What she did not count on was how much death would be a part of her work. Almost immediately, Chen found herself wrestling with medicine’s most profound paradox, that a profession premised on caring for the ill also systematically depersonalizes dying. Final Exam follows Chen over the course of her education, training, and practice as she grapples at strikingly close range with the problem of mortality, and struggles to reconcile the lessons of her training with her innate knowledge of shared humanity, and to separate her ideas about healing from her fierce desire to cure.From her first dissection of a cadaver in gross anatomy to the moment she first puts a scalpel to a living person; from the first time she witnesses someone flatlining in the emergency room to the first time she pronounces a patient dead, Chen is struck by her own mortal fears: there was a dying friend she could not call; a young patient’s tortured death she could not forget; even the sense of shared kinship with a corpse she could not cast aside when asked to saw its pelvis in two. Gradually, as she confronts the ways in which her fears have incapacitated her, she begins to reject what she has been taught about suppressing her feelings for her patients, and she begins to carve out a new role for herself as a physician and as human being. Chen’s transfixing and beautiful rumination on how doctors negotiate the ineluctable fact of death becomes, in the end, a brilliant questioning of how we should live.Moving and provocative, motored equally by clinical expertise and extraordinary personal grace, this is a piercing and compassionate journey into the heart of a world that is hidden and yet touches all of our lives. A superb addition to the best medical literature of our time.

    Amy chronicles her harrowing medical journey from the first misdiagnosis to her astonishing recovery after her heart transplant, which is made all the more dramatic by the romantic bedside courtship with her future husband, and her uncompromising desire to become a mother. She presents a patient's perspective of life after a heart transplant with honesty.

    Her father grew up during the Depression, believed he'd be the next Frank Sinatra, and ended up working in the mills. His daughter, Lori Jakiela, spent her suburban Pittsburgh childhood watching Marlo Thomas in That Girl and dreaming of New York City.Instead, she got bad talent shows, a Junior Miss contest, and college in Erie, PA, where the big attraction was chicken wings. But years later, her Big Apple dreams were still going strong. With her twenties becoming a distant memory, Jakiela answered an airline ad promising a NYC home base, high-flying glamour, and three-day layovers in Paris. The reality was a roach-filled apartment in Queens, a polyester uniform cut like a sack, and a life that wasn't quite what she imagined.

    At the age of 29, Diana Hill fell under a London train. In 7 seconds the tall, glamorous businesswoman went from busy woman of the world with everything to live for to double-leg amputee, her life in ruins. Then it got worse. A few days after her accident, as she lay in hospital, traumatised and heavily sedated, she learnt via a newspaper article that the railway’s Transport Police were to interview “The Fall Girl”, as the Press had labelled her, with a view to prosecution. She had boarded a moving train, they said, and trespassed onto their railway line. Her fight for justice took 5 years and was, she declares with no hesitation, a more harrowing experience than having both of her legs ‘stolen’ from her. As any young, single woman would be, Diana was shocked to the core by the sudden, catastrophic change in her body image. What man would ever love her now? The issues surrounding sexuality and disability are explored here with stark honesty as she recalls her complicated love life, the High Court dramas, and the rawness of her pain amidst a turmoil of emotion, all told with tremendous humour, charm and heart. For Diana loves to tell stories. Especially true ones. A brutally honest, heartwarming memoir that shocks and delights in equal measure – when you're not crying for her you're laughing with her: "A computer is a thing that can be disabled, not a person." Diana Morgan-Hill

    These writers recount intensely personal and profoundly moving end-of-life accounts that cover a wide spectrum of human experience. All six authors are donating their royalties to a Maine hospice; Down East will also donate 10 percent of proceeds to the same cause.

    Saving Henry is a memoir of the author's struggle to save the life of her son Henry, who suffered from a rare childhood illness. Henry was born with a heart condition that was operable, but which proved to be a precursor for a rare, almost-always fatal illness: Fanconi anemia.  Laurie, Henry's mom, decided to do everything in her power to fight the course of the disease. She and her husband signed on for a brand new procedure called PGD that, through in vitro fertilization combined with genetic testing, was supposed to be able to produce a new baby who was a carrier of the gene, but who would not become ill with it. The stem cells from the umbilical cord could then be implanted into Henry's body and ultimately save him. As Laurie puts it, "I believe in love and science, nothing more and nothing less."Laurie and her husband had a second child who was healthy but not an FA carrier, and then went through nine failed courses of PGD before they had to give up. Meanwhile, the feisty little boy who loved Batman, Cal Ripken, and root beer-flavored anesthesia captivated everyone who came in contact with him, from New York City to Minneapolis, with his spunk and "never give up" attitude.   Henry was the little kid who, when the nurses came to take blood samples, brandished his Harry Potter sword and said, "Bring it on!" and when he lost his hair after a chemo treatment, he declared, "Hey, I look like Michael Jordan!" Laurie became a lobbyist for stem cell research, testifying before Congress, written up by Lisa Belkin in the New York Times and other media, and appearing on Nightline to discuss Henry's case and the importance of the research. Throughout it all, Henry's courage and bravery were a source of inspiration for the many nurses, doctors, friends and family who interacted with him-- and he has saved many lives through his participation in groundbreaking research. This is the moving and incredibly inspiring story of this family's search for a cure, and the impact their amazing son had on the lives of so many.

    The actor shares his sixteen-year struggle to hide his multiple sclerosis from his wife, daughter, and the public from his first signs of vertigo five years after Laverne & Shirley until his decision to announce his illness.

    Within days of their first meeting in 2003, they were planning a life together, and soon they were inseparable as Michael became ever more integrated into Marilu’s family. But after only months they were thrown the ultimate curveball: Michael was diagnosed with bladder cancer, and then lung cancer. Marilu refused to lose the love of her life so easily. With the knowledge she had gained on her own health journey, chronicled in several of her bestselling books, Marilu set about finding a path for Michael that would use the best of Eastern and Western medicine to beat his cancers and return Michael to optimal health. Michael eschewed most traditional treatments and with Marilu’s help—aided by knowledgeable and sympathetic doctors—he forged his own path. In this moving and informative book, Marilu tells the story of their fast-paced romance and how this contrasted with the day-to-day battle for Michael’s life. Michael tells the story from his point of view: the search for the cause of his cancer, the mental anguish he felt as he realized how responsible he was for his condition, the physical and mental hardships that he had to overcome, and the triumph of love that made it all worthwhile. Not a “how-to” book in the traditional sense, Changing Normal is a book of empowerment, a call for all those facing similar challenges to take responsibility for their lives, to search for the causes of their illness and address them directly. Written with an engaging voice, a sense of humor, and life-changing wisdom, Changing Normal is a personal and touching look at how Marilu and Michael faced down a cancer diagnosis and came out the other side happier, healthier, and more in love than ever.

    A map, a tracing of connections and a guide to looking at things from different angles. How do you tell the story of life that is no one thing? How do you tell the story of a life in a body, as it goes through sickness, health, motherhood? And how do you tell that story when you are not just a woman but a woman in Ireland? In these powerful and daring essays, Sinead Gleeson does that very thing. In doing so she delves into a range of subjects: art, illness, ghosts, grief, and our very ways of seeing. In writing that is in tradition of some of our finest writers such as Olivia Laing, Maggie O'Farrell, and Maggie Nelson, and yet still in her own spirited, warm voice, Gleeson takes us on a journey that is both personal and yet universal in its resonance.

    Against all logic, he applies and, against all logic, he advances. Fearless and funny, Shubaly is forced to interrogate not just the reality of the show but also his decisions, his addictions, his neuroses, his desires - indeed, his entire reality.

    The remembrances in this collection of letters are founded in the fragments of stories her mother shared reluctantly, and the silences of her father, who first would not and then could not share more. They are whittled and sculpted from an archive of family relics: a marriage license, a letter, a visa petition, a photograph. And, just as often, they are built on the questions that can no longer be answered.Dear Memory is not a transcription but a process of simultaneously shaping and being shaped, knowing that when a writer dips their pen into history, what emerges is poetry. In carefully crafted missives on trauma and loss, on being American and Chinese, Victoria Chang shows how grief can ignite a longing to know yourself.

    A neurologist's insightful and compassionate look into the misunderstood world of psychosomatic disorders, told through individual case histories

    Undeniably celebratory and deeply troubling, this sharp-edged collection (of fiction, prose poetry, personal essay, photographs, and illustration) figures the un-hyphenated femme experience emerging in performance, betrayal, violence, humor and survival.Brazen Femme recognizes femme as an identity in flux and in motion, as constantly being reinvented. This mutability sets the stage for creative and thoughtful representation featuring critically acclaimed writers including Michelle Tea, Camilla Gibb, Sky Gilbert, Amber Hollibaugh and Anurima Banerji. The collection includes the entertaining and challenging work of writers and artists whose stories are missing from existing explorations of femme that exclude experiences of men, transsexual women, and sex workers.Whether by choice or necessity, these frenzied femmes each explore their desires to make (and remake) femininity fit their own queer frames. Darlings, drag queens, whores and action heroes . . . a femme by any other name is spectacular.With writings by Debra Anderson, Anurima Banerji, T.J. Bryan, Anna Camilleri, Daniel Collins, Lisa Duggan and Kathleen McHugh, Camilla Gibb, Sky Gilbert, Tara Hardy, Amber Hollibaugh, Suzann Kole, Heather Mc-Callister, Elaine Miller, Kathryn Payne, Leah Piepzna-Samarasinha, Elizabeth Ruth, Trish Salah, Abi Slone and Allyson Mitchell, Michelle Tea, Zoe Whittal and Karin Wolf.With photographs by Chloë Brushwood Rose, and Daniel Collins, and illustrations by comic artists Sandi Rapini, Suzy Malik and Allyson Mitchell.Chloë Brushwood Rose and Anna Camilleri have been collaborating in Toronto as curators, editors and art-makers for the past four years. Anna co-founded the interdisciplinary performance troupe Taste This, who collaborated on the acclaimed Boys Like Her.

    At forty-five years old, my life’s mission was complete. If I died tomorrow, I would be proud of the life I lived.” - Loving Tiara Loving Tiara is a compelling memoir that will encompass your every thought, break your heart, fill you with hope, and leave you with a sense of awe. When Tiffani married the love of her life, Lou, after graduating from college, she assumed she would continue to live the affluent life she had always known, having grown up in Newport Beach, California. She never imagined she would soon be stalked by creditors, driving a car on the repossession list and forced to worry about providing basic necessities for her family, such as buying diapers and groceries. This increasingly desperate situation forced her to decide to return home to her parents with her baby and husband. After getting their life back on track, and with Tiffani in her final year of law school, they decided to have another baby. At eight months old, however, they discovered that their new daughter Tiara had Tuberous Sclerosis, a rare genetic disorder resulting in intractable epilepsy, developmental delay, chronic hospital admissions, and uncontrollable violent behaviors. So how did Tiffani cope with her new reality? She chose to fight. She challenged the doctors, battled the insurance companies, and refused to give up caring for Tiara even when her own life was at risk. The author’s story of unconditional love, unimaginable challenges, and, ultimately, triumph, is a compelling one, which will take hold of your heart and not let go. This memoir will, hopefully, inspire you to tackle fear, encourage you never to give up, and remind you always to trust your gut instincts.

    From her unnerving depiction of sexual assault in "Me and a Gun" to her post-9/11 album Scarlet's Walk to her latest album Native Invader, her work has never shied away from intermingling the personal with the political.Amos began playing piano as a teenager for the politically powerful at hotel bars in Washington, D.C., during the formative years of the post-Goldwater and then Koch-led Libertarian and Reaganite movements. The story continues to her time as a hungry artist in L.A. to the subsequent three decades of her formidable music career. Amos explains how she managed to create meaningful, politically resonant work against patriarchal power structures-and how her proud declarations of feminism and her fight for the marginalized always proved to be her guiding light. She teaches readers to engage with intention in this tumultuous global climate and speaks directly to supporters of #MeToo and #TimesUp, as well as young people fighting for their rights and visibility in the world.Filled with compassionate guidance and actionable advice-and using some of the most powerful, political songs in Amos's canon-this book is for readers determined to steer the world back in the right direction.