Book picks similar to
When I Bleed: Poems about Endometriosis by Maggie Bowyer
poetry
disability
4_f-you-endo
tbr
How Can I Talk If My Lips Don't Move: Inside My Autistic Mind
Tito Rajarshi Mukhopadhyay - 2008
When he was three years old, Tito was diagnosed as severely autistic, but his remarkable mother, Soma, determined that he would overcome the problem by teaching him to read and write. The result was that between the ages of eight and eleven he wrote stories and poems of exquisite beauty, which Dr. Oliver Sacks called amazing and shocking. Their eloquence gave lie to all our assumptions about autism.Here Tito goes even further and writes of how the autistic mind works, how it views the outside world and the normal people he deals with daily, how he tells his stories to the mirror and hears stories back, how sounds become colors, how beauty fills his mind and heart. With this work, Tito whom Portia Iversen, co-founder of Cure Autism Now, has described as a window into autism such as the world has never seen gives the world a beacon of hope. For if he can do it, why can't others?Brave, bold, and deeply felt, this book shows that much we might have believed about autism can be wrong. Boston Globe
I'm Telling the Truth, but I'm Lying: Essays
Bassey Ikpi - 2019
Four years later, she and her mother joined her father in Stillwater, Oklahoma —a move that would be anxiety ridden for any child, but especially for Bassey. Her early years in America would come to be defined by tension: an assimilation further complicated by bipolar II and anxiety that would go undiagnosed for decades.By the time she was in her early twenties, Bassey was a spoken word artist and traveling with HBO's Russell Simmons Def Poetry Jam, channeling her experiences into art. But something wasn’t right—beneath the façade of the confident performer, Bassey’s mental health was in a precipitous decline, culminating in a breakdown that resulted in hospitalization and a diagnosis of Bipolar II.Determined to learn from her experiences—and share them with others—Bassey became a mental health advocate and has spent the fourteen years since her diagnosis examining the ways mental health is inextricably intertwined with every facet of ourselves and our lives. Viscerally raw and honest, the result is an exploration of the stories we tell ourselves to make sense of who we are—and the ways, as honest as we try to be, each of these stories can also be a lie.
The Cancer Whisperer: How to let cancer heal your life
Sophie Sabbage - 2015
Cancer does not have me.'
Sophie Sabbage was diagnosed with late stage 'incurable' lung cancer in October 2014. She was 48 years old, happily married with a 4-year-old daughter. Since that day - when doctors told Sophie that her prognosis was poor - she has been on a remarkable journey of healing and transformation that has reshaped her vocation as well as changed her life for the better. The Cancer Whisperer chronicles Sophie's extraordinary relationship with cancer and the methods that she has used for dealing with fear, anger, denial and grief. The essence of 'cancer whispering' was born of Sophie's determination to take cancer off the battlefield and into the classroom. Instead of going to war with it, Sophie has chosen to listen to it, learn from it and choose her own response to it.Sophie offers a radically different way of relating to this disease both mentally and practically: she shares the research she has done, the treatments she has chosen, the diet she follows and the resources that she feels have made the biggest differences in the hope that they will help others cut through the mass of information out there.Sophie says: 'This book is for the cancer patient who wants to remain a dignified, empowered human being even when your doctors and diagnosis are scaring the hell out of you. It is also for the cancer patient who has a hunch that there is something for them to learn, gain or even be transformed by - if they just knew how to relate to this disease differently to the way most of society does. It is for the cancer patient, perhaps any patient.'
Hundred Percent Chance
Robert K. Brown - 2020
Perfect for fans of When Breath Becomes Air.In 1990, Robert K. Brown was an ordinary college student studying abroad in England when a series of unexpected and extraordinary events would change the trajectory of his life forever. Choosing to ignore ominous early symptoms, he was still troubled enough to write in his journal "just for the record ... I am frightened because things are happening to me that I can’t explain away."What follows is a race against time to return home to Seattle for months of chemotherapy, countless complications, and a search for as much normalcy as possible when you're forced to face your mortality at twenty."While memoirs of surviving disease are plenty, Hundred Percent Chance stands apart through its genuine humor and unflinching portrayal of both the physical and psychological struggles that accompany a diagnosis of disease. Brown avoids inspirational platitudes, instead demonstrating the need for perspective and perseverance in the face of illness."Every person Brown introduces, whether their role is significant or small, will leave a memorable impression on readers. This memoir's focus on the tiny moments that ultimately shape and define a life, are particularly poignant and engrossing" (The BookLife Prize).10% of all proceeds will benefit The Leukemia & Lymphoma Society.
The Invisible Kingdom: Reimagining Chronic Illness
Meghan O'Rourke - 2022
Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, O’Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color. Blending lyricism and erudition, candor and empathy, O’Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.
My Age of Anxiety: Fear, Hope, Dread, and the Search for Peace of Mind
Scott Stossel - 2014
Today, it is the most common form of officially classified mental illness. Scott Stossel gracefully guides us across the terrain of an affliction that is pervasive yet too often misunderstood. Drawing on his own long-standing battle with anxiety, Stossel presents an astonishing history, at once intimate and authoritative, of the efforts to understand the condition from medical, cultural, philosophical, and experiential perspectives. He ranges from the earliest medical reports of Galen and Hippocrates, through later observations by Robert Burton and Søren Kierkegaard, to the investigations by great nineteenth-century scientists, such as Charles Darwin, William James, and Sigmund Freud, as they began to explore its sources and causes, to the latest research by neuroscientists and geneticists. Stossel reports on famous individuals who struggled with anxiety, as well as on the afflicted generations of his own family. His portrait of anxiety reveals not only the emotion’s myriad manifestations and the anguish anxiety produces but also the countless psychotherapies, medications, and other (often outlandish) treatments that have been developed to counteract it. Stossel vividly depicts anxiety’s human toll—its crippling impact, its devastating power to paralyze—while at the same time exploring how those who suffer from it find ways to manage and control it. My Age of Anxiety is learned and empathetic, humorous and inspirational, offering the reader great insight into the biological, cultural, and environmental factors that contribute to the affliction.
Life, Animated: A Story of Sidekicks, Heroes, and Autism
Ron Suskind - 2014
It is the saga of Owen Suskind, who happens to be the son of one of America's most noted writers, the Pulitzer Prize-winning journalist and author Ron Suskind. He's also autistic. The twisting, 20-year journey of this boy and his family will change that way you see autism, old Disney movies, and the power of imagination to heal a shattered, upside-down world.
The Boy Between: A Mother and Son’s Journey From a World Gone Grey
Josiah Hartley - 2020
But then her son came to her with a real one…Josiah was nineteen with the world at his feet when things changed. Without warning, the new university student’s mental health deteriorated to the point that he planned his own death. His mother, bestselling author Amanda Prowse, found herself grappling for ways to help him, with no clear sense of where that could be found. This is the book they wish had been there for them during those dark times.Josiah’s situation is not unusual: the statistics on student mental health are terrifying. And he was not the only one suffering; his family was also hijacked by his illness, watching him struggle and fearing the day he might succeed in taking his life.In this book, Josiah and Amanda hope to give a voice to those who suffer, and to show them that help can be found. It is Josiah’s raw, at times bleak, sometimes humorous, but always honest account of what it is like to live with depression. It is Amanda’s heart-rending account of her pain at watching him suffer, speaking from the heart about a mother’s love for her child.For anyone with depression and anyone who loves someone with depression, Amanda and Josiah have a clear message—you are not alone, and there is hope.
Scars Like Wings
Erin Stewart - 2019
Now I'm only one. The Burned Girl.Ava Lee has lost everything there is to lose: Her parents. Her best friend. Her home. Even her face. She doesn't need a mirror to know what she looks like--she can see her reflection in the eyes of everyone around her. A year after the fire that destroyed her world, her aunt and uncle have decided she should go back to high school. Be "normal" again. Whatever that is. Ava knows better. There is no normal for someone like her. And forget making friends--no one wants to be seen with the Burned Girl, now or ever. But when Ava meets a fellow survivor named Piper, she begins to feel like maybe she doesn't have to face the nightmare alone. Sarcastic and blunt, Piper isn't afraid to push Ava out of her comfort zone. Piper introduces Ava to Asad, a boy who loves theater just as much as she does, and slowly, Ava tries to create a life again. Yet Piper is fighting her own battle, and soon Ava must decide if she's going to fade back into her scars . . . or let the people by her side help her fly."A heartfelt and unflinching look at the reality of being a burn survivor and at the scars we all carry. This book is for everyone, burned or not, who has ever searched for a light in the darkness." --Stephanie Nielson, New York Times bestselling author of Heaven Is Here and a burn survivor
Know My Name
Chanel Miller - 2019
Brock Turner had been sentenced to just six months in county jail after he was found sexually assaulting her on Stanford’s campus. Her victim impact statement was posted on BuzzFeed, where it instantly went viral–viewed by eleven million people within four days, it was translated globally and read on the floor of Congress; it inspired changes in California law and the recall of the judge in the case. Thousands wrote to say that she had given them the courage to share their own experiences of assault for the first time.Now she reclaims her identity to tell her story of trauma, transcendence, and the power of words. It was the perfect case, in many ways–there were eyewitnesses, Turner ran away, physical evidence was immediately secured. But her struggles with isolation and shame during the aftermath and the trial reveal the oppression victims face in even the best-case scenarios. Her story illuminates a culture biased to protect perpetrators, indicts a criminal justice system designed to fail the most vulnerable, and, ultimately, shines with the courage required to move through suffering and live a full and beautiful life.Know My Name will forever transform the way we think about sexual assault, challenging our beliefs about what is acceptable and speaking truth to the tumultuous reality of healing. It also introduces readers to an extraordinary writer, one whose words have already changed our world. Entwining pain, resilience, and humor, this memoir will stand as a modern classic.
This Close to Happy: A Reckoning with Depression
Daphne Merkin - 2017
She recounts the travails of growing up in a large, affluent family where there was a paucity of love and of basics such as food and clothing despite the presence of a chauffeur and a cook. She goes on to recount her early hospitalization for depression in poignant detail, as well as her complex relationship with her mercurial, withholding mother.Along the way Merkin also discusses her early, redemptive love of reading and gradual emergence as a writer. She eventually marries, has a child, and suffers severe postpartum depression, for which she is again hospitalized. Merkin also discusses her visits to various therapists and psychopharmocologists, which enables her to probe the causes of depression and its various treatments. The book ends in the present, where the writer has learned how to navigate her depression, if not “cure” it, after a third hospitalization in the wake of her mother’s death.
[Don't] Call Me Crazy
Kelly JensenStephanie Kuehn - 2018
Because there’s no single definition of crazy, there’s no single experience that embodies it, and the word itself means different things—wild? extreme? disturbed? passionate?—to different people. (Don’t) Call Me Crazy is a conversation starter and guide to better understanding how our mental health affects us every day. Thirty-three writers, athletes, and artists offer essays, lists, comics, and illustrations that explore their personal experiences with mental illness, how we do and do not talk about mental health, help for better understanding how every person’s brain is wired differently, and what, exactly, might make someone crazy. If you’ve ever struggled with your mental health, or know someone who has, come on in, turn the pages, and let’s get talking.
Diagnosis: Solving the Most Baffling Medical Mysteries
Lisa Sanders - 2019
And yet she is often confounded by the cases she describes in her column: unexpected collections of symptoms that she and other physicians struggle to diagnose.A twenty-eight-year-old man, vacationing in the Bahamas for his birthday, tries some barracuda for dinner. Hours later, he collapses on the dance floor with crippling stomach pains. A middle-aged woman returns to her doctor, after visiting two days earlier with a mild rash on the back of her hands. Now the rash has turned purple and has spread across her entire body in whiplike streaks. A young elephant trainer in a traveling circus, once head-butted by a rogue zebra, is suddenly beset with splitting headaches, as if someone were "slamming a door inside his head."In each of these cases, the path to diagnosis--and treatment--is winding, sometimes frustratingly unclear. Dr. Sanders shows how making the right diagnosis requires expertise, painstaking procedure, and sometimes a little luck. Intricate, gripping, and full of twists and turns, Diagnosis puts readers in the doctor's place. It lets them see what doctors see, feel the uncertainty they feel--and experience the thrill when the puzzle is finally solved.
Tender Points
Amy Berkowitz - 2015
Named after the diagnostic criteria for fibromyalgia, the book-length lyric essay explores sexual violence, gendered illness, chronic pain, and patriarchy through the lenses of lived experience and pop culture (Twin Peaks, Teenage Mutant Ninja Turtles, noise music, etc.). Teaching Guide (or Book Club Guide) here: bit.ly/2aqJV2X
All the Young Men
Ruth Coker Burks - 2020
She witnesses nurses drawing straws to see who would tend to the patient inside, all of them reluctant to enter the room. Out of impulse, Ruth herself enters the quarantined space and immediately begins to care for the young man who cries for his mother in the last moments of his life. Before she can even process what she's done, word spreads in the community that Ruth is the only person willing to help these young men afflicted by AIDS, and is called upon to nurse them. As she forges deep friendships with the men she helps, she works tirelessly to find them housing and jobs, even searching for funeral homes willing to take their bodies - often in the middle of the night. She cooks meals for tens of people out of discarded food found in the dumpsters behind supermarkets, stores rare medications for her most urgent patients, teaches sex-ed to drag queens after hours at secret bars, and becomes a beacon of hope to an otherwise spurned group of ailing gay men on the fringes of a deeply conservative state.Throughout the years, Ruth defies local pastors and nurses to help the men she cares for: Paul and Billy, Angel, Chip, Todd and Luke. Emboldened by the weight of their collective pain, she fervently advocates for their safety and visibility, ultimately advising Governor Bill Clinton on the national HIV-AIDS crisis.This deeply moving and elegiac memoir honors the extraordinary life of Ruth Coker Burks and the beloved men who fought valiantly for their lives with AIDS during a most hostile and misinformed time in America.