Book picks similar to
Loud Hands: Autistic People, Speaking by Julia Bascom
autism
non-fiction
nonfiction
disability
On the Edge of Gone
Corinne Duyvis - 2016
Denise and her mother and sister, Iris, have been assigned to a temporary shelter near their hometown of Amsterdam to wait out the blast, but Iris is nowhere to be found, and at the rate Denise’s drug-addicted mother is going, they’ll never reach the shelter in time.Then a last-minute encounter leads them to something better than a temporary shelter: a generation ship that’s scheduled to leave Earth behind and colonize new worlds after the comet hits. But each passenger must have a practical skill to contribute. Denise is autistic and fears that she’ll never be allowed to stay. Can she obtain a spot before the ship takes flight? What about her mother and sister?When the future of the human race is at stake, whose lives matter most?
Knocking on Heaven's Door: The Path to a Better Way of Death
Katy Butler - 2013
It will inspire the necessary and difficult conversations we all need to have with loved ones as it illuminates a path to a better way of death.Like so many of us, award-winning writer Katy Butler always assumed her aging parents would experience healthy, active retirements before dying peacefully at home. Then her father suffered a stroke that left him incapable of easily finishing a sentence or showering without assistance. Her mother was thrust into full-time caregiving, and Katy became one of the 24 million Americans who help care for aging parents. In an effort to correct a minor and non–life threatening heart arrhythmia, doctors outfitted her father with a pacemaker. The device kept his heart beating but did nothing to prevent his slide into dementia, incontinence, near-muteness, and misery. After several years, he asked his wife for help, telling her, "I am living too long." Mother and daughter faced a series of wrenching moral questions: When does death cease being a curse and become a blessing? Where is the line between saving life and prolonging a dying? When is the right time to say to a doctor, "Let my loved one go"? When doctors refused to disable the pacemaker, sentencing her father to a protracted and agonizing death, Katy set out to understand why. Her quest had barely begun when her mother faced her own illness, rebelled against her doctors, refused open-heart surgery, and instead met death head-on. Knocking on Heaven's Door, a revolutionary blend of memoir and investigative reporting, is the fruit of the Butler family's journey. With a reporter's skill, a poet's eye, and a daughter's love, Butler explores what happens when our terror of death collides with the technological imperatives of modern medicine. Her provocative thesis is that advanced medicine, in its single-minded pursuit of maximum longevity, often creates more suffering than it prevents. Butler lays bare the tangled web of technology, medicine, and commerce that modern dying has become and chronicles the rise of Slow Medicine - a growing movement that promotes care over cure. Knocking on Heaven's Door is a visionary map through the labyrinth of a broken and morally adrift medical system. It will inspire the necessary and difficult conversations we all need to have with loved ones as it illuminates a path to a better way of death.
The Warner Boys: Our Family’s Story of Autism and Hope
Curt Warner - 2018
When they dropped from the public eye after Curt’s retirement, everyone assumed it was for a simpler life. But the reality behind their seclusion was a secret they hid from even their closest friends: their twins, Austin and Christian, had been diagnosed with severe autism. What followed was a painful struggle to hold their family and their marriage together in a home filled with chaos, emotional exhaustion, and constant fear for the safety of their unpredictable but beloved boys.Now, after years of silence, the Warners share their inspiring journey from stardom and success to heartbreaking self-imposed isolation. Above all, it’s a story of the life-changing truth that love for family and each other—no matter how challenged—is the path to healing and peace.The Warner Boys is the true story of a family who fought for their children and how they grew stronger against all odds.
Sex and Punishment: Four Thousand Years of Judging Desire
Eric Berkowitz - 2012
However, that's not to say that the Sumerians, Victorians, and every civilization in between and beyond have not tried, wielding their most formidable weapon: the law. At any given point in time, some forms of sex were condoned while others were punished mercilessly. Jump forward or backward a century or two (and often far less than that), and the harmless fun of one time period becomes the gravest crime in another. Sex and Punishment tells the story of the struggle throughout the millennia to regulate the most powerful engine of human behavior.Writer and lawyer Eric Berkowitz uses flesh-and-blood cases—much flesh and even more blood—to evoke the entire sweep of Western sex law, from the savage impalement of an Ancient Mesopotamian adulteress to the imprisonment of Oscar Wilde in 1895 for "gross indecency." The cast of Sex and Punishment is as varied as the forms taken by human desire itself: royal mistresses, gay charioteers, medieval transvestites, lonely goat-lovers, prostitutes of all stripes, London rent boys. Each of them had forbidden sex, and each was judged—and justice, as Berkowitz shows, rarely had much to do with it. With the light touch of a natural storyteller, Berkowitz spins these tales and more, going behind closed doors to reveal the essential history of human desire.
A Map Is Only One Story: Twenty Writers on Immigration, Family, and the Meaning of Home
Nicole Chung - 2020
Selected from the archives of Catapult magazine, the essays in A Map Is Only One Story highlight the human side of immigration policies and polarized rhetoric, as twenty writers share provocative personal stories of existing between languages and cultures.Victoria Blanco relates how those with family in both El Paso and Ciudad Juárez experience life on the border. Nina Li Coomes recalls the heroines of Japanese animator Hayao Miyazaki and what they taught her about her bicultural identity. Nur Nasreen Ibrahim details her grandfather’s crossing of the India-Pakistan border sixty years after Partition. Krystal A. Sital writes of how undocumented status in the United States can impact love and relationships. Porochista Khakpour describes the challenges in writing (and rewriting) Iranian America. Through the power of personal narratives, as told by both emerging and established writers, A Map Is Only One Story offers a new definition of home in the twenty-first century.
Boy Alone: A Brother's Memoir
Karl Taro Greenfeld - 2009
He couldn't crawl, and he had trouble making eye contact or interacting with his family. As Noah grew older, his differences became even more pronounced—he was unable to communicate verbally, use the toilet, or tie his shoes, and despite his angelic demeanor, he often had violent outbursts.No doctor, social worker, or specialist could pinpoint what was wrong with Noah beyond a general diagnosis: autism. The boys' parents, Josh and Foumi, dedicated their lives to caring for their younger son with myriad approaches—a challenging, often painful experience that the devoted father detailed in a bestselling trilogy of books.Now, for the first time, acclaimed journalist Karl Taro Greenfeld speaks out about growing up in the shadow of his autistic brother, revealing the complex mix of rage, confusion, and love that defined his childhood. Boy Alone is his brutally honest memoir of the hopes, dreams, and realities of life with a mentally disabled sibling.Seamlessly weaving together the social history of autism and autism research—as the Greenfelds lived through it in seeking treatment for Noah—with the deeply affecting story of two very different boys growing up side by side, this book raises crucial philosophical questions: Can relationships exist without language? How should aging parents care for a nonverbal, violent child, and then a grown man who is not self-sufficient? Is there anything that can be done to help an extremely autistic child or adult become a member of mainstream society?Haunting, tragic, and unforgettable, this chronicle of autism is a beautiful, wholly original exploration of what it means to be a family, a brother, and a person.
No Visible Bruises: What We Don’t Know About Domestic Violence Can Kill Us
Rachel Louise Snyder - 2019
Through the stories of victims, perpetrators, law enforcement, and reform movements from across the country, Snyder explores not only the dark corners of private violence, but also its far-reaching consequences for society, and what it will take to truly address it.
Find the Good: Unexpected Life Lessons from a Small-Town Obituary Writer
Heather Lende - 2015
Now she’s distilled what she’s learned about how to live a more exhilarating and meaningful life into three words: find the good. It’s that simple--and that hard. Quirky and profound, individual and universal, Find the Good offers up short chapters that help us unlearn the habit--and it is a habit--of seeing only the negatives. Lende reminds us that we can choose to see any event--starting a new job or being laid off from an old one, getting married or getting divorced--as an opportunity to find the good. As she says, “We are all writing our own obituary every day by how we live. The best news is that there’s still time for additions and revisions before it goes to press.” Ever since Algonquin published her first book, the New York Times bestseller If You Lived Here, I’d Know Your Name, Heather Lende has been praised for her storytelling talent and her plainspoken wisdom. The Los Angeles Times called her “part Annie Dillard, part Anne Lamott,” and that comparison has never been more apt as she gives us a fresh, positive perspective from which to view our relationships, our obligations, our priorities, our community, and our world. An antidote to the cynicism and self-centeredness that we are bombarded with every day in the news, in our politics, and even at times in ourselves, Find the Good helps us rediscover what’s right with the world. “Heather Lende’s small town is populated with big hearts--she finds them on the beach, walking her granddaughters, in the stories of ordinary peoples’ lives, and knits them into unforgettable tales. Find the Good is a treasure.” —Jo-Ann Mapson, author of Owen’s Daughter “Find the Good is excellent company in unsteady times . . . Heather Lende is the kind of person you want to sit across the kitchen table from on a rainy afternoon with a bottomless cup of tea. When things go wrong, when things go right, her quiet, commonsense wisdom, self-examining frankness, and good-natured humor offer a chance to reset, renew, rebalance.” —Pam Houston, author of Contents May Have Shifted “With gentle humor and empathy [Lende] introduces a number of people who provide examples of how to live well . . . [Find the Good] is simple yet profound.” —Booklist “In this cynical world, Find the Good is a tonic, a literary wellspring, which will continue to run, and nurture, even in times of drought. What a brave and beautiful thing Heather Lende has made with this book.” —John Straley, Shamus Award winner and former writer laureate of Alaska “Heather Lende is a terrific writer and terrific company: intimate, authentic, and as quirky as any of her subjects.” —Marilyn Johnson, author of The Dead Beat
We Are Displaced
Malala Yousafzai - 2018
Her sister, Sabreen, survived a harrowing journey to Italy.Ajida escaped horrific violence, but then found herself battling the elements to keep her family safe in their new makeshift home.Author Malala Yousafzai introduces some of the people behind the statistics and news stories we read or hear every day about the millions of people displaced worldwide.Malala's experiences visiting refugee camps caused her to reconsider her own displacement - first as an Internally Displaced Person when she was a young child in Pakistan, and then as an international activist who could travel anywhere in the world except to the home she loved. In We Are Displaced, which is part memoir, part communal storytelling, Malala not only explores her own story, but she also shares the personal stories of some of the incredible girls she has met on her journeys - girls who have lost their community, relatives, and often the only world they've ever known.In a time of immigration crises, war, and border conflicts, We Are Displaced is an important reminder from one of the world's most prominent young activists that every single one of the 68.5 million currently displaced is a person - often a young person - with hopes and dreams.
The Dirt on Clean: An Unsanitized History
Katherine Ashenburg - 2007
For the seventeenth-century aristocratic Frenchman, it meant changing his shirt once a day, using perfume to obliterate both his own aroma and everyone else’s, but never immersing himself in – horrors! – water. By the early 1900s, an extraordinary idea took hold in North America – that frequent bathing, perhaps even a daily bath, was advisable. Not since the Roman Empire had people been so clean, and standards became even more extreme as the millennium approached. Now we live in a deodorized world where germophobes shake hands with their elbows and where sales of hand sanitizers, wipes and sprays are skyrocketing.The apparently routine task of taking up soap and water (or not) is Katherine Ashenburg’s starting point for a unique exploration of Western culture, which yields surprising insights into our notions of privacy, health, individuality, religion and sexuality.Ashenburg searches for clean and dirty in plague-ridden streets, medieval steam baths, castles and tenements, and in bathrooms of every description. She reveals the bizarre rescriptions of history’s doctors as well as the hygienic peccadilloes of kings, mistresses, monks and ordinary citizens, and guides us through the twists and turns to our own understanding of clean, which is no more rational than the rest. Filled with amusing anecdotes and quotations from the great bathers of history, The Dirt on Clean takes us on a journey that is by turns intriguing, humorous, startling and not always for the squeamish. Ashenburg’s tour of history’s baths and bathrooms reveals much about our changing and most intimate selves – what we desire, what we ignore, what we fear, and a significant part of who we are.
Darkness Visible: A Memoir of Madness
William Styron - 1990
Styron is perhaps the first writer to convey the full terror of depression's psychic landscape, as well as the illuminating path to recovery.
You're Not Listening: What You're Missing and Why It Matters
Kate Murphy - 2020
So do our politicians.We're not listening.And no one is listening to us.Despite living in a world where technology allows constant digital communication and opportunities to connect, it seems no one is really listening or even knows how. And it’s making us lonelier, more isolated, and less tolerant than ever before. A listener by trade, New York Times contributor Kate Murphy wanted to know how we got here.In this always illuminating and often humorous deep dive, Murphy explains why we’re not listening, what it’s doing to us, and how we can reverse the trend. She makes accessible the psychology, neuroscience, and sociology of listening while also introducing us to some of the best listeners out there (including a CIA agent, focus group moderator, bartender, radio producer, and top furniture salesman). It’s time to stop talking and start listening.
It Didn't Start with You: How Inherited Family Trauma Shapes Who We Are and How to End the Cycle
Mark Wolynn - 2016
Anxiety. Chronic Pain. Phobias. Obsessive thoughts. The evidence is compelling: the roots of these difficulties may not reside in our immediate life experience or in chemical imbalances in our brains—but in the lives of our parents, grandparents, and even great-grandparents. The latest scientific research, now making headlines, supports what many have long intuited—that traumatic experience can be passed down through generations. It Didn’t Start with You builds on the work of leading experts in post-traumatic stress, including Mount Sinai School of Medicine neuroscientist Rachel Yehuda and psychiatrist Bessel van der Kolk, author of The Body Keeps the Score. Even if the person who suffered the original trauma has died, or the story has been forgotten or silenced, memory and feelings can live on. These emotional legacies are often hidden, encoded in everything from gene expression to everyday language, and they play a far greater role in our emotional and physical health than has ever before been understood. As a pioneer in the field of inherited family trauma, Mark Wolynn has worked with individuals and groups on a therapeutic level for over twenty years. It Didn’t Start with You offers a pragmatic and prescriptive guide to his method, the Core Language Approach. Diagnostic self-inventories provide a way to uncover the fears and anxieties conveyed through everyday words, behaviors, and physical symptoms. Techniques for developing a genogram or extended family tree create a map of experiences going back through the generations. And visualization, active imagination, and direct dialogue create pathways to reconnection, integration, and reclaiming life and health. It Didn’t Start With You is a transformative approach to resolving longstanding difficulties that in many cases, traditional therapy, drugs, or other interventions have not had the capacity to touch.
Rage Becomes Her: The Power of Women's Anger
Soraya Chemaly - 2018
Too sensitive, or not sensitive enough. Too dowdy or too made-up. Too big or too thin. Sluts or prudes. We are harassed, told we are asking for it, and asked if it would kill us to smile. Yes, yes it would.Contrary to the rhetoric of popular “self-help” and an entire lifetime of being told otherwise, our rage is one of the most important resources we have, our sharpest tool against both personal and political oppression. We’ve been told for so long to bottle up our anger, letting it corrode our bodies and minds in ways we don’t even realize. Yet our anger is a vital instrument, our radar for injustice and a catalyst for change. On the flip side, the societal and cultural belittlement of our anger is a cunning way of limiting and controlling our power.We are so often told to resist our rage or punished for justifiably expressing it, yet how many remarkable achievements in this world would never have gotten off the ground without the kernel of anger that fueled them? Rage Becomes Her makes the case that anger is not what gets in our way, it is our way, sparking a new understanding of one of our core emotions that will give women a liberating sense of why their anger matters and connect them to an entire universe of women no longer interested in making nice at all costs.Following in the footsteps of classic feminist manifestos like The Feminine Mystique and Our Bodies, Ourselves, Rage Becomes Her is an eye-opening book for the twenty-first century woman: an engaging, accessible credo offering us the tools to re-understand our anger and harness its power to create lasting positive change.
All the Things We Never Knew: Chasing the Chaos of Mental Illness
Sheila Hamilton - 2015
Even as a reporter, Sheila Hamilton missed the signs as her husband David's mental illness unfolded before her. By the time she had pieced together the puzzle, it was too late. Her once brilliant and passionate partner was dead within six weeks of a diagnosis of bipolar disorder, leaving his wife and nine-year-old daughter without so much as a note to explain his actions, a plan to help them recover from their profound grief, or a solution for the hundreds of thousands of dollars in debt that they would inherit from him.All the Things We Never Knew takes readers on a breathtaking journey, from David and Sheila's early romance through the last three months of their life together and into the year after his death. It details their unsettling spiral from ordinary life into the world of mental illness, examines the fragile line between reality and madness, and reveals the true power of love and forgiveness.