Sooner or later each of us is obliged, at least for a spell, to identify ourselves as citizens of that other place." Now more than 133 million Americans live with chronic illness, accounting for nearly three-quarters of all health care dollars, and untold pain and disability.There has been an alarming rise in illnesses that defy diagnosis through clinical tests or have no known cure. Millions of people, especially women, with illnesses such as irritable bowel syndrome, chronic pain, and chronic fatigue syndrome face skepticism from physicians and the public alike. And people with diseases as varied as cardiovascular disease, HIV, certain cancers, and type 2 diabetes have been accused of causing their preventable illnesses through their lifestyle choices.We must balance our faith in medical technology with awareness of the limits of science, and confront our throwback beliefs that people who are sick have weaker character than those who are well. Through research and patient narratives, health writer Laurie Edwards explores patient rights, the role of social media in medical advocacy, the origins of our attitudes about chronic illness, and much more. What The Noonday Demon did for people suffering from depression, In the Kingdom of the Sick does for those who are chronically ill.

    But in this groundbreaking book, prize-winning historian Edith Sheffer exposes that Asperger was not only involved in the racial policies of Hitler’s Third Reich, he was complicit in the murder of children.As the Nazi regime slaughtered millions across Europe during World War Two, it sorted people according to race, religion, behavior, and physical condition for either treatment or elimination. Nazi psychiatrists targeted children with different kinds of minds—especially those thought to lack social skills—claiming the Reich had no place for them. Asperger and his colleagues endeavored to mold certain "autistic" children into productive citizens, while transferring others they deemed untreatable to Spiegelgrund, one of the Reich’s deadliest child-killing centers.In the first comprehensive history of the links between autism and Nazism, Sheffer uncovers how a diagnosis common today emerged from the atrocities of the Third Reich. With vivid storytelling and wide-ranging research, Asperger’s Children will move readers to rethink how societies assess, label, and treat those diagnosed with disabilities.

    And yet, eventually everyone dies—and although most Americans say they would prefer to die peacefully at home, more than half of all deaths take place in hospitals or health care facilities.At the End of Life—the latest collaborative book project between the Creative Nonfiction Foundation and the Jewish Healthcare Foundation—tackles this conundrum head on. Featuring twenty-two compelling personal-medical narratives, the collection explores death, dying and palliative care, and highlights current features, flaws and advances in the healthcare system.Here, a poet and former hospice worker reflects on death’s mysteries; a son wanders the halls of his mother’s nursing home, lost in the small absurdities of the place; a grief counselor struggles with losing his own grandfather; a medical intern traces the origins and meaning of time; a mother anguishes over her decision to turn off her daughter’s life support and allow her organs to be harvested; and a nurse remembers many of her former patients.These original, compelling personal narratives reveal the inner workings of hospitals, homes and hospices where patients, their doctors and their loved ones all battle to hang on—and to let go.

    Her accessible and comprehensive method, which she calls habilitation, works to enhance communication between carepartners and patients and has proven successful with thousands of people living with dementia. Learning to Speak Alzheimer’s also offers hundreds of practical tips, including how to -Cope with the diagnosis and adjust to the disease’s progression -Help the patient talk about the illness -Face the issue of driving -Make meals and bath times as pleasant as possible -Adjust room design for the patient’s comfort -Deal with wandering, paranoia, and aggression ​“A true godsend to anyone caring for those afflicted with dementia.”—Rudolph E. Tanzi, coauthor of Decoding Darkness: The Search for the Genetic Causes of Alzheimer’s Disease

    It will inspire the necessary and difficult conversations we all need to have with loved ones as it illuminates a path to a better way of death.Like so many of us, award-winning writer Katy Butler always assumed her aging parents would experience healthy, active retire­ments before dying peacefully at home. Then her father suffered a stroke that left him incapable of easily finishing a sentence or showering without assistance. Her mother was thrust into full-time caregiving, and Katy became one of the 24 mil­lion Americans who help care for aging parents. In an effort to correct a minor and non–life threatening heart arrhythmia, doctors outfitted her father with a pacemaker. The device kept his heart beating but did nothing to prevent his slide into dementia, incontinence, near-muteness, and misery. After several years, he asked his wife for help, telling her, "I am living too long." Mother and daughter faced a series of wrench­ing moral questions: When does death cease being a curse and become a blessing? Where is the line between saving life and prolonging a dying? When is the right time to say to a doctor, "Let my loved one go"? When doctors refused to disable the pace­maker, sentencing her father to a protracted and agonizing death, Katy set out to understand why. Her quest had barely begun when her mother faced her own illness, rebelled against her doctors, refused open-heart surgery, and instead met death head-on. Knocking on Heaven's Door, a revolution­ary blend of memoir and investigative reporting, is the fruit of the Butler family's journey. With a reporter's skill, a poet's eye, and a daughter's love, Butler explores what happens when our terror of death collides with the tech­nological imperatives of modern medicine. Her provocative thesis is that advanced medicine, in its single-minded pursuit of maximum longevity, often creates more suffering than it prevents. Butler lays bare the tangled web of technology, medicine, and commerce that modern dying has become and chronicles the rise of Slow Medicine - a growing movement that promotes care over cure. Knocking on Heaven's Door is a visionary map through the labyrinth of a broken and morally adrift medical system. It will inspire the necessary and difficult conversations we all need to have with loved ones as it illuminates a path to a better way of death.

    

    Perhaps no questions cause more confusion than the ones that arise when you are pulled out of a thriving life of work that benefits the world, only to spend your hours, days, and weeks languishing in bed. It just doesn’t make sense. Why, God? Why would you take away my thriving career when it took me years to get to this point? Why would you take away my ability to serve and help and contribute? In this first book in the Chronic Pain and the Christian Life series, explore what it looks like to live a life of work, service, and rest, even when the pain doesn’t go away.

    Coupled sexual activity has become more widely available than ever. Cheap sex has been made possible by two technologies that have little to do with each other - the Pill and high-quality pornography - and its distribution made more efficient by a third technological innovation, online dating. Together, they drive down the cost of real sex, and in turn slow the development of love, make fidelity more challenging, sexual malleability more common, and have even taken a toll on men's marriageability.Cheap Sex takes readers on an extended tour inside the American mating market, and highlights key patterns that characterize young adults' experience today, including the timing of first sex in relationships, overlapping partners, frustrating returns on their relational investments, and a failure tolink future goals like marriage with how they navigate their current relationships. Drawing upon several large nationally-representative surveys, in-person interviews with 100 men and women, and the assertions of scholars ranging from evolutionary psychologists to gender theorists, what emerges is astory about social change, technological breakthroughs, and unintended consequences. Men and women have not fundamentally changed, but their unions have. No longer playing a supporting role in relationships, sex has emerged as a central priority in relationship development and continuation. Butunravel the layers, and it is obvious that the emergence of industrial sex is far more a reflection of men's interests than women's.

    Scientists and government officials insisted, for a year and a half, that the virus had a natural origin, ridiculing anyone who dared contradict this view. Tech giants swept the internet, censoring and silencing debate in the most extreme fashion. Yet it is undeniable that a secretive facility in Wuhan was immersed in genetically manipulating bat-coronaviruses in perilous experiments. And as soon as the news of an outbreak in Wuhan leaked, the Chinese military took control and gagged all laboratory insiders.Part-thriller, part-expose, What Really Happened in Wuhan is a ground-breaking investigation from leading journalist Sharri Markson into the origins of Covid-19, the cover-ups, the conspiracies and the classified research. It features never-before-seen primary documents exposing China's concealment of the virus, fresh interviews with whistleblower doctors in Wuhan and crucial eyewitness accounts that dismantle what we thought we knew about when the outbreak hit.With unprecedented access to Washington insiders, Markson takes you inside the White House, with senior Trump lieutenants revealing first-hand accounts of fiery Oval Office clashes and new stories of compromised government advisors and censored scientists.Bravely reported and chillingly laid out, Markson brings to light the stories of the pandemic from the people on the ground: the scientists and national security officials who raised uncomfortable truths and were labelled conspiracy theorists, until government agencies began to suspect they might have been right all along. These brave individuals persisted through bruising battles and played a crucial role in investigating the origins of Covid-19 to finally, in this book, bring us closer to the truth of what really happened in Wuhan.

    Drawing on the black feminist tradition, including Audre Lourde’s invitation to use the erotic as power and Toni Cade Bambara’s exhortation that we make the revolution irresistible, the contributors to this volume take up the challenge to rethink the ground rules of activism. Writers including Cara Page of the Astraea Lesbian Foundation For Justice, Sonya Renee Taylor, founder of This Body Is Not an Apology, and author Alexis Pauline Gumbs cover a wide array of subjects— from sex work to climate change, from race and gender to sex and drugs—creating new narratives about how politics can feel good and how what feels good always has a complex politics of its own.Building on the success of her popular Emergent Strategy, brown launches a new series of the same name with this volume, bringing readers books that explore experimental, expansive, and innovative ways to meet the challenges that face our world today. Books that find the opportunity in every crisis!

    Explaining how we can think and act in a less rigid manner, this fascinating book shows how life isn't binary.

    Since her early childhood, she has lived with the fluctuating and confusing challenge of disabling chronic illness. Her days are watchful and solitary, lived out in the same hundred or so metres around her home.But Josie's world is surprising, intricate, dynamic. She has learned what to look for: the complex patterns of ice on a frozen puddle; the routines of her friends at the community centre; the neighbourhood birds in flight; the slow changes in the morning light, in her small garden, in her growing son, in herself.In January 2018, Josie sets out to tell the story of her still life, over the course of a year. As the seasons shift, and the tides of her body draw in and out, Josie begins to unfurl her history: her childhood bright with promise but shadowed by confinement; her painful adolescence and her hopeful coming of age; the struggle of her marriage, and the triumph of motherhood. And then a most unexpected thing happens in Josie's quiet present: she falls in love.A Still Life is a story of illness and pain that rarely sees the light: illness and pain with no end or resolution; illness and pain that we must meet with courage, joy, ingenuity and hope. Against a world which values 'feel good' progress and productivity above all else, Josie sets out a quietly radical alternative: to value and treasure life for life itself, with all its defeats and victories, with all its great and small miracles.

    Your friends, your neighbors, your Uber driver--everyone is giving you unsolicited advice, to which Beth and Jackie say: F*ck advice! There's no "right" way to be pregnant or a new mom, only stretchy pants to be worn and choices to be made.This illustrated guide asks and answers all the essential questions that pop up from the first trimester to the fourth, such as: Should I have an unmedicated or drugged-out birth? (Up to you!) Will I have time to pee as a new mom? (Maybe!) How do I avoid hating my partner? (That's a little more complicated.) Funny, feminist, and, above all, pro-mom, this book is an actually useful baby shower gift.

    Joel Gold had seen before was admitted to his unit at Bellevue Hospital. This man claimed he was being filmed constantly and that his life was being broadcast around the world like The Truman Show—the 1998 film depicting a man who is unknowingly living out his life as the star of a popular soap opera. Over the next few years, Dr. Gold saw a number of patients suffering from what he and his brother, Dr. Ian Gold, began calling the “Truman Show delusion,” launching them on a quest to understand the nature of this particular phenomenon, of delusions more generally, and of madness itself.The current view of delusions is that they are the result of biology gone awry, of neurons in the brain misfiring. In contrast, the Golds argue that delusions are the result of the interaction between the brain and the social world. By exploring the major categories of delusion through fascinating case studies and marshaling the latest research in schizophrenia, the brothers reveal the role of culture and the social world in the development of psychosis—delusions in particular. Suspicious Minds presents a groundbreaking new vision of just how dramatically our surroundings can influence our brains.

    By turns humorous and moving, Tales from Both Sides of the Brain interweaves Gazzaniga’s scientific achievements with his reflections on the challenges and thrills of working as a scientist.