Inside the Dementia Epidemic: A Daughter's Memoir


Martha Stettinius - 2012
    Silver medal winner in the Health/Medical category of the 2013 Readers' Favorite Book Award. Finalist, 2013 Eric Hoffer Book Awards. Finalist, 2013 Indie Excellence Book Awards. Winner of an honorable mention in the category of Life Stories from the 20th Annual Writers Digest Book Awards.The unflinching and hopeful story of one woman's journey into family caregiving, and a vivid overview of the challenges of Alzheimer's care. Winner of an Honorable Mention in the category of Life Stories from the 20th Annual Writer's Digest Book Awards.With the passion of a committed daughter and the fervor of a tireless reporter, Martha Stettinius weaves this compelling story of caregiving for her demented mother with a broad exploration of the causes of Alzheimer's disease, means of treating it, and hopes for preventing it. She shares the lessons she's learned over seven years of caregiving at home, in assisted living, a rehabilitation center, a "memory care" facility for people living with dementia, and a nursing home--lessons not just about how to navigate the system, but how caregiving helped the author to overcome her challenging relationship with her mother, and how she's learned to nurture her mother's spirit through the most advanced stages of dementia.One in 8 people over age 65 has Alzheimer's disease, and nearly fifty percent of those over age 85. As baby boomers age, and we all live longer, most of us will know someone with Alzheimer's disease or another dementia, or care for someone with dementia. Alzheimer's disease is the fifth-leading cause of death in the United States for those age 65 and older, but the only one in the top 10 without a means of prevention, a way to slow its progression, or a cure. In the United States, over 15 million family caregivers provide 17.4 billion hours of unpaid care to family members and friends with Alzheimer's disease and other dementias. Sixty percent of family caregivers report feeling extreme stress.This memoir is not a lament, however; it is guide, and, the author hopes, a means to soften the blow upon all of us. In the course of the author's experience, she discovered what could have been done earlier to help her mother, and what can be done now to help us all. Ms. Stettinius's greatest gift to readers is that of optimism--that caregiving can deepen love, that dementia can be fought, and that families can be strengthened. Her book is appealing, enlightening, and inspiring.Through its intimate scenes and skillful storytelling, Inside the Dementia Epidemic is a call to action for better dementia care, more funding for dementia research, and more support for family caregivers. In the appendices, the author shares facts she wishes she had known years ago, including how to get a diagnosis of Alzheimer's disease; what medications are approved to treat the symptoms of Alzheimer's disease; risk factors for dementia, and possible preventive measures; promising explorations in dementia research; the link between insulin resistance, diabetes, and Alzheimer's disease; the benefits of "memory consultations" and early diagnosis; and national and international movements for more dementia research and better care.Inside the Dementia Epidemic: A Daughter's Memoir includes source notes, resources for caregivers, and an index.

The Examined Life: How We Lose and Find Ourselves


Stephen Grosz - 2012
    These beautifully rendered tales illuminate the fundamental pathways of life from birth to death.A woman finds herself daydreaming as she returns home from a business trip; a young man loses his wallet. We learn, too, from more extreme examples: the patient who points an unloaded gun at a police officer, the compulsive liar who convinces his wife he's dying of cancer. The stories invite compassionate understanding, suggesting answers to the questions that compel and disturb us most about love and loss, parents and children, work and change. The resulting journey will spark new ideas about who we are and why we do what we do.

Odes to Lithium


Shira Erlichman - 2019
    With inventiveness, compassion, and humor, she thrusts us into a world of unconventional praise. From an unexpected encounter with her grandmother's ghost, to a bubble bath with Bjӧrk, to her plumber's confession that he, too, has Bipolar, Erlichman buoyantly topples stigma against the mentally ill. These are necessary odes to self-acceptance, resilience, and the jagged path toward healing. With startling language, and accompanied by her bold drawings and collages, she gives us a sparkling, original view into what makes us human.

In the Water They Can't See You Cry: A Memoir


Amanda Beard - 2012
    At the tender age of fourteen, Amanda Beard walked onto the pool deck at the Atlanta Olympics carrying her teddy bear, Harold, and left with two silvers and a gold medal. She competed in three more Olympic games, winning a total of seven medals, and enjoyed a lucrative modeling career on the side. At one point, she was the most downloaded female athlete on the Internet. Yet despite her astonishing career and sex-symbol status, Amanda felt unworthy of all her success. Unaware that she was suffering from clinical depression, she hid the pain beneath a megawatt smile. With no other outlet for her feelings besides the pool, Amanda expressed her emotions through self-destructive behavior. In her late teens and twenties, she became bulimic, abused drugs and alcohol, and started cutting herself. Her low self-esteem led to toxic relationships with high-profile men in the sports world. No one, not even her own parents and friends, knew about the turmoil she was going through. Only when she met her future husband, who discovered her cutting herself, did Amanda realize she needed help. Through her renewed faith in herself; the love of her family; and finally the birth of her baby boy, Blaise, Amanda has transformed her life. In these pages, she speaks frankly about her struggles with depression, the pressures to be thin, and the unhealthy relationships she confused for love. In the Water They Can’t See You Cry is a raw, compelling story of a woman who gained the strength to live as bravely out of the water as she did in it.

Wide Awake: A Memoir of Insomnia


Patricia Morrisroe - 2009
    So, armed with half a century of personal experience and a journalist’s curiosity, she set off to explore one of life’s greatest mysteries: sleep. Wide Awake is the eye-opening account of Morrisroe’s quest—a compelling memoir that blends science, culture, and business to tell the story of why she—and forty million other Americans—can’t sleep at night.             Over the course of three years of research and reporting, Morrisroe talks to sleep doctors, drug makers, psychiatrists, anthropologists, hypnotherapists, “wake experts,” mattress salesmen, a magician, an astronaut, and even a reindeer herder. She spends an uncomfortable night wired up in a sleep lab. She tries “sleep restriction” and “brain music therapy.” She buys a high-end sound machine, custom-made ear plugs, and a “quiet” house in the country to escape her noisy neighbors in the city. She attends a continuing medical education course in Las Vegas, where she discovers that doctors are among the most sleep-deprived people in the country. She travels to Sonoma, California, where she attends a Dream Ball costumed as her “dream self.” To fulfill a childhood fantasy, she celebrates Christmas Eve two hundred miles north of the Arctic Circle, in the famed Icehotel tossing and turning on an ice bed. Finally, after traveling the globe, she finds the answer to her insomnia right around the corner from her apartment in New York City.  A mesmerizing mix of personal insight, science and social observation, Wide Awake examines the role of sleep in our increasingly hyperactive culture. For the millions who suffer from sleepless nights and hazy caffeine-filled days, this humorous, thought-provoking and ultimately hopeful book is an essential bedtime companion. It does, however, come with a warning: Reading it will promote wakefulness.

Sick Girl


Amy Silverstein - 2007
    Amy chronicles her harrowing medical journey from the first misdiagnosis to her astonishing recovery after her heart transplant, which is made all the more dramatic by the romantic bedside courtship with her future husband, and her uncompromising desire to become a mother. She presents a patient's perspective of life after a heart transplant with honesty.

A Manual for Heartache


Cathy Rentzenbrink - 2017
    In A Manual for Heartache she describes how she learnt to live with grief and loss and find joy in the world again. She explores how to cope with life at its most difficult and overwhelming and how we can emerge from suffering forever changed, but filled with hope.This is a moving, warm and uplifting book that offers solidarity and comfort to anyone going through a painful time, whatever it might be. It’s a book that will help to soothe an aching heart and assure its readers that they’re not alone.

We Danced: Our Story of Love and Dementia


Scott M. Rose - 2021
    It opens with snapshots of her troubled childhood and early adult life in two difficult marriages. It quickly transitions to our first meeting, friendship, and relationship - not without their own complications. Through those trials, she showed tremendous strength and heart. We eventually married and lived a love story that others marveled at for years. We travelled, went to concerts, built a home, and remained completely devoted. While still in her early sixties, she lost a piece of herself. Words became harder to find. Steps to perform the simplest tasks became impossible to follow. We knew something was wrong but had no idea the severity of her condition. Our world turned upside down.The latter half of the book chronicles in exacting detail her diagnosis and life with Frontotemporal Degeneration, a dementia known as FTD. I cared for her for the three and a half years of this disease. Her mental state deteriorated rapidly. I changed to a more flexible job to stay with her more during the day as she lost even the most basic functions of eating alone, toileting, or using a phone. We still created tender moments and danced but she was losing a tremendous amount of weight and required greater and greater care.Financials not allowing me to quit work, I succumbed to the recommendations of multiple professionals and made the painful decision to place her in memory care. I visited her every day, two to three times per day, and we made the best of a horrible situation. We still shared many tender moments during this last year, including the moment I held her hand as she passed. The story is told in a vulnerable and unfiltered manner. It collects writings from both husband and wife through journals, letters, and social media posts integrated into the main narrative. It captures our real-life, undying love story through this incurable disease

Less than Crazy: Living Fully with Bipolar II


Karla Dougherty - 2008
    Instead of being the life of the party, someone with Bipolar II might be too nervous to go to the party at all. And, unlike the Bipolar I sufferer who may attempt suicide in a depressive cycle, the Bipolar II might be incapacitated by guilt over an imaginary crime. In Less than Crazy, health writer and Bipolar II sufferer Karla Dougherty shares her story, presenting the first patient-expert's guide to recognizing and living well with this condition. Covering both adults and children, this accessible, all-in-one resource includes information on diagnosis, conditions that may mimic Bipolar II, and treatments.

Hollow: An Unpolished Tale


Jena Morrow - 2010
    Jena Morrow has a Savior. He came to give her abundant life.This is not a polished tale of victory but an honest, true story of fragility. Hollow recounts Jena’s daily struggle with anorexia and the God who is able and willing to reach down into the dirt. A central theme of Hollow is the surrender of control to Jesus Christ. His Word is interwoven throughout the story as rebuttals to the lies that besiege those engaged in any addiction.  In addition to her point of view, Jena includes those of her friends, family, and former therapists providing  an undercurrent of hope.Written in an easy conversational voice, Hollow will resonate with those in the midst of a struggle and those who stand beside them.

Look Me in the Eye: My Life with Asperger's


John Elder Robison - 2007
    It was no wonder he gravitated to machines, which could, at least, be counted on.After fleeing his parents and dropping out of high school, his savant-like ability to visualize electronic circuits landed him a gig with KISS, for whom he created their legendary fire-breathing guitars. Later, he drifted into a “real” job, as an engineer for a major toy company. But the higher Robison rose in the company, the more he had to pretend to be “normal” and do what he simply couldn’t: communicate. It wasn’t worth the paycheck.It was not until he was forty that an insightful therapist told him he had the form of autism called Asperger’s syndrome. That understanding transformed the way Robison saw himself—and the world.Look Me in the Eye is the moving, darkly funny story of growing up with Asperger’s at a time when the diagnosis simply didn’t exist. A born storyteller, Robison takes you inside the head of a boy whom teachers and other adults regarded as “defective,” who could not avail himself of KISS’s endless supply of groupies, and who still has a peculiar aversion to using people’s given names (he calls his wife “Unit Two”). He also provides a fascinating reverse angle on the younger brother he left at the mercy of their nutty parents—the boy who would later change his name to Augusten Burroughs and write the bestselling memoir Running with Scissors.Ultimately, this is the story of Robison’s journey from his world into ours, and his new life as a husband, father, and successful small business owner—repairing his beloved high-end automobiles. It’s a strange, sly, indelible account—sometimes alien, yet always deeply human.

And Now I Spill the Family Secrets: An Illustrated Memoir


Margaret Kimball - 2021
    As she searches for answers nearly thirty years later, Kimball embarks on a journey into the secrets her family has kept for decades. Using old diary entries, hospital records, home videos, and other archives, Margaret pieces together a narrative map of her childhood—her mother's bipolar disorder, her grandmother's institutionalization, and her brother's increasing struggles—in an attempt to understand what no one likes to talk about: the fractures in her family.

Unworthy: How to Stop Hating Yourself


Anneli Rufus - 2014
    Through observation and anecdote, she shows us that no matter what was said or done to us, self-loathing does not have to be our fate. Hers is a strong, sympathetic and encouraging voice.”—Henry Rollins"This book should be required reading for anyone suffering from low self-esteem, and while it will likely cause readers to tear up repeatedly, the empathy and grounded advice is sure to help inspire healing."—Publishers Weekly"Self-loathing is a dark land studded with booby-traps. Fumbling through its dark underbrush, we cannot see what our trouble actually is: that we are mistaken about ourselves. That we were told lies long ago which we, in love and loyalty and fear, believed.  Will we believe ourselves to death?" —from Unworthy. As someone who has struggled with low self-esteem her entire life, Anneli Rufus knows only too well how the world looks through the eyes of those who are not comfortable in their own skin. In Unworthy, Rufus boldly explores how a lack of faith in ourselves can turn us into our own worst enemies.Drawing on extensive research, enlightening interviews, and her own poignant experiences, Rufus considers the question: What personal, societal, biological, and historical factors coalesced to spark this secret epidemic, and what can be done to put a stop to it? She reveals the underlying sources of low self-esteem and leads us through strategies for positive change.

The Prison Doctor


Amanda Brown - 2019
    From miraculous pregnancies to dirty protests, and from violent attacks on prisoners to heartbreaking acts of self-harm, she has witnessed it all. In this memoir, Amanda reveals the stories, the patients and the cases that have shaped a career helping those most of us would rather forget.

Resilience: Two Sisters and a Story of Mental Illness


Jessie Close - 2015
    When the Close sisters were very young, their parents joined a cult called the MRA, or Moral Rearmament. The family was suddenly uprooted to a cult school in Switzerland and, ultimately, to the Belgian Congo where their father became a surgeon in the war-ravaged republic, and ultimately the personal physician to President Mobutu. Shortly after the girls returned to the US for boarding school, Jessie first started to exhibit symptoms of severe bipolar disorder (she would later learn that this ran in the family, a well-kept secret). Jessie embarked on a series of destructive marriages as the condition worsened. Glenn was always by her side throughout. Jessie's mental illness was passed on to her son, Calen. It wasn't until Calen entered McLean's psychiatric hospital that Jessie herself was diagnosed. Fifteen years and twelve years of sobriety later, Jessie is a stable and productive member of society. Glenn continues to be the major support in Jessie's life.In Resilience, the sisters share their story of triumphing over Jessie's illness. The book is written in Jessie's voice with running commentary and an epilogue written by Glenn.