Now I See the Moon: A Mother, a Son, a Miracle


Elaine Hall - 2010
    In the process, she founded The Miracle Project, a groundbreaking organization that uses the performing arts to connect with children with autism. Both controversial and unorthodox, Hall's innovative approach has been praised by leaders in the field of autism, including Temple Grandin, Barry Prizant, and Dr. Stanley Greenspan. She was also the subject of the Emmy Award-winning documentary Autism: The Musical. Hall now speaks around the country sharing her wisdom. Now I See the Moon is a story of hope, faith, and miracles; it is a story only a mother could tell.

The Journal of Best Practices: A Memoir of Marriage, Asperger Syndrome, and One Man's Quest to Be a Better Husband


David Finch - 2012
    Five years after he married Kristen, the love of his life, they learn that he has Asperger syndrome. The diagnosis explains David’s ever-growing list of quirks and compulsions, his lifelong propensity to quack and otherwise melt down in social exchanges, and his clinical-strength inflexibility. But it doesn’t make him any easier to live with.Determined to change, David sets out to understand Asperger syndrome and learn to be a better husband—no easy task for a guy whose inability to express himself rivals his two-year-old daughter's, who thinks his responsibility for laundry extends no further than throwing things in (or at) the hamper, and whose autism-spectrum condition makes seeing his wife's point of view a near impossibility.Nevertheless, David devotes himself to improving his marriage with an endearing yet hilarious zeal that involves excessive note-taking, performance reviews, and most of all, the Journal of Best Practices: a collection of hundreds of maxims and hard-won epiphanies that result from self-reflection both comic and painful. They include "Don’t change the radio station when she's singing along," "Apologies do not count when you shout them," and "Be her friend, first and always." Guided by the Journal of Best Practices, David transforms himself over the course of two years from the world’s most trying husband to the husband who tries the hardest, the husband he’d always meant to be.Filled with humor and surprising wisdom, The Journal of Best Practices is a candid story of ruthless self-improvement, a unique window into living with an autism-spectrum condition, and proof that a true heart can conquer all.

The Child With Special Needs: Encouraging Intellectual and Emotional Growth


Stanley I. Greenspan - 1998
    In this essential work they lay out a complete, step-by-step approach for parents, educators, and others who work with developmental problems. Covering all kinds of disabilities--including autism, PPD, language and speech problems, Down syndrome, cerebral palsy, and ADD--the authors offer a new understanding of the nature of these challenges and also specific ways of helping children extend their intellectual and emotional potential.The authors first show how to move beyond labels to observe the unique profile--strengths and problems--of the individual child. Next, they demonstrate the techniques necessary to help the child not only reach key milestones but also develop new emotional and intellectual capacities. Greenspan's well-known ?floortime? approach enables parents, as well as clinicians, to use seemingly playful interactions that help children actually move up the development ladder and often master creative and abstract thinking formerly thought beyond their reach. Including vivid case histories, the book also offers deep and compassionate understanding of the stresses and rewards involved in raising a child with special needs.whose amazing work with autistic and other special needs children is nationally known, and his colleague, child psychologist Serena Wieder, have integrated a lifetime of research and clinical practice into a single, comprehensive guide for parents. Covering all kinds of disabilities--including cerebral palsy, autism, retardation, ADD, PDD, and language problems--the book offers specific ways of helping all children reach their full intellectual and emotional potential.First the authors show how to move beyond the label and observe the strengths and problems of the particular child and the key milestones that must be reached. Next, they move step by step through the techniques necessary to help the child reach these milestones and show how to tailor these to each child. Finally, with a deep and compassionate understanding they outline the marital, educational, and social stresses and rewards in raising a special needs child.

Autism in Heels: The Untold Story of a Female Life on the Spectrum


Jennifer O'Toole - 2018
    And more often than we realize, that face is wearing lipstick. Autism in Heels , an intimate memoir, reveals the woman inside one of autism's most prominent figures, Jennifer O'Toole. At the age of thirty-five, Jennifer was diagnosed with Asperger's syndrome, and for the first time in her life, things made sense. Now, Jennifer exposes the constant struggle between carefully crafted persona and authentic existence, editing the autism script with wit, candor, passion, and power. Her journey is one of reverse-self-discovery not only as an Aspie but--more importantly--as a thoroughly modern woman.Beyond being a memoir, Autism in Heels is a love letter to all women. It's a conversation starter. A game changer. And a firsthand account of what it is to walk in Jennifer's shoes (especially those iconic red stilettos).Whether it's bad perms or body image, sexuality or self-esteem, Jennifer's is as much a human journey as one on the spectrum. Because autism "looks a bit different in pink," most girls and women who fit the profile are not identified, facing years of avoidable anxiety, eating disorders, volatile relationships, self-harm, and stunted independence. Jennifer has been there, too. Autism in Heels takes that message to the mainstream.From her own struggles and self-discovery, she has built an empire of empowerment, inspiring women the world over to realize they aren't mistakes. They are misunderstood miracles.

In a Different Key: The Story of Autism


John Donvan - 2016
    Beginning with his family’s odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, and of the civil rights battles waged by the families of those who have it. Unfolding over decades, it is a beautifully rendered history of ordinary people determined to secure a place in the world for those with autism—by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different.  It is the story of women like Ruth Sullivan, who rebelled against a medical establishment that blamed cold and rejecting “refrigerator mothers” for causing autism; and of fathers who pushed scientists to dig harder for treatments. Many others played starring roles too: doctors like Leo Kanner, who pioneered our understanding of autism; lawyers like Tom Gilhool, who took the families’ battle for education to the courtroom; scientists who sparred over how to treat autism; and those with autism, like Temple Grandin, Alex Plank, and Ari Ne’eman, who explained their inner worlds and championed the philosophy of neurodiversity. This is also a story of fierce controversies—from the question of whether there is truly an autism “epidemic,” and whether vaccines played a part in it; to scandals involving “facilitated communication,” one of many treatments that have proved to be blind alleys; to stark disagreements about whether scientists should pursue a cure for autism. There are dark turns too: we learn about experimenters feeding LSD to children with autism, or shocking them with electricity to change their behavior; and the authors reveal compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death.<

NeuroTribes: The Legacy of Autism and the Future of Neurodiversity


Steve Silberman - 2015
      Along the way, he reveals the untold story of Hans Asperger, the father of Asperger’s syndrome, whose “little professors” were targeted by the darkest social-engineering experiment in human history; exposes the covert campaign by child psychiatrist Leo Kanner to suppress knowledge of the autism spectrum for fifty years; and casts light on the growing movement of "neurodiversity" activists seeking respect, support, technological innovation, accommodations in the workplace and in education, and the right to self-determination for those with cognitive differences.

The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son


Ian Brown - 2009
    At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life. Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is. Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.

Let Me Hear Your Voice: A Family's Triumph over Autism


Catherine Maurice - 1993
    In her first year, she picked up words, smiled and laughed, and learned to walk. But then Anne-Marie began to turn inward. And when her little girl lost some of the words she had acquired, cried inconsolably, and showed no interest in anyone around her, Catherine Maurice took her to doctors who gave her a devastating diagnosis: autism.In their desperate struggle to save their daughter, the Maurices plunged into a medical nightmare of false hopes, "miracle cures," and infuriating suggestions that Anne-Marie's autism was somehow their fault. Finally, Anne-Marie was saved by an intensive behavioral therapy.Let Me Hear Your Voice is a mother's illuminating account of how one family triumphed over autism. It is an absolutely unforgettable book, as beautifully written as it is informative.

The Late Talker: What to Do If Your Child Isn't Talking Yet


Marilyn C. Agin - 2003
    For millions of mothers and fathers, however, anticipation turns to anxiety when those initial, all-important words are a long time coming. Many worried parents are reassured that their child is just a late talker, but unfortunately, all too often that is not the case. Nineteen million children in the United States have serious speech disorders, such as apraxia of speech. For these toddlers, early and intensive speech therapy is crucial if they are to stand a chance of ever speaking normally. This book was written to help the worried parent cut through the confusion and stress to determine if their child needs help.The Late Talker is the first book of its kind, providing effective, practical answers to the questions every concerned parent asks. Written by Marilyn C. Agin, a highly respected developmental pediatrician, and Lisa F. Geng, a mother of two late talkers, it is a tremendously useful handbook that includes:- Ways to identify the warning signs of a speech disorder- Information on how to get the right kind of evaluations and therapy- Ways to obtain appropriate services through the school system and health insurance - Fun at-home activities that parents can do with their child to stimulate speech- Groundbreaking evidence of the promising and dramatic benefits of nutritional supplementation- Advice from experienced parents who've been there on what to expect and what you can do to be your child's best advocate

The Boy Who Was Raised as a Dog: And Other Stories from a Child Psychiatrist's Notebook


Bruce D. Perry - 2007
    In The Boy Who Was Raised as a Dog, he tells their stories of trauma and transformation through the lens of science, revealing the brain's astonishing capacity for healing. Deftly combining unforgettable case histories with his own compassionate, insightful strategies for rehabilitation, Perry explains what exactly happens to the brain when a child is exposed to extreme stress-and reveals the unexpected measures that can be taken to ease a child's pain and help him grow into a healthy adult. Through the stories of children who recover-physically, mentally, and emotionally-from the most devastating circumstances, Perry shows how simple things like surroundings, affection, language, and touch can deeply impact the developing brain, for better or for worse. In this deeply informed and moving book, Bruce Perry dramatically demonstrates that only when we understand the science of the mind can we hope to heal the spirit of even the most wounded child.

Aspergirls: Empowering Females with Asperger Syndrome


Rudy Simone - 2010
    The image of coping well presented by AS females can often mask difficulties, deficits, challenges, & loneliness.

All Cats Have Asperger Syndrome


Kathy Hoopmann - 2006
    If you have only just begun to discover why someone with Asperger's syndrome is different, this book will inform and entertain you. The descriptions provide an accurate balance between the qualities and difficulties associated with Asperger's syndrome, while the photographs will make the journey of discovery enjoyable and remarkable.'- Tony Attwood, author of Asperger's Syndrome and The Complete Guide to Asperger's Syndrome

Louder Than Words: A Mother's Journey in Healing Autism


Jenny McCarthy - 2007
    She ran into her two-year-old son Evan's room and found him having a seizure. Doctor after doctor misdiagnosed Evan until after many harrowing, life-threatening episodes one good doctor discovered that Evan is autistic.With a foreword from Dr. David Feinberg, medical director of the Resnick Neuro-psychiatric Hospital at UCLA, and an introduction by Jerry J. Kartzinel, a top pediatric autism specialist, Louder Than Words follows Jenny as she discovered an intense combination of behavioral therapy, diet, and supplements that became the key to saving Evan from autism. Her story sheds much-needed light on autism through her own heartbreak, struggle, and ultimately hopeful example of how a parent can shape a child's life and happiness.

I Am Intelligent: From Heartbreak to Healing--A Mother and Daughter's Journey Through Autism


Peyton Goddard - 2012
    Robbed of speech and bodily control, and despite her loving parents' best efforts to help her, Peyton Goddard suffered neglect and ongoing abuse by many who dismissed her as autistic and severely mentally retarded. Peyton's violent outbursts and bizarre, self-destructive behavior left her parents terrified at the prospect of having to institutionalize their daughter. No one could have imagined that she possessed a brilliant mind in her uncooperative body until her first opportunity to communicate electronically at age 22 when she typed "I AM INTLGENT," a breakthrough reminiscent of "The Miracle Worker." After two decades, mother and daughter are finally able to communicate, and Peyton goes on to graduate valedictorian from college. Her story challenges assumptions that any child, regardless of competence, can be less of a human being. Today Peyton is following through on her vow to be an advocate on behalf of other devalued people. Her inspirational life helps readers transcend stereotypes and join her in the radical notion that, as she says, "All people are vastly valuable. Treasure all because great is each."

Easy to Love But Hard to Raise: Real Parents, Challenging Kids, True Stories


Edward M. Hallowell - 2012
    These essays focus on honest feelings, lessons learned, epiphanies, commonplace and extraordinary experiences. They are written by parents of toddlers, young children, teens, and adult children; those who are in the parenting trenches now, and those looking back on their parenting experiences. Topics include: how children came to be diagnosed, the experience of dealing with problem behaviors in various contexts and settings, experiences with/feelings about treatment (therapies, medications, alternative treatments), school (and other advocacy) experiences, children's social interactions/friends, and the effect of parenting a difficult child on a parent's emotional and physical health, marriage, and other relationships.