Book picks similar to
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome by Amy Silverman
memoir
non-fiction
nonfiction
disability
Mother Ship
Francesca Segal - 2019
Apart and all together in this space, our odd craft, we are drawn back into the folds of the unremarkable.’After her identical twin girls were born ten weeks prematurely, Francesca Segal finds herself sitting vigil in the ‘mother ship’ of neonatal intensive care, all romantic expectations of new parenthood obliterated. Her gripping diary of those months combines the tenderness of a love poem with the compulsive pace of a thriller. As each day brings a fresh challenge for her and her babies, Francesca makes a temporary life among a band of mothers who are vivid, fearless, and inspiring, taking care not only of their children but of one another.MOTHER SHIP is an intimate, raucous, sublime and electrifying memoir. It is a hymn to the sustaining power of women’s friendship, and a loving celebration of the two small girls – and their mother – who defy the odds.
Hello I Want to Die Please Fix Me: Depression in the First Person
Anna Mehler Paperny - 2019
Illuminating, completely engaging—it's essential reading for all since we all know someone whose life, family or friends are touched by the disease that directly afflicts a fifth of Canadians.
In her early twenties, while outwardly thriving in her dream job and enjoying warm familial support and a strong social network, award-winning journalist Anna Mehler Paperny found herself trapped by feelings of failure and despair. Her first suicide attempt—ingesting a deadly mix of sleeping pills and antifreeze—landed her in the ICU, followed by weeks of enforced detention that ran the gamut of horrifying, boring, hilarious, and absurd. This was Anna's entry into the labyrinthine psychiatric care system responsible for providing care to millions of Canadians.As she struggled to survive the psych ward and as an outpatient—enduring the "survivor's" shame of facing concerned family, friends, and co-workers; finding (or not) the right therapist, the right meds; staying healthy, insured, and employed—Anna could not help but turn her demanding journalist's eye on her condition and on the system in which she found herself. She set off on a quest to "know her enemy," interviewing leading practitioners in the field across Canada and the US—from psychiatrists to neurological experts, brain-mapping pioneers to heroic family practitioners, and others dabbling in novel hypotheses. She reveals in courageously frank detail her own experiences with the pharmacological pitfalls and side effects of long-term treatment, and offers moving case studies of conversations with others, opening wide a window into how we treat (and fail to treat) the disease that accounts for more years swallowed up by disability than any other in the world.
My Stroke of Insight: A Brain Scientist's Personal Journey
Jill Bolte Taylor - 2006
Through the eyes of a curious scientist, she watched her mind deteriorate whereby she could not walk, talk, read, write, or recall any of her life. Because of her understanding of the brain, her respect for the cells in her body, and an amazing mother, Jill completely recovered. In My Stroke of Insight, she shares her recommendations for recovery and the insight she gained into the unique functions of the two halves of her brain. When she lost the skills of her left brain, her consciousness shifted away from normal reality where she felt "at one with the universe." Taylor helps others not only rebuild their brains from trauma, but helps those of us with normal brains better understand how we can consciously influence the neural circuitry underlying what we think, how we feel and how we react to life's circumstances.
With or Without You
Domenica Ruta - 2013
Growing up, Domenica knew she didn't fit in-she was far smarter and worse dressed than everyone else she knew, and she clearly had the most flamboyant mother of anyone in town-but she found solace in writing and reading. As she grew older, though, and as her mother's behavior grew increasingly outrageous and her home life increasingly untenable, Domenica fled Danvers only to become ensnared by the demons of addiction.A thoroughly textured and masterfully written book, layered with wildly colorful characters, a biting sense of humor, and penetrating, deeply sympathetic insights, With or Without You finally ends with Domenica's increasing awareness that she must leave the life she grew up with in order to survive.
Choosing Naia: A Family's Journey
Mitchell Zuckoff - 2002
A dramatic and carefully detailed account of one family's journey through the maze of genetic counseling, medical technology, and disability rights; destined to become required reading for anyone touched by any of these issues.
The Good Nurse: A True Story of Medicine, Madness, and Murder
Charles Graeber - 2013
But Cullen was no mercy killer, nor was he a simple monster. He was a favorite son, husband, beloved father, best friend, and celebrated caregiver. Implicated in the deaths of as many as 300 patients, he was also perhaps the most prolific serial killer in American history.Cullen's murderous career in the world's most trusted profession spanned sixteen years and nine hospitals across New Jersey and Pennsylvania. When, in March of 2006, Charles Cullen was marched from his final sentencing in an Allentown, Pennsylvania, courthouse into a waiting police van, it seemed certain that the chilling secrets of his life, career, and capture would disappear with him. Now, in a riveting piece of investigative journalism nearly ten years in the making, journalist Charles Graeber presents the whole story for the first time. Based on hundreds of pages of previously unseen police records, interviews, wire-tap recordings and videotapes, as well as exclusive jailhouse conversations with Cullen himself and the confidential informant who helped bring him down, THE GOOD NURSE weaves an urgent, terrifying tale of murder, friendship, and betrayal.Graeber's portrait of Cullen depicts a surprisingly intelligent and complicated young man whose promising career was overwhelmed by his compulsion to kill, and whose shy demeanor masked a twisted interior life hidden even to his family and friends. Were it not for the hardboiled, unrelenting work of two former Newark homicide detectives racing to put together the pieces of Cullen's professional past, and a fellow nurse willing to put everything at risk, including her job and the safety of her children, there's no telling how many more lives could have been lost.In the tradition of In Cold Blood, THE GOOD NURSE does more than chronicle Cullen's deadly career and the breathless efforts to stop him; it paints an incredibly vivid portrait of madness and offers a penetrating look inside America's medical system. Harrowing and irresistibly paced, this book will make you look at medicine, hospitals, and the people who work in them, in an entirely different way.
The Argonauts
Maggie Nelson - 2015
At its center is a romance: the story of the author's relationship with the artist Harry Dodge. This story, which includes Nelson's account of falling in love with Dodge, who is fluidly gendered, as well as her journey to and through a pregnancy, offers a firsthand account of the complexities and joys of (queer) family-making.Writing in the spirit of public intellectuals such as Susan Sontag and Roland Barthes, Nelson binds her personal experience to a rigorous exploration of what iconic theorists have said about sexuality, gender, and the vexed institutions of marriage and child-rearing. Nelson's insistence on radical individual freedom and the value of caretaking becomes the rallying cry of this thoughtful, unabashed, uncompromising book.
Aftershocks
Nadia Owusu - 2021
Nadia Owusu grew up all over the world—from Rome and London to Dar-es-Salaam and Kampala. When her mother abandoned her when she was two years old, the rejection caused Nadia to be confused about her identity. Even after her father died when she was thirteen and she was raised by her stepmother, she was unable to come to terms with who she was since she still felt motherless and alone. When Nadia went to university in America when she was eighteen she still felt as if she had so many competing personas that she couldn’t keep track of them all without cracking under the pressure of trying to hold herself together. A powerful coming-of-age story that explores timely and universal themes of identity, Aftershocks follows Nadia’s life as she hauls herself out of the wreckage and begins to understand that the only ground firm enough to count on is the one she writes into existence.
Wasted: A Memoir of Anorexia and Bulimia
Marya Hornbacher - 1997
A vivid, honest, and emotionally wrenching memoir, Wasted is the story of one woman's travels to reality's darker side—and her decision to find her way back on her own terms.
So Sad Today: Personal Essays
Melissa Broder - 2016
In the fall of 2012, she went through a harrowing cycle of panic attacks and dread that wouldn't abate for months. So she began @sosadtoday, an anonymous Twitter feed that allowed her to express her darkest feelings, and which quickly gained a dedicated following. In So Sad Today, Broder delves deeper into the existential themes she explores on Twitter, grappling with sex, death, love, low self-esteem, addiction, and the drama of waiting for the universe to text you back. With insights as sharp as her humor, Broder explores—in prose that is both gutsy and beautiful, aggressively colloquial and achingly poetic—questions most of us are afraid to even acknowledge, let alone answer, in order to discover what it really means to be a person in this modern world.
Motherhood So White: A Memoir of Race, Gender, and Parenting in America
Nefertiti Austin - 2019
Eager to finally join the motherhood ranks, Nefertiti was shocked when people started asking her why she wanted to adopt a "crack baby" or said that she would never be able to raise a Black son on her own. She realized that American society saw motherhood through a white lens, and that there would be no easy understanding or acceptance of the kind of family she hoped to build.Motherhood So White is the story of Nefertiti's fight to create the family she always knew she was meant to have and the story of motherhood that all American families need now. In this unflinching account of her parenting journey, Nefertiti examines the history of adoption in the African American community, faces off against stereotypes of single, Black motherhood, and confronts the reality of raising children of color in racially charged, modern-day America.Honest, vulnerable, and uplifting, Motherhood So White reveals what Nefertiti knew all along―that the only requirement for a successful family is one raised with love.
A Three Dog Life
Abigail Thomas - 2006
Forced to adapt to a life alone, Abigail finds solace at home, discovering that friends, family and dogs can reshape a life of chaos into one that makes sense - a life full of its own richness and beauty.
The Pact
Sampson Davis - 2002
But one day these three young men made a pact. They promised each other they would all become doctors, and stick it out together through the long, difficult journey to attaining that dream. Sampson Davis, George Jenkins, and Rameck Hunt are not only friends to this day—they are all doctors.This is a story about the power of friendship. Of joining forces and beating the odds. A story about changing your life, and the lives of those you love most...together.
On Edge: A Journey Through Anxiety
Andrea Petersen - 2017
Difficulty breathing. Overwhelming dread. Andrea Petersen was first diagnosed with an anxiety disorder at the age of twenty, but she later realized that she had been experiencing panic attacks since childhood. With time her symptoms multiplied. She agonized over every odd physical sensation. She developed fears of driving on highways, going to movie theaters, even licking envelopes. Although having a name for her condition was an enormous relief, it was only the beginning of a journey to understand and master it—one that took her from psychiatrists’ offices to yoga retreats to the Appalachian Trail. Woven into Petersen’s personal story is a fascinating look at the biology of anxiety and the groundbreaking research that might point the way to new treatments. She compares psychoactive drugs to non-drug treatments, including biofeedback and exposure therapy. And she explores the role that genetics and the environment play in mental illness, visiting top neuroscientists and tracing her family history—from her grandmother, who, plagued by paranoia, once tried to burn down her own house, to her young daughter, in whom Petersen sees shades of herself. Brave and empowering, this is essential reading for anyone who knows what it means to live on edge.
The Winter of Our Disconnect
Susan Maushart - 2010
But it will also challenge you to take stock of your own family connections, to create a media ecology that encourages kids - and parents - to thrive.When journalist and commentator Susan Maushart first decided to pull the plug on all electronic media at home, she realised her children would have sooner volunteered to go without food, water or hair products. At ages 14, 15 and 18, her daughters and son didn’t use media. They inhabited media. Just exactly as fish inhabit a pond. Gracefully. Unblinkingly. And utterly without consciousness or curiosity as to how they got there. Susan’s experiment with her family was a major success and she found that having less to communicate with, her family is communicating more.At the simplest level, The Winter of Our Disconnect is the story of how one family survived six months of wandering through the desert, digitally speaking, and the lessons learned about themselves and technology along the way. At the same time, their story is a channel to a wider view - into the impact of new media on the lives of families, into the very heart of the meaning of home.