Book picks similar to
Let Me Hear Your Voice: A Family's Triumph over Autism by Catherine Maurice
autism
non-fiction
nonfiction
psychology
He Wanted the Moon: The Madness and Medical Genius of Dr. Perry Baird, and His Daughter's Quest to Know Him
Mimi Baird - 2015
Perry Baird was a rising medical star in the late 1920s and 1930s. Early in his career, ahead of his time, he grew fascinated with identifying the biochemical root of manic depression, just as he began to suffer from it himself. By the time the results of his groundbreaking experiments were published, Dr. Baird had been institutionalized multiple times, his medical license revoked, and his wife and daughters estranged. He later received a lobotomy and died from a consequent seizure, his research incomplete, his achievements unrecognized.Mimi Baird grew up never fully knowing this story, as her family went silent about the father who had been absent for most of her childhood. Decades later, a string of extraordinary coincidences led to the recovery of a manuscript which Dr. Baird had worked on throughout his brutal institutionalization, confinement, and escape. This remarkable document, reflecting periods of both manic exhilaration and clear-headed health, presents a startling portrait of a man who was a uniquely astute observer of his own condition, struggling with a disease for which there was no cure, racing against time to unlock the key to treatment before his illness became impossible to manage.Fifty years after being told her father would forever be “ill” and “away,” Mimi Baird set off on a quest to piece together the memoir and the man. In time her fingers became stained with the lead of the pencil he had used to write his manuscript, as she devoted herself to understanding who he was, why he disappeared, and what legacy she had inherited. The result of his extraordinary record and her journey to bring his name to light is He Wanted the Moon, an unforgettable testament to the reaches of the mind and the redeeming power of a determined heart.Soon to be a major motion picture, from Brad Pitt and Tony Kushner
Against Medical Advice
James Patterson - 2008
From that day forward his life became a hell of uncontrollable tics, urges, and involuntary utterances. Eventually he is diagnosed with Tourette's Syndrome and Obsessive Compulsive disorder, and Cory embarks on an excruciating journey from specialist to specialist, enduring countless combinations of medications in wildly varying doses. Soon it becomes unclear what tics are symptoms of his disease and what are side effects of the drugs. The only certainty is that it kept getting worse. Despite his lack of control, Cory is aware of every embarrassing movement, and sensitive to every person's reaction to his often aggravating presence. Simply put: Cory Friedman's life is a living hell.Against Medical Advice is the true story of one family's decades-long battle for survival in the face of extraordinary difficulties and a rigid medical establishment.
The Valedictorian of Being Dead: The True Story of Dying Ten Times to Live
Heather B. Armstrong - 2019
Armstrong writes about her experience as one of only a few people to participate in an experimental treatment for depression involving ten rounds of a chemically induced coma approximating brain death.For years, Heather B. Armstrong has alluded to her struggle with depression on her website. But in 2016, Heather found herself in the depths of a depression she just couldn’t shake, an episode darker and longer than anything she had previously experienced. This book recalls the torturous eighteen months of suicidal depression she endured and the month-long experimental study in which doctors used propofol anesthesia to quiet all brain activity for a full fifteen minutes before bringing her back from a flatline. Ten times. The experience wasn’t easy. Not for Heather or her family. But a switch was flipped, and Heather hasn’t experienced a single moment of suicidal depression since. The Valedictorian of Being Dead brings to light a groundbreaking new treatment for depression.
3500: An Autistic Boy's Ten-Year Romance with Snow White
Ron Miles - 2013
The last thing his parents expected was to see him come alive.What followed was a remarkable tale of inspiration, heartbreak, dedication and joy as Benjamin's family relocated from Seattle to Orlando in order to capture that magic and put it to practical use. Amidst the daily challenges of life for an autistic child, Benjamin's passion for one particular theme park attraction would lead his family on a breathtaking journey of hope and discovery.How many rides does it take for an ending to become a new beginning?
Strange Son: Two Mothers, Two Sons, and the Quest to Unlock the Hidden World of Autism
Portia Iversen - 2006
Tito Mukhopadhyay, an autistic boy from India who spends most of his time flapping his fingers in front of his eyes, has an IQ of 185. He favors the writings of Wordsworth and Ibsen. He loves philosophy, reads "People," and worries about conflict in the Middle East. He also writes beautiful poetry. That Tito can communicate at all is due to his mother, Soma, who single-handedly developed a revolutionary method of teaching him in their one-room apartment in Bangalore, a "classroom" that lacked even running water. Portia Iversen, an Emmy-winning art director whose life was turned upside down when her own son Dov was diagnosed with autism, heard of Soma's miraculous story in the course of her own desperate search for a cure. Under the auspices of Cure Autism Now, the foundation she started with her husband that is now one of the largest funds for autism research in the world, Portia brought Soma and Tito to America to help researchers understand how Soma accomplished this amazing feat and to determine what can be learned from their success. Together, Soma and Portia have made remarkable progress in teaching their sons how to break through the walls of autism. And, in the process, they have assisted scientists in making astonishing discoveries about the nature of autism itself. "Strange Son" is the extraordinary account of two families who redefined how autism-and autistic people-should be treated, all the while helping to answer some of autism's most baffling questions and prompting new research. Iversen weaves the twin stories of Soma and Tito (and how Soma's methods mystified experts) together with her own story of how she and her family came to understand Dov. The result is a book suffused with uplifting human drama.
You Don't Look Like Anyone I Know: A True Story of Family, Face Blindness, and Forgiveness
Heather Sellers - 2010
Heather Sellers is face-blind-that is, she has prosopagnosia, a rare neurological condition that prevents her from reliably recognizing people's faces. Growing up, unaware of the reason for her perpetual confusion and anxiety, she took what cues she could from speech, hairstyle, and gait. But she sometimes kissed a stranger, thinking he was her boyfriend, or failed to recognize even her own father and mother. She feared she must be crazy. Yet it was her mother who nailed windows shut and covered them with blankets, made her daughter walk on her knees to spare the carpeting, had her practice secret words to use in the likely event of abduction. Her father went on weeklong "fishing trips" (aka benders), took in drifters, wore panty hose and bras under his regular clothes. Heather clung to a barely coherent story of a "normal" childhood in order to survive the one she had. That fairy tale unraveled two decades later when Heather took the man she would marry home to meet her parents and began to discover the truth about her family and about herself. As she came at last to trust her own perceptions, she learned the gift of perspective: that embracing the past as it is allows us to let it go. And she illuminated a deeper truth-that even in the most flawed circumstances, love may be seen and felt. Watch a Video
Devil in the Details: Scenes from an Obsessive Girlhood
Jennifer Traig - 2004
The result is a book so relentlessly funny and frank, it's totally refreshing.
There's a Boy in Here: Emerging from the Bonds of Autism
Judy Barron - 1992
Together, they chronicle Sean’s young life and the effects of autism on him and his family. As a youngster, Sean was confrontational, uncontrollable, “isolated and desperately unhappy.” Baffled about how to interact with others, he felt “like an alien from outer space.” Then, at seventeen, Sean experienced a breakthrough that began his release from autism. Today he’s a public speaker, college student, and reporter—and close to his family. You absolutely must read this book.
Emotional Female
Yumiko Kadota - 2021
A self-confessed workaholic, she regularly put 'knife before life', knowing it was all going to be worth it because it would lead to her longed-for career.But if the punishing hours in surgery weren't hard enough, she also faced challenges as a young female surgeon navigating a male-dominated specialty. She was regularly left to carry out complex procedures without senior surgeons' oversight; she was called all sorts of things, from 'emotional' to 'too confident'; and she was expected to work a relentless on-call roster - sometimes seventy hours a week or more - to prove herself.Eventually it was too much and Yumiko quit.Emotional Female is her account of what it was like to train in the Australian public hospital system, and what made her walk away.Yumiko Kadota is a voice for her generation when it comes to burnout and finding the resilience to rebuild after suffering a physical, emotional and existential breakdown. This is a brave, honest and unflinching work from a major new talent.
Atypical: Life with Asperger's in 20 1/3 Chapters
Jesse A. Saperstein - 2010
Please be forewarned that you are about to read the observations and life lessons of someone who entertains himself by farting in public and conversing in gibberish with his cats. Thus begins the charming, insightful, and memorable story of Jesse Saperstein. Diagnosed with Asperger's Syndrome, a mild form of autism, Jesse has struggled since childhood with many of the hallmark challenges of his condition-from social awkwardness and self-doubt to extreme difficulty with change and managing his emotions.He has also worked hard to understand and make the most of his AS- developing his keen curiosity and sense of humor, closely observing the world around him, and most of all, helping others with AS to better cope and even thrive. Told with endearing and unflinching honesty, Jesse brings his unique perspective to the circumstances of his life and his condition.
The Woman Who Changed Her Brain: And Other Inspiring Stories of Pioneering Brain Transformation
Barbara Arrowsmith-Young - 2012
But through her formidable memory and determination, she made her way to graduate school, where she chanced upon research that inspired her to invent cognitive exercises to "fix" her brain. Now the Director of Arrowsmith School, the author interweaves her personal tale with riveting case histories from her more than 30 years of working with both children and adults to restructure their own brains.The Woman Who Changed Her Brain powerfully and poignantly illustrates how the lives of children and adults struggling with learning disorders can be dramatically transformed. This remarkable book by a brilliant pathbreaker deepens our understanding of how the brain works and of the brain’s profound impact on how we participate in the world. Our brains shape us, but this book offers clear and hopeful evidence of the corollary: we can shape our brains.
Parallel Play
Tim Page - 2009
In 1997, Tim Page won the Pulitzer Prize for Criticism for his work as the chief classical music critic of The Washington Post, work that the Pulitzer board called “lucid and illuminating.” Three years later, at the age of 45, he was diagnosed with Asperger's syndrome–an autistic disorder characterized by often superior intellectual abilities but also by obsessive behavior, ineffective communication, and social awkwardness. In a personal chronicle that is by turns hilarious and heartbreaking, Page revisits his early days through the prism of newfound clarity. Here is the tale of a boy who could blithely recite the names and dates of all the United States’ presidents and their wives in order (backward upon request), yet lacked the coordination to participate in the simplest childhood games. It is the story of a child who memorized vast portions of the World Book Encyclopedia simply by skimming through its volumes, but was unable to pass elementary school math and science. And it is the triumphant account of a disadvantaged boy who grew into a high-functioning, highly successful adult–perhaps not despite his Asperger’s but because of it, as Page believes. For in the end, it was his all-consuming love of music that emerged as something around which to construct a life and a prodigious career. In graceful prose, Page recounts the eccentric behavior that withstood glucose-tolerance tests, anti-seizure medications, and sessions with the school psychiatrist, but which above all, eluded his own understanding. A poignant portrait of a lifelong search for answers, Parallel Play provides a unique perspective on Asperger's and the well of creativity that can spring forth as a result of the condition.
Finding Ben: A Mother's Journey Through the Maze of Asperger's
Barbara LaSalle - 1999
Yet, lurking beneath this boy genius's amazing, albeit useless, gifts for facts were an extraordinary fear of change and social aloofness. Unknown to his mother, Barbara, until much later, Ben suffered from Asperger's syndrome--the "little grown-up" disorder--a neurobiological disease similar to autism. Frank, honest, and beautifully written, Finding Ben is a remarkably moving account of Barbara LaSalle's struggles to understand--and overcome--the guilt she feels for not fully loving her son.Burdened with the belief that the world would look at her son and somehow see her own failure, Finding Ben is a powerfully honest narrative account of how a mother's love can turn over time into resentment for having to raise a special-needs child.It is through LaSalle's special friendship with Jack, a man full of wisdom despite his debilitating brain aneurysm, that LaSalle is finally able to love her son--and herself--again. With two stories to tell, Finding Ben is both a fascinating look at a mercurial disease and a powerful story of one mother's personal journey from frustration and resentment to love and acceptance.
Schuyler's Monster: A Father's Journey with His Wordless Daughter
Robert Rummel-Hudson - 2008
Once they knew why she couldn’t speak, they needed to determine how to help her learn. They didn’t know that Schuyler was going to teach them a thing or two about fearlessness, tenacity, and joy.Schuyler’s Monster is more than the memoir of a parent dealing with a child’s disability. It is the story of the relationship between a unique and ethereal little girl floating through the world without words, and her earthbound father who struggles with whether or not he is the right dad for the job. It is the story of a family seeking answers to a child’s dilemma, but it is also a chronicle of their unique relationships, formed without traditional language against the expectations of a doubting world. It is a story that has equal measure of laughter and tears. Ultimately, it is the tale of a little girl who silently teaches a man filled with self-doubt how to be the father she needs. Schuyler can now communicate through assistive technology, and continues to be the source of her father's inspiration, literary and otherwise.
The Autistic Spectrum
Lorna Wing - 1996
About one-third also have varying degrees of learning difficulty. All of them have impairment of social interaction, communication and imagination - to them the world appears a bewildering and sometimes frightening place. This guide explains how people with autism experience the world and why they need an organized, structured environment. Ways of improving communication, developing abilities and enlarging social interaction are described, and advice is given on coping with stresses within the family.