Book picks similar to
From the Periphery: Real-Life Stories of Disability by Pia Justesen
nonfiction
disability
non-fiction
disability-studies
I Remember Nothing: and Other Reflections
Nora Ephron - 2010
. . but rarely acknowledging.Filled with insights and observations that instantly ring true—and could have come only from Nora Ephron—I Remember Nothing is pure joy.
Between Two Kingdoms: A Memoir of a Life Interrupted
Suleika Jaouad - 2021
She had fallen in love and moved to Paris to pursue her dream of becoming a war correspondent. The real world she found, however, would take her into a very different kind of conflict zone.It started with an itch—first on her feet, then up her legs, like a thousand invisible mosquito bites. Next came the exhaustion, and the six-hour naps that only deepened her fatigue. Then a trip to the doctor and, a few weeks shy of her twenty-third birthday, a diagnosis: leukemia, with a 35 percent chance of survival. Just like that, the life she had imagined for herself had gone up in flames. By the time Jaouad flew home to New York, she had lost her job, her apartment, and her independence. She would spend much of the next four years in a hospital bed, fighting for her life and chronicling the saga in a column for The New York Times.When Jaouad finally walked out of the cancer ward—after three and a half years of chemo, a clinical trial, and a bone marrow transplant—she was, according to the doctors, cured. But as she would soon learn, a cure is not where the work of healing ends; it’s where it begins. She had spent the past 1,500 days in desperate pursuit of one goal—to survive. And now that she’d done so, she realized that she had no idea how to live.How would she reenter the world and live again? How could she reclaim what had been lost? Jaouad embarked—with her new best friend, Oscar, a scruffy terrier mutt—on a 100-day, 15,000-mile road trip across the country. She set out to meet some of the strangers who had written to her during her years in the hospital: a teenage girl in Florida also recovering from cancer; a teacher in California grieving the death of her son; a death-row inmate in Texas who’d spent his own years confined to a room. What she learned on this trip is that the divide between sick and well is porous, that the vast majority of us will travel back and forth between these realms throughout our lives. Between Two Kingdoms is a profound chronicle of survivorship and a fierce, tender, and inspiring exploration of what it means to begin again.
Too Much: How Victorian Constraints Still Bind Women Today
Rachel Vorona Cote - 2020
So too is a fat woman, a horny woman, a woman shrieking with laughter. Women who are one or more of these things have heard, or perhaps simply intuited, that we are repugnantly excessive, that we have taken illicit liberties to feel or fuck or eat with abandon. After bellowing like a barn animal in orgasm, hoovering a plate of mashed potatoes, or spraying out spit in the heat of expostulation, we've flinched-ugh, that was so gross. I am so gross. On rare occasions, we might revel in our excess--belting out anthems with our friends over karaoke, perhaps--but in the company of less sympathetic souls, our uncertainty always returns. A woman who is Too Much is a woman who reacts to the world with ardent intensity is a woman familiar to lashes of shame and disapproval, from within as well as without. Written in the tradition of Shrill, Dead Girls, Sex Object and other frank books about the female gaze, TOO MUCH encourages women to reconsider the beauty of their excesses-emotional, physical, and spiritual. Rachel Vorona Cote braids cultural criticism, theory, and storytelling together in her exploration of how culture grinds away our bodies, souls, and sexualities, forcing us into smaller lives than we desire. An erstwhile Victorian scholar, she sees many parallels between that era's fixation on women's "hysterical" behavior and our modern policing of the same; in the space of her writing, you're as likely to encounter Jane Eyre and Lizzie Bennet as you are Britney Spears and Lana Del Rey. This book will tell the story of how women, from then and now, have learned to draw power from their reservoirs of feeling, all that makes us "Too Much."
Inheritance: A Memoir of Genealogy, Paternity, and Love
Dani Shapiro - 2019
She woke up one morning and her entire history—the life she had lived—crumbled beneath her.Inheritance is a book about secrets—secrets within families, kept out of shame or self-protectiveness; secrets we keep from one another in the name of love. It is the story of a woman’s urgent quest to unlock the story of her own identity, a story that has been scrupulously hidden from her for more than fifty years, years she had spent writing brilliantly, and compulsively, on themes of identity and family history. It is a book about the extraordinary moment we live in—a moment in which science and technology have outpaced not only medical ethics but also the capacities of the human heart to contend with the consequences of what we discover.
Nobody Will Tell You This But Me: A True (as Told to Me) Story
Bess Kalb - 2020
Bobby was a force--irrepressible, glamorous, unapologetically opinionated. Bobby doted on Bess; Bess adored Bobby. Then, at ninety, Bobby died. But in this debut memoir, Bobby is speaking to Bess once more, in a voice as passionate as it ever was in life.Recounting both family lore and family secrets, Bobby brings us four generations of indomitable women and the men who loved them. There's Bobby's mother, who traveled solo from Belarus to America in the 1880s to escape the pogroms, and Bess's mother, a 1970s rebel who always fought against convention. Then there's Bess, who grew up in New York and entered the rough-and-tumble world of L.A. television. Her grandma Bobby was with her all the way--she was the light of Bess's childhood and her fiercest supporter, giving Bess unequivocal love, even if sometimes of the toughest kind.In Nobody Will Tell You This But Me, Bobby reminds Bess of the experiences they shared, and she delivers--in phone calls, texts, and unforgettable heart-to-hearts brought vividly to the page--her signature wisdom:If the earth is cracking behind you, you put one foot in front of the other. Never. Buy. Fake. Anything.I swear on your life every word of this is true.With humor and poignancy, Bess Kalb gives us proof of the special bond that can skip a generation and endure beyond death. This book is a feat of extraordinary ventriloquism and imagination by a remarkably talented writer.
Girl in the Dark
Anna Lyndsey - 2015
She was ambitious and worked hard; she had just bought an apartment; she was falling in love. But then she started to develop worrying symptoms: her face felt like it was burning whenever she was in front of the computer. Soon this progressed to an intolerance of fluorescent light, then of sunlight itself. The reaction soon spread to her entire body. Now, when her symptoms are at their worst, she must spend months on end in a blacked-out room, losing herself in audio books and elaborate word games in an attempt to ward off despair. It was during this period she began to write this book.
Disability Visibility: First-Person Stories from the Twenty-first Century
Alice WongChristie Thompson - 2020
Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.
I'd Rather Be Reading: The Delights and Dilemmas of the Reading Life
Anne Bogel - 2018
Our books shape us, define us, enchant us, and even sometimes infuriate us. Our books are a part of who we are as people, and we can't imagine life without them.I'd Rather Be Reading is the perfect literary companion for everyone who feels that way. In this collection of charming and relatable reflections on the reading life, beloved blogger and author Anne Bogel leads readers to remember the book that first hooked them, the place where they first fell in love with reading, and all of the moments afterward that helped make them the reader they are today. Known as a reading tastemaker through her popular podcast What Should I Read Next?, Bogel invites book lovers into a community of like-minded people to discover new ways to approach literature, learn fascinating new things about books and publishing, and reflect on the role reading plays in their lives.The perfect gift for the bibliophile in everyone's life, I'd Rather Be Reading will command an honored place on the overstuffed bookshelves of any book lover.
Tiny Beautiful Things: Advice on Love and Life from Dear Sugar
Cheryl Strayed - 2012
Sugar - the once-anonymous online columnist at The Rumpus, now revealed as Cheryl Strayed, author of the bestselling memoir Wild - is the person thousands turn to for advice. Tiny Beautiful Things brings the best of Dear Sugar in one place and includes never-before-published columns and a new introduction by Steve Almond. Rich with humor, insight, compassion - and absolute honesty - this book is a balm for everything life throws our way.
My Life on the Road
Gloria Steinem - 2015
She reveals the story of her own growth in tandem with the growth of an ongoing movement for equality. This is the story at the heart of My Life on the Road.
Sometimes I Trip On How Happy We Could Be
Nichole Perkins - 2021
Racism, wealth, poverty, beauty, inclusion, exclusion, and hope -- all of these intractable and unavoidable features course through the media we consume. Examining pop culture’s impact on her life, Nichole Perkins takes readers on a rollicking trip through the last twenty years of music, media and the internet from the perspective of one southern Black woman. She explores her experience with mental illness and how the TV series Frasier served as a crutch, how her role as mistress led her to certain internet message boards that prepared her for current day social media, and what it means to figure out desire and sexuality and Prince in a world where marriage is the only acceptable goal for women. Combining her sharp wit, stellar pop culture sensibility, and trademark spirited storytelling, Nichole boldly tackles the damage done to women, especially Black women, by society’s failure to confront the myths and misogyny at its heart, and her efforts to stop the various cycles that limit confidence within herself. By using her own life and loves as a unique vantage point, Nichole humorously and powerfully illuminates how to take the best pop culture has to offer and discard the harmful bits, offering a mirror into our own lives.
The Soul of an Octopus: A Surprising Exploration Into the Wonder of Consciousness
Sy Montgomery - 2015
From New England aquarium tanks to the reefs of French Polynesia and the Gulf of Mexico, she has befriended octopuses with strikingly different personalities—gentle Athena, assertive Octavia, curious Kali, and joyful Karma. Each creature shows her cleverness in myriad ways: escaping enclosures like an orangutan; jetting water to bounce balls; and endlessly tricking companions with multiple “sleights of hand” to get food.Scientists have only recently accepted the intelligence of dogs, birds, and chimpanzees but now are watching octopuses solve problems and are trying to decipher the meaning of the animal’s color-changing techniques. With her “joyful passion for these intelligent and fascinating creatures” (Library Journal Editors’ Spring Pick), Montgomery chronicles the growing appreciation of this mollusk as she tells a unique love story. By turns funny, entertaining, touching, and profound, The Soul of an Octopus reveals what octopuses can teach us about the meeting of two very different minds.
Wanderlust: A History of Walking
Rebecca Solnit - 2001
The author argues for the preservation of the time and space in which to walk in an ever more car-dependent and accelerated world.
Motherhood
Sheila Heti - 2018
In a narrative spanning several years, casting among the influence of her peers, partner, and her duties to her forbearers, she struggles to make a wise and moral choice. After seeking guidance from philosophy, her body, mysticism, and chance, she discovers her answer much closer to home.Motherhood is a courageous, keenly felt, and starkly original novel that will surely spark lively conversations about womanhood, parenthood, and about how—and for whom—to live.
The Undocumented Americans
Karla Cornejo Villavicencio - 2020
It was right after the election of 2016, the day she realized the story she'd tried to steer clear of was the only one she wanted to tell. So she wrote her immigration lawyer's phone number on her hand in Sharpie and embarked on a trip across the country to tell the stories of her fellow undocumented immigrants--and to find the hidden key to her own.Looking beyond the flashpoints of the border or the activism of the DREAMers, Cornejo Villavicencio explores the lives of the undocumented--and the mysteries of her own life. She finds the nation of singular, effervescent characters often reduced in the media to political pawns or nameless laborers. The stories she tells are not deferential or naively inspirational but show the love, magic, heartbreak, insanity, and vulgarity that infuse the day-to-day lives of her subjects.In New York, we meet the undocumented workers who were recruited into the federally funded Ground Zero cleanup after 9/11. In Miami, we enter the ubiquitous botanicas, which offer medicinal herbs and potions to those whose status blocks them from any other healthcare options. In Flint, Michigan, we learn of demands for state ID in order to receive life-saving clean water. In Connecticut, Cornejo Villavicencio, childless by choice, finds family in two teenage girls whose father is in sanctuary. And through it all we see the author grappling with the biggest questions of love, duty, family, and survival.In her incandescent, relentlessly probing voice, Cornejo Villavicencio combines sensitive reporting and powerful personal narratives to bring to light remarkable stories of resilience, madness, and death. Through these stories we come to understand what it truly means to be a stray. An expendable. A hero. An American.