As painful as the role reversal between parent and child may be for you, assume it is worse for your mother or father, so take care not to demean or humiliate them.Avoid hospitals and emergency rooms, as well as multiple relocations from home to assisted living facility to nursing home, since all can cause dramatic declines in physical and cognitive well-being among the aged.Do not accept the canard that no decent child sends a parent to a nursing home. Good nursing home care, which supports the entire family, can be vastly superior to the pretty trappings but thin staffing of assisted living or the solitude of being at home, even with round-the-clock help.Important Facts:Every state has its own laws, eligibility standards, and licensing requirements for financial, legal, residential, and other matters that affect the elderly, including qualification for Medicare. Assume anything you understand in the state where your parents once lived no longer applies if they move.Many doctors will not accept new Medicare patients, nor are they legally required to do so, especially significant if a parent is moving a long distance to be near family in old age.An adult child with power of attorney can use a parent’s money for legitimate expenses and thus hasten the spend-down to Medicaid eligibility. In other words, you are doing your parent no favor—assuming he or she is likely to exhaust personal financial resources—by paying rent, stocking the refrigerator, buying clothes, or taking him or her to the hairdresser or barber.

    Between the two, a wondrously poetic dialogue develops, which Ms. Borrie further illuminates with childhood memories of her family, and her struggle to maintain a life outside her caregiving responsibilities. The Long Hello demonstrates how caregiving creates an opportunity to experience the change in a relationship that illness necessitates, one in which joy, innocence, and profound intimacy can flourish.Written in spare, beautiful prose, largely in the form of a dialogue, The Long Hello exquisitely captures the intricacies and nuances of a daughter’s relationship with her mother. - See more at: http://books.simonandschuster.ca/Long...Additional Info:In this shimmering jewel of a memoir, "The Long Hello The Other Side of Alzheimer's," author Cathie Borrie traverses rich terrain as she unearths the hidden and often painful treasures of a life well lived: the shadows and joys of childhood, the relationships that leave us both illuminated and bereft, the love, longing and loss that surge to the fore when a parent is ailing. Memory, and the losing of it, serves as a powerful guide, and Borrie follows her mother's eccentric and poetic lead into the past, transformed by the unexpected brilliance of the elder woman's shifting dementia mind. A paean of redemptive beauty, "The Long Hello" cherishes the bond between mothers and daughters, and creates a startling change in society's perception of those journeying through Alzheimer's.

    It will inspire the necessary and difficult conversations we all need to have with loved ones as it illuminates a path to a better way of death.Like so many of us, award-winning writer Katy Butler always assumed her aging parents would experience healthy, active retire­ments before dying peacefully at home. Then her father suffered a stroke that left him incapable of easily finishing a sentence or showering without assistance. Her mother was thrust into full-time caregiving, and Katy became one of the 24 mil­lion Americans who help care for aging parents. In an effort to correct a minor and non–life threatening heart arrhythmia, doctors outfitted her father with a pacemaker. The device kept his heart beating but did nothing to prevent his slide into dementia, incontinence, near-muteness, and misery. After several years, he asked his wife for help, telling her, "I am living too long." Mother and daughter faced a series of wrench­ing moral questions: When does death cease being a curse and become a blessing? Where is the line between saving life and prolonging a dying? When is the right time to say to a doctor, "Let my loved one go"? When doctors refused to disable the pace­maker, sentencing her father to a protracted and agonizing death, Katy set out to understand why. Her quest had barely begun when her mother faced her own illness, rebelled against her doctors, refused open-heart surgery, and instead met death head-on. Knocking on Heaven's Door, a revolution­ary blend of memoir and investigative reporting, is the fruit of the Butler family's journey. With a reporter's skill, a poet's eye, and a daughter's love, Butler explores what happens when our terror of death collides with the tech­nological imperatives of modern medicine. Her provocative thesis is that advanced medicine, in its single-minded pursuit of maximum longevity, often creates more suffering than it prevents. Butler lays bare the tangled web of technology, medicine, and commerce that modern dying has become and chronicles the rise of Slow Medicine - a growing movement that promotes care over cure. Knocking on Heaven's Door is a visionary map through the labyrinth of a broken and morally adrift medical system. It will inspire the necessary and difficult conversations we all need to have with loved ones as it illuminates a path to a better way of death.

    They say you can’t go home again. But when her father is diagnosed with aggressive lung cancer and her mother with atypical Alzheimer’s, New York-based actress Kate Mulgrew returns to her hometown in Iowa to spend time with her parents and care for them in the time they have left.The months Kate spends with her parents in Dubuque—by turns turbulent, tragic, and joyful—lead her to reflect on each of their lives and how they shaped her own. Those ruminations are transformed when, in the wake of their deaths, Kate uncovers long-kept secrets that challenge her understanding of the unconventional Irish Catholic household in which she was raised.Breathtaking and powerful, laced with the author’s irreverent wit, How to Forget is a considered portrait of a mother and a father, an emotionally powerful memoir that demonstrates how love fuses children and parents, and an honest examination of family, memory, and indelible loss.

    I have loved and been loved. I have been given much and I have given something in return. Above all, I have been a sentient being, a thinking animal, on this beautiful planet, and that in itself has been an enormous privilege and adventure.” —Oliver SacksNo writer has succeeded in capturing the medical and human drama of illness as honestly and as eloquently as Oliver Sacks. During the last few months of his life, he wrote a set of essays in which he movingly explored his feelings about completing a life and coming to terms with his own death. “It is the fate of every human being,” Sacks writes, “to be a unique individual, to find his own path, to live his own life, to die his own death.”Together, these four essays form an ode to the uniqueness of each human being and to gratitude for the gift of life.

    In The Beauty of Living Twice, Stone chronicles her efforts to rebuild her life and writes about her slow road back to wholeness and health. In a business that doesn’t accept failure, in a world where too many voices are silenced, Stone found the power to return, the courage to speak up, and the will to make a difference in the lives of men, women, and children around the globe.Over the course of these intimate pages, as candid as a personal conversation, Stone talks about her pivotal roles, her life-changing friendships, her worst disappointments, and her greatest accomplishments. She reveals how she went from a childhood of trauma and violence to a career in an industry that in many ways echoed those same assaults, under cover of money and glamour. She describes the strength and meaning she found in her children, and in her humanitarian efforts. And ultimately, she shares how she fought her way back to find not only her truth, but her family’s reconciliation and love.Stone made headlines not just for her beauty and her talent, but for her candor and her refusal to “play nice,” and it’s those same qualities that make this memoir so powerful. The Beauty of Living Twice is a book for the wounded and a book for the survivors; it’s a celebration of women’s strength and resilience, a reckoning, and a call to activism. It is proof that it’s never too late to raise your voice and speak out.

    She was forty-four years old, with a devoted husband and three young children, and she had only one year of health remaining.Susan decided to live that year with joy.She quit her job as a journalist and spent time with her family. She built an outdoor meeting space for friends in her backyard. And she took seven trips with the seven most important people in her life. As her health declined, Susan journeyed to the Yukon, Hungary, the Bahamas, and Cyprus. She took her sons to swim with dolphins, and her teenage daughter, Marina, to Kleinfeld's bridal shop in New York City to see her for the first and last time in a wedding dress.She also wrote this book. No longer able to walk or even to lift her arms, she tapped it out letter by letter on her iPhone using only her right thumb, the last finger still working.However, Until I Say Good-Bye is not angry or bitter. It is sad in parts--how could it not be?--but it is filled with Susan's optimism, joie de vivre, and sense of humor. It is a book about life, not death. One that, like Susan, will make everyone smile.From the Burger King parking lot where she cried after her diagnosis to a snowy hot spring near the Arctic Circle, from a hilarious family Christmas disaster to the decrepit monastery in eastern Cyprus where she rediscovered her heritage, Until I Say Good-Bye is not only Susan Spencer-Wendel's unforgettable gift to her loved ones--a heartfelt record of their final experiences together--but an offering to all of us: a reminder that "every day is better when it is lived with joy."

    But all of these plans changed when Ronan was diagnosed at nine months old with Tay-Sachs disease, a rare and always-fatal degenerative disorder.  Ronan was not expected to live beyond the age of three; he would be permanently stalled at a developmental level of six months.  Rapp and her husband were forced to re-evaluate everything they thought they knew about parenting.  They would have to learn to live with their child in the moment; to find happiness in the midst of sorrow; to parent without a future.The Still Point of the Turning World is the story of a mother’s journey through grief and beyond it.  Rapp’s response to her son’s diagnosis was a belief that she needed to “make my world big”—to make sense of her family’s situation through art, literature, philosophy, theology and myth.  Drawing on a broad range of thinkers and writers, from C.S. Lewis to Sylvia Plath, Hegel to Mary Shelley’s Frankenstein, Rapp learns what wisdom there is to be gained from parenting a terminally ill child.  In luminous, exquisitely moving prose she re-examines our most fundamental assumptions about what it means to be a good parent, to be a success, and to live a meaningful life.

    There were always little reminders pasted on the kitchen wall. For example, the word THINK. I found THINK thumbtacked on a bulletin board in her darkroom. I saw it Scotch-taped on a pencil box she’d collaged. I even found a pamphlet titled THINK on her bedside table. Mom liked to THINK. So begins Diane Keaton’s unforgettable memoir about her mother and herself. In it you will meet the woman known to tens of millions as Annie Hall, but you will also meet, and fall in love with, her mother, the loving, complicated, always-thinking Dorothy Hall. To write about herself, Diane realized she had to write about her mother, too, and how their bond came to define both their lives. In a remarkable act of creation, Diane not only reveals herself to us, she also lets us meet in intimate detail her mother. Over the course of her life, Dorothy kept eighty-five journals—literally thousands of pages—in which she wrote about her marriage, her children, and, most probingly, herself. Dorothy also recorded memorable stories about Diane’s grandparents. Diane has sorted through these pages to paint an unflinching portrait of her mother—a woman restless with intellectual and creative energy, struggling to find an outlet for her talents—as well as her entire family, recounting a story that spans four generations and nearly a hundred years. More than the autobiography of a legendary actress, Then Again is a book about a very American family with very American dreams. Diane will remind you of yourself, and her bonds with her family will remind you of your own relationships with those you love the most.

    But instead of confining herself to a hospital bed for what could be her last stay, Miss Norma—newly widowed after nearly seven decades of marriage—rose to her full height of five feet and told the doctor, “I’m ninety years old. I’m hitting the road.” And so Miss Norma took off on an unforgettable around-the-country journey in a thirty-six-foot motor home with her retired son Tim, his wife Ramie, and their dog Ringo. As this once timid woman says “yes” to living in the face of death, she tries regional foods for the first time, reaches for the clouds in a hot air balloon, and mounts up for a horseback ride. With each passing mile (and one educational visit to a cannabis dispensary), Miss Norma’s health improves and conversations that had once been taboo begin to unfold. Norma, Tim, and Ramie bond in ways they had never done before, and their definitions of home, family, and friendship expand. Stop by stop, state by state, they meet countless people from all walks of life—strangers who become fast friends and welcome them with kindness and open hearts.Infused with this irrepressible nonagenarian’s wisdom, courage, and generous spirit, Driving Miss Norma is the charming, infectiously joyous chronicle of their experiences on the road. It portrays a transformative journey of living life on your own terms that shows us it is never too late to begin an adventure, inspire hope, or become a trailblazer.

    Yet, this is not a dark or dour look at the demon of Alzheimer’s. Whouley shares the trying, the tender, and the sometimes hilarious moments in meeting the challenge also known as Mom.As her mother, Anne, falls into forgetting, Kate remembers for her. In Anne we meet a strong-minded, accidental feminist with a weakness for unreliable men. The first woman to apply for—and win—a department-head position in her school system, Anne was an innovative educator who poured her passion into her work. House-proud too, she made certain her Hummel figurines were dusted and arranged just so. But as her memory falters, so does her housekeeping. Surrounded by stacks of dirty dishes, piles of laundry, and months of unopened mail, Anne needs Kate’s help—but she doesn’t want to relinquish her hard-won independence any more than she wants to give up smoking.Time and time again, Kate must balance Anne’s often nonsensical demands with what she believes are the best decisions for her mother’s comfort and safety. This is familiar territory for anyone who has had to help a loved one in decline, but Kate finds new and different ways to approach her mother and her forgetting. Shuddering under the weight of accumulating bills and her mother’s frustrating, circular arguments, Kate realizes she must push past difficult family history to find compassion, empathy, and good humor.When the memories, the names, and then the words begin to fade, it is the music that matters most to Kate’s mother. Holding hands after a concert, a flute case slung over Kate’s shoulder, and a shared joke between them, their relationship is healed—even in the face of a dreaded and deadly diagnosis. “Memory,” Kate Whouley writes, “is overrated.”

    Then while living in Cambridge in her early 40s, “an age when the view from the hill can be clear and poignant both,” Caldwell adopts a rambunctious puppy named Clementine. On one of their bucolic walks, she meets Caroline and her dog, Lucille, and both women’s lives change forever.Though they are more different than alike, these two fiercely private, independent women quickly relax into a friendship more profound than either of them expected, a friendship that will thrive on their shared secrets, including parallel struggles with alcoholism and loneliness. They grow increasingly inseparable until, in 2003, Caroline is diagnosed with Stage IV lung cancer. Caldwell writes: “It’s an old, old story: I had a friend and we shared everything, and then she died and so we shared that, too.”     In her signature exquisite prose, Caldwell mines the deepest levels of devotion and grief in this wise and affecting account about losing her best friend. Let’s Take the Long Way Home is also a celebration of life and all the little moments worth cherishing—and affirms why Gail Caldwell is rightly praised as one of our bravest and most honest literary voices.

    As he would later write in the first of a series of award-winning columns for "Vanity Fair," he suddenly found himself being deported "from the country of the well across the stark frontier that marks off the land of malady." Over the next eighteen months, until his death in Houston on December 15, 2011, he wrote constantly and brilliantly on politics and culture, astonishing readers with his capacity for superior work even in extremis.Throughout the course of his ordeal battling esophageal cancer, Hitchens adamantly and bravely refused the solace of religion, preferring to confront death with both eyes open. In this account of his affliction, he describes the torments of illness, discusses its taboos, and explores how disease transforms experience and changes our relationship to the world around us. By turns personal and philosophical, Hitchens embraces the full panoply of human emotions as cancer invades his body and compels him to grapple with the enigma of mortality.

    Or you already have or you will. As momma always said, "Everybody's got something." So begins beloved Good Morning America anchor Robin Roberts's new memoir in which she recounts the incredible journey that's been her life so far, and the lessons she's learned along the way. With grace, heart, and humor, she writes about overcoming breast cancer only to learn five years later that she will need a bone marrow transplant to combat a rare blood disorder, the grief and heartbreak she suffered when her mother passed away, her triumphant return to GMA after her medical leave, and the tremendous support and love of her family and friends that saw her through her difficult times. Following her mother's advice to "make your mess your message," Robin taught a nation of viewers that while it is true that we've all got something -- a medical crisis to face, aging parents to care for, heartbreak in all its many forms --- we've also all got something to give: hope, encouragement, a life-saving transplant or a spirit-saving embrace. As Robin has learned, and what readers of her remarkable story will come to believe as well, it's all about faith, family and friends. And finding out that you are stronger, much stronger, than you think.

    In the first anguished days, she began to create a record of her interior life as a mourner, trying to capture the paradox of grief-its monumental agony and microscopic intimacies-an endeavor that ultimately bloomed into a profound look at how caring for her mother during her illness changed and strengthened their bond. O'Rourke's story is one of a life gone off the rails, of how watching her mother's illness-and separating from her husband-left her fundamentally altered. But it is also one of resilience, as she observes her family persevere even in the face of immeasurable loss. With lyricism and unswerving candor, The Long Goodbye conveys the fleeting moments of joy that make up a life, and the way memory can lead us out of the jagged darkness of loss. Effortlessly blending research and reflection, the personal and the universal, it is not only an exceptional memoir, but a necessary one.