Book picks similar to
The Girl with the Curly Hair - Asperger's and Me by Alis Rowe
autism
non-fiction
psychology
disability
Can You See Me?
Libby Scott - 2019
J. Palacio's Wonder!"This glimpse into the world of a young autistic girl is astonishingly insightful and honest. Tally's struggles to 'fit in' are heart-wrenching, and her victories are glorious." -- Ann M. Martin, Newbery Honor and New York Times bestselling author of Rain ReignThings Tally is dreading about sixth grade:-- Being in classes without her best friends-- New (scratchy) uniforms-- Hiding her autismTally isn't ashamed of being autistic -- even if it complicates life sometimes, it's part of who she is. But this is her first year at Kingswood Academy, and her best friend, Layla, is the only one who knows. And while a lot of other people are uncomfortable around Tally, Layla has never been one of them . . . until now.Something is different about sixth grade, and Tally now feels like she has to act "normal." But as Tally hides her true self, she starts to wonder what "normal" means after all and whether fitting in is really what matters most.Inspired by young coauthor Libby Scott's own experiences with autism, this is an honest and moving middle-school story of friends, family, and finding one's place.
The Out-of-Sync Child Grows Up: Coping with Sensory Processing Disorder in the Adolescent and Young Adult Years
Carol Kranowitz - 2016
The Out-of-Sync Child Grows Up will be the new bible for the vast audience of parents whose children, already diagnosed with Sensory Processing Disorder, are entering the adolescent, tween, and teen years, as well as those who do not yet have a diagnosis and are struggling to meet the challenges of daily life. This book picks up where The Out-of-Sync Child left off, offering practical advice on living with SPD, covering everyday challenges as well as the social and emotional issues that many young people with SPD face. Topics include strategies for coping with the sensory aspects of grooming, social lives and dating, playing sports and music, and other issues, as well as how to find support and help from loved ones, occupational therapy, and other resources. Carol Kranowitz's insights are supplemented by first-person accounts of adolescents and teens with SPD, sharing their experiences and hard-won lessons with readers and adding a powerful personal dimension to the book.
Rescuing Jeffrey: A Memoir
Richard Galli - 2000
Although his father, Richard, saved him, Jeffrey was paralyzed with a devastating spinal cord injury. In this book, Richard Galli offers a compelling, disarmingly honest account of the decisions and experiences confronted by all such individuals who suddenly find themselves wholly dependant on others to survive—and of the realities that must be likewise faced by their families.A lawyer and former journalist, Galli writes with much intelligence and stark emotional intensity of life as it is really lived by quadriplegics and those who care for them. An unforgettable story about tragedy, love, and the choices we make at the brink of survival, Rescuing Jeffrey is "gut-wrenchingly candid," as Publishers Weekly observed, and "likely to arouse controversy and sharply divided reactions . . . Yet this eloquent story of heartbreak and hope is ultimately life affirming." The book will be must-reading for all students of counseling, rehabilitation, and related disciplines.
The Boy Who Felt Too Much: How a renowned neuroscientist and his son changed our view of autism forever
Lorenz Wagner - 2019
. . A tale of love, constancy and groundbreaking research.' --RON SUSKIND, Pulitzer Prize-winning journalist and author of Life, AnimatedHenry Markram is the Elon Musk of neuroscience, the man behind the billion-dollar Blue Brain Project to build a supercomputer model of the brain. He has set the goal of decoding all disturbances of the mind within a generation. This quest is personal for him. The driving force behind his grand ambition has been his son Kai, who suffers from autism. Raising Kai made Henry Markram question all that he thought he knew about neuroscience, and then inspired his groundbreaking research that would upend the conventional wisdom about autism, expressed in his now‑famous theory of Intense World Syndrome.When Kai was first diagnosed, his father consulted studies and experts. He knew as much about the human brain as almost anyone but still felt as helpless as any parent confronted with this condition in his child. What's more, the scientific consensus that autism was a deficit of empathy didn't mesh with Markram's experience of his son. He became convinced that the disorder, which has seen a 657 per cent increase in diagnoses over the past decade, was fundamentally misunderstood. Bringing his world‑class research to bear on the problem, he devised a radical new theory of the disorder: People like Kai don't feel too little; they feel too much. Their senses are too delicate for this world.The theory of Intense World Syndrome could change the way we see autism forever, and it's thanks to Kai, the boy who changed everything.
Finding Ben: A Mother's Journey Through the Maze of Asperger's
Barbara LaSalle - 1999
Yet, lurking beneath this boy genius's amazing, albeit useless, gifts for facts were an extraordinary fear of change and social aloofness. Unknown to his mother, Barbara, until much later, Ben suffered from Asperger's syndrome--the "little grown-up" disorder--a neurobiological disease similar to autism. Frank, honest, and beautifully written, Finding Ben is a remarkably moving account of Barbara LaSalle's struggles to understand--and overcome--the guilt she feels for not fully loving her son.Burdened with the belief that the world would look at her son and somehow see her own failure, Finding Ben is a powerfully honest narrative account of how a mother's love can turn over time into resentment for having to raise a special-needs child.It is through LaSalle's special friendship with Jack, a man full of wisdom despite his debilitating brain aneurysm, that LaSalle is finally able to love her son--and herself--again. With two stories to tell, Finding Ben is both a fascinating look at a mercurial disease and a powerful story of one mother's personal journey from frustration and resentment to love and acceptance.
Autism's False Prophets: Bad Science, Risky Medicine, and the Search for a Cure
Paul A. Offit - 2007
Following this "discovery," a handful of parents declared that a mercury-containing preservative in several vaccines was responsible for the disease. If mercury caused autism, they reasoned, eliminating it from a child's system should treat the disorder. Consequently, a number of untested alternative therapies arose, and, most tragically, in one such treatment, a doctor injected a five-year-old autistic boy with a chemical in an effort to cleanse him of mercury, which stopped his heart instead.Children with autism have been placed on stringent diets, subjected to high-temperature saunas, bathed in magnetic clay, asked to swallow digestive enzymes and activated charcoal, and injected with various combinations of vitamins, minerals, and acids. Instead of helping, these therapies can hurt those who are most vulnerable, and particularly in the case of autism, they undermine childhood vaccination programs that have saved millions of lives. An overwhelming body of scientific evidence clearly shows that childhood vaccines are safe and does not cause autism. Yet widespread fear of vaccines on the part of parents persists.In this book, Paul A. Offit, a national expert on vaccines, challenges the modern-day false prophets who have so egregiously misled the public and exposes the opportunism of the lawyers, journalists, celebrities, and politicians who support them. Offit recounts the history of autism research and the exploitation of this tragic condition by advocates and zealots. He considers the manipulation of science in the popular media and the courtroom, and he explores why society is susceptible to the bad science and risky therapies put forward by many antivaccination activists.
You're Not Crazy And You're Not Alone
Stacey Robbins - 2013
Stacey explores the common areas that women with Hashi's struggle: like perfectionism and self-rejection -- and common past experiences -- like abuse or injury. Stacey inspires women to look at their lives, and Hashimoto's differently, and to use this diagnosis as an opportunity for inner healing, greater happiness, and loving themselves.
Emotional Female
Yumiko Kadota - 2021
A self-confessed workaholic, she regularly put 'knife before life', knowing it was all going to be worth it because it would lead to her longed-for career.But if the punishing hours in surgery weren't hard enough, she also faced challenges as a young female surgeon navigating a male-dominated specialty. She was regularly left to carry out complex procedures without senior surgeons' oversight; she was called all sorts of things, from 'emotional' to 'too confident'; and she was expected to work a relentless on-call roster - sometimes seventy hours a week or more - to prove herself.Eventually it was too much and Yumiko quit.Emotional Female is her account of what it was like to train in the Australian public hospital system, and what made her walk away.Yumiko Kadota is a voice for her generation when it comes to burnout and finding the resilience to rebuild after suffering a physical, emotional and existential breakdown. This is a brave, honest and unflinching work from a major new talent.
Sanity and Grace: A Journey of Suicide, Survival, and Strength
Judy Collins - 2003
Sanity and Grace: A Journey of Suicide, Survival, and Strength
The Book of Moods: How I Turned My Worst Emotions Into My Best Life
Lauren Martin - 2020
She had a good job in New York, an apartment in Brooklyn, a boyfriend, yet every day she wrestled with feelings of inferiority, anxiety and irritability. It wasn't until a chance encounter with a (charming, successful) stranger who revealed that she also felt these things, that Lauren set out to better understand the hold that these moods had on her, how she could change them, and began to blog about the wisdom she uncovered. It quickly exploded into an international online community of women who felt like she did: lost, depressed, moody, and desirous of change.Inspired by her audience to press even deeper, The Book of Moods shares Lauren's journey to infuse her life with a sense of peace and stability. With observations that will resonate and inspire, she dives into the universal triggers every woman faces -- whether it's a comment from your mother, the relentless grind at your job, days when you wish the mirror had a Valencia filter, or all of the above. Blending cutting-edge science, timeless philosophy, witty anecdotes and effective forms of self-care, Martin has written a powerful, intimate, and incredibly relatable chronicle of transformation, proving that you really can turn your worst moods into your best life.
Brave Girl Eating: A Family's Struggle with Anorexia
Harriet Brown - 2010
Brave Girl Eating is an intimate, shocking, compelling, and ultimately uplifting look at the ravages of a mental illness that affects more than 18 million Americans.
The World's Strongest Librarian: A Memoir of Tourette's, Faith, Strength, and the Power of Family
Josh Hanagarne - 2013
Although he wouldn't officially be diagnosed with Tourette Syndrome until his freshman year of high school, Josh was six years old and onstage in a school Thanksgiving play when he first began exhibiting symptoms. By the time he was twenty, the young Mormon had reached his towering adult height of 6'7" when — while serving on a mission for the Church of Latter Day Saints — his Tourette's tics escalated to nightmarish levels.Determined to conquer his affliction, Josh underwent everything from quack remedies to lethargy-inducing drug regimes to Botox injections that paralyzed his vocal cords and left him voiceless for three years. Undeterred, Josh persevered to marry and earn a degree in Library Science. At last, an eccentric, autistic strongman — and former Air Force Tech Sergeant and guard at an Iraqi prison — taught Josh how to "throttle" his tics into submission through strength-training.Today, Josh is a librarian in the main branch of Salt Lake City's public library and founder of a popular blog about books and weight lifting—and the proud father of four-year-old Max, who has already started to show his own symptoms of Tourette's.The World's Strongest Librarian illuminates the mysteries of this little-understood disorder, as well as the very different worlds of strongman training and modern libraries. With humor and candor, this unlikely hero traces his journey to overcome his disability — and navigate his wavering Mormon faith — to find love and create a life worth living.
Empty
Susan Burton - 2020
She just knew she felt her best when she was empty, "like a straw", as she says "something you could blow through."For almost thirty years, Susan Burton has hidden her obsession with food and the secret life of compulsive eating and starving that dominated her adolescence. This is the relentlessly honest, fiercely intelligent story of living with both anorexia and binge-eating disorder, moving past her shame, and learning to tell her secret.When Burton was thirteen, her stable life in suburban Michigan was turned upside down by her parents' abrupt divorce, and she moved to Colorado with her mother and sister. She seized on this move west as an adventure and an opportunity to reinvent herself from middle-school nerd to popular teenage girl. But she hadn't escaped unscathed, and in the fallout from her parents' breakup, an inherited fixation on thinness went from "peculiarity to pathology." She entered into a painful cycle of anorexia and binge eating that formed a subterranean layer to her sunny life. She went from success to success--she went to Yale, scored a dream job at a magazine right out of college, and married her college boyfriend. But in college the compulsive eating got worse--she'd binge, swear it would be the last time, and then, hours later, do it again--and after she graduated she descended into anorexia, her attempt to "quit food."Binge eating is more prevalent than anorexia or bulimia, but there is less research and little storytelling to help us understand it. In tart, soulful prose Susan Burton strikes a blow for the importance of this kind of story; brings to life an indelible cast of characters; and tells an exhilarating story of longing, compulsion and hard-earned self-revelation.
Easy Crafts for the Insane: A Mostly Funny Memoir of Mental Illness and Making Things
Kelly Williams Brown - 2021
Her marriage collapsed, she broke three limbs in separate and unrelated incidents, her father was diagnosed with cancer, and she fell into a deep depression that ended in what could delicately be referred to as a “rest cure” at an inpatient facility. Before that, she had several very good years: she wrote a bestselling book, spoke at NASA, had a beautiful wedding, and inspired hundreds of thousands of readers to live as grown-ups in an often-screwed-up world, though these accomplishments mostly just made her feel fraudulent. One of the few things that kept her moving forward was, improbably, crafting. Not Martha Stewart–perfect crafting, either—what could be called “simple,” “accessible” or, perhaps, “rustic” creations were the joy and accomplishments she found in her worst days. To craft is to set things right in the littlest of ways; no matter how disconnected you feel, you can still fold a tiny paper star, and that’s not nothing. In Easy Crafts for the Insane, crafting tutorials serve as the backdrop of a life dissolved, then glued back together. Surprising, humane, and utterly unforgettable, this is a poignant and hysterical look at the unexpected, messy coping mechanisms we use to find ourselves again.
The Boy Who Loved Tornadoes
Randi Davenport - 2010
And at fifteen, her son Chase entered an unremitting psychosis—pursued by terrifying images, unable to recognize his own mother, unwilling to eat or even talk—becoming ever more tortured and unreachable.Beautifully written and profoundly moving, this is the heartbreaking yet triumphant story of how Randi Davenport navigated the byzantine and broken health care system and managed not just to save her son from the brink of suicide but to bring him back to her again, and make her family whole.In The Boy Who Loved Tornadoes, she gives voice to the experiences of countless families whose struggles with mental illness are likewise invisible to the larger world.