Book picks similar to
Endometriosis: it's not in your head, it's in your pelvis by Bethany Stahl
health
feminist
humananimal-bond
medical-harm
A Short History of Falling: Everything I Observed about Love whilst Dying
Joe Hammond - 2019
I can lie against it, lolling my arm over the edge, running my fingers around the rim. And this is where I am.In 2018, Joe Hammond, wrote a piece for the Guardian about the 33 birthday cards he was writing for his two sons. It was shared by thousands. In A Short History of Falling he tells the story behind that piece, about the experience of living with – and dying of – motor neurone disease (ALS).A Short History of Falling is not a lament. It is a deeply imaginative meditation on what it feels like to confront the fact that your family will persist through time without you. It’s a book about love and about fatherhood. But it’s also an extraordinary kind of travel writing: an unblinking account of a journey into unlighted territory and of what it means to lose your body and your connections to the world one by one.This astonishing, luminous book will truly change the way you see the world.
The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son
Ian Brown - 2009
At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life. Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is. Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.
Second Suns: Two Doctors and Their Amazing Quest to Restore Sight and Save Lives
David Oliver Relin - 2013
In this transporting book, David Oliver Relin shines a light on the work of Geoffrey Tabin and Sanduk Ruit, gifted ophthalmologists who have dedicated their lives to restoring sight to some of the world’s most isolated, impoverished people through the Himalayan Cataract Project, an organization they founded in 1995. Tabin was the high-achieving bad boy of Harvard Medical School, an accomplished mountain climber and adrenaline junkie as brilliant as he was unconventional. Ruit grew up in a remote Nepalese village, where he became intimately acquainted with the human costs of inadequate access to health care. Together they found their life’s calling: tending to the afflicted people of the Himalayas, a vast mountainous region with an alarmingly high incidence of cataract blindness. Second Suns takes us from improvised plywood operating tables in villages without electricity or plumbing to state-of-the-art surgical centers at major American universities where these two driven men are restoring sight—and hope—to patients from around the world. With their revolutionary, inexpensive style of surgery, Tabin and Ruit have been able to cure tens of thousands—all for about twenty dollars per operation. David Oliver Relin brings the doctors’ work to vivid life through poignant portraits of patients helped by the surgery, from old men who cannot walk treacherous mountain trails unaided to cataract-stricken children who have not seen their mothers’ faces for years. With the dexterity of a master storyteller, Relin shows the profound emotional and practical impact that these operations have had on patients’ lives. Second Suns is the moving, unforgettable story of how two men with a shared dream are changing the world, one pair of eyes at a time.Praise for Second Suns
“As miracles go, it’s hard to beat making the blind see. Yet that’s exactly what the eye surgeon Dr. Geoffrey Tabin can do. He services poor people in the developing world who have developed cataracts—a clouding of the lens of the eye that is the world’s leading cause of blindness. . . . Second Suns is a hopeful work, a profile of two doctors who have dedicated their lives to bringing light to those in darkness.”—Time
“A compelling and inspiring book . . . Second Suns portrays heroic health care delivered under harrowing conditions: Ruit and his teams carry their equipment on multi-day treks up steep mountain trails, sometimes hiking at night with flashlights or head lamps, to reach settlements where they typically spend several days operating on hundreds of villagers in makeshift surgical theaters.”—The Washington Post
“Second Suns should be required reading for anybody with an interest in humanitarian philanthropy—or, for that matter, a desire to feel a little better about the world.”—Outside
“A detailed, heartfelt account of the work of [two] dedicated pioneers.”—Kirkus Reviews
My Own Medicine: A Doctor's Life as a Patient
Geoffrey Kurland - 2002
Geoffrey Kurland was a busy man. His work as a Pediatric Pulmonologist, caring for children with lung diseases such as cystic fibrosis and asthma, led to long hours on the wards at the University of California, Davis Medical Center. At the same time, he was in the midst of training for the Western States Endurance Run, a grueling 100-mile long footrace across the wilderness of the Sierra Nevada Mountains. His long training runs, the responsibilities of patient care and teaching, and relationships attempting to replace his departed girlfriend occupied most of his life. Dr. Kurland’s ordered world is suddenly turned upside-down when he is diagnosed with Hairy Cell Leukemia, a rare blood cancer with a low survival rate. His work, his running, and his friendships are altered by his struggle to survive. He finds he must undergo many of the procedures he performed on his patients, must endure surgery and chemotherapy, and must relinquish control of his life to his physicians, surgeons, and his disease. He learns first-hand what cannot be taught in medical school about the consuming power of a chronic illness and its treatment.Confronting his own mortality, Dr. Kurland is now the patient while remaining a physician and runner. With the support of his physicians at the Mayo Clinic, the University of California, and the University of Pittsburgh, he resolves to continue to live his life despite his potentially fatal disease. He discovers his personal inner strengths as well as weaknesses as he struggles to confront his illness and regain some of the control he lost to it. Along his nearly two and a half year journey, we follow Dr. Kurland as he endures surgical procedures, chemotherapy, and life-threatening complications of his illness. He emerges into remission with new inner strength and understanding of what it means to be a doctor. He also finds that he is still a runner, with the same goal, to run the 100 miles across the Sierra Mountains.REVIEWS: “Taut, dramatic, and intensely real…Very well written.” --Oliver Sacks, the best selling author of SEEING VOICES and HALLUCINATIONS"[MY OWN MEDICINE] should be required reading for every medical professional. Kurland never asks for sympathy or pity. [...] What comes through powerfully is his humanity, which his own bout with illnesses has clearly enhanced, and from which both his patients and his readers will benefit." --THE NEW YORK TIMES"While training as a pediatric pulmonologist, Kurland told a patient, 'I know how you feel'; years later, when he was diagnosed with a rare form of leukemia, he discovered just how untrue this was. [...] The way in which serious illness alters one's sense of self and of life is compellingly expressed in this energetic, nervy narrative, as Kurland's illness and eventual recovery collide with a host of profound shifts—a big career move, the death of a colleague, an unravelling relationship with his girlfriend, and a deepening one with his parents." --THE NEW YORKER"MY OWN MEDICINE is rich in detail, enhanced by the author's skillful handling of the narrative...The book depicts a man who, faced with the painful reality of his own mortality, acknowledges his condition and gears himself to face the challenge." --PITTSBURGH POST-GAZETTE
“The story of Kurland’s battle with a disease that almost took his life is compelling and poignant. Unlike other chroniclers of illness, however, Kurland is a physician caring for critically ill children. Perhaps it is inevitable that his observations on life, death, and suffering should be so informed by his work. The result is a narrative that is both unique and deeply insightful.
Somebody I Used to Know: A Memoir
Wendy Mitchell - 2018
Then, slowly, a mist settled deep inside the mind she once knew so well, blurring the world around her. She didn't know it then, but dementia was starting to take hold. In 2014, at age fifty-eight, she was diagnosed with young-onset Alzheimer's.Mitchell shares the heartrending story of her cognitive decline and how she has fought to stave it off. What lay ahead of her after the diagnosis was scary and unknowable, but Mitchell was determined and resourceful, and she vowed to outwit the disease for as long as she could.As Mitchell learned to embrace her new life, she began to see her condition as a gift, a chance to experience the world with fresh eyes and to find her own way to make a difference. Even now, her sunny outlook persists: She devotes her time to educating doctors, caregivers, and other people living with dementia, helping to reduce the stigma surrounding this insidious disease.Still living independently, Mitchell now uses Post-it notes and technology to remind her of her routines and has created a "memory room" where she displays photos--with labels--of her daughters, friends, and special places. It is a room where she feels calm and happy, especially on days when the mist descends.
The Body in Pain: The Making and Unmaking of the World
Elaine Scarry - 1985
The book is an analysis of physical suffering and its relation to the numerous vocabularies and cultural forces--literary, political, philosophical, medical, religious--that confront it. Elaine Scarry bases her study on a wide range of sources: literature and art, medical case histories, documents on torture compiled by Amnesty International, legal transcripts of personal injury trials, and military and strategic writings by such figures as Clausewitz, Churchill, Liddell Hart, and Kissinger, She weaves these into her discussion with an eloquence, humanity, and insight that recall the writings of Hannah Arendt and Jean-Paul Sartre. Scarry begins with the fact of pain's inexpressibility. Not only is physical pain enormously difficult to describe in words--confronted with it, Virginia Woolf once noted, "language runs dry"--it also actively destroys language, reducing sufferers in the most extreme instances to an inarticulate state of cries and moans. Scarry analyzes the political ramifications of deliberately inflicted pain, specifically in the cases of torture and warfare, and shows how to be fictive. From these actions of "unmaking" Scarry turns finally to the actions of "making"--the examples of artistic and cultural creation that work against pain and the debased uses that are made of it. Challenging and inventive, The Body in Pain is landmark work that promises to spark widespread debate.
Pieces of Blue
Kerry McGinnis - 2000
Her father, left with four young children to raise, gathers up his family and leaves the city to go doving. For the next fifteen years, the McGinnis clan travels the continent, droving, horse breaking and living off the land. Kerry grows up in the harsh outback, and the animals that inhabit the land are her closest friends.With the memory of her absent mother ever present, Kerry begins her difficult journey into young womanhood.
Wide Awake: A Memoir of Insomnia
Patricia Morrisroe - 2009
So, armed with half a century of personal experience and a journalist’s curiosity, she set off to explore one of life’s greatest mysteries: sleep. Wide Awake is the eye-opening account of Morrisroe’s quest—a compelling memoir that blends science, culture, and business to tell the story of why she—and forty million other Americans—can’t sleep at night. Over the course of three years of research and reporting, Morrisroe talks to sleep doctors, drug makers, psychiatrists, anthropologists, hypnotherapists, “wake experts,” mattress salesmen, a magician, an astronaut, and even a reindeer herder. She spends an uncomfortable night wired up in a sleep lab. She tries “sleep restriction” and “brain music therapy.” She buys a high-end sound machine, custom-made ear plugs, and a “quiet” house in the country to escape her noisy neighbors in the city. She attends a continuing medical education course in Las Vegas, where she discovers that doctors are among the most sleep-deprived people in the country. She travels to Sonoma, California, where she attends a Dream Ball costumed as her “dream self.” To fulfill a childhood fantasy, she celebrates Christmas Eve two hundred miles north of the Arctic Circle, in the famed Icehotel tossing and turning on an ice bed. Finally, after traveling the globe, she finds the answer to her insomnia right around the corner from her apartment in New York City. A mesmerizing mix of personal insight, science and social observation, Wide Awake examines the role of sleep in our increasingly hyperactive culture. For the millions who suffer from sleepless nights and hazy caffeine-filled days, this humorous, thought-provoking and ultimately hopeful book is an essential bedtime companion. It does, however, come with a warning: Reading it will promote wakefulness.
Autobiography of a Face
Lucy Grealy - 1994
It was the pain from that, from feeling ugly, that I always viewed as the great tragedy of my life. The fact that I had cancer seemed minor in comparison.At age nine, Lucy Grealy was diagnosed with a potentially terminal cancer. When she returned to school with a third of her jaw removed, she faced the cruel taunts of classmates. In this strikingly candid memoir, Grealy tells her story of great suffering and remarkable strength without sentimentality and with considerable wit. Vividly portraying the pain of peer rejection and the guilty pleasures of wanting to be special, Grealy captures with unique insight what it is like as a child and young adult to be torn between two warring impulses: to feel that more than anything else we want to be loved for who we are, while wishing desperately and secretly to be perfect.
Mastermind: How Dave Brailsford Reinvented the Wheel
Richard Moore - 2013
Leading cycling writer Richard Moore's profile of Dave Brailsford, the head of Team Sky and the man who masterminded the British Cycling revolution, gives a unique insight into the psychology of one of the most fascinating figures in world sport.
One of Us: Conjoined Twins and the Future of Normal
Alice Domurat Dreger - 2004
Anatomy matters, Alice Domurat Dreger tells us, because the senses we possess, the muscles we control, and the resources we require to keep our bodies alive limit and guide what we experience in any given context. Her deeply thought-provoking and compassionate work exposes the breadth and depth of that context--the extent of the social frame upon which we construct the normal. In doing so, the book calls into question assumptions about anatomy and normality, and transforms our understanding of how we are all intricately and inextricably joined.
Strangers Assume My Girlfriend Is My Nurse
Shane Burcaw - 2019
From anecdotes about first introductions where people patted him on the head instead of shaking his hand, to stories of passersby mistaking his able-bodied girlfriend for a nurse, Shane tackles awkward situations and assumptions with humor and grace.On the surface, these essays are about day-to-day life as a wheelchair user with a degenerative disease, but they are actually about family, love, and coming of age.
One Hundred Names for Love: A Memoir
Diane Ackerman - 2011
In this extraordinary memoir, she opens a window into the experience of wordlessness—the language paralysis called aphasia. In narrating the recovery of her husband, Paul West, from a stroke that reduced his vast vocabulary to a single syllable, she evokes the joy and mystery of the brain’s ability to find and connect words. Deeply rewarding to readers of all kinds, Ackerman has given us a literary love story, accessible insight into the science and medicine of brain injury,and invaluable spiritual sustenance in the face of life’s myriad physical sufferings.
How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers
Toni Bernhard - 2010
And it can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or even a life-threatening illness.The author, who became ill while a university law professor in the prime of her career, tells the reader how she got sick and, to her and her partner's bewilderment, stayed that way. Toni had been a longtime meditator, going on long meditation retreats and spending many hours rigorously practicing, but soon discovered that she simply could no longer engage in those difficult and taxing forms. She had to learn ways to make "being sick" the heart of her spiritual practice and, through truly learning how to be sick, she learned how, even with many physical and energetic limitations, to live a life of equanimity, compassion, and joy. Whether we ourselves are sick now or not, we can learn these vital arts of living well from How to Be Sick.
One Hundred Days: My Unexpected Journey from Doctor to Patient
David Biro - 2000
But what if the person receiving the diagnosis--young, physically fit, poised for a bright future--is himself a doctor?At thirty-one David biro has just completed his residency and joined his father's successful dermatology practice. Struck with a rare blood disease that eventually necessitates a bone marrow transplant, Biro relates with honesty and courage the story of his most transforming journey. He is forthright about the advantages that his status as a physician may have afforded him; and yet no such advantage can protect him from the anxiety and doubt brought on by his debilitating therapies. The pressures that Biro's wild "one hundred days" brings to bear on his heretofore well-established identity as a caregiver are enormous--as is the power of this riveting story of survival.