The Hidden Plague: A Field Guide For Surviving and Overcoming Hidradenitis Suppurativa


Tara Grant - 2013
    Only a small fraction of those affected have been properly diagnosed, leaving many others to suffer in silence or pursue ill-advised conventional treatment methods that fail to address the cause of this painful condition. Tara Grant, a twenty-year sufferer of HS, has become an underground legend to her Internet community of HS victims by presenting a methodical, self-tested action plan to heal naturally. The centerpiece of her holistic approach rests on the understanding that HS is an autoimmune disorder caused by leaky gut syndrome. With a few simple dietary changes that eliminate certain “trigger” foods, you can heal your gut, restore your skin, reclaim your health, and rid yourself of HS symptoms forever. That’s it—no antibiotics, no experimental surgeries, and no more pain, suffering, or confusion.Q&A with Tara1. What was it about the subject you chose to write about in your book that made you feel so passionate about spreading the word and getting your book published? My motivation for writing this book was the overwhelming response I received from people on the Internet when I originally posted about it in March of 2012. It turns out it’s a pretty common condition, but many people (and doctors) don’t know what it is. It’s pretty standard to visit various doctors, and be told that you have “acne,” or to be subjected to butchering surgeries. There is no treatment for HS, according to the doctors. People with it suffer immensely—in fact, HS is acknowledged to be one of most painful conditions in the world. I’ve even received letters from doctors and nurses who suffer from HS, thanking me for telling them what it is that they have—and for offering them hope. The primary motivating factor for writing this book, however, was an email I received from a 12-year old girl, who said she was going to kill herself because of the pain she was in. I immediately wrote her back, but I never heard back from her. I am desperate to know that she’s okay. I don’t want anyone else to go through what I did as a teenager—I myself thought about suicide on more than one occasion. I’ve had many letters from people who say they want to kill themselves since.2. HS is hard to diagnose, and many doctors aren’t even aware of its existence. How did you get a diagnosis? I’ve had HS since I was thirteen years old, but wasn’t diagnosed until I was in my mid-30s. Up until then, I saw over forty doctors from four different countries - none of whom could tell me what was wrong with me. I eventually found the name “Hidradenitis suppurativa” in a book about PCOS (also known as polycystic ovarian syndrome, which I also had) and could finally put a name to the horrible condition I had suffered from for so long. I took that information to a dermatologist. That’s when I finally got a diagnosis—over twenty years later. At that time, I had already changed to a Primal diet and my HS was drastically better, so I declined the antibiotics and Accutane the doctor prescribed. I also refused to believe what she said: “You have to live with this for the rest of your life.” I knew, as a longtime sufferer of HS, that the doctors I had seen had no clue what they were talking about. My journey was extremely frustrating, and I went through it completely alone. Over the years, I was told I had “adult acne,” and also told that they didn’t know what was wrong with me. I was also told that I was overreacting, not keeping clean enough, and told to lose weight. Not a single doctor showed any compassion, or was willing to look into the matter further. I eventually stopped going to the doctors, and didn’t return until I had already made changes and knew I was on the right track. I knew that if I wanted answers, I had to do the research and experimentation myself. I wasn't interested in how I reacted to different drug, I was interested in healing myself naturally.  I knew that I was on the right track with diet, so I started investigating Robb Wolf’s Autoimmune Paleo Protocol, and made specific tweaks for skin conditions. Results I had seen from others (Dr. Terry Wahls, for example) who had healed themselves from crippling autoimmune conditions were the only motivation I needed. When I started treating HS like an autoimmune condition, it went into remission. There are literally thousands of cases of this happening with different autoimmune conditions all over the world. I was also able to induce flare-ups with specific experimentation. This completely checks with autoimmunity. There isn’t a cure—you will always have the predisposition for autoimmunity—but you CAN go into remission. 3. Do you have any relatives or close friends that became diagnosed after you?  There is no one else in my family with this condition. There is a mistaken belief that HS is hereditary. It is not. However, some families have more than one member affected by it. The reason for this is that HS is autoimmune. In order to get an autoimmune condition, you need to have the gene for autoimmunity. The fact that the autoimmune gene manifests as HS in more than one family member is complete coincidence. If you’re suffering from HS, you more than likely have other autoimmune conditions - and so does your family. Family trees littered with Crohn’s, rheumatoid arthritis, multiple sclerosis, restless legs syndrome, diabetes, Lupus, endometriosis, eczema, psoriasis, HS, and more—all of which are autoimmune—are very common. If you have HS, you have the autoimmune gene, which you did inherit. If your gut becomes leaky, then you will eventually develop an autoimmune condition.4. Do you have advice for anyone seeking medical help for this condition? Read my book first. The Western medical community is still under the mistaken belief that HS is caused by bacteria, hence the prescriptions for antibiotics. They will not be able to help you, and will suggest butchering surgeries and heavy hitting drugs, which often make matters worse. You can’t “cut HS out,” like you do with a cancerous tumor. When you remove an organ or tissue that is being ravaged by an autoimmune response, you open up all your other organs and tissues to attack. That’s why there’s over an 80% chance of reoccurrence of HS after surgery, and people will often start flaring-up in areas that had been clear before. Sometimes, they even develop brand new autoimmune conditions. Luckily, you actually hold the key to healing in your hands. You can heal yourself. If you can avoid infection, then you don’t need doctors—or drugs— to help you go into remission.5. What is the one thing you would stress most to anyone unable to get a copy of your book at this time? Many people with HS are on disability and don’t have a lot of disposable income, or they have been taken advantage of in the past. If this is you, go to your local library and ask them to carry the book. Then, you can borrow it for free. How much does a 1-oz jar of EmuAid cost? Turmeric capsules? Surgery? Doctor visits and prescriptions? We’ve all fallen for so much. I bet if you sat down and tallied up how much you’ve spent on Band-Aids alone for your HS over the years, $26 would be a drop in the bucket. The great thing about this book is that if you are not satisfied, you can request your money back. If you get this 300-page manual and find that there is nothing in it that is of any help, you can ask for a refund from the publisher. Try asking for a refund for EmuAid when it doesn’t work. That being said, I would challenge anyone with HS to read this book and find nothing in it that’s helpful.6. Your book is a very important first step in making the public aware of this illness. Besides the book, how do you plan to raise awareness of HS?My goal is to get on the Dr. Oz show. I figure that will give us the biggest bang for the buck. Many people have HS, but are unaware of what it’s called. They’re too embarrassed to go to the doctor about it. I would encourage all of you to write to the Dr. Oz show and ask them to feature me, and ask your local library to carry the book. The only way we’re going to raise awareness is to GO BIG.

Against Medical Advice


James Patterson - 2008
    From that day forward his life became a hell of uncontrollable tics, urges, and involuntary utterances. Eventually he is diagnosed with Tourette's Syndrome and Obsessive Compulsive disorder, and Cory embarks on an excruciating journey from specialist to specialist, enduring countless combinations of medications in wildly varying doses. Soon it becomes unclear what tics are symptoms of his disease and what are side effects of the drugs. The only certainty is that it kept getting worse. Despite his lack of control, Cory is aware of every embarrassing movement, and sensitive to every person's reaction to his often aggravating presence. Simply put: Cory Friedman's life is a living hell.Against Medical Advice is the true story of one family's decades-long battle for survival in the face of extraordinary difficulties and a rigid medical establishment.

My Own Medicine: A Doctor's Life as a Patient


Geoffrey Kurland - 2002
    Geoffrey Kurland was a busy man. His work as a Pediatric Pulmonologist, caring for children with lung diseases such as cystic fibrosis and asthma, led to long hours on the wards at the University of California, Davis Medical Center. At the same time, he was in the midst of training for the Western States Endurance Run, a grueling 100-mile long footrace across the wilderness of the Sierra Nevada Mountains. His long training runs, the responsibilities of patient care and teaching, and relationships attempting to replace his departed girlfriend occupied most of his life. Dr. Kurland’s ordered world is suddenly turned upside-down when he is diagnosed with Hairy Cell Leukemia, a rare blood cancer with a low survival rate. His work, his running, and his friendships are altered by his struggle to survive. He finds he must undergo many of the procedures he performed on his patients, must endure surgery and chemotherapy, and must relinquish control of his life to his physicians, surgeons, and his disease. He learns first-hand what cannot be taught in medical school about the consuming power of a chronic illness and its treatment.Confronting his own mortality, Dr. Kurland is now the patient while remaining a physician and runner. With the support of his physicians at the Mayo Clinic, the University of California, and the University of Pittsburgh, he resolves to continue to live his life despite his potentially fatal disease. He discovers his personal inner strengths as well as weaknesses as he struggles to confront his illness and regain some of the control he lost to it. Along his nearly two and a half year journey, we follow Dr. Kurland as he endures surgical procedures, chemotherapy, and life-threatening complications of his illness. He emerges into remission with new inner strength and understanding of what it means to be a doctor. He also finds that he is still a runner, with the same goal, to run the 100 miles across the Sierra Mountains.REVIEWS: “Taut, dramatic, and intensely real…Very well written.” --Oliver Sacks, the best selling author of SEEING VOICES and HALLUCINATIONS"[MY OWN MEDICINE] should be required reading for every medical professional. Kurland never asks for sympathy or pity. [...] What comes through powerfully is his humanity, which his own bout with illnesses has clearly enhanced, and from which both his patients and his readers will benefit." --THE NEW YORK TIMES"While training as a pediatric pulmonologist, Kurland told a patient, 'I know how you feel'; years later, when he was diagnosed with a rare form of leukemia, he discovered just how untrue this was. [...] The way in which serious illness alters one's sense of self and of life is compellingly expressed in this energetic, nervy narrative, as Kurland's illness and eventual recovery collide with a host of profound shifts—a big career move, the death of a colleague, an unravelling relationship with his girlfriend, and a deepening one with his parents." --THE NEW YORKER"MY OWN MEDICINE is rich in detail, enhanced by the author's skillful handling of the narrative...The book depicts a man who, faced with the painful reality of his own mortality, acknowledges his condition and gears himself to face the challenge." --PITTSBURGH POST-GAZETTE
“The story of Kurland’s battle with a disease that almost took his life is compelling and poignant. Unlike other chroniclers of illness, however, Kurland is a physician caring for critically ill children. Perhaps it is inevitable that his observations on life, death, and suffering should be so informed by his work. The result is a narrative that is both unique and deeply insightful.

White Hot Light: Twenty-Five Years in Emergency Medicine


Frank Huyler - 2020
    Frank Huyler delivers another dispatch from the trenches—this time from the perspective of middle age. In portraits visceral, haunting, sometimes surreal, Huyler reveals the gritty reality of medicine practiced on the razor’s edge between life and death.From the doomed, like the Iraq vet with a brain full of shrapnel, to the self-destructive, like the young woman who inserts a sewing needle into her heart, to the transcendent, like the homeless Navajo artist whose sketches charm the nurses, Huyler assembles a profound mosaic of human suffering and grace, complemented by episodes from his personal life: the hail that fell the night his wife gave birth, his drive through a snowstorm to see his father in a Colorado ER, the beautiful wedding of his childhood friend with terminal cancer. Melding hard-earned wisdom with a poet’s crystalline vision, Huyler evokes the awesome burden of responsibility, the exhaustion, the relief of a costume disco nurse party, and those rare occasions when the confluence of luck and science yield, in the author’s words, “moments of breathtaking greatness.” White Hot Light offers an unforgettable portrait of a field that illuminates society at its most vulnerable, and its most elemental.

Jonesy: Put Your Head Down and Skate: The Improbable Career of Keith Jones


Keith Jones - 2007
    The improbable hockey career of Jonsey started in 1992, when he was with the Washington Capitals. After a brief stint in Colorado, Keith was traded to Philadelphia, where is hard work, dirty play and colorful personality made him one of the more popular players in recent history. Jonsey is the story of Keith s career in the league as well as all of the interesting stories he accumulated over the course of his career, playing with some of the leagues best players in the last 15 years, including Peter Forsberg, Joe Sakic, Mark Recchi and Eric Lindros. The book will include a forward written by Hall of Fame defense-man Ray Bourque.

The House of God


Samuel Shem - 1978
    Six eager interns—they saw themselves as modern saviors-to-be.   They came from the top of their medical school class  to the bottom of the hospital staff to serve a  year in the time-honored tradition, racing to answer  the flash of on-duty call lights and nubile  nurses. But only the Fat Man—the Clam, all-knowing resident—could sustain them in their struggle to survive, to stay sane, to love and even to be doctors when their harrowing year was done.

Letter to a Young Female Physician: Notes from a Medical Life


Suzanne Koven - 2021
    Suzanne Koven published an essay describing the challenges faced by female physicians, including her own personal struggle with "imposter syndrome"—a long-held secret belief that she was not smart enough or good enough to be a “real” doctor. Accessed by thousands of readers around the world, Koven’s “Letter to a Young Female Physician” has evolved into a deeply felt reflection on her career in medicine.Koven tells candid and illuminating stories about her pregnancy during a grueling residency in the AIDS era; the illnesses of her child and aging parents during which her roles as a doctor, mother, and daughter converged, and sometimes collided; the sexism, pay inequity, and harassment that women in medicine encounter; and the twilight of her career during the COVID-19 pandemic. As she traces the arc of her life, Koven finds inspiration in literature and faces the near-universal challenges of burnout, body image, and balancing work with marriage and parenthood.Shining with warmth, clarity, and wisdom, Letter to a Young Female Physician reveals a woman forging her authentic identity in a modern landscape that is as overwhelming and confusing as it is exhilarating in its possibilities. Koven offers an indelible account, by turns humorous and profound, from a doctor, mother, wife, daughter, teacher, and writer who sheds light on our desire to find meaning, and on a way to be our own imperfect selves in the world.

The Dressing Station: A Surgeon's Chronicle of War and Medicine


Jonathan Kaplan - 2002
    He has been a hospital surgeon, a ship's physician, an air-ambulance doctor, and a trauma surgeon. He has worked in locations as diverse as England, Burma, Eritrea, the Amazon, Mozambique, and the United States. In this story of unforgettable adventure and tragedy, Dr. Kaplan explores the great challenge of his career -- to maintain his humanity even when that option does not seem possible. The Dressing Station is a haunting and elucidating look into the nature of human violence, the shattering contradictions of war, and the complicated role of medicine in this modern world. "A unique mix of biography and reportage, both personal and clinical," it is "a rare insight into the mind of a surgeon." -- Sue Cullinan, Time "Eloquent ... Beautifully written ... Provides a startling glimpse of battlefield surgery in those conflicts that CNN does not cover." -- Abraham Verghese, The New York Times Book Review "Kaplan ... has a keen sense of the smaller moments that leaven the agonies of daily life." -- Julian B. Orenstein, The Washington Post

Patient Care: Death and Life in the Emergency Room


Paul Seward - 2018
    Paul Seward leads us in his memoir through suspenseful diagnoses and explorations of anatomy. By his side, we learn to distinguish nursemaid's elbow from a true broken arm. We learn how our breathing and swallowing mechanisms resemble a practical joke.But when a baby’s heart stops and a young doctor forgets what to do, the situation is far from funny. Within the conditions of great stress and rapid decision-making that are routine in the ER, Dr. Seward shows us that physicians must be more than technicians of the body; they must be restorers of the human. Whether it is comforting anxious family or subjecting a distressed patient to tough procedures—resulting, once, in a patient’s punching our doctor—on every shift, a physician learns the difficult work of caring for strangers.Yet this is a physician who rejects doctor-as-god narratives. He highlights the essential role of nurses and other colleagues, including a pharmacist whose story is hard to forget. Throughout Patient Care, Dr. Seward reflects on how a life in medicine tests what it means to put ethics into practice.

A Walk Through the Dark: How My Husband's 90 Minutes in Heaven Deepened My Faith for a Lifetime


Eva Piper - 2013
    Don Piper's testimony, told in the "New York Times" bestseller "90 Minutes in Heaven," would one day bring hope to thousands. But all that was in the future. Despite family and friends who kept vigil with her, Eva Piper found herself essentially alone. Walking in the dark. And she had always hated the dark.Though it parallels that of her husband, Eva Piper's account is quite different from his. It takes readers not to heavenly places but through a very earthly maze of hospital corridors, insurance forms, tiring commutes from home to workplace and hospital, and lonely hours of waiting and worrying. This is the story of a woman learning, step by darkened step, to go places she never thought she could go and growing into a person she never thought she could be. Packed with hard-earned wisdom about what it means to be a caregiver, to open yourself to the care of others, and to rest in God's provision, this book" "provides a dependable source of light to help you walk through the dark.

Shadows Bright as Glass: The Remarkable Story of One Man's Journey from Brain Trauma to Artistic Triumph


Amy Ellis Nutt - 2011
    As he bent down to pick up his golf ball, something strange and massive happened inside his head; part of his brain seemed to unhinge, to split apart and float away. For an utterly inexplicable reason, a tiny blood vessel, thin as a thread, deep inside the folds of his gray matter had suddenly shifted ever so slightly, rubbing up against his acoustic nerve. Any noise now caused him excruciating pain. After months of seeking treatment to no avail, in desperation Sarkin resorted to radical deep-brain surgery, which seemed to go well until during recovery his brain began to bleed and he suffered a major stroke. When he awoke, he was a different man. Before the stroke, he was a calm, disciplined chiropractor, a happily married husband and father of a newborn son. Now he was transformed into a volatile and wildly exuberant obsessive, seized by a manic desire to create art, devoting virtually all his waking hours to furiously drawing, painting, and writing poems and letters to himself, strangely detached from his wife and child, and unable to return to his normal working life. His sense of self had been shattered, his intellect intact but his way of being drastically altered. His art became a relentless quest for the right words and pictures to unlock the secrets of how to live this strange new life. And what was even stranger was that he remembered his former self. In a beautifully crafted narrative, award-winning journalist and Pulitzer Prize finalist Amy Ellis Nutt interweaves Sarkin’s remarkable story with a fascinating tour of the history of and latest findings in neuroscience and evolution that illuminate how the brain produces, from its web of billions of neurons and chaos of liquid electrical pulses, the richness of human experience that makes us who we are. Nutt brings vividly to life pivotal moments of discovery in neuroscience, from the shocking “rebirth” of a young girl hanged in 1650 to the first autopsy of an autistic savant’s brain, and the extraordinary true stories of people whose personalities and cognitive abilities were dramatically altered by brain trauma, often in shocking ways. Probing recent revelations about the workings of creativity in the brain and the role of art in the evolution of human intelligence, she reveals how Jon Sarkin’s obsessive need to create mirrors the earliest function of art in the brain. Introducing major findings about how our sense of self transcends the bounds of our own bodies, she explores how it is that the brain generates an individual “self” and how, if damage to our brains can so alter who we are, we can nonetheless be said to have a soul. For Jon Sarkin, with his personality and sense of self permanently altered, making art became his bridge back to life, a means of reassembling from the shards of his former self a new man who could rejoin his family and fashion a viable life. He is now an acclaimed artist who exhibits at some of the country’s most prestigious venues, as well as a devoted husband to his wife, Kim, and father to their three children. At once wrenching and inspiring, this is a story of the remarkable human capacity to overcome the most daunting obstacles and of the extraordinary workings of the human mind.

Confessions of a Trauma Junkie: My Life as a Nurse Paramedic


Sherry Lynn Jones - 2009
    Sherry Lynn Jones has been an Emergency Medical Technician, Emergency Room Nurse, prison healthcare practitioner, and an on-scene critical incident debriefer. Most people who have observed or experienced physical, mental or emotional crisis have single perspectives. This book allows readers to stand on both sides of the gurney; it details a progression from innocence to enlightened caregiver to burnout, glimpsing into each stage personally and professionally. "Corrections" the third realm of emergency care behind layers of concrete and barbed wire. Join in the dangers, challenges, and truth-is-stranger-than-fiction humor of this updated and revised second edition of Confessions of a Trauma Junkie. In addition to stories from the streets and ERs, medics, nurses, and corrections officers share perceptions and coping skills from the other side of prisons' cuffs and clanging metal door.

When Stupid Comes to the Operating Room: Observations From 16 Years in Practice


D.R. Payne - 2013
    Now with twice the number of stories of stupidity coming to the hospital, emergency room and operating room. DR Payne has been taking care of patients for over 18 years in places from Alaska to the American South and she has seen her share of Stupid. Feel a little less stupid today after you read this book. Sections include: Stupid in Action Stupid in Word Stupid in Thought Stupid Baby Names Notable Tattoos A Final Thought

The Woman Who Changed Her Brain: And Other Inspiring Stories of Pioneering Brain Transformation


Barbara Arrowsmith-Young - 2012
    But through her formidable memory and determination, she made her way to graduate school, where she chanced upon research that inspired her to invent cognitive exercises to "fix" her brain. Now the Director of Arrowsmith School, the author interweaves her personal tale with riveting case histories from her more than 30 years of working with both children and adults to restructure their own brains.The Woman Who Changed Her Brain powerfully and poignantly illustrates how the lives of children and adults struggling with learning disorders can be dramatically transformed. This remarkable book by a brilliant pathbreaker deepens our understanding of how the brain works and of the brain’s profound impact on how we participate in the world. Our brains shape us, but this book offers clear and hopeful evidence of the corollary: we can shape our brains.

Misadventures of a Parenting Yogi: Cloth Diapers, Cosleeping, and My (Sometimes Successful) Quest for Conscious Parenting


Brian Leaf - 2014
    He explores Attachment Parenting, as well as Playful, Unconditional, Simplicity, and good old Dr. Spock parenting. He tries cloth diapers, no diapers, cosleeping, and no sleeping. Join him on his rollicking journey in this one-of-a-kind parenting guide.