Book picks similar to
Sick: A Compilation Zine on Physical Illness by Ben Holtzman
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Sex and Disability
Robert McRuer - 2011
The major texts in sexuality studies, including queer theory, rarely mention disability, and foundational texts in disability studies do not discuss sex in much detail. What if "sex" and "disability" were understood as intimately related concepts? And what if disabled people were seen as both subjects and objects of a range of erotic desires and practices? These are among the questions that this collection's contributors engage. From multiple perspectives—including literary analysis, ethnography, and autobiography—they consider how sex and disability come together and how disabled people negotiate sex and sexual identities in ableist and heteronormative culture. Queering disability studies, while also expanding the purview of queer and sexuality studies, these essays shake up notions about who and what is sexy and sexualizable, what counts as sex, and what desire is. At the same time, they challenge conceptions of disability in the dominant culture, queer studies, and disability studies.Contributors. Chris Bell, Michael Davidson, Lennard J. Davis, Michel Desjardins, Lezlie Frye, Rachael Groner, Kristen Harmon, Michelle Jarman, Alison Kafer, Riva Lehrer, Nicole Markotić, Robert McRuer, Anna Mollow, Rachel O’Connell, Russell Shuttleworth, David Serlin, Tobin Siebers, Abby L. Wilkerson
We Danced: Our Story of Love and Dementia
Scott M. Rose - 2021
It opens with snapshots of her troubled childhood and early adult life in two difficult marriages. It quickly transitions to our first meeting, friendship, and relationship - not without their own complications. Through those trials, she showed tremendous strength and heart. We eventually married and lived a love story that others marveled at for years. We travelled, went to concerts, built a home, and remained completely devoted. While still in her early sixties, she lost a piece of herself. Words became harder to find. Steps to perform the simplest tasks became impossible to follow. We knew something was wrong but had no idea the severity of her condition. Our world turned upside down.The latter half of the book chronicles in exacting detail her diagnosis and life with Frontotemporal Degeneration, a dementia known as FTD. I cared for her for the three and a half years of this disease. Her mental state deteriorated rapidly. I changed to a more flexible job to stay with her more during the day as she lost even the most basic functions of eating alone, toileting, or using a phone. We still created tender moments and danced but she was losing a tremendous amount of weight and required greater and greater care.Financials not allowing me to quit work, I succumbed to the recommendations of multiple professionals and made the painful decision to place her in memory care. I visited her every day, two to three times per day, and we made the best of a horrible situation. We still shared many tender moments during this last year, including the moment I held her hand as she passed. The story is told in a vulnerable and unfiltered manner. It collects writings from both husband and wife through journals, letters, and social media posts integrated into the main narrative. It captures our real-life, undying love story through this incurable disease
No Time Like the Future: An Optimist Considers Mortality
Michael J. Fox - 2020
Fox.The entire world knows Michael J. Fox as Marty McFly, the teenage sidekick of Doc Brown in Back to the Future; as Alex P. Keaton in Family Ties; as Mike Flaherty in Spin City; and through numerous other movie roles and guest appearances on shows such as The Good Wife and Curb Your Enthusiasm. Diagnosed at age 29, Michael is equally engaged in Parkinson’s advocacy work, raising global awareness of the disease and helping find a cure through The Michael J. Fox Foundation for Parkinson’s Research, the world’s leading non-profit funder of PD science. His two previous bestselling memoirs, Lucky Man and Always Looking Up, dealt with how he came to terms with the illness, all the while exhibiting his iconic optimism. His new memoir reassesses this outlook, as events in the past decade presented additional challenges.In No Time Like the Future: An Optimist Considers Mortality, Michael shares personal stories and observations about illness and health, aging, the strength of family and friends, and how our perceptions about time affect the way we approach mortality. Thoughtful and moving, but with Fox’s trademark sense of humor, his book provides a vehicle for reflection about our lives, our loves, and our losses.Running through the narrative is the drama of the medical madness Fox recently experienced, that included his daily negotiations with the Parkinson’s disease he’s had since 1991, and a spinal cord issue that necessitated immediate surgery. His challenge to learn how to walk again, only to suffer a devastating fall, nearly caused him to ditch his trademark optimism and “get out of the lemonade business altogether.”
Giovanni's Ring: My Life Inside the Real Sopranos
Giovanni Rocco - 2021
That lethal assignment brought the undercover operation to an end in March 2015, and the resulting string of high-profile arrests eviscerated the criminal organization.Giovanni’s Ring is not simply a chronicle of Giovanni Rocco’s adventures in the murky and dangerous Mafia world he inhabited, but also a fascinating window into the psychological struggles that such a life inevitably entails.“Rocco conveys the frustrations of his double life poignantly throughout this revelatory read, a captivating true-crime thriller from start to finish and a new gem for Mafia book fans.” —Booklist
The Doper Next Door: My Strange and Scandalous Year on Performance-Enhancing Drugs
Andrew Tilin - 2011
Soon wielding syringes, this forty-something husband and father of two children becomes the doper next door.During his yearlong odyssey, Tilin is transformed. He becomes stronger, hornier, and aggressive. He wades into a subculture of doping physicians, real estate agents, and aging women who believe that Tilin’s type of legal “hormone replacement therapy” is the key to staying young—and he often agrees. He also lives with the price paid for renewed vitality, worrying about his health, marriage, and cheating ways as an amateur bike racer. And all along the way, he tells us what doping is really like—empowering and scary.
Getting Personal: Selected Essays
Phillip Lopate - 2003
Organized in six parts (Childhood; Youth; Early Marriage and Bachelorhood; Teaching and Work; Fiction; Politics, Religion, Movies, Books, Cities; The Style of Middle Age) Getting Personal tells two stories: the development of Lopate's career as a writer and the story of his life.
Sonata: A Memoir of Pain and the Piano
Andrea Avery - 2017
The heartbreaking story of this mysterious sonata—Schubert’s last, and his most elusive and haunting—is the soundtrack of Andrea's story.Sonata is a breathtaking exploration of a “Janus-head miracle”—Andrea's extraordinary talent and even more extraordinary illness. With no cure for her R.A. possible, Andrea must learn to live with this disease while not letting it define her, even though it leaves its mark on everything around her—family, relationships, even the clothes she wears. And in this riveting account, she never loses her wit, humor, or the raw artistry of a true performer.As the goshawk becomes a source of both devotion and frustration for Helen Macdonald in H is for Hawk, so the piano comes to represent both struggle and salvation for Andrea in her extraordinary debut.
Like Falling Through a Cloud: A Lyrical Memoir
Eugenia Zukerman - 2019
Touching, honest, and fearlessly heartfelt, Like Falling Through a Cloud recounts Zukerman’s discovery, consultations, and diagnosis, all while navigating the death of her 103-year-old mother, a performance at the Kennedy Center, and the consolidation of her life via a full-time move to upstate New York. As she finds strength in family love, self-examination, and the enduring power of creating music, Zukerman teaches us the importance of living in the now, while accepting that what comes next may remain a mystery.
The Sound of a Wild Snail Eating
Elisabeth Tova Bailey - 2010
While an illness keeps her bedridden, Bailey watches a wild snail that has taken up residence on her nightstand. As a result, she discovers the solace and sense of wonder that this mysterious creature brings and comes to a greater understanding of her own confined place in the world. Intrigued by the snail’s molluscan anatomy, cryptic defenses, clear decision making, hydraulic locomotion, and mysterious courtship activities, Bailey becomes an astute and amused observer, providing a candid and engaging look into the curious life of this underappreciated small animal. Told with wit and grace, The Sound of a Wild Snail Eating is a remarkable journey of survival and resilience, showing us how a small part of the natural world illuminates our own human existence and provides an appreciation of what it means to be fully alive.
Life After Deaf: My Misadventures in Hearing Loss and Recovery
Noel Holston - 2019
On a spring night in 2010, Noel Holston, a journalist, songwriter, and storyteller, went to bed with reasonably intact hearing. By dawn, it was gone, thus beginning a long process of hearing-restoration that included misdiagnoses, an obstinate health-insurance bureaucracy, failed cochlear-implant surgery, and a second surgery that finally worked. He negotiated the gauntlet with a wry sense of humor and the aid of his supportive wife, Marty. Life After Deaf details his experience with warmth, understanding, and candor. It’s the story not only of his way back to the world of the hearing, but of a great marriage that weathered serious testing. Their determination and resilience serve as a source of inspiration for all.Life After Deaf is not just for the more than forty million people in the United States alone who cope with some form of hearing loss, but is also for their wide circles of friends, family, caregivers, and audiologists. This highly readable book will be an invaluable guide and source of hope for the large number of baby boomers now handling hearing loss.
Stephen King: The Playboy Interview
Stephen King - 1983
This is the interview with the horror author Stephen King from the June 1983 issue.
Being Heumann: An Unrepentant Memoir of a Disability Rights Activist
Judith Heumann - 2020
From fighting to attend grade school after being described as a "fire hazard" to later winning a lawsuit against the New York City school system for denying her a teacher's license because of her paralysis, Judy's actions set a precedent that fundamentally improved rights for disabled people.As a young woman, Judy rolled her wheelchair through the doors of the US Department of Health, Education, and Welfare in San Francisco as a leader of the Section 504 Sit-In, the longest takeover of a governmental building in US history. Working with a community of over 150 disabled activists and allies, Judy successfully pressured the Carter administration to implement protections for disabled peoples' rights, sparking a national movement and leading to the creation of the Americans with Disabilities Act.Candid, intimate, and irreverent, Judy Heumann's memoir about resistance to exclusion invites readers to imagine and make real a world in which we all belong.
Devil in the Details: Scenes from an Obsessive Girlhood
Jennifer Traig - 2004
The result is a book so relentlessly funny and frank, it's totally refreshing.
Falling Cars and Junkyard Dogs
Jay Farrar - 2013
Recollections of Farrar's father are prominent throughout the stories. Ultimately, it is music and musicians that are given the most space and the final word since music has been the creative impetus and driving force for the past 35 years of his life.In writing these stories, he found a natural inclination to focus on very specific experiences; a method analogous to the songwriting process. The highlights and pivotal experiences from that musical journey are all represented as the binding thread in these stories, illustrated throughout with photography from his life. If life is a movie, then these stories are the still frames.
Tennessee Tails: Pets and Their People
Kathryn Primm - 2013
Personal and medical details paint a charming picture of the author's love for her patients, respect for their owners and dedication to her profession. America's Veterinarian, Dr. Marty Becker says, "Animal lovers will love this book."