced not just one miracle, but many. Her story is both compelling and thought provoking. Her experiences provide confirmation that miracles still occur, shows how God keeps His promises and why there is sufficient reason to live by faith. Dr. Neal's message is fundamentally one of hope.
Sleepyhead: Narcolepsy, Neuroscience and the Search for a Good Night
Henry Nicholls - 2018
For the healthy but overworked majority, this might sound like an enviable condition, but for Henry, the inability to stay awake is profoundly disabling, especially as it is accompanied by mysterious collapses called cataplexy, poor night-time sleep, hallucinations and sleep paralysis.A writer and biologist, Nicholls explores the science of disordered sleep, discovering that around half of us will experience some kind of sleep dysfunction in our lives. From a CBT course to tackle insomnia to a colony of narcoleptic Dobermans, his journey takes him through the half-lit world of sleep to genuine revelations about his own life and health.Told with humour and intelligence, Sleepyhead uses personal reflections, interviews with those with sleep disorders and the people who study them, anecdotes from medical history and insights from art and literature to change the way we understand our sleeping hours.
The Body Broken
Lynne Greenberg - 2009
When her broken neck healed or so everyone thought her recovery was hailed as a medical miracle and she returned to normal life. Years later, she seemed to have it all: a loving husband, two wonderful children, a peaceful home, and a richly satisfying job as a tenured poetry professor. Then, one morning, this blissful fade shattered the pain in her neck returned in the most vicious way. A life with physical agony ensued.Greenberg realized that she had been living for years on borrowed time. As she and her family navigated an increasingly complicated web of doctors and specialists, Greenberg taught herself to fight her own battles against a medical system ill-equipped to handle patients with chronic pain, and against the emotional pitfalls of a newly restricted life. Drawing on her family's support, her own indomitable spirit, and an intense connection to the poetry she taught, Greenberg found the strength to return to a productive and satisfying if irrevocably changed life.
The American Health Care Paradox: Why Spending More Is Getting Us Less
Elizabeth H. Bradley - 2013
Bowling Alone: The Collapse and Revival of American Community
Robert D. Putnam - 2000
This seemingly small phenomenon symbolizes a significant social change that Robert Putnam has identified in this brilliant volume, which The Economist hailed as "a prodigious achievement."Drawing on vast new data that reveal Americans' changing behavior, Putnam shows how we have become increasingly disconnected from one another and how social structures--whether they be PTA, church, or political parties--have disintegrated. Until the publication of this groundbreaking work, no one had so deftly diagnosed the harm that these broken bonds have wreaked on our physical and civic health, nor had anyone exalted their fundamental power in creating a society that is happy, healthy, and safe.Like defining works from the past, such as The Lonely Crowd and The Affluent Society, and like the works of C. Wright Mills and Betty Friedan, Putnam's Bowling Alone has identified a central crisis at the heart of our society and suggests what we can do.
The Man Who Couldn't Stop
David Adam - 2014
In this captivating fusion of science, history and personal memoir, writer David Adam explores the weird thoughts that exist within every mind, and how they drive millions of us towards obsessions and compulsions.David has suffered from OCD for twenty years, and The Man Who Couldn’t Stop is his unflinchingly honest attempt to understand the condition and his experiences. What might lead an Ethiopian schoolgirl to eat a wall of her house, piece by piece; or a pair of brothers to die beneath an avalanche of household junk that they had compulsively hoarded? At what point does a harmless idea, a snowflake in a clear summer sky, become a blinding blizzard of unwanted thoughts? Drawing on the latest research on the brain, as well as historical accounts of patients and their treatments, this is a book that will challenge the way you think about what is normal, and what is mental illness.Told with fierce clarity, humour and urgent lyricism, this extraordinary book is both the haunting story of a personal nightmare, and a fascinating doorway into the darkest corners of our minds.
