Only one has told her story.three years after giving up alcohol, Jowita Bydlowska found herself throwing back a glass of champagne like it was lemonade. 'It's a special occasion,' she said to her boyfriend. And indeed it was. It was a party celebrating the birth of their first child. It also marked Jowita's immediate, full-blown return to alcoholism and all that entails for a new mother who is at first determined to keep her problem a secret. Her trips to bottle shops stores are in-and-out missions. Perhaps she's being paranoid, but she thinks people tend to notice the stroller. Walking home, she stays behind buildings, in alleyways, taking discreet sips from a bottle she's stored in the nappy bag. She know she's become a villain: a mother who drinks; a mother who endangers her child. She drinks to forget this. And then the trouble really starts. Jowita Bydlowska's memoir of her relapse into addiction is an extraordinary achievement. the writing is raw and immediate. It places you in the moment - saddened and appalled but never able to look away. With brutal honesty, DRUNK MUM takes us through the binges and blackouts, the self-deception and less successful attempts to deceive others, the humiliations and extraordinary risk-taking. She shines a light on the endless hunger of wanting just one more drink, and one more again, while dealing with motherhood, anxiety, depression - and rehab. Advance Praise for Drunk Mom: 'Jowita is matter of fact, funny, fearless, and irreverent as she lifts the veil to chronicle what it means to be a young mother when both baby and mother have their own bottles - the shame and the inner voices, as well as the joy and relief. this book is for anyone who has ever struggled to make it through a day.' - Laura Albert, a.k.a. Jt LeRoy, author of Sarah, the Heart Is Deceitful Above All things and Harold's End 'Drunk Mom is a stunning, harrowing read. Why harrowing? Not just because of the dramatic story, of a new mother at the edge of her tether. And not only because of Jowita Bydlowska's skill as a writer, and the crisp, original way she tells it. What's most harrowing about Drunk Mom is that you can't stop reading it-this, the dark, now-told tale that lurks in the shadow of every seemingly normal family.' - Ian Brown, author of the Boy in the Moon 'A brave, brilliant and scathing self-portrait. Full of energy and insight. If Frida Kahlo had been a writer, she might have been compared to Jowita Bydlowska.' - Patricia Pearson, author of A Brief History of Anxiety - Yours and Mine. 'Fearless and troubling, and so very humane, Bydlowska explodes the cutesy momoir genre. You'll read it in one sitting.' - Katrina Onstad, author of Everybody Has Everything.

    Silver felt an unquestioned faith in medicine. When her six-week-old daughter, Abby, was rushed to the Neonatal Intensive Care Unit with sudden seizures, and scans revealed a serious brain bleed, her relationship to medicine began to change.The Tincture of Time is Silver's gorgeous and haunting chronicle of Abby's first year. It's a year of unending tests, doctors' opinions, sleepless nights, promising signs and steps backward, and above all, uncertainty: The mysterious circumstances of Abby's hospitalization attract dozens of specialists, none of whom can offer a conclusive answer about what went wrong or what the future holds. As Silver explores what it means to cope with uncertainty as a patient and parent and seeks peace in the reality that Abby's injury may never be fully understood, she looks beyond her own story for comfort, probing literature and religion, examining the practice of medicine throughout history, and reporting the experiences of doctors, patients, and fellow caretakers. The result is a brilliant blend of personal narrative and cultural analysis, at once a poignant snapshot of a parent's struggle and a wise meditation on the reality of uncertainty, in and out of medicine, and the hard-won truth that time is often its only cure.Heart-wrenching, unflinchingly honest, and beautifully written, The Tincture of Time is a powerful story of parenthood, an astute examination of the boundaries of medicine, and an inspiring reminder of life's precariousness.

    But what do we do when nothing goes as we had ever hoped? Jenni Berebitsky, diagnosed in 2009 with ALS has been answering these questions every day. With the hope of helping others move forward after life altering events, Jenni shares her story of life wiht ALS, outlining practical and existential changes needed to adapt and thrive.

    She was ambitious and worked hard; she had just bought an apartment; she was falling in love. But then she started to develop worrying symptoms: her face felt like it was burning whenever she was in front of the computer. Soon this progressed to an intolerance of fluorescent light, then of sunlight itself. The reaction soon spread to her entire body. Now, when her symptoms are at their worst, she must spend months on end in a blacked-out room, losing herself in audio books and elaborate word games in an attempt to ward off despair. It was during this period she began to write this book.

    As a child, he would lie on his bed and study the Easy Rider poster stapled to his wall, dreaming of the day he could wear a leather jacket and be free. In his early twenties, he and his new bride jumped on a motorcycle and rode across America to chase their destiny. Fifteen years later, Joe finds himself in Iowa, working as a heating and air conditioning repairman who reluctantly owns a house, two cars, and a dog. His marriage is failing, and his four children—one of whom is severely autistic—are struggling. “Our history,” he writes, “gains more weight day by day. And the future seems more and more unlikely to be anything cool at all.” Joe believes it would take an act of great faith or courage to revive in him the hope and passion that once seemed so easy to come by. What it takes, he discovers, is a flood. With a genuine narrative voice like Rick Bragg’s and the raw, emotional power of Rafe Yglesias’s novel, A Happy Marriage, this is a wrenching, unsentimental account an ordinary man’s struggle to live an authentic life. Joe Blair lays bare the heartbreaking and hopeful story of a river that became an ocean and of a great love that was lost and then found again, By the Iowa Sea.

    Estreich writes with a poet's eye and gift of language, weaving this personal journey into the larger history of his family, exploring the deep and often hidden connections between the past and the present. Engaging and unsentimental, The Shape of the Eye taught me a great deal. It is a story I found myself thinking about long after I'd finished the final pages." --Kim Edwards, author of The Memory Keeper's Daughter "The Shape of the Eye personalizes Down syndrome, bringing a condition abstracted in the medical literature into the full dimensionality of one family's life. It's brave of George Estreich to make what has befallen his family so public, trusting of him to let an unknown audience second-guess the family's choices. Because he's opened his home and heart in this memoir, we are privileged to witness in chaotic, heart-wrenching, joyous detail what it means to have and to love a child with Down syndrome." --Marcia Childress, Associate Professor of Medical Education (Medical Humanities), University of Virginia School of Medicine, from her Afterword for the book When Laura Estreich is born, her appearance presents a puzzle: does the shape of her eyes indicate Down syndrome, or the fact that she has a Japanese grandmother? In this powerful memoir, George Estreich, a poet and stay-at-home dad, tells his daughter's story, reflecting on her inheritance --- from the literal legacy of her genes, to the family history that precedes her, to the Victorian physician John Langdon Down's diagnostic error of "Mongolian idiocy." Against this backdrop, Laura takes her place in the Estreich family as a unique child, quirky and real, loved for everything ordinary and extraordinary about her.

    In the depths of the jungle—alone with the Jaguar Man—compassion was her only defense.Lara’s survival and journey of healing is poignant, compelling, and exceptional—it runs against the grain of what we’re taught and how we speak about crime and victimhood. Bending the limits of reality, she uses myth to process her experience and further explore the power of compassion. What she comes to is authentic, unorthodox, and fresh, and could serve as a groundbreaking path for trauma survivors to find their own peace and healing.

    That's what adoptive mom Heather Avis learned, and that's the invitation of this book.As the mother of three adopted children - two with Down syndrome - Heather Avis has learned that it's truly the lucky few who get to live a life like hers, who actually recognize that God's plans are best, even when they seem so radically different from the plans we have for ourselves.When Heather started her journey into parenthood she never thought it would look like this, never planned to have three adopted children, and certainly never imagined that two of them would have Down syndrome. But like most things God does, once she stepped into the craziness and confusion that comes with the unknown and the unplanned, she realized that they were indeed among the lucky few.Discover in this book what 70,000+ followers of Heather's hit Instagram account @macymakesmyday already know: the power of faith and family can help us stay strong in the toughest times. This book will also be especially touching to those with adopted family members or children with Down syndrome in their lives.

    But then at age forty-four, she was diagnosed with breast cancer—the result of M18T, an inherited mutation on the BRCA1 gene that had taken the lives of her mother and countless female ancestors. Eating Pomegranates is Gabriel’s candid and incredibly intimate story of being forced to acknowledge that while you can try to overcome the loss of a parent, you can never escape your genetic legacy.Being diagnosed with the same disease that killed her mother compelled Gabriel to write this story. In her struggle for survival, she recounts the rigors of her treatments and considers the impact of a microscopic piece of DNA on generations of her family’s dynamics. She also revisits her past in an effort to reclaim her identity and learn more about the mother who disappeared too early from her life. Beautiful and brutal, Eating Pomegranates—like the myth of Persephone and Demeter, which inspires the title—is about mothers and motherless daughters. It is about a woman so afraid of abandoning her children that she is hardly able to look at them, and about the history of breast cancer itself, from early radical surgeries to contemporary medicine.Combining passion, humor, fierce intelligence, and clinical detail, Eating Pomegranates is an extraordinary book about an all-too-ordinary disease.

    word with me," while Ibby wags her finger at the doctor scolding, "Shame on you."They protect each other, Ibby by asserting, "We're not leaving our home," and Ed reassuring, "We're just fine."About his driving Ed defends, "I'm an excellent driver, I've never had an accident." When their daughter, Rosie, finds dings in Ed's car, he dismisses, "Someone must have bumped into me."After Rosie moves them to assisted living, convinced they are on a second honeymoon, they break the news, "We've decided not to have more children."In the late stages, they politely shake Rosie's hand, inquiring, "Now, who are you?"In ALZHEIMER'S DAUGHTER readers journey with Rosie Church from her first suspicions that something is awry to nearly a decade later as she is honored to hold Ed and Ibby's hands when they draw their final breaths.

    That he emerged to write this funny and true book and then moved on to find the meaningful life that for a while had seemed beyond reach is what ultimately happens in The Eden Express. But the real story here is that throughout his harrowing experience his sense of humor let him see the humanity of what he was going through, and his gift of language let him describe it in such a moving way that others could begin to imagine both its utter ordinariness as well as the madness we all share.

    Full of tender moments and unexpected humor, Following Ezra is the story of a father and son on a ten-year journey from Ezra's diagnosis to the dawn of his adolescence. It celebrates his growth from a remote toddler to an extraordinary young man, connected in his own remarkable ways to the world around him.

    She was forty-four years old, with a devoted husband and three young children, and she had only one year of health remaining.Susan decided to live that year with joy.She quit her job as a journalist and spent time with her family. She built an outdoor meeting space for friends in her backyard. And she took seven trips with the seven most important people in her life. As her health declined, Susan journeyed to the Yukon, Hungary, the Bahamas, and Cyprus. She took her sons to swim with dolphins, and her teenage daughter, Marina, to Kleinfeld's bridal shop in New York City to see her for the first and last time in a wedding dress.She also wrote this book. No longer able to walk or even to lift her arms, she tapped it out letter by letter on her iPhone using only her right thumb, the last finger still working.However, Until I Say Good-Bye is not angry or bitter. It is sad in parts--how could it not be?--but it is filled with Susan's optimism, joie de vivre, and sense of humor. It is a book about life, not death. One that, like Susan, will make everyone smile.From the Burger King parking lot where she cried after her diagnosis to a snowy hot spring near the Arctic Circle, from a hilarious family Christmas disaster to the decrepit monastery in eastern Cyprus where she rediscovered her heritage, Until I Say Good-Bye is not only Susan Spencer-Wendel's unforgettable gift to her loved ones--a heartfelt record of their final experiences together--but an offering to all of us: a reminder that "every day is better when it is lived with joy."

    It is an extraordinary investigation into the role sex plays in perception and our notions of ourselves--and into what happens when the erotic impulse meets the world of medicine.

    But all of these plans changed when Ronan was diagnosed at nine months old with Tay-Sachs disease, a rare and always-fatal degenerative disorder.  Ronan was not expected to live beyond the age of three; he would be permanently stalled at a developmental level of six months.  Rapp and her husband were forced to re-evaluate everything they thought they knew about parenting.  They would have to learn to live with their child in the moment; to find happiness in the midst of sorrow; to parent without a future.The Still Point of the Turning World is the story of a mother’s journey through grief and beyond it.  Rapp’s response to her son’s diagnosis was a belief that she needed to “make my world big”—to make sense of her family’s situation through art, literature, philosophy, theology and myth.  Drawing on a broad range of thinkers and writers, from C.S. Lewis to Sylvia Plath, Hegel to Mary Shelley’s Frankenstein, Rapp learns what wisdom there is to be gained from parenting a terminally ill child.  In luminous, exquisitely moving prose she re-examines our most fundamental assumptions about what it means to be a good parent, to be a success, and to live a meaningful life.