Against Medical Advice


James Patterson - 2008
    From that day forward his life became a hell of uncontrollable tics, urges, and involuntary utterances. Eventually he is diagnosed with Tourette's Syndrome and Obsessive Compulsive disorder, and Cory embarks on an excruciating journey from specialist to specialist, enduring countless combinations of medications in wildly varying doses. Soon it becomes unclear what tics are symptoms of his disease and what are side effects of the drugs. The only certainty is that it kept getting worse. Despite his lack of control, Cory is aware of every embarrassing movement, and sensitive to every person's reaction to his often aggravating presence. Simply put: Cory Friedman's life is a living hell.Against Medical Advice is the true story of one family's decades-long battle for survival in the face of extraordinary difficulties and a rigid medical establishment.

The Valedictorian of Being Dead: The True Story of Dying Ten Times to Live


Heather B. Armstrong - 2019
    Armstrong writes about her experience as one of only a few people to participate in an experimental treatment for depression involving ten rounds of a chemically induced coma approximating brain death.For years, Heather B. Armstrong has alluded to her struggle with depression on her website. But in 2016, Heather found herself in the depths of a depression she just couldn’t shake, an episode darker and longer than anything she had previously experienced. This book recalls the torturous eighteen months of suicidal depression she endured and the month-long experimental study in which doctors used propofol anesthesia to quiet all brain activity for a full fifteen minutes before bringing her back from a flatline. Ten times. The experience wasn’t easy. Not for Heather or her family. But a switch was flipped, and Heather hasn’t experienced a single moment of suicidal depression since. The Valedictorian of Being Dead brings to light a groundbreaking new treatment for depression.

The Invisible Girls


Sarah Thebarge - 2013
    After surviving the grueling treatments - though just barely - Sarah moved to Portland, Oregon to start over. There, a chance encounter with an exhausted African mother and her daughters transformed her life again. A Somali refugee whose husband had left her, Hadhi was struggling to raise five young daughters, half a world a way from her war-torn homeland. Alone in a strange country, Hadhi and the girls were on the brink of starvation in their own home, "invisible" to their neighbors and to the world. As Sarah helped Hadhi and the girls navigate American life, her outreach to the family became a source of courage and a lifeline for herself. Poignant, at times shattering, Sarah Thebarge's riveting memoir invites readers to engage in her story of finding connection, love, and redemption in the most unexpected places.

You Don't Look Like Anyone I Know: A True Story of Family, Face Blindness, and Forgiveness


Heather Sellers - 2010
     Heather Sellers is face-blind-that is, she has prosopagnosia, a rare neurological condition that prevents her from reliably recognizing people's faces. Growing up, unaware of the reason for her perpetual confusion and anxiety, she took what cues she could from speech, hairstyle, and gait. But she sometimes kissed a stranger, thinking he was her boyfriend, or failed to recognize even her own father and mother. She feared she must be crazy. Yet it was her mother who nailed windows shut and covered them with blankets, made her daughter walk on her knees to spare the carpeting, had her practice secret words to use in the likely event of abduction. Her father went on weeklong "fishing trips" (aka benders), took in drifters, wore panty hose and bras under his regular clothes. Heather clung to a barely coherent story of a "normal" childhood in order to survive the one she had. That fairy tale unraveled two decades later when Heather took the man she would marry home to meet her parents and began to discover the truth about her family and about herself. As she came at last to trust her own perceptions, she learned the gift of perspective: that embracing the past as it is allows us to let it go. And she illuminated a deeper truth-that even in the most flawed circumstances, love may be seen and felt. Watch a Video

Brave Girl Eating: A Family's Struggle with Anorexia


Harriet Brown - 2010
    Brave Girl Eating is an intimate, shocking, compelling, and ultimately uplifting look at the ravages of a mental illness that affects more than 18 million Americans.

January First: A Child's Descent into Madness and Her Father's Struggle to Save Her


Michael Schofield - 2012
    In January's case, she is hallucinating 95 percent of the time that she is awake. Potent psychiatric drugs that would level most adults barely faze her. January, "Jani" to her family, has literally hundreds of imaginary friends. They go by names like 400-the-Cat, 100 Degrees, and 24 Hours and live on an island called "Calalini," which she describes as existing "on the border of my world and your world." Some of these friends are good, and some of them, such as 400, are very bad. They tell her to jump off buildings, attack her brother, and scream at strangers.In the middle of these never-ending delusions, hallucinations, and paroxysms of rage are Jani's parents, who have gone to the ends of the earth to keep both of their children alive and unharmed. They live in separate one-bedroom apartments in order to keep her little brother, Bohdi, safe from his big sister—and wage a daily war against a social system that has all but completely failed them. January First is the story of the daily struggles and challenges they face as they do everything they can to help their daughter while trying to keep their family together. It is the inspiring tale of their resolute determination and faith.

Divided Minds: Twin Sisters and Their Journey Through Schizophrenia


Pamela Spiro Wagner - 2005
    But as the twins approached adolescence, Pamela began to succumb to schizophrenia, hearing disembodied voices and eventually suffering many breakdowns and hospitalizations.Divided Minds is a dual memoir of identical twins, one of whom faces a life sentence of schizophrenia, and the other who becomes a psychiatrist, after entering the spotlight that had for so long been focused on her sister. Told in the alternating voices of the sisters, Divided Minds is a heartbreaking account of the far reaches of madness, as well as the depths of ambivalence and love between twins. It is a true and unusually frank story of identical twins with very different identities and wildly different experiences of the world around them.

The Last Kiss: A True Story of Love, Joy and Loss


Leslie Brody - 2012
    But six years after their wedding, they learned that Elliot, only 55, had pancreatic cancer - and would be lucky to live for a year or two.With a journalist's eye for intimate detail, Leslie shows how they made the very most of the time they had left together. Told with heart, humor and compelling immediacy, The Last Kiss is a love story about the life-affirming power of a passionate marriage, the importance of loyal friends, and the resilience of children growing up through one of life's harshest trials.This is the most important story she has ever told.

The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son


Ian Brown - 2009
    At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life. Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is. Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.

90 Days to Live: Beating Cancer When Modern Medicine Offers No Hope


Rodney Stamps - 2019
    This heart-wrenching and heartwarming book chronicles Rodney's triumphant journey to full remission after following a little known but highly effective cancer treatment.What if you were told you had 90 days to live?For Rodney and Paige Stamps, Rodney's "out-of-the-blue" cancer diagnosis quickly turned a normally hypothetical question horribly real.When Paige met Rodney, a nationally touring heavy-metal drummer, they both fell hard. Rodney swapped his drumsticks for marriage, family, a job, and then, his own business.The '90-Days' diagnosis hit just as their business was starting to soar."You're going to die" was the solemn verdict from numerous MDs, who promised only to briefly extend Rodney's life. With both a growing family and business, and so much living still to do, Rodney's response to the no-hope prognosis? "I don't think so."90 Days to Live recounts the Stamps' incredible and inspirational journey to find an alternative "answer to cancer." In the end...They'd beaten the cancer and built a million dollar business.While his weight dropped from 190 to 138 lbs., Rodney and Paige explored countless cancer "cures" of widely varying value. They even exposed a scam treatment being peddled by a mob boss--crossing paths with the FDA and FBI!Alternately heart-wrenching and heart-warming--and delivered in an engaging dual-author format--90 Days to Live will speak to anyone struggling with an "incurable" disease, building a business under trying circumstances, or anyone who just loves a good old-fashioned, "beating-the-odds" story.

Rock Needs River: A Memoir About a Very Open Adoption


Vanessa McGrady - 2019
    Her sweet baby, Grace, was a dream come true. Then Vanessa made a highly uncommon gesture: when Grace’s biological parents became homeless, Vanessa invited them to stay.Without a blueprint for navigating the practical basics of an open adoption or any discussion of expectations or boundaries, the unusual living arrangement became a bottomless well of conflicting emotions and increasingly difficult decisions complicated by missed opportunities, regret, social chaos, and broken hearts.Written with wit, candor, and compassion, Rock Needs River is, ultimately, Vanessa’s love letter to her daughter, one that illuminates the universal need for connection and the heroine’s journey to find her tribe.

On Living


Kerry Egan - 2016
    Instead, she discovered she’d been granted an invaluable chance to witness firsthand what she calls the “spiritual work of dying”—the work of finding or making meaning of one’s life, the experiences it’s contained and the people who have touched it, the betrayals, wounds, unfinished business, and unrealized dreams. Instead of talking, she mainly listened: to stories of hope and regret, shame and pride, mystery and revelation and secrets held too long. Most of all, though, she listened as her patients talked about love—love for their children and partners and friends; love they didn’t know how to offer; love they gave unconditionally; love they, sometimes belatedly, learned to grant themselves. This isn’t a book about dying—it’s a book about living. And Egan isn’t just passively bearing witness to these stories. An emergency procedure during the birth of her first child left her physically whole but emotionally and spiritually adrift. Her work as a hospice chaplain healed her, from a brokenness she came to see we all share. Each of her patients taught her something—how to find courage in the face of fear or the strength to make amends; how to be profoundly compassionate and fiercely empathetic; how to see the world in grays instead of black and white. In this poignant, moving, and beautiful book, she passes along all their precious and necessary gifts.

Chasing My Cure: A Doctor's Race to Turn Hope into Action


David Fajgenbaum - 2019
    But things changed dramatically when he began suffering from inexplicable fatigue. In a matter of weeks, his organs were failing and he was read his last rites. Doctors were baffled by his condition, which they had yet to even diagnose. Floating in and out of consciousness, Fajgenbaum prayed for a second chance, the equivalent of a dramatic play to second the game into overtime.Miraculously, Fajgenbaum survived--only to endure repeated near-death relapses from what would eventually be identified as a form of Castleman disease, an extremely deadly and rare condition that acts like a cross between cancer and an autoimmune disorder. When he relapsed while on the only drug in development and realized that the medical community was unlikely to make progress in time to save his life, Fajgenbaum turned his desperate hope for a cure into concrete action: Between hospitalizations he studied his own charts and tested his own blood samples, looking for clues that could unlock a new treatment. With the help of family, friends, and mentors, he also reached out to other Castleman disease patients and physicians, and eventually came up with an ambitious plan to crowdsource the most promising research questions and recruit world-class researchers to tackle them. Instead of waiting for the scientific stars to align, he would attempt to align them himself.More than five years later and now married to his college sweetheart, Fajgenbaum has seen his hard work pay off: A treatment he identified has induced a tentative remission and his novel approach to collaborative scientific inquiry has become a blueprint for advancing rare disease research. His incredible story demonstrates the potency of hope, and what can happen when the forces of determination, love, family, faith, and serendipity collide.

"It's Cancer"


Jay Otterbacher - 2012
    When both of you are diagnosed within weeks of each other the uncertainty is relentless. Jay Otterbacher's memoir details one unbelievable year he could never have imagined. Anyone with a friend, colleague or loved one facing cancer can better understand what they are going through from this amazing story of thirty-two weeks in 2006. "It's Cancer" provides an unfiltered view behind the public facade into the home, relationships and treatment of one ordinary couple facing an inconceivable battle against two cancers at the same time. The implausible circumstances created the story. This narrative captures it in an open and friendly manner that allows you to be there with Karen and Jay as they use humor and strength to navigate through the fear, stress and uncertainty that all cancer patients know too well. Whether it was family, friends, dolphins or doctors something always appeared just the way it had to at just the time they needed it during this incredible year. In amazing detail, Jay shares the impact that each of these encounters had on their fight with the disease and their perspectives on life. If you have been told "It's Cancer," this book can be a source of hope and inspiration while you learn from the choices (both good and bad) that Karen and Jay made in their treatment and in communicating with the people who cared about them. If cancer has touched someone in your life the details captured in this book will give you insight into the week to week grind of the fight to regain control of their lives. Excerpt: When he finished walking us through the plan I asked about mastectomy. He said it was not even something he was considering in Karen's case. He explained that mastectomy was invasive surgery with a long recovery time and there was no evidence that it would improve her survival chances. I thought about debating with him since I had about twelve hours of exhaustive internet self-study on breast cancer but since we loved his answer I let him ride on this one. By the time we had walked back across the causeway through the hospital and to our car, Karen had her jaw set. She was going to beat this and she was going to do it in a big way. She declared that she wanted an elliptical machine so she could work out at home and stay in shape during her recovery. I responded that we would get one. Karen let me know that that was not good enough; she wanted one now. We drove from the hospital to an exercise equipment store. They had six or eight different models in the store, three of which were on sale. Karen pointed to one of the top models and said "that one." At that point the salesman in the store started his pitch on a lesser model that was on sale. He apparently did not understand that the answer to everything that day was to be yes. I gave him a shut up look, a credit card and asked how much to have it delivered that day. By the end of the day it was installed in our exercise room. It would be nine months before either of us would use it.

The Middle Place


Kelly Corrigan - 2005
    A self-assured adman and former all-American lacrosse player (now part-time coach), he shines brightly, and his daughter appears content to live in his reflected glory.Kelly considers herself lucky for this great touchstone in her life, and her dad's can-do spirit becomes her greatest asset when she's diagnosed with breast cancer as a young mother. It is her dad's pluck and resolve that will see her through the oncoming battles -- including the realization that her "cure" will mean the end of her ability to bear children and her dream of having a large family of her own.Though Kelly writes of her husband and daughters, her mother and her brothers, it is her father's love that sustains her. And so, readers fear for her when she reveals that George has been diagnosed with cancer, too. It is at this nadir, facing not only her own mortality but her father's as well, that Kelly finally begins to emerge as a survivor -- a wife, a mother, and more herself. Yet, she will always be her father's daughter.(Spring 2008 Selection)