Care Work: Dreaming Disability Justice


Leah Lakshmi Piepzna-Samarasinha - 2018
    Powerful and passionate, Care Work is a crucial and necessary call to arms.

Very Late Diagnosis of Asperger Syndrome (Autism Spectrum Disorder): How Seeking a Diagnosis in Adulthood Can Change Your Life


Philip Wylie - 2013
    This book discusses the process, the pros and cons, and the after-effects of receiving an autism diagnosis in adulthood.Outlining the likely stages of the journey to diagnosis, this book looks at what the individual may go through as they become aware of their Asperger characteristics and as they seek pre-assessment and diagnosis, as well as common reactions upon receiving a diagnosis - from depression and anger to relief and self-acceptance. Combining practical guidance with advice from personal experience and interviews and correspondence with specialists in the field, the book discusses if and when to disclose to family, friends and employers, how to seek appropriate support services, and how to use the self-knowledge gained through diagnosis to live well in the future.

Beyond Behaviors: Using Brain Science and Compassion to Understand and Solve Children's Behavioral Challenges


Mona Delahooke - 2019
    

Finding Kansas: Decoding the Enigma of Asperger's Syndrome


Aaron Likens - 2008
    Her personal account of the experience of autism was a revelation. It shattered many myths and previously accepted facts about autism. Her book permanently changed the previously limited understanding of autistic disorders. I believe Aarons writings have the same potential regarding Aspergers Disorder. He reveals depths of emotion, social comprehension, nuances of cognition and perception, and especially the potential for something close to recovery. I believe its potential benefits are invaluable and capable of changing lives. In the course of this personal odyssey, however, he becomes much more than a clinical study of Aspergers, for his personal queries eventually pose the same strenuous questions about the human experience that have challenged philosophers since antiquity: What is the meaning of our lives and actions? How do we reconcile our experience with that of others? Where does the Truth lie? What is Love? Does freedom equal love? Dr. Mark Cameron, PhD St. Louis, MO What Aaron has written provides a unique and unusual look into the cognitive processes involved in someone with Asperger's Syndrome. Understanding these ideas and emotions are essential to provide a better understanding to Autism Spectrum Disorders, including Asperger's Syndrome. This will provide a unique contribution to scientific research as well as better awareness and understanding of people with this disorder. Dr. Alycia Halladay Princeton, NJ

Following Ezra: What One Father Learned About Gumby, Otters, Autism, and Love From His Extraordinary Son


Tom Fields-Meyer - 2011
    Full of tender moments and unexpected humor, Following Ezra is the story of a father and son on a ten-year journey from Ezra's diagnosis to the dawn of his adolescence. It celebrates his growth from a remote toddler to an extraordinary young man, connected in his own remarkable ways to the world around him.

Sex is a Funny Word: A Book about Bodies, Feelings, and YOU


Cory Silverberg - 2015
    Much more than the "facts of life" or “the birds and the bees," Sex Is a Funny Word opens up conversations between young people and their caregivers in a way that allows adults to convey their values and beliefs while providing information about boundaries, safety, and joy.The eagerly anticipated follow up to Lambda-nominated What Makes a Baby, from sex educator Cory Silverberg and artist Fiona Smyth, Sex Is a Funny Word reimagines "sex talk" for the twenty-first century.

You Mean I'm Not Lazy, Stupid or Crazy?!: A Self-Help Book for Adults with Attention Deficit Disorder


Kate Kelly - 1993
    This work focuses on the experience of adults with the disorder, combining practical information and moral support. It explains the diagnostic process and distinguishes ADD symptions from normal lapses in memory, lack of concentrations, and impulse behaviour, and addresses: how to achieve balance by analyzing one's strengths and weaknesses; how to get along in groups, at work, and intimate and family relationships - including how to decrease discord and chaos; mechanical aides and methods for getting organized and improving memory; and professional help, including medication and therapy.

The Journal of Best Practices: A Memoir of Marriage, Asperger Syndrome, and One Man's Quest to Be a Better Husband


David Finch - 2012
    Five years after he married Kristen, the love of his life, they learn that he has Asperger syndrome. The diagnosis explains David’s ever-growing list of quirks and compulsions, his lifelong propensity to quack and otherwise melt down in social exchanges, and his clinical-strength inflexibility. But it doesn’t make him any easier to live with.Determined to change, David sets out to understand Asperger syndrome and learn to be a better husband—no easy task for a guy whose inability to express himself rivals his two-year-old daughter's, who thinks his responsibility for laundry extends no further than throwing things in (or at) the hamper, and whose autism-spectrum condition makes seeing his wife's point of view a near impossibility.Nevertheless, David devotes himself to improving his marriage with an endearing yet hilarious zeal that involves excessive note-taking, performance reviews, and most of all, the Journal of Best Practices: a collection of hundreds of maxims and hard-won epiphanies that result from self-reflection both comic and painful. They include "Don’t change the radio station when she's singing along," "Apologies do not count when you shout them," and "Be her friend, first and always." Guided by the Journal of Best Practices, David transforms himself over the course of two years from the world’s most trying husband to the husband who tries the hardest, the husband he’d always meant to be.Filled with humor and surprising wisdom, The Journal of Best Practices is a candid story of ruthless self-improvement, a unique window into living with an autism-spectrum condition, and proof that a true heart can conquer all.

The Spark: A Mother's Story of Nurturing Genius


Kristine Barnett - 2013
    At nine he started working on an original theory in astrophysics that experts believe may someday put him in line for a Nobel Prize, and at age twelve he became a paid researcher in quantum physics. But the story of Kristine’s journey with Jake is all the more remarkable because his extraordinary mind was almost lost to autism. At age two, when Jake was diagnosed, Kristine was told he might never be able to tie his own shoes. The Spark is a remarkable memoir of mother and son. Surrounded by “experts” at home and in special ed who tried to focus on Jake’s most basic skills and curtail his distracting interests—moving shadows on the wall, stars, plaid patterns on sofa fabric—Jake made no progress, withdrew more and more into his own world, and eventually stopped talking completely. Kristine knew in her heart that she had to make a change. Against the advice of her husband, Michael, and the developmental specialists, Kristine followed her instincts, pulled Jake out of special ed, and began preparing him for mainstream kindergarten on her own. Relying on the insights she developed at the daycare center she runs out of the garage in her home, Kristine resolved to follow Jacob’s “spark”—his passionate interests. Why concentrate on what he couldn’t do? Why not focus on what he could? This basic philosophy, along with her belief in the power of ordinary childhood experiences (softball, picnics, s’mores around the campfire) and the importance of play, helped Kristine overcome huge odds. The Barnetts were not wealthy people, and in addition to financial hardship, Kristine herself faced serious health issues. But through hard work and determination on behalf of Jake and his two younger brothers, as well as an undying faith in their community, friends, and family, Kristine and Michael prevailed. The results were beyond anything anyone could have imagined. Dramatic, inspiring, and transformative, The Spark is about the power of love and courage in the face of overwhelming obstacles, and the dazzling possibilities that can occur when we learn how to tap the true potential that lies within every child, and in all of us.

Send in the Idiots: Stories from the Other Side of Autism


Kamran Nazeer - 2006
    In 1982, when he was four years old, Kamran Nazeer was enrolled in a small school in New York City alongside a dozen other children diagnosed with autism. Calling themselves the Idiots, these kids received care that was at the cutting edge of developmental psychology. Twenty-three years later, the school no longer exists.Send in the Idiots is the always candid, often surprising, and ultimately moving investigation into what happened to those children. Now a policy adviser in England, Kamran decides to visit four of his old classmates to find out the kind of lives that they are living now, how much they've been able to overcome—and what remains missing. A speechwriter unable to make eye contact; a messenger who gets upset if anyone touches his bicycle; a depressive suicide victim; and a computer engineer who communicates difficult emotions through the use of hand puppets: these four classmates reveal an astonishing, thought-provoking spectrum of behavior.Bringing to life the texture of autistic lives and the pressures and limitations that the condition presents, Kamran also relates the ways in which those can be eased over time, and with the right treatment. Using his own experiences to examine such topics as the difficulties of language, conversation as performance, and the politics of civility, Send in the Idiots is also a rare and provocative exploration of the way that people—all people—learn to think and feel. Written with unmatched insight and striking personal testimony, Kamran Nazeer's account is a stunning, invaluable, and utterly unique contribution to the literature of what makes us human.

Quiet Power: The Secret Strengths of Introverts


Susan Cain - 2012
    With her inspiring book, she permanently changed the way we see introverts and the way introverts see themselves. The original book focused on the workplace, and Susan realized that a version for and about kids was also badly needed. This book is all about kids' world—school, extracurriculars, family life, and friendship. You’ll read about actual kids who have tackled the challenges of not being extroverted and who have made a mark in their own quiet way. You’ll hear Susan Cain’s own story, and you’ll be able to make use of the tips at the end of each chapter. There’s even a guide at the end of the book for parents and teachers. This insightful, accessible, and empowering book, illustrated with amusing comic-style art, will be eye-opening to extroverts and introverts alike.

Activity Schedules for Children with Autism: Teaching Independent Behavior


Lynn E. McClannahan - 1998
    Once they are mastered, these skills allow reduced adult supervision.

The Survival Guide for Kids with Autism Spectrum Disorders (And Their Parents)


Elizabeth Verdick - 2012
    Some are more introverted, while others try to be social. Some get “stuck” on things, have limited interests, or experience repeated motor movements like flapping or pacing (“stims”). The Survival Guide for Kids with Autism Spectrum Disorders covers all of these areas, with an emphasis on helping children gain new self-understanding and self-acceptance.Meant to be read with a parent, the book addresses questions (“What is ASD?” “Why me?”) and provides strategies for communicating, making and keeping friends, and succeeding in school. Body and brain basics highlight symptom management, exercise, diet, hygiene, relaxation, sleep, and toileting. Emphasis is placed on helping kids handle intense emotions and behaviors and get support from family and their team of helpers when needed. The book includes stories from real kids, fact boxes, helpful checklists, and resources. Sections for parents offer additional information.

The Autistic Spectrum


Lorna Wing - 1996
    About one-third also have varying degrees of learning difficulty. All of them have impairment of social interaction, communication and imagination - to them the world appears a bewildering and sometimes frightening place. This guide explains how people with autism experience the world and why they need an organized, structured environment. Ways of improving communication, developing abilities and enlarging social interaction are described, and advice is given on coping with stresses within the family.

Far from the Tree: Parents, Children, and the Search for Identity


Andrew Solomon - 2012
    He writes about families coping with deafness, dwarfism, Down's syndrome, autism, schizophrenia, or multiple severe disabilities; with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, and Solomon documents triumphs of love over prejudice in every chapter.All parenting turns on a crucial question: to what extent should parents accept their children for who they are, and to what extent they should help them become their best selves. Drawing on ten years of research and interviews with more than three hundred families, Solomon mines the eloquence of ordinary people facing extreme challenges.Elegantly reported by a spectacularly original and compassionate thinker, Far from the Tree explores how people who love each other must struggle to accept each other—a theme in every family’s life.