Riding the Bus with My Sister: A True Life Journey


Rachel Simon - 2002
    Beth spends her days riding the buses in her Pennsylvania city. The drivers, a lively group, are her mentors; her fellow passengers are her community. One day, Beth asked Rachel to accompany her on the buses for an entire year; the book is the chronicle of that remarkable time. Rachel, a writer and college teacher whose hyperbusy life camouflaged her emotional isolation, had much to learn in her sister's extraordinary world. Here are life lessons from which every reader can profit: how to live in the moment, how to pay attention to what really matters, how to change, how to love, —and how to slow down and enjoy the ride. Simon elegantly braids together riveting memories of terrifying maternal abandonment, fierce sisterly loyalty, and astonishing forgiveness. She brings to light the almost invisible world of mental retardation, finds unlikely heroes in everyday life, and portrays her very special sister Beth as the endearing and indomitable person she is. This heartwarming book takes the reader on an inspirational journey, at once unique and universal.

My Lovely Wife in the Psych Ward


Mark Lukach - 2017
    They fell in love at eighteen, married at twenty-four, and were living their dream life in San Francisco. When Giulia was twenty-seven, she suffered a terrifying and unexpected psychotic break that landed her in the psych ward for nearly a month. One day she was vibrant and well-adjusted; the next she was delusional and suicidal, convinced that her loved ones were not safe.Eventually, Giulia fully recovered, and the couple had a son. But, soon after Jonas was born, Giulia had another breakdown, and then a third a few years after that. Pushed to the edge of the abyss, everything the couple had once taken for granted was upended.A story of the fragility of the mind, and the tenacity of the human spirit, My Lovely Wife in the Psych Ward is, above all, a love story that raises profound questions: How do we care for the people we love? What and who do we live for? Breathtaking in its candor, radiant with compassion, and written with dazzling lyricism, Lukach’s is an intensely personal odyssey through the harrowing years of his wife’s mental illness, anchored by an abiding devotion to family that will affirm readers’ faith in the power of love.

The Neuroscientist Who Lost Her Mind: My Tale of Madness and Recovery


Barbara K. Lipska - 2018
    As the cancer progressed and was treated, the author experienced behavioral and cognitive symptoms connected to a range of mental disorders, including her professional specialty, schizophrenia. Lipska's family and associates were alarmed by the changes in her behavior, which she failed to acknowledge herself. Gradually, after a course of immunotherapy, Lipska returned to normal functioning, recalled her experience and, through her knowledge of neuroscience, identified the ways in which her brain changed during treatment. Lipska admits her condition was unusual; after recovery she was able to return to her research and resume her athletic training and compete in a triathalon. Most patients with similar brain cancers rarely survive to describe their ordeal. Lipska's memoir, coauthored with journalist McArdle, shows that strength and courage but also a encouraging support network are vital to recovery

Crazy: A Father's Search Through America's Mental Health Madness


Pete Earley - 2006
    But it was only when his own son-in the throes of a manic episode-broke into a neighbor's house that he learned what happens to mentally ill people who break a law. This is the Earley family's compelling story, a troubling look at bureaucratic apathy and the countless thousands who suffer confinement instead of care, brutal conditions instead of treatment, in the "revolving doors" between hospital and jail. With mass deinstitutionalization, large numbers of state mental patients are homeless or in jail-an experience little better than the horrors of a century ago. Earley takes us directly into that experience-and into that of a father and award-winning journalist trying to fight for a better way.

The Short Bus: A Journey Beyond Normal


Jonathan Mooney - 2007
    To learn how others had moved beyond labels, he bought his own short bus and set out cross-country, looking for kids who had dreamed up magical, beautiful ways to overcome the obstacles that separated them from the so-called normal world.The Short Bus is his irreverent and poignant record of that odyssey, meeting thirteen people in thirteen states who taught Mooney that there’s no such thing as normal—and that to really live, every person must find their own special way of keeping on.  The Short Bus is a unique gem, propelled by Mooney’s heart, humor, and outrageous rebellions.

Finding Kansas: Decoding the Enigma of Asperger's Syndrome


Aaron Likens - 2008
    Her personal account of the experience of autism was a revelation. It shattered many myths and previously accepted facts about autism. Her book permanently changed the previously limited understanding of autistic disorders. I believe Aarons writings have the same potential regarding Aspergers Disorder. He reveals depths of emotion, social comprehension, nuances of cognition and perception, and especially the potential for something close to recovery. I believe its potential benefits are invaluable and capable of changing lives. In the course of this personal odyssey, however, he becomes much more than a clinical study of Aspergers, for his personal queries eventually pose the same strenuous questions about the human experience that have challenged philosophers since antiquity: What is the meaning of our lives and actions? How do we reconcile our experience with that of others? Where does the Truth lie? What is Love? Does freedom equal love? Dr. Mark Cameron, PhD St. Louis, MO What Aaron has written provides a unique and unusual look into the cognitive processes involved in someone with Asperger's Syndrome. Understanding these ideas and emotions are essential to provide a better understanding to Autism Spectrum Disorders, including Asperger's Syndrome. This will provide a unique contribution to scientific research as well as better awareness and understanding of people with this disorder. Dr. Alycia Halladay Princeton, NJ

The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son


Ian Brown - 2009
    At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life. Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is. Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.

Like Sound Through Water: A Mother's Journey Through Auditory Processing Disorder


Karen J. Foli - 2002
    If the problem is physical, she takes the child to a doctor. But if the problem is a misunderstanding of her child's mind, where does she turn for help? This is Ben's story. He was a happy, healthy boy -- a mother's dream come true. Yet by the age of three, Ben's development was significantly delayed: He couldn't make sense of the simplest phrases, and he still hadn't started talking. When Karen Foli finally took her son, Ben, to a speech and hearing clinic, she was told that he was "probably retarded and perhaps autistic." But Karen knew that Ben was highly perceptive, even frustrated by his inability to communicate. Trusting her "mother's intuition," Karen set out on a journey to learn the truth about her son's condition....and what she found was APD. A person with auditory processing disorder receives jumbled and distorted sounds. But the ability to hear is usually normal. Even though it affects millions of Americans, APD can be difficult to diagnose and challenging to treat. Through years of research, and personal interviews, Karen Foli learned everything she needed to know about APD in order to help her son achieve the greatest gift of all: communication. Like Sound Through Water is her story -- winning, inspiring, and true.

Ghost Boy: My Miraculous Escape from a Life Locked Inside My Own Body


Martin Pistorius - 2011
    But he was alive and trapped inside his own body for ten years.In January 1988 Martin Pistorius, aged twelve, fell inexplicably sick. First he lost his voice and stopped eating. Then he slept constantly and shunned human contact. Doctors were mystified. Within eighteen months he was mute and wheelchair-bound. Martin's parents were told an unknown degenerative disease left him with the mind of a baby and less than two years to live.Martin was moved to care centers for severely disabled children. The stress and heartache shook his parents’ marriage and their family to the core. Their boy was gone. Or so they thought.Ghost Boy is the heart-wrenching story of one boy’s return to life through the power of love and faith. In these pages, readers see a parent’s resilience, the consequences of misdiagnosis, abuse at the hands of cruel caretakers, and the unthinkable duration of Martin’s mental alertness betrayed by his lifeless body.We also see a life reclaimed—a business created, a new love kindled—all from a wheelchair. Martin's emergence from his own darkness invites us to celebrate our own lives and fight for a better life for others.

Little Panic: Dispatches from an Anxious Life


Amanda Stern - 2018
    Plagued with fear that her friends and family will be taken from her if she's not watching--that her mother will die, or forget she has children and just move away--Stern treats every parting as her last. Shuttled between a barefoot bohemian life with her mother in Greenwich Village, and a sanitized, stricter world of affluence uptown with her father, Stern has little she can depend on. And when Etan Patz disappears down the block from their MacDougal Street home, she can't help but believe that all her worst fears are about to come true. Tenderly delivered and expertly structured, Stern's memoir is a document of the transformation of New York City and a deep, personal, and comedic account of the trials and errors of seeing life through a very unusual lens.

What Color is Monday? How Autism Changed One Family for the Better


Carrie Cariello - 2013
    “What?” I said distractedly, turning from the oven to slice some potatoes at the counter. It was late afternoon, and I was preparing dinner while also managing the demands of homework and tired toddlers. “Do you see days as colors?”Raising five children would be challenge enough for most parents, but when one of them has been diagnosed with Autism Spectrum Disorder, the adventures become even more fascinating. In this moving--and often funny--memoir, author Carrie Cariello invites us to take a peek into exactly what it takes to get through each day with four boys and one girl, and shows us the beauty and wonder of a child who views the world through a different lens.

A Really Good Day: How Microdosing Made a Mega Difference in My Mood, My Marriage, and My Life


Ayelet Waldman - 2017
    When a small vial arrives in her mailbox from "Lewis Carroll," Ayelet Waldman is at a low point. Her mood storms have become intolerably severe; she has tried nearly every medication possible; her husband and children are suffering with her. So she opens the vial, places two drops on her tongue, and joins the ranks of an underground but increasingly vocal group of scientists and civilians successfully using therapeutic microdoses of LSD. As Waldman charts her experience over the course of a month--bursts of productivity, sleepless nights, a newfound sense of equanimity--she also explores the history and mythology of LSD, the cutting-edge research into the drug, and the byzantine policies that control it. Drawing on her experience as a federal public defender, and as the mother of teenagers, and her research into the therapeutic value of psychedelics, Waldman has produced a book that is eye-opening, often hilarious, and utterly enthralling.

Daniel Isn't Talking


Marti Leimbach - 2006
    What sets it apart from most fiction about difficult subjects such as autism, is the author's ability to write about a sad and frightening situation with a seamless blend of warmth, compassion and humor.Marti Leimbach's first novel, Dying Young, was called "a masterpiece of details that always ring true, with the sad, funny and fascinating unpredictability of real life." With the same talent and perception, Leimbach's new novel takes the reader to London, to the home of the Marshes: Stephen Marsh, a true Brit; Melanie, a transplanted American; and their two children, four-year-old Emily and Daniel, just three. When it is conveyed that Daniel is autistic, the orderly life of the Marsh family is shattered.Melanie is determined to fight to teach Daniel to speak, play and become as "normal" as possible. Her enchanting disposition has already helped her weather other of life's storms, but Daniel's autism may just push her over the brink, destroying her resolute optimism and bringing her unsteady marriage to an inglorious end. The situation is not helped by Stephen's far-from-supportive parents, who proudly display the family tree with Melanie's name barely penciled in, and who remain disconcertingly attached to Stephen's ex-fiancée, a woman apparently intent on restaking her claim on Stephen. Melanie does have one strong ally in Andy, a talented and off-the-wall play therapist who specializes in teaching autistic children. Andy proves that Daniel is far more capable than anyone imagined, and Melanie finds herself drawn to him even as she staggers toward resolving her marriage.Daniel Isn't Talking is a moving, deeply absorbing story of a family in crisis. What sets it apart from most fiction about difficult subjects is the author's ability to write about a sad and frightening situation with a seamless blend of warmth, compassion and humor.

Know the Night: A Memoir of Survival in the Small Hours


Maria Mutch - 2013
    A chronicle of the witching hours between midnight and six a.m., this meditative book takes place during the twoyear period in which Mutch’s son Gabriel, who is autistic and also has Down syndrome, rarely slept through the night. In this tapestry composed of interwoven memories, we see both Gabriel’s difficult childhood and Maria’s introduction to the world of multiple disability parenting. As a counterpoint to Gabriel’s figurative isolation is the story of Admiral Richard Byrd, the polar explorer who journeyed alone into the Antarctic wilderness in the 1930s. His story creates a shared and powerful language for the experience of feeling alone. In these three characters—mother, son, and explorer—Mutch reveals overlapping and layered themes of solitude that, far from driving us apart, enlighten, uplift, and connect.

My Thirteenth Winter: A Memoir


Samantha Abeel - 2003
    For a straight-A student like Samantha, problems like these made no sense. She dreaded school, and began having anxiety attacks. In her thirteenth winter, she found the courage to confront her problems -- and was diagnosed with a learning disability. Slowly, Samantha's life began to change again. She discovered that she was stronger than she'd ever thought possible -- and that sometimes, when things look bleakest, hope is closer than you think.