Old Before My Time: Hayley Okines' Life with Progeria


Hayley Okines - 2011
    Born with the rare genetic condition progeria, she ages eight times faster than the average person. In medical terms her body is like that of a 100-year-old woman. Yet she faces her condition with immense courage and a refreshing lack of self-pity. In Old Before My Time, Hayley and her mum Kerry reflect on her unusual life. Share Hayley's excitement as she travels the world meeting her pop heroes Kylie, Girls Aloud and Justin Bieber and her sadness as she loses her best friend to the disease at the age of 11. Now as she passes the age of 13 -- the average life expectancy for a child with progeria -- Hayley talks frankly about her hopes for the future and her pioneering drug trials in America which could unlock the secrets of ageing for everyone...

When a Crocodile Eats the Sun: A Memoir of Africa


Peter Godwin - 2006
    On these frequent visits to check on his elderly parents, he bore witness to Zimbabwe's dramatic spiral downwards into thejaws of violent chaos, presided over by an increasingly enraged dictator. And yet long after their comfortable lifestyle had been shattered and millions were fleeing, his parents refuse to leave, steadfast in their allegiance to the failed state that has been their adopted home for 50 years.Then Godwin discovered a shocking family secret that helped explain their loyalty. Africa was his father's sanctuary from another identity, another world.WHEN A CROCODILE EATS THE SUN is a stirring memoir of the disintegration of a family set against the collapse of a country. But it is also a vivid portrait of the profound strength of the human spirit and the enduring power of love.

What Doesn't Kill You: A Life with Chronic Illness - Lessons from a Body in Revolt


Tessa Miller - 2021
    At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a yearslong nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better.Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn's, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications.Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all.

Ruth Bader Ginsburg: A Life


Jane Sherron De Hart - 2018
    At the heart of her story and abiding beliefs--her Jewish background. Tikkun olam, the Hebrew injunction to "repair the world," with its profound meaning for a young girl who grew up during the Holocaust and World War II. We see the influence of her mother, Celia Amster Bader, whose intellect inspired her daughter's feminism, insisting that Ruth become independent, as she witnessed her mother coping with terminal cervical cancer (Celia died the day before Ruth, at seventeen, graduated from high school). From Ruth's days as a baton twirler at Brooklyn's James Madison High School, to Cornell University, Harvard and Columbia Law Schools (first in her class), to being a law professor at Rutgers University (one of the few women in the field and fighting pay discrimination), hiding her second pregnancy so as not to risk losing her job; founding the Women's Rights Law Reporter, writing the brief for the first case that persuaded the Supreme Court to strike down a sex-discriminatory state law, then at Columbia (the law school's first tenured female professor); becoming the director of the women's rights project of the ACLU, persuading the Supreme Court in a series of decisions to ban laws that denied women full citizenship status with men. Her years on the U.S. Court of Appeals for the District of Columbia Circuit, deciding cases the way she played golf, as she, left-handed, played with right-handed clubs--aiming left, swinging right, hitting down the middle. Her years on the Supreme Court . . . A pioneering life and legal career whose profound mark on American jurisprudence, on American society, on our American character and spirit, will reverberate deep into the twenty-first century and beyond.

The Unfit Heiress: The Tragic Life and Scandalous Sterilization of Ann Cooper Hewitt


Audrey Clare Farley - 2021
    This alarmed authorities, who feared certain "over-sexed" women could destroy civilization if allowed to reproduce and pass on their defects. Set against this backdrop, The Unfit Heiress chronicles the fight for inheritance, both genetic and monetary, between Ann Cooper Hewitt and her mother Maryon.In 1934, aided by a California eugenics law, the socialite Maryon Cooper Hewitt had her "promiscuous" daughter declared feebleminded and sterilized without her knowledge. She did this to deprive Ann of millions of dollars from her father's estate, which contained a child-bearing stipulation. When a sensational court case ensued, the American public was captivated. So were eugenicists, who saw an opportunity to restrict reproductive rights in America for decades to come.

In Shock: My Journey from Death to Recovery and the Redemptive Power of Hope


Rana Awdish - 2017
    Rana Awdish never imagined that an emergency trip to the hospital would result in hemorrhaging nearly all of her blood volume and losing her unborn first child. But after her first visit, Dr. Awdish spent months fighting for her life, enduring consecutive major surgeries and experiencing multiple overlapping organ failures. At each step of the recovery process, Awdish was faced with something even more unexpected: repeated cavalier behavior from her fellow physicians—indifference following human loss, disregard for anguish and suffering, and an exacting emotional distance.Hauntingly perceptive and beautifully written, In Shock allows the reader to transform alongside Awidsh and watch what she discovers in our carefully-cultivated, yet often misguided, standard of care. Awdish comes to understand the fatal flaws in her profession and in her own past actions as a physician while achieving, through unflinching presence, a crystalline vision of a new and better possibility for us all.As Dr. Awdish finds herself up against the same self-protective partitions she was trained to construct as a medical student and physician, she artfully illuminates the dysfunction of disconnection. Shatteringly personal, and yet wholly universal, she offers a brave road map for anyone navigating illness while presenting physicians with a new paradigm and rationale for embracing the emotional bond between doctor and patient.

Unorthodox: The Scandalous Rejection of My Hasidic Roots


Deborah Feldman - 2012
    It was stolen moments spent with the empowered literary characters of Jane Austen and Louisa May Alcott that helped her to imagine an alternative way of life. Trapped as a teenager in a sexually and emotionally dysfunctional marriage to a man she barely knew, the tension between Deborah’s desires and her responsibilities as a good Satmar girl grew more explosive until she gave birth at nineteen and realized that, for the sake of herself and her son, she had to escape.

And the Good News Is...: Lessons and Advice from the Bright Side


Dana Perino - 2015
     Thoughtful, inspiring, and often surprising, AND THE GOOD NEWS IS . . . traces Dana Perino's unlikely journey through politics and television. It's a remarkable American story-made up of equal parts determination and clear-eyed optimism. From facing professional challenges and confronting personal fears to stepping up to a podium for a President, Dana has come to expect the unexpected and has an uncanny ability to find the good news in any tough situation. AND THE GOOD NEWS IS . . . takes us from her Western childhood in Wyoming and Colorado to a chance meeting on an airplane that changes her life entirely. Then, with refreshing honesty and humor, she recounts her frustration with a string of unsatisfying jobs and living circumstances until a key career tip leads her back to Washington, D.C. to work for the Bush Administration. Dana also shares here her best work and life lessons-tips that will help you to get your point across convincingly while allowing your own grace and personality to shine through. As someone who still believes in working together to solve the problems our nation faces, Dana offers clear, practical advice on how to restore civility to our personal and public conversations. The result is a fascinating read that can help anyone become more successful, productive, and joyously content.

Resistance: A Songwriter's Story of Hope, Change, and Courage


Tori Amos - 2020
    From her unnerving depiction of sexual assault in "Me and a Gun" to her post-9/11 album Scarlet's Walk to her latest album Native Invader, her work has never shied away from intermingling the personal with the political.Amos began playing piano as a teenager for the politically powerful at hotel bars in Washington, D.C., during the formative years of the post-Goldwater and then Koch-led Libertarian and Reaganite movements. The story continues to her time as a hungry artist in L.A. to the subsequent three decades of her formidable music career. Amos explains how she managed to create meaningful, politically resonant work against patriarchal power structures-and how her proud declarations of feminism and her fight for the marginalized always proved to be her guiding light. She teaches readers to engage with intention in this tumultuous global climate and speaks directly to supporters of #MeToo and #TimesUp, as well as young people fighting for their rights and visibility in the world.Filled with compassionate guidance and actionable advice-and using some of the most powerful, political songs in Amos's canon-this book is for readers determined to steer the world back in the right direction.

Our Malady: Lessons in Liberty from a Hospital Diary


Timothy Snyder - 2020
    Unable to stand, barely able to think, he waited for hours in an emergency room before being correctly diagnosed and rushed into surgery. Over the next few days, as he clung to life and the first light of a new year came through his window, he found himself reflecting on the fragility of health, not recognized in America as a human right but without which all rights and freedoms have no meaning.And that was before the pandemic. We have since watched American hospitals, long understaffed and undersupplied, buckling under waves of coronavirus patients. The federal government made matters worse through willful ignorance, misinformation, and profiteering. Our system of commercial medicine failed the ultimate test, and thousands of Americans died.In this eye-opening cri de coeur, Snyder traces the societal forces that led us here and outlines the lessons we must learn to survive. In examining some of the darkest moments of recent history and of his own life, Snyder finds glimmers of hope and principles that could lead us out of our current malaise. Only by enshrining healthcare as a human right, elevating the authority of doctors and medical knowledge, and planning for our children's future can we create an America where everyone is truly free.

The Woman Behind the New Deal: The Life of Frances Perkins, FDR'S Secretary of Labor and His Moral Conscience


Kirstin Downey - 2009
    Based on eight years of research, extensive archival materials, new documents, and exclusive access to Perkins’s family members and friends, this biography is the first complete portrait of a devoted public servant with a passionate personal life, a mother who changed the landscape of American business and society.Frances Perkins was named Secretary of Labor by Franklin Roosevelt in 1933. As the first female cabinet secretary, she spearheaded the fight to improve the lives of America’s working people while juggling her own complex family responsibilities. Perkins’s ideas became the cornerstones of the most important social welfare and legislation in the nation’s history, including unemployment compensation, child labor laws, and the forty-hour work week. Arriving in Washington at the height of the Great Depression, Perkins pushed for massive public works projects that created millions of jobs for unemployed workers. She breathed life back into the nation’s labor movement, boosting living standards across the country. As head of the Immigration Service, she fought to bring European refugees to safety in the United States. Her greatest triumph was creating Social Security. Written with a wit that echoes Frances Perkins’s own, award-winning journalist Kirstin Downey gives us a riveting exploration of how and why Perkins slipped into historical oblivion, and restores Perkins to her proper place in history.

Incidents in the Life of a Slave Girl


Harriet Ann Jacobs - 1861
    This autobiographical account chronicles the remarkable odyssey of Harriet Jacobs (1813–1897) whose dauntless spirit and faith carried her from a life of servitude and degradation in North Carolina to liberty and reunion with her children in the North.Written and published in 1861 after Jacobs' harrowing escape from a vile and predatory master, the memoir delivers a powerful and unflinching portrayal of the abuses and hypocrisy of the master-slave relationship. Jacobs writes frankly of the horrors she suffered as a slave, her eventual escape after several unsuccessful attempts, and her seven years in self-imposed exile, hiding in a coffin-like "garret" attached to her grandmother's porch.A rare firsthand account of a courageous woman's determination and endurance, this inspirational story also represents a valuable historical record of the continuing battle for freedom and the preservation of family.

The Cooked Seed: A Memoir


Anchee Min - 2013
    Red Azalea became an international bestseller and propelled her career as a successful, critically acclaimed author. Twenty years later, Min returns to the story of her own life to give us the next chapter, an immigrant story that takes her from the shocking deprivations of her homeland to the sudden bounty of the promised land of America, without language, money, or a clear path. It is a hard and lonely road. She teaches herself English by watching Sesame Street, keeps herself afloat working five jobs at once, lives in unheated rooms, suffers rape, collapses from exhaustion, marries poorly and divorces.But she also gives birth to her daughter, Lauryann, who will inspire her and finally root her in her new country. Min's eventual successes-her writing career, a daughter at Stanford, a second husband she loves-are remarkable, but it is her struggle throughout toward genuine selfhood that elevates this dramatic, classic immigrant story to something powerfully universal.

Wonderful Adventures of Mrs. Seacole in Many Lands


Mary Seacole - 1857
    In her long and varied life, she was to travel in Central America, Russia and Europe, find work as a inn-keeper and as a doctress during the Crimean War, and become a famed heroine, the author of her own biography, in Britain. As this autobiography shows, Mary Seacole had a sharp instinct for hypocrisy as well as a ripe taste for sarcasm. Frequently we see her joyfully rise to mock the limitations artificially imposed on her as a black woman. She emerges from her writings as an individual with a most un-Victorian zest for travel, adventure and independence.

As Nature Made Him: The Boy Who Was Raised as a Girl


John Colapinto - 2000
    The case would become one of the most famous in modern medicine—and a total failure. As Nature Made Him tells the extraordinary story of David Reimer, who, when finally informed of his medical history, made the decision to live as a male. A macabre tale of medical arrogance, it is first and foremost a human drama of one man's—and one family's—amazing survival in the face of terrible odds.