Book picks similar to
The Water Giver: The Story of a Mother, a Son, and Their Second Chance by Joan Ryan
non-fiction
memoir
nonfiction
medical
Saving Henry: A Mother's Journey
Laurie Strongin - 2010
Saving Henry is a memoir of the author's struggle to save the life of her son Henry, who suffered from a rare childhood illness. Henry was born with a heart condition that was operable, but which proved to be a precursor for a rare, almost-always fatal illness: Fanconi anemia. Laurie, Henry's mom, decided to do everything in her power to fight the course of the disease. She and her husband signed on for a brand new procedure called PGD that, through in vitro fertilization combined with genetic testing, was supposed to be able to produce a new baby who was a carrier of the gene, but who would not become ill with it. The stem cells from the umbilical cord could then be implanted into Henry's body and ultimately save him. As Laurie puts it, "I believe in love and science, nothing more and nothing less."Laurie and her husband had a second child who was healthy but not an FA carrier, and then went through nine failed courses of PGD before they had to give up. Meanwhile, the feisty little boy who loved Batman, Cal Ripken, and root beer-flavored anesthesia captivated everyone who came in contact with him, from New York City to Minneapolis, with his spunk and "never give up" attitude. Henry was the little kid who, when the nurses came to take blood samples, brandished his Harry Potter sword and said, "Bring it on!" and when he lost his hair after a chemo treatment, he declared, "Hey, I look like Michael Jordan!" Laurie became a lobbyist for stem cell research, testifying before Congress, written up by Lisa Belkin in the New York Times and other media, and appearing on Nightline to discuss Henry's case and the importance of the research. Throughout it all, Henry's courage and bravery were a source of inspiration for the many nurses, doctors, friends and family who interacted with him-- and he has saved many lives through his participation in groundbreaking research. This is the moving and incredibly inspiring story of this family's search for a cure, and the impact their amazing son had on the lives of so many.
First Person Plural: My Life as a Multiple
Cameron West - 1999
Cameron West... First of all, for those of you who have read First Person Plural, thank you. Rikki, Kyle, and I have been very moved by the kind words many of you have sent, and for the stories some of you have shared about overcoming your own challenges.I'd like to share something with you that Leonardo da Vinci wrote, which I think of as "Leonardo's Rule." He said, "Every object yields to effort." I remind myself of that every day, and when I'm having a difficult time, Rikki reminds me that this rule applies not only to the obstacles "out there," but to the more important ones-the ones we face in our own minds. Rikki lives by Leonardo's Rule; it comes to her naturally. Even though they are Leonardo's words, it is Rikki's actions that guide me and inspire me to work toward becoming a healthier and better person.
Memoir of a Debulked Woman: Enduring Ovarian Cancer
Susan Gubar - 2012
Her memoir mines the deepest levels of anguish and devotion as she struggles to come to terms with her body’s betrayal and the frightful protocols of contemporary medicine. She finds solace in the abiding love of her husband, children, and friends while she searches for understanding in works of literature, visual art, and the testimonies of others who suffer from various forms of cancer.Ovarian cancer remains an incurable disease for most of those diagnosed, even those lucky enough to find caring and skilled physicians. Memoir of a Debulked Woman is both a polemic against the ineffectual and injurious medical responses to which thousands of women are subjected and a meditation on the gifts of companionship, art, and literature that sustain people in need.
Life, Animated: A Story of Sidekicks, Heroes, and Autism
Ron Suskind - 2014
It is the saga of Owen Suskind, who happens to be the son of one of America's most noted writers, the Pulitzer Prize-winning journalist and author Ron Suskind. He's also autistic. The twisting, 20-year journey of this boy and his family will change that way you see autism, old Disney movies, and the power of imagination to heal a shattered, upside-down world.
A Mind Unraveled
Kurt Eichenwald - 2018
In the aftermath of that critical moment, his once-carefree life would be consumed by confrontations with medical incompetence, discrimination that almost cost him his education and employment, physical abuse, and dark moments when he contemplated suicide.This is the story of one man's battle to pursue his dreams despite an often incapacitating brain disorder. From his early experiences of fear and denial to his exasperating search for treatment, Eichenwald provides a deeply candid account of his years facing this misunderstood and often stigmatized condition. He details his encounters with the doctors whose negligence could have killed him, but for the heroic actions of a brilliant neurologist and the family and friends who fought for him.Many of Eichenwald's recollections are drawn from his diaries, vivid and painstakingly kept records that helped sharpen his skills as a journalist. He raises important questions about the nature of memory, the revelations of brain science, and the profound mysteries of human perception.Ultimately, A Mind Unraveled is an inspirational story, one that chronicles how Eichenwald, faced often with his own mortality, transformed trauma into a guide for reaching the future he desired. Defying relentless threats to his emotional and physical well-being, he affirmed his decision to never give up, and in the process learned how to rise from the depths of despair to the heights of unimagined success.
Dirty Secret: A Daughter Comes Clean About Her Mother's Compulsive Hoarding
Jessie Sholl - 2010
Because if my mother is one of those crazy junk-house people, then what does that make me?When her divorced mother was diagnosed with cancer, New York City writer Jessie Sholl returned to her hometown of Minneapolis to help her prepare for her upcoming surgery and get her affairs in order. While a daunting task for any adult dealing with an aging parent, it's compounded for Sholl by one lifelong, complex, and confounding truth: her mother is a compulsive hoarder. Dirty Secret is a daughter's powerful memoir of confronting her mother's disorder, of searching for the normalcy that was never hers as a child, and, finally, cleaning out the clutter of her mother's home in the hopes of salvaging the true heart of their relationship before it's too late.Growing up, young Jessie knew her mother wasn't like other mothers: chronically disorganized, she might forgo picking Jessie up from kindergarten to spend the afternoon thrift store shopping. Now, tracing the downward spiral in her mother's hoarding behavior to the death of a long-time boyfriend, she bravely wades into a pathological sea of stuff: broken appliances, moldy cowboy boots, twenty identical pairs of graying bargain-bin sneakers, abandoned arts and crafts, newspapers, magazines, a dresser drawer crammed with discarded eyeglasses, shovelfuls of junk mail . . . the things that become a hoarder's treasures. With candor, wit, and not a drop of sentimentality, Jessie Sholl explores the many personal and psychological ramifications of hoarding while telling an unforgettable mother-daughter tale.
Fly a Little Higher
Laura Sobiech - 2014
But if he must die, I want it to be for something big. I want someone’s life to be changed forever.”This is what Laura Sobiech prayed when she found out her seventeen-year-old son had only one year to live. With this desperate prayer, she released her son to God’s will.At that point, Zach Sobiech was just another teenager battling cancer. When his mother told him to think about writing good-bye letters to family and friends, he decided instead to write songs. One of them, “Clouds,” captured hearts and changed not one life but millions, making him an international sensation.But Zach’s story is not just about music. It’s a testament to what can happen when you live as if each day might be your last. It’s a story about the human spirit. It’s about how God used a dying boy from a small town in Minnesota to touch the hearts of millions—including top executives in the music industry, major music artists, news anchors, talk show hosts, actors, priests and pastors, and school children across the globe.Zach once said, “I want to be known as the kid who went down fighting, and didn’t really lose.” Fly a Little Higher is about how God used Zach to do something big.
Permanent Present Tense: The Unforgettable Life of the Amnesic Patient, H. M.
Suzanne Corkin - 2012
The outcome was unexpected—when Henry awoke, he could no longer form new memories, and for the rest of his life would be trapped in the moment. But Henry’s tragedy would prove a gift to humanity. As renowned neuroscientist Suzanne Corkin explains in Permanent Present Tense, she and her colleagues brought to light the sharp contrast between Henry’s crippling memory impairment and his preserved intellect. This new insight that the capacity for remembering is housed in a specific brain area revolutionized the science of memory. The case of Henry—known only by his initials H. M. until his death in 2008—stands as one of the most consequential and widely referenced in the spiraling field of neuroscience. Corkin and her collaborators worked closely with Henry for nearly fifty years, and in Permanent Present Tense she tells the incredible story of the life and legacy of this intelligent, quiet, and remarkably good-humored man. Henry never remembered Corkin from one meeting to the next and had only a dim conception of the importance of the work they were doing together, yet he was consistently happy to see her and always willing to participate in her research. His case afforded untold advances in the study of memory, including the discovery that even profound amnesia spares some kinds of learning, and that different memory processes are localized to separate circuits in the human brain. Henry taught us that learning can occur without conscious awareness, that short-term and long-term memory are distinct capacities, and that the effects of aging-related disease are detectable in an already damaged brain.Undergirded by rich details about the functions of the human brain, Permanent Present Tense pulls back the curtain on the man whose misfortune propelled a half-century of exciting research. With great clarity, sensitivity, and grace, Corkin brings readers to the cutting edge of neuroscience in this deeply felt elegy for her patient and friend.
Hidden Valley Road: Inside the Mind of an American Family
Robert Kolker - 2020
After World War II, Don's work with the Air Force brought them to Colorado, where their twelve children perfectly spanned the baby boom: the oldest born in 1945, the youngest in 1965. In those years, there was an established script for a family like the Galvins—aspiration, hard work, upward mobility, domestic harmony—and they worked hard to play their parts. But behind the scenes was a different story: psychological breakdown, sudden shocking violence, hidden abuse. By the mid-1970s, six of the ten Galvin boys, one after another, were diagnosed as schizophrenic. How could all this happen to one family?What took place inside the house on Hidden Valley Road was so extraordinary that the Galvins became one of the first families to be studied by the National Institute of Mental Health. Their story offers a shadow history of the science of schizophrenia, from the era of institutionalization, lobotomy, and the schizophrenogenic mother to the search for genetic markers for the disease, always amid profound disagreements about the nature of the illness itself. And unbeknownst to the Galvins, samples of their DNA informed decades of genetic research that continues today, offering paths to treatment, prediction, and even eradication of the disease for future generations.With clarity and compassion, bestselling and award-winning author Robert Kolker uncovers one family's unforgettable legacy of suffering, love, and hope.
Danger to Self: On the Front Line with an ER Psychiatrist
Paul R. Linde - 2009
In this lively first-person narrative, Paul R. Linde takes readers behind the scenes at an urban psychiatric emergency room, with all its chaos and pathos, where we witness mental health professionals doing their best to alleviate suffering and repair shattered lives. As he and his colleagues encounter patients who are hallucinating, drunk, catatonic, aggressive, suicidal, high on drugs, paranoid, and physically sick, Linde examines the many ethical, legal, moral, and medical issues that confront today's psychiatric providers. He describes a profession under siege from the outside--health insurance companies, the pharmaceutical industry, government regulators, and even "patients' rights" advocates--and from the inside--biomedical and academic psychiatrists who have forgotten to care for the patient and have instead become checklist-marking pill-peddlers. While lifting the veil on a crucial area of psychiatry that is as real as it gets, "Danger to Self" also injects a healthy dose of compassion into the practice of medicine and psychiatry.
Crash: A Mother, a Son, and the Journey from Grief to Gratitude
Carolyn Roy-Bornstein - 2012
Trista did not survive her injuries. Neil carries his with him to this day. Gratitude for her son’s survival ultimately gives way to grief. While initially told Neil’s only injury was a broken leg, Roy-Bornstein quickly finds herself riding in the front seat of an ambulance transporting her son to the ICU at Brigham and Women’s Hospital in Boston; his brain is bleeding. Roy-Bornstein is now not the patient’s doctor or nurse but his mom. The world she so easily navigates in a white uniform or a white coat now must be traversed, understood, and dealt with from the perspective of a parent. There are many dividing lines in this story. The line that divides this family’s life in two: the events that occurred before the crash and those that came tumbling and faltering in its wake. The line that separates grief from gratitude: gratitude that her son is alive and as whole as he is; grief for his loss of memory and changed personality and for having his whole world shattered in an instant. The line that separates the world Roy-Bornstein knew so well as a doctor from the new one she must now navigate as the parent of a trauma victim. In these pages she explores all of these boundaries: between then and now, grief and gratitude, before and after, us and them. Her many years as a "medical insider" bring her story authenticity and detail, while her newcomer status as the parent of a trauma victim add poignancy and warmth in this first memoir.
The Shapeless Unease: A Year of Not Sleeping
Samantha Harvey - 2020
She tried everything to appease her wakefulness: from medication to therapy, changes in her diet to changes in her living arrangements. Nothing seemed to help.The Shapeless Unease is Harvey's darkly funny and deeply intelligent anatomy of her insomnia, an immersive interior monologue of a year without one of the most basic human needs. Original and profound, and narrated with a lucid breathlessness, this is a startlingly insightful exploration of memory, writing and influence, death and the will to survive, from "this generation's Virginia Woolf" (Telegraph).
My Age of Anxiety: Fear, Hope, Dread, and the Search for Peace of Mind
Scott Stossel - 2014
Today, it is the most common form of officially classified mental illness. Scott Stossel gracefully guides us across the terrain of an affliction that is pervasive yet too often misunderstood. Drawing on his own long-standing battle with anxiety, Stossel presents an astonishing history, at once intimate and authoritative, of the efforts to understand the condition from medical, cultural, philosophical, and experiential perspectives. He ranges from the earliest medical reports of Galen and Hippocrates, through later observations by Robert Burton and Søren Kierkegaard, to the investigations by great nineteenth-century scientists, such as Charles Darwin, William James, and Sigmund Freud, as they began to explore its sources and causes, to the latest research by neuroscientists and geneticists. Stossel reports on famous individuals who struggled with anxiety, as well as on the afflicted generations of his own family. His portrait of anxiety reveals not only the emotion’s myriad manifestations and the anguish anxiety produces but also the countless psychotherapies, medications, and other (often outlandish) treatments that have been developed to counteract it. Stossel vividly depicts anxiety’s human toll—its crippling impact, its devastating power to paralyze—while at the same time exploring how those who suffer from it find ways to manage and control it. My Age of Anxiety is learned and empathetic, humorous and inspirational, offering the reader great insight into the biological, cultural, and environmental factors that contribute to the affliction.
Finding Gobi: The True Story of a Little Dog and an Incredible Journey
Dion Leonard - 2017
The lovable pup, who earned the name ‘Gobi’, proved that what she lacked in size, she more than made up for in heart, as she went step for step with Dion over the treacherous Tian Shan Mountains, managing to keep pace with him for nearly 80 miles.As Dion witnessed the incredible determination of this small animal, he felt something change within himself. In the past he had always focused on winning and being the best, but his goal now was simply to make sure that his new friend was safe, nourished and hydrated. Although Dion did not finish first, he felt he had won something far greater and promised to bring Gobi back to the UK for good to become a new addition to his family. This was the start of a journey neither of them would ever forget with a roller coaster ride of drama, grief, heartbreak, joy and love that changed their lives forever.Finding Gobi is the ultimate story of hope, of resilience and of friendship, proving once again, that dogs really are ‘man’s best friend.’
The Deepest Well: Healing the Long-Term Effects of Childhood Adversity
Nadine Burke Harris - 2018
Nadine Burke Harris was already known as a crusading physician delivering targeted care to vulnerable children. But it was Diego — a boy who had stopped growing after a sexual assault — who galvanized her journey to uncover the connections between toxic stress and lifelong illnesses.The news of Burke Harris’s research is just how deeply our bodies can be imprinted by ACEs—adverse childhood experiences like abuse, neglect, parental addiction, mental illness, and divorce. Childhood adversity changes our biological systems, and lasts a lifetime. For anyone who has faced a difficult childhood, or who cares about the millions of children who do, the scientific insight and innovative, acclaimed health interventions in The Deepest Well represent hope for preventing lifelong illness for those we love and for generations to come.