Book picks similar to
Inside the Dementia Epidemic: A Daughter's Memoir by Martha Stettinius
non-fiction
memoir
dementia
nonfiction
"It's Cancer"
Jay Otterbacher - 2012
When both of you are diagnosed within weeks of each other the uncertainty is relentless. Jay Otterbacher's memoir details one unbelievable year he could never have imagined. Anyone with a friend, colleague or loved one facing cancer can better understand what they are going through from this amazing story of thirty-two weeks in 2006. "It's Cancer" provides an unfiltered view behind the public facade into the home, relationships and treatment of one ordinary couple facing an inconceivable battle against two cancers at the same time. The implausible circumstances created the story. This narrative captures it in an open and friendly manner that allows you to be there with Karen and Jay as they use humor and strength to navigate through the fear, stress and uncertainty that all cancer patients know too well. Whether it was family, friends, dolphins or doctors something always appeared just the way it had to at just the time they needed it during this incredible year. In amazing detail, Jay shares the impact that each of these encounters had on their fight with the disease and their perspectives on life. If you have been told "It's Cancer," this book can be a source of hope and inspiration while you learn from the choices (both good and bad) that Karen and Jay made in their treatment and in communicating with the people who cared about them. If cancer has touched someone in your life the details captured in this book will give you insight into the week to week grind of the fight to regain control of their lives. Excerpt: When he finished walking us through the plan I asked about mastectomy. He said it was not even something he was considering in Karen's case. He explained that mastectomy was invasive surgery with a long recovery time and there was no evidence that it would improve her survival chances. I thought about debating with him since I had about twelve hours of exhaustive internet self-study on breast cancer but since we loved his answer I let him ride on this one. By the time we had walked back across the causeway through the hospital and to our car, Karen had her jaw set. She was going to beat this and she was going to do it in a big way. She declared that she wanted an elliptical machine so she could work out at home and stay in shape during her recovery. I responded that we would get one. Karen let me know that that was not good enough; she wanted one now. We drove from the hospital to an exercise equipment store. They had six or eight different models in the store, three of which were on sale. Karen pointed to one of the top models and said "that one." At that point the salesman in the store started his pitch on a lesser model that was on sale. He apparently did not understand that the answer to everything that day was to be yes. I gave him a shut up look, a credit card and asked how much to have it delivered that day. By the end of the day it was installed in our exercise room. It would be nine months before either of us would use it.
Answering 911: Life in the Hot Seat
Caroline Burau - 2006
You talk with him until the cops arrive, making sure there are no weapons around and learning that his favorite subject in school is lunch. Five minutes later, you have to deal with someone complaining about his neighbor’s clarinet practice. What is it like to be on the receiving end of desperate calls for help . . . every day? Caroline Burau, a former newspaper reporter and nursing student who couldn’t stand the sight of blood, takes a job as an emergency dispatcher because she likes helping people. But on-the-job training at the comm center proves to be more than she bargained for. As she adjusts to a daily life of catastrophe and comedy, domestics and drunks, cops and robbers, junk food and sarcasm, lost cats and suicides, she discovers that crisis can become routine, that coworkers can be mean—that she must continue to care and, at times, learn how to let go.
We Danced: Our Story of Love and Dementia
Scott M. Rose - 2021
It opens with snapshots of her troubled childhood and early adult life in two difficult marriages. It quickly transitions to our first meeting, friendship, and relationship - not without their own complications. Through those trials, she showed tremendous strength and heart. We eventually married and lived a love story that others marveled at for years. We travelled, went to concerts, built a home, and remained completely devoted. While still in her early sixties, she lost a piece of herself. Words became harder to find. Steps to perform the simplest tasks became impossible to follow. We knew something was wrong but had no idea the severity of her condition. Our world turned upside down.The latter half of the book chronicles in exacting detail her diagnosis and life with Frontotemporal Degeneration, a dementia known as FTD. I cared for her for the three and a half years of this disease. Her mental state deteriorated rapidly. I changed to a more flexible job to stay with her more during the day as she lost even the most basic functions of eating alone, toileting, or using a phone. We still created tender moments and danced but she was losing a tremendous amount of weight and required greater and greater care.Financials not allowing me to quit work, I succumbed to the recommendations of multiple professionals and made the painful decision to place her in memory care. I visited her every day, two to three times per day, and we made the best of a horrible situation. We still shared many tender moments during this last year, including the moment I held her hand as she passed. The story is told in a vulnerable and unfiltered manner. It collects writings from both husband and wife through journals, letters, and social media posts integrated into the main narrative. It captures our real-life, undying love story through this incurable disease
Craigslist Confessional: A Collection of Secrets from Anonymous Strangers
Helena Dea Bala - 2020
Dea Bala never expected the outpouring of responses that would follow. She was working as a lobbyist when the idea was born: she'd chat up respondents on the phone or at a coffee shop and let them tell her about their lives. Dea Bala soon had to quit her day job to make time for all of the Craigslist sessions. She took notes during each conversation and journaled about the emotional experience to expertly inhabit the voice of each subject. What emerges is a collection of narratives, all in first person, of anonymous people revealing their deepest, darkest secrets; or at least the most poignant moments of their lives. Infidelity, addiction, loss, corruption, the search for unconditional love—reading these carefully, empathetically crafted monologues reveals how suffering is something we all have in common. Each tragedy or triumph is unique, but the intensity of feeling is not.
Rebooting My Brain: How a Freak Aneurysm Reframed My Life
Maria Ross - 2012
With refreshing candor, Maria Ross shares how the relentless pace of her life came to a screeching halt when an undetected brain aneurysm ruptured and nearly killed her. Along her stubborn road back to health, her resulting cognitive and emotional challenges forced her―sometimes kicking and screaming―to reframe her life, her work and her identity. With humor and heart, Ross shares what it was like being blind for six weeks, how a TV crime drama and a brain-games website played key roles in her recovery, and why a handmade necklace helped her regain her sense of self. Ross reveals the keys to her extraordinary comeback and how her perspective is forever changed, mostly for the better. Funny, touching and real, this book not only shares an inspirational story of transformation but enlightens readers about the surprising effects of brain injury... and explores the question, "How do our brains define who we are?"
The Center Cannot Hold: My Journey Through Madness
Elyn R. Saks - 2007
She has managed to achieve this in spite of being diagnosed as schizophrenic and given a "grave" prognosis—and suffering the effects of her illness throughout her life.Saks was only eight, and living an otherwise idyllic childhood in sunny 1960s Miami, when her first symptoms appeared in the form of obsessions and night terrors. But it was not until she reached Oxford University as a Marshall Scholar that her first full-blown episode, complete with voices in her head and terrifying suicidal fantasies, forced her into a psychiatric hospital.Saks would later attend Yale Law School where one night, during her first term, she had a breakdown that left her singing on the roof of the law school library at midnight. She was taken to the emergency room, force-fed antipsychotic medication, and tied hand-and-foot to the cold metal of a hospital bed. She spent the next five months in a psychiatric ward.So began Saks's long war with her own internal demons and the equally powerful forces of stigma. Today she is a chaired professor of law who researches and writes about the rights of the mentally ill. She is married to a wonderful man.In The Center Cannot Hold, Elyn Saks discusses frankly and movingly the paranoia, the inability to tell imaginary fears from real ones, and the voices in her head insisting she do terrible things, as well as the many obstacles she overcame to become the woman she is today. It is destined to become a classic in the genre.
The End of Alzheimer's: The First Program to Prevent and Reverse Cognitive Decline
Dale E. Bredesen - 2017
Revealing that AD is not one condition, as it is currently treated, but three, The End of Alzheimer's outlines 36 metabolic factors (micronutrients, hormone levels, sleep) that can trigger "downsizing" in the brain. The protocol shows us how to rebalance these factors using lifestyle modifications like taking B12, eliminating gluten, or improving oral hygiene.The results are impressive. Of the first ten patients on the protocol, nine displayed significant improvement with 3-6 months; since then the protocol has yielded similar results with hundreds more. Now, The End of Alzheimer's brings new hope to a broad audience of patients, caregivers, physicians, and treatment centers with a fascinating look inside the science and a complete step-by-step plan that fundamentally changes how we treat and even think about AD.
Divided Minds: Twin Sisters and Their Journey Through Schizophrenia
Pamela Spiro Wagner - 2005
But as the twins approached adolescence, Pamela began to succumb to schizophrenia, hearing disembodied voices and eventually suffering many breakdowns and hospitalizations.Divided Minds is a dual memoir of identical twins, one of whom faces a life sentence of schizophrenia, and the other who becomes a psychiatrist, after entering the spotlight that had for so long been focused on her sister. Told in the alternating voices of the sisters, Divided Minds is a heartbreaking account of the far reaches of madness, as well as the depths of ambivalence and love between twins. It is a true and unusually frank story of identical twins with very different identities and wildly different experiences of the world around them.
A Marriage in Dog Years
Nancy Balbirer - 2018
She and her husband had gotten Ira as a puppy—a wedding gift to each other, and their first foray into “parenthood.” Now, her dog is terminal, her marriage is on life support, and Nancy is desperate to save them both (whether they want it or not). In a single year, she loses her two best friends, but Nancy’s life is about to take yet another unexpected turn.With humor and heart, Nancy Balbirer shares her story of relationships, loss, and canine friendship in this illuminating memoir about the lengths people will go to keep love alive…and the power of finally letting go.
Lost Edens: A True Story
Jamie Patterson - 2011
The delicate negotiation that follows is a carefully constructed reality between what Jamie is willing to acknowledge and what she is not.Jamie Patterson is a writer, teacher, runner, and dog lover. A former spokesperson for the American Red Cross and the Girl Scouts, Jamie is now an academic editor.
The Geography of Memory: A Pilgrimage Through Alzheimer's
Jeanne Murray Walker - 2013
This powerful story explores parental love, profound grief, and the unexpected consolation of memory. While Walker does not flinch from the horrors of "the ugly twins, aging and death," her eye for the apt image provides a window into unexpected joy and humor even during the darkest days.This is a multi-layered narrative of generations, faith, and friendship. As Walker leans in to the task of caring for her mother, their relationship unexpectedly deepens and becomes life-giving. Her mother's memory, which more and more dwells in the distant past, illuminates Walker's own childhood. She rediscovers and begins to understand her own past, as well as to enter more fully into her mother's final years.The Geography of Memory is not only a personal journey made public in the most engaging, funny, and revealing way possible, here is a story of redemption for anyone who is caring for or expecting to care for ill and aging parents-and for all the rest of us as well.
Everything Is Fine
Vince Granata - 2021
Perfect for fans of An Unquiet Mind and The Bright Hour. Vince Granata remembers standing in front of his suburban home in Connecticut the day his mother and father returned from the hospital with his three new siblings in tow. He had just finished scrawling their names in red chalk on the driveway: Christopher, Timothy, and Elizabeth. Twenty-three years later, Vince was a thousand miles away when he received the news that would change his life—Tim, propelled by unchecked schizophrenia, had killed their mother in their childhood home. Devastated by the grief of losing his mother, Vince is also consumed by an act so incomprehensible that it overshadows every happy memory of life growing up in his seemingly idyllic middle-class family. “In candid, smoothly unspooling prose, Granata reconstructs life and memory from grief, writing a moving testament to the therapy of art, the power of record, and his immutable love for his family” (Booklist).
Nowhere Girl: A Memoir of a Fugitive Childhood
Cheryl Diamond - 2021
The family are Sikhs. Today. In a few years they will be Jewish. Cheryl’s name is Harbhajan. Today. But in a few years she will be Crystal. By the time she turns nine, Cheryl has had at least six assumed identities. She has lived on five continents, fleeing the specter of Interpol and law enforcement. Her father, a master financial criminal, or so she believes, uproots the family at the slightest sign of suspicion. Despite the strange circumstances, Diamond’s life as a young child is mostly joyful and exciting, her family of five a tiny, happy circle unto themselves. Even as she learn how to forge identity papers and fix a car with chicken wire, she somehow becomes a near-Olympic-level athlete and then an international teenage model. She even publishes a book about it. As she grows older, though, things get darker. Her identity is burned again and again, leaving her with no past, no proof even that she exists, and her family—the only people she has in the world—begins to unravel. Love and trust turn to fear and violence. Secrets are revealed, and she is betrayed by those on whom she relies most. Slowly, Diamond begins to realize that her life itself might be a big con. Surviving would require her to escape, and we root for this determined woman as she unlearns all the rules of her family. Cinematic and witty, Nowhere Girl is an impossible-to-believe true story of self-discovery and triumph.
If You Love Me: A Mother's Journey Through Her Daughter's Opioid Addiction
Maureen Cavanagh - 2018
When Maureen and her ex-husband Mike see their daughter Katie’s needle track marks for the first time, it is a complete shock. But, slowly, the drug use explains everything—Katie’s constant exhaustion, erratic moods, and all those spoons that have gone missing from the house. Once Mike and Maureen get Katie into detox, Maureen goes to sleep that night hoping that in 48 hours she’ll have her daughter back. It’s not that simple.Like the millions of parents and relatives all over the country—some of whom she has helped through her nonprofit organization—Maureen learns that recovery is neither straightforward nor brief. She fights to save Katie’s life, breaking down doors on the seedy side of town with Mike, kidnapping Katie outside a convenience store, and battling the taboo around substance use disorder in her picturesque New England town. Maureen is launched into the shadowy world of overcrowded, for-profit rehabilitation centers that often prey on worried parents. As Katie runs away from one program after another, never outrunning her pain, Maureen realizes that even while she becomes an expert on getting countless men and women into detox and treatment centers, she remains powerless to save her own daughter. Maureen's unforgettable story brings the opioid crisis out of the shadows and into the house next door.
Down Came the Rain: My Journey Through Postpartum Depression
Brooke Shields - 2005
When Brooke Shields welcomed her newborn daughter, Rowan Francis, into the world, something unexpected followed--a crippling depression. Now, for the first time ever, in Down Came the Rain, Brooke talks about the trials, tribulations, and finally the triumphs that occurred before, during, and after the birth of her daughter.