In a Different Key: The Story of Autism


John Donvan - 2016
    Beginning with his family’s odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, and of the civil rights battles waged by the families of those who have it. Unfolding over decades, it is a beautifully rendered history of ordinary people determined to secure a place in the world for those with autism—by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different.  It is the story of women like Ruth Sullivan, who rebelled against a medical establishment that blamed cold and rejecting “refrigerator mothers” for causing autism; and of fathers who pushed scientists to dig harder for treatments. Many others played starring roles too: doctors like Leo Kanner, who pioneered our understanding of autism; lawyers like Tom Gilhool, who took the families’ battle for education to the courtroom; scientists who sparred over how to treat autism; and those with autism, like Temple Grandin, Alex Plank, and Ari Ne’eman, who explained their inner worlds and championed the philosophy of neurodiversity. This is also a story of fierce controversies—from the question of whether there is truly an autism “epidemic,” and whether vaccines played a part in it; to scandals involving “facilitated communication,” one of many treatments that have proved to be blind alleys; to stark disagreements about whether scientists should pursue a cure for autism. There are dark turns too: we learn about experimenters feeding LSD to children with autism, or shocking them with electricity to change their behavior; and the authors reveal compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death.<

Our Socially Awkward Marriage: Stories from an Adult Relationship on the Asperger's End of the Autism Spectrum


Tom Peters - 2016
     Tom had long suspected that there was something wrong with him, but despite his best efforts, he could never figure out what it was. With the help of Linda, a writer and investigator who he would later marry, Tom went looking for answers that would explain his quirky way of seeing the world. At the age of 47, he was diagnosed with Asperger’s Syndrome, a high-functioning form of autism. Raw and personal, this book of essays was first inspired by Tom’s challenges with Asperger’s Syndrome, but the humorous bite-sized stories apply to any kind of interpersonal communication. The simple solutions that Tom and Linda have discovered – while dressing up a phrenology head or removing a wild opossum from the master bath – have the surprising power to help us learn how to feel more respected, heard and understood in all of our relationships. Introduction Remember that weird kid in the back of the classroom who just couldn’t stop talking about astronomy, and would bring up the discovery of Pluto during lessons about the American Civil War? That was me. My name is Tom Peters. I’m a composer and GRAMMY®-nominated classical musician now, and I’ve played music all over the world. I have a wife named Linda, a college-aged son from my first marriage, and eight different types of stringed instruments at home including six ukuleles. In 2011, at the tender age of 47, I was diagnosed with Asperger’s Syndrome. At that time, Asperger’s Syndrome was considered a mild form of autism, characterized by an inability to understand how to interact socially. Those of us with Asperger’s – or Aspies, as a term of endearment – tend to have few facial expressions and are apt to stare blankly at other people. It’s nothing personal; we really can’t help it. Aspies are often accused of being "in their own world" and preoccupied with their own thoughts. We are usually clumsy with uncoordinated movements, are socially awkward, have repetitive routines or rituals, and odd speech and language. Which didn’t exactly make me a chick magnet. Regardless of an Aspie’s age or place in life, relationships are often a challenge. Being unable to understand nonverbal communication or how you relate to the people around you can cause Aspies to blurt out inappropriate remarks and say just plain odd things, usually at exactly the wrong time. But it’s not all bad news. The unusual focus and intensity that goes along with this disorder has helped me to hone my skills as a professional double bass player and later, as a composer of silent film scores. On a personal level, I am honest, dependable and straightforward. I love deeply and always try to do my best. I don’t play mind games. I don’t know how. And now, as a middle-aged adult, I’m in a happy, healthy relationship. My wife, Linda, is a writer who used to work with adults with mental, emotional and developmental disabilities. It was Linda’s idea for me to share some anecdotes about what it felt like to be on the high-functioning end of the autism spectrum. She thought it might help someone to hear me articulate the feelings involved in some of the unique challenges I face. Around the same time, we also started writing articles together about how we were making communication work so well in our Asperger’s relationship. This book is a collection of some of those articles and blog posts about our lives.

The Spark: A Mother's Story of Nurturing Genius


Kristine Barnett - 2013
    At nine he started working on an original theory in astrophysics that experts believe may someday put him in line for a Nobel Prize, and at age twelve he became a paid researcher in quantum physics. But the story of Kristine’s journey with Jake is all the more remarkable because his extraordinary mind was almost lost to autism. At age two, when Jake was diagnosed, Kristine was told he might never be able to tie his own shoes. The Spark is a remarkable memoir of mother and son. Surrounded by “experts” at home and in special ed who tried to focus on Jake’s most basic skills and curtail his distracting interests—moving shadows on the wall, stars, plaid patterns on sofa fabric—Jake made no progress, withdrew more and more into his own world, and eventually stopped talking completely. Kristine knew in her heart that she had to make a change. Against the advice of her husband, Michael, and the developmental specialists, Kristine followed her instincts, pulled Jake out of special ed, and began preparing him for mainstream kindergarten on her own. Relying on the insights she developed at the daycare center she runs out of the garage in her home, Kristine resolved to follow Jacob’s “spark”—his passionate interests. Why concentrate on what he couldn’t do? Why not focus on what he could? This basic philosophy, along with her belief in the power of ordinary childhood experiences (softball, picnics, s’mores around the campfire) and the importance of play, helped Kristine overcome huge odds. The Barnetts were not wealthy people, and in addition to financial hardship, Kristine herself faced serious health issues. But through hard work and determination on behalf of Jake and his two younger brothers, as well as an undying faith in their community, friends, and family, Kristine and Michael prevailed. The results were beyond anything anyone could have imagined. Dramatic, inspiring, and transformative, The Spark is about the power of love and courage in the face of overwhelming obstacles, and the dazzling possibilities that can occur when we learn how to tap the true potential that lies within every child, and in all of us.

I Am Aspienwoman: The Unique Characteristics and Gifts of Adult Females on the Autism Spectrum


Tania Marshall - 2015
    Check out my second book, now available for pre-order at www.aspiengirl.com

Living Well on the Spectrum: How to Use Your Strengths to Meet the Challenges of Asperger Syndrome/High-Functioning Autism


Valerie L. Gaus - 2011
    But by understanding the specific ways your brain works differently--and how to tap into your personal strengths--you can greatly enhance your well-being. In this wise and practical book, experienced therapist Valerie L. Gaus helps you identify goals that will make your life better and take concrete steps to achieve them. Grounded in psychological science, the techniques in this book help you: *Learn the unspoken rules of social situations.*Improve your communication skills.*Get organized at home and at work.*Manage anxiety and depression.*Strengthen your relationships with family and friends.*Live more successfully on your own or with others. A wealth of stories, questionnaires, worksheets, and concrete examples help you find personalized solutions to problems you are likely to encounter. You can download and print additional copies of the worksheets for repeated use. Of special note, the Introduction was updated in 2017 with the latest information on how autism spectrum disorder is defined in DSM-5. Finally, a compassionate, knowledgeable, positive guide to living well on the spectrum. Mental health professionals, see also the author's Cognitive-Behavioral Therapy for Adults with Autism Spectrum Disorder, Second Edition.

Not Even Wrong: Adventures in Autism


Paul Collins - 2004
    A casual conversation-or any social interaction that the rest of us take for granted-will, for Morgan, always be a cryptogram that must be painstakingly decoded. He lives in a world of his own: an autistic world.In Not Even Wrong, Paul Collins melds a memoir of his son's autism with a journey into this realm of permanent outsiders. Examining forgotten geniuses and obscure medical archives, Collins's travels take him from an English churchyard to the Seattle labs of Microsoft, and from a Wisconsin prison cell block to the streets of Vienna. It is a story that reaches from a lonely clearing in the Black Forest into the London palace of King George I, from Defoe and Swift to the discovery of evolution; from the modern dawn of the computer revolution to, in the end, the author's own household.Not Even Wrong is a haunting journey into the borderlands of neurology - a meditation on what normal is, and how human genius comes to us in strange and wondrous forms.

The Out-of-Sync Child Grows Up: Coping with Sensory Processing Disorder in the Adolescent and Young Adult Years


Carol Kranowitz - 2016
         The Out-of-Sync Child Grows Up will be the new bible for the vast audience of parents whose children, already diagnosed with Sensory Processing Disorder, are entering the adolescent, tween, and teen years, as well as those who do not yet have a diagnosis and are struggling to meet the challenges of daily life. This book picks up where The Out-of-Sync Child left off, offering practical advice on living with SPD, covering everyday challenges as well as the social and emotional issues that many young people with SPD face. Topics include strategies for coping with the sensory aspects of grooming, social lives and dating, playing sports and music, and other issues, as well as how to find support and help from loved ones, occupational therapy, and other resources. Carol Kranowitz's insights are supplemented by first-person accounts of adolescents and teens with SPD, sharing their experiences and hard-won lessons with readers and adding a powerful personal dimension to the book.

Asperger's From the Inside Out: A Supportive and Practical Guide for Anyone with Asperger's Syndrome


Michael John Carley - 2008
    This fascinating book reveals his personal experience with the confusion and trauma associated with this condition-and offers insights into living an independent and productive life.Now the Executive Director of the world's largest Asperger's oranization, Carley helps readers in such areas as:- Social interactions - Nurturing interests - Whom to confide in-and how - Dealing with family and loved ones - Finding work that suits your strengths and talents

Send in the Idiots: Stories from the Other Side of Autism


Kamran Nazeer - 2006
    In 1982, when he was four years old, Kamran Nazeer was enrolled in a small school in New York City alongside a dozen other children diagnosed with autism. Calling themselves the Idiots, these kids received care that was at the cutting edge of developmental psychology. Twenty-three years later, the school no longer exists.Send in the Idiots is the always candid, often surprising, and ultimately moving investigation into what happened to those children. Now a policy adviser in England, Kamran decides to visit four of his old classmates to find out the kind of lives that they are living now, how much they've been able to overcome—and what remains missing. A speechwriter unable to make eye contact; a messenger who gets upset if anyone touches his bicycle; a depressive suicide victim; and a computer engineer who communicates difficult emotions through the use of hand puppets: these four classmates reveal an astonishing, thought-provoking spectrum of behavior.Bringing to life the texture of autistic lives and the pressures and limitations that the condition presents, Kamran also relates the ways in which those can be eased over time, and with the right treatment. Using his own experiences to examine such topics as the difficulties of language, conversation as performance, and the politics of civility, Send in the Idiots is also a rare and provocative exploration of the way that people—all people—learn to think and feel. Written with unmatched insight and striking personal testimony, Kamran Nazeer's account is a stunning, invaluable, and utterly unique contribution to the literature of what makes us human.

All Cats Have Asperger Syndrome


Kathy Hoopmann - 2006
    If you have only just begun to discover why someone with Asperger's syndrome is different, this book will inform and entertain you. The descriptions provide an accurate balance between the qualities and difficulties associated with Asperger's syndrome, while the photographs will make the journey of discovery enjoyable and remarkable.'- Tony Attwood, author of Asperger's Syndrome and The Complete Guide to Asperger's Syndrome

Divergent Mind: Thriving in a World That Wasn't Designed for You


Jenara Nerenberg - 2020
    Being a journalist, she dove into the research and uncovered neurodiversity—a framework that moves away from pathologizing “abnormal” versus “normal” brains and instead recognizes the vast diversity of our mental makeups. When it comes to women, sensory processing differences are often overlooked, masked, or mistaken for something else entirely. Between a flawed system that focuses on diagnosing younger, male populations, and the fact that girls are conditioned from a young age to blend in and conform to gender expectations, women often don’t learn about their neurological differences until they are adults, if at all. As a result, potentially millions live with undiagnosed or misdiagnosed neurodivergences, and the misidentification leads to depression, anxiety, low self-esteem, and shame. Meanwhile, we all miss out on the gifts their neurodivergent minds have to offer.Divergent Mind is a long-overdue, much-needed answer for women who have a deep sense that they are “different.” Sharing real stories from women with high sensitivity, ADHD, autism, misophonia, dyslexia, SPD and more, Nerenberg explores how these brain variances present differently in women and dispels widely-held misconceptions (for example, it’s not that autistic people lack sensitivity and empathy, they have an overwhelming excess of it).Nerenberg also offers us a path forward, describing practical changes in how we communicate, how we design our surroundings, and how we can better support divergent minds. When we allow our wide variety of brain makeups to flourish, we create a better tomorrow for us all.

Nobody Nowhere: The Extraordinary Autobiography of an Autistic Girl


Donna Williams - 1992
    Although labeled, at times, deaf, retarded, or disturbed, Donna Williams is autistic--afflicted by a baffling condition of heightened sensory perception that imprisons the sufferer in a private, almost hallucinatory universe of patterns and colors. Nobody Nowhere is Donna's story in her own words--a haunting, courageous memoir of the titanic struggles she has endured in her quest to merge "my world" with "the world."

Because I Said So! : The Truth Behind the Myths, Tales, and Warnings Every Generation Passes Down to Its Kids


Ken Jennings - 2012
    Yes, all those years you were told not to sit too close to the television (you'll hurt your eyes!) or swallow your gum (it stays in your stomach for seven years!) or crack your knuckles (arthritis!) are called into question by our country's leading trivia guru. Jennings separates myth from fact to debunk a wide variety of parental edicts: no swimming after meals, sit up straight, don't talk to strangers, and so on. Armed with medical case histories, scientific findings, and even the occasional experiment on himself (or his kids), Jennings exposes countless examples of parental wisdom run amok. Whether you're a parent who wants to know what you can stop worrying about or a kid (of any age) looking to say, "I told you so,"; this is the anti-helicopter parenting book you've been waiting for.

The Power of Different: The Link Between Disorder and Genius


Gail Saltz - 2017
    Saltz shows how the very conditions that cause people to experience difficulty at school, in social situations, at home, or at work, are inextricably bound to creative, disciplinary, artistic, empathetic, and cognitive abilities.In this pioneering work, readers will find engaging scientific research and stories from historical geniuses and everyday individuals who have not only made the most of their conditions, but who have flourished because of them. They are leaning into their brain differences to:*Identify areas of interest and expertise*Develop work arounds*Create the environments that best foster their talents*Forge rewarding interpersonal relationshipsEnlightening and inspiring, The Power of Different proves that the unique wiring of every brain can be a source of strength and productivity, and contributes to the richness of our world.

Mozart and the Whale: An Asperger's Love Story


Jerry Newport - 2007
    A musical genius and a mathematical wonder, the two shared astronomical IQs, but they also shared something else -- they both were diagnosed with Asperger's syndrome, a form of autism that affects millions of Americans and makes social contact painfully unbearable. Finding each other after a lifetime of loneliness was a miracle. When Jerry and Mary married, they were catapulted into the limelight. They appeared on 60 Minutes and soon were known as "superstars in the world of autism," shining examples of two people who refused to give up in the face of their mutual challenges.But just when it appeared that their lives would enjoy a fairy-tale ending, their marriage fell apart. The Hollywood feeding frenzy was too much to handle, and they divorced. After years of heartache, soul searching, and personal growth, Jerry and Mary remarried. Today, with their union stronger than ever, they have dedicated themselves to helping countless other people with Asperger's and autism lead lives of dignity. Mozart and the Whale is an unforgettable love story, the incredible chronicle of their journey together -- and apart.