Places I've Taken My Body: Essays


Molly McCully Brown - 2020
    Moving between these locales and others, Brown constellates the subjects that define her inside and out: a disabled and conspicuous body, a religious conversion, a missing twin, a life in poetry. As she does, she depicts vividly for us not only her own life but a striking array of sites and topics, among them Mary Shelley’s Frankenstein and the world’s oldest anatomical theater, the American Eugenics movement, and Jerry Falwell’s Liberty University. Throughout, Brown offers us the gift of her exquisite sentences, woven together in consideration, always, of what it means to be human—flawed, potent, feeling.

The Body Broken


Lynne Greenberg - 2009
    When her broken neck healed or so everyone thought her recovery was hailed as a medical miracle and she returned to normal life. Years later, she seemed to have it all: a loving husband, two wonderful children, a peaceful home, and a richly satisfying job as a tenured poetry professor. Then, one morning, this blissful fade shattered the pain in her neck returned in the most vicious way. A life with physical agony ensued.Greenberg realized that she had been living for years on borrowed time. As she and her family navigated an increasingly complicated web of doctors and specialists, Greenberg taught herself to fight her own battles against a medical system ill-equipped to handle patients with chronic pain, and against the emotional pitfalls of a newly restricted life. Drawing on her family's support, her own indomitable spirit, and an intense connection to the poetry she taught, Greenberg found the strength to return to a productive and satisfying if irrevocably changed life.

Rollerderby: The Book


Lisa Crystal Carver - 1996
    . . always possessed of great wit, astonishing artwork, and volcanic sexuality" (Hustler). 45 photos. 50 illustrations.

Lessons in Taxidermy: A Compendium of Safety and Danger


Bee Lavender - 2005
    Her powerful, elegant memoir should be read by everyone.... as an example of what truly well-written and unflinching self-examination can be like.-The Sunday TelegraphLavender... holds nothing back as she recounts her life spent in and out of hospitals and her subsequent dissociation from her own body and emotions... witnessing her strength and sheer determination to live makes this striking book completely engrossing.-Publishers Weekly (starred review)Lavender's memoir is exquisite, precise and deeply affecting from beginning to end. -BookslutThere's a deep, almost painful beauty in her seemingly dispassionate language...Bitch Magazine: Feminist Response to Pop CultureYou know how sometimes you read a book that's so powerful, you find you keep flipping to the back to look at the author's photo? Lessons in Taxidermy has that effect. The memoir is so openhearted and deft and laden with trauma that you'll want to keep checking that the writer really made it through alive. You'll also want to get a good long glimpse at the individual behind this steely, graceful voice.... Lavender has the gift of articulating tragedies... with simple, unfettered language that doesn't ask for sympathy. -Time Out NYCBee Lavender is a fantastic writer. Her work is deep and personal, and I don't think there are any places she's scared to go. -Michelle Tea, author of The Chelsea Whistle Diagnosed with cancer at age twelve and perilously pregnant at eighteen, surviving surgeries and violent accidents: sometimes you can't believe Bee Lavender is still alive; sometimes you think nothing could kill her. Lessons in Taxidermy is Lavender's fierce and expressive search for truth and an elusive sense of safety. This autobiographical tale is stark and resolved, but strangely euphoric, tying together moments and memories into a frantic, delicate, and often transcendently funny account of anguish and confusion, pain and poverty, isolation and illusion. While staying conscious of the particulars of her circumstances, Lavender frames her life in the context of history, traveling, landscape, and freak show culture. Lessons in Taxidermy is apocryphal, troubling, cathartic, and important.

Don't Call Me Inspirational: A Disabled Feminist Talks Back


Harilyn Rousso - 2013
    She addresses the often absurd and ignorant attitudes of strangers, friends, and family. Rousso also examines her own prejudice toward her disabled body, and portrays the healing effects of intimacy and creativity, as well as her involvement with the disability rights community. She intimately reveals herself with honesty and humor and measures her personal growth as she goes from "passing" to embracing and claiming her disability as a source of pride, positive identity, and rebellion. A collage of images about her life, rather than a formal portrait, Don't Call Me Inspirational celebrates Rousso's wise, witty, productive, outrageous life, disability and all.

Stories I Forgot to Tell You


Dorothy Gallagher - 2020
    At the time of his death, he had suffered from multiple sclerosis for many years and was almost completely paralyzed, but his wonderful, playful mind remained quite undimmed. In the ten sections of Stories I Forgot to Tell You, Gallagher moves freely and intuitively between the present and the past to evoke the life they shared together and her life after his death, alone and yet at the same time never without thoughts of him, in a present that is haunted but also comforted by the recollection of their common past. She talks—the whole book is written conversationally, confidingly, unpretentiously—about small things, such as moving into a new apartment and setting it up, growing tomatoes on a new deck, and as she does she recalls her missing husband’s elegant clothes and English affectations, what she knew about him and didn’t know, the devastating toll of his disease and the ways the two of them found to deal with it. She talks about their two dogs and their cat, Bones, and the role that a photograph she never took had in bringing her together with her husband. Her mother, eventually succumbing to dementia, is also here, along with friends, an old typewriter, episodes from a writing life, and her husband’s last days. The stories Gallagher has to tell, as quirky as they are profound, could not be more ordinary, and yet her glancing, wry approach to memory and life give them an extraordinary resonance that makes the reader feel both the logic and the mystery of a couple’s common existence. Her prose is perfectly pitched and her eye for detail unerring. This slim book about irremediable loss and unending love distills the essence of a lifetime.

Unsettled


Rosaleen McDonagh - 2021
    Unsettled explores racism, ableism, abuse and resistance as well as the bonds of community, family and friendship. As an Irish Traveller writing from a feminist perspective, McDonagh’s essays are rich and complex, raw and honest, and, above all else, uncompromising.Praise for UnsettledDon’t read this memoir in sorrow and outrage, read it because Rosaleen McDonagh is so proud, smart and ingenious, she will make you feel more properly alive. Beautifully written, this book beats back the darkness. It brings us all further on. — Anne EnrightMoving and eloquent, this collection is both the story of one woman’s life and a work of profound literary activism. — Emilie PineRosaleen’s story is her story. It’s a very important story and she has a right to tell it. Rosaleen demonstrates, contrary to some settled people’s opinion, that our community is matriarchal, our mothers are so resourceful, and we are not victims. The book is a testimony to the importance of identity and belonging. — Anne BurkeLike James Baldwin before her, this work is a ferociously honest exploration of the intricacies of racism, identity, sexuality, disability, grief, sensuality and marginalisation. It is also a beautiful piece of prose; honest and difficult and deeply moving. This book sees Rosaleen McDonagh masterfully taking all the parts of her life and fitting them together brilliantly for us. A must read. — Mark O’HalloranEmotive, honest and raw. Rosaleen McDonagh takes us on a journey of self acceptance, a journey that sees her face challenging obstacles and setbacks; as well as meeting friends and allies who help her to carve out a place in which she belongs. Unsettled is not only the recount of personal experiences but an authentic glimpse of Traveller life and culture as well as Rosaleen’s very sense of identity. — Michael Power

Emily: My True Story of Chronic Illness and Missing Out On Life


Emily Smucker - 2009
    . . all of the time.Plagued with some sort of cold or fever or bizarre aches and pains for much of her life, Emily thought the dizziness and stomachaches at the start of her senior year were just another bout of "Emily flu." But when they didn't go away, she knew something was seriously wrong. Eventually diagnosed with the rare and incurable West Nile virus, Emily watched her senior year and the future she had planned for go up in smoke."I want a normal life for a teenager. I want to ache from a long day at work. I want to be so busy that I don't have time to post on my blog. I want to run the race of life instead of being pushed along it in a wheelchair. I want to be on the ride of my life, you know?"Because Truth Is More Fascinating Than Fiction

Strong at the Broken Places: Voices of Illness, A Chorus of Hope


Richard Merrill Cohen - 2008
    In this intimate portrait, acclaimed journalist Richard M. Cohen probes lives of sickness as these individuals struggle to cope.In 2003 Cohen published Blindsided, a bestselling memoir of illness. The outpouring of support revealed to him that not only does the public want to hear from people who overcome the challenges of illness, but that in the isolated world of illness, there are people who want their voices to be heard. Strong at the Broken Places was born of the desire of many to share their stories in the hope that the sick and those who love them will see that they are not alone.Cohen spent three years chronicling the lives of five diverse "citizens of sickness": Denise, who suffers from ALS; Buzz, whose Christian faith helps him deal with his non-Hodgkin's lymphoma; Sarah, a determined young woman with Crohn's disease; Ben, a college student with muscular dystrophy; Larry, whose bipolar disorder is hidden within. The five are different in age and gender, race and economic status, but they are determined to live life on their own terms. Intimately involved with these patients' lives, Cohen formed intense relationships with each, talked to their families and friends, and shared joy, even in heart-breaking setbacks.Though each individual's illness wreaks havoc in a different way, Cohen shows how their experiences are strikingly similar and offer lessons for us all—on self-determination, on courage in the face of adversity and public ignorance, on keeping hope alive, and on finding strength and peace under the most difficult of circumstances.We are strong at the broken places, stronger than we think. In sharing these inspirational and revealing stories, Richard M. Cohen and his fellow warriors against illness offer a chorus of hope.

Ask Me About My Uterus: A Quest to Make Doctors Believe in Women's Pain


Abby Norman - 2018
    She was repeatedly hospitalized in excruciating pain, but the doctors insisted it was a urinary tract infection and sent her home with antibiotics. Unable to get out of bed, much less attend class, Norman dropped out of college and embarked on what would become a years-long journey to discover what was wrong with her. It wasn't until she took matters into her own hands--securing a job in a hospital and educating herself over lunchtime reading in the medical library--that she found an accurate diagnosis of endometriosis.In Ask Me About My Uterus, Norman describes what it was like to have her pain dismissed, to be told it was all in her head, only to be taken seriously when she was accompanied by a boyfriend who confirmed that her sexual performance was, indeed, compromised. Putting her own trials into a broader historical, sociocultural, and political context, Norman shows that women's bodies have long been the battleground of a never-ending war for power, control, medical knowledge, and truth. It's time to refute the belief that being a woman is a preexisting condition.

Until I Say Goodbye: A Book about Living


Susan Spencer-Wendel - 2012
    She was forty-four years old, with a devoted husband and three young children, and she had only one year of health remaining.Susan decided to live that year with joy.She quit her job as a journalist and spent time with her family. She built an outdoor meeting space for friends in her backyard. And she took seven trips with the seven most important people in her life. As her health declined, Susan journeyed to the Yukon, Hungary, the Bahamas, and Cyprus. She took her sons to swim with dolphins, and her teenage daughter, Marina, to Kleinfeld's bridal shop in New York City to see her for the first and last time in a wedding dress.She also wrote this book. No longer able to walk or even to lift her arms, she tapped it out letter by letter on her iPhone using only her right thumb, the last finger still working.However, Until I Say Good-Bye is not angry or bitter. It is sad in parts--how could it not be?--but it is filled with Susan's optimism, joie de vivre, and sense of humor. It is a book about life, not death. One that, like Susan, will make everyone smile.From the Burger King parking lot where she cried after her diagnosis to a snowy hot spring near the Arctic Circle, from a hilarious family Christmas disaster to the decrepit monastery in eastern Cyprus where she rediscovered her heritage, Until I Say Good-Bye is not only Susan Spencer-Wendel's unforgettable gift to her loved ones--a heartfelt record of their final experiences together--but an offering to all of us: a reminder that "every day is better when it is lived with joy."

Most of Me: Surviving My Medical Meltdown


Robyn Michele Levy - 2011
    She is accompanied on her journey by a fantastic cast of characters, including her Cry Lady (who always makes appearances at inopportune times) and perky Dolores the Prosthesis, as well as a convoy of health professionals, family members, friends, and neighbors. Both heartbreaking and hilarious, Most of Me offers a unique glimpse into a creative mind, an ailing body, and the restorative power of humor and fantasy.

Leah Remini: My Escape from Scientology


Johnny Dodd - 2016
    Ron Hubbard—begins in Brooklyn's working-class Bensonhurst neighborhood, where she was introduced to the religion by her mom. More than three decades later, Leah summoned the courage to leave the church—something few celebrities at her level of fame have ever done before and almost none have ever talked about. This People Spotlight Story explores Leah Remini and her escape from Scientology.

Sick Woman Theory


Johanna Hedva - 2016
    The ‘sick’ part of the Sick Woman speaks to an identity that gets defined by ableism: if you are defined by the care you give and take, you are a person who is unproductive, or a drain on resources, or dysfunctional, or disordered, or incurable, or worthless, etc, ad infinitum – in other words, your embodied existence deviates from ableist standards. Hedva's analysis looks at how ableism is perhaps the most pernicious ideology, because it’s the very bedrock of how we decide whether a person is valued or not. White supremacy, racism, misogyny, transphobia, heteronormativity – all of these things need ableism in order to work because they are means of oppressing people based on an invented hierarchy of superiority and normativity.

I Remember Running: The Year I Got Everything I Ever Wanted - and ALS


Darcy Wakefield - 2005
    Then she was diagnosed with ALS, and her world turned upside down. I Remember Running is Darcy's story of change and loss and challenges during her first year with ALS, as she struggles to make sense of her diagnosis and redefine herself in the face of this terminal illness. With unflagging courage, wit, and eloquence, Darcy shares what she calls her "fast-forward" life, a life in which she applies for disability, leaves her job, and plans her own funeral as well as meets and moves in with her true love, buys a house, and gives birth to her first child in less time than it takes most of us to accomplish even one of these things. Beautifully written and wholly inspiring, I Remember Running proves that it is possible to live a rich, meaningful life after being diagnosed with a terminal illness, and will move readers to see the world in a different light.