But for twin girls with the disease, what began as a family’s stubborn determination grew into a miracle.            The tragedy of CF has been touchingly recounted in such books as Frank Deford’s Alex: The Life of a Child, but The Power of Two is the first book to portray the symbiotic relationship between twins who share this life-threatening disease through adulthood. Isabel Stenzel Byrnes and Anabel Stenzel tell of their lifelong struggle to pursue normal lives with cystic fibrosis while grappling with the realization that they will die young. Their story reflects the physical and emotional challenges of a particularly aggressive form of CF and tells how the twins’ bicultural heritage—Japanese and German—influenced the way they coped with these challenges.            Born in 1972, seventeen years before scientists discovered the genetic mutation that causes CF, Isabel and Anabel endured the daily regimen of chest percussion, frequent doctor visits, and lengthy hospitalizations. But they tell how, in the face of innumerable setbacks, their deep-seated dependence on each other allowed them to survive long enough to reap the benefits of the miraculous lung transplants that marked a crossroads in their lives: “We have an old life—one of growing up with chronic illness—and a new life—one of opportunities and gifts we have never imagined before.” In this memoir, they pay tribute to the people who shaped their experience.            The Power of Two is an honest and gripping portrayal of day-to-day health care, the impact of chronic illness on marriage and family, and the importance of a support network to continuing survival. It conveys an important message to both popular and professional readers as it addresses key psychosocial issues in chronic illness throughout the sufferer’s lifespan and illuminates the human side of advances in biotechnology.            Even as gene therapy and stem cell research increase the chances for eradicating CF, this stirring account portrays its effects on one family that refused to give up. These two remarkable sisters have much to teach about the power of perseverance—and about the ultimate power of hope.

    

    Diligently researching how to restore his quality of life, she discovered Vet-Stem, a service that provides cutting-edge regeneration therapy for pets, using stem cells harvested from animals' own tissue. Just hours after receiving IV and intra-joint injections, Sam began aging backward--which left Julia wondering why this simple, effective treatment was not available for humans.            Julia suffered from chronic inflammatory bowel disease, and after witnessing Sam's astonishing recovery, she set out on a curious quest: to be treated like a dog by a doctor as competent as her vet! After a four-year wait, Julia became the first American to be successfully cured of a perirectal fistula with stem cells derived from her own fat. With this amazing true story of how a pack of shelter dogs she rescued from death row came to save her life, Julia hopes to inspire and inform readers about exciting healthcare options available to them and their cherished animal companions.

    At the age of 29, Diana Hill fell under a London train. In 7 seconds the tall, glamorous businesswoman went from busy woman of the world with everything to live for to double-leg amputee, her life in ruins. Then it got worse. A few days after her accident, as she lay in hospital, traumatised and heavily sedated, she learnt via a newspaper article that the railway’s Transport Police were to interview “The Fall Girl”, as the Press had labelled her, with a view to prosecution. She had boarded a moving train, they said, and trespassed onto their railway line. Her fight for justice took 5 years and was, she declares with no hesitation, a more harrowing experience than having both of her legs ‘stolen’ from her. As any young, single woman would be, Diana was shocked to the core by the sudden, catastrophic change in her body image. What man would ever love her now? The issues surrounding sexuality and disability are explored here with stark honesty as she recalls her complicated love life, the High Court dramas, and the rawness of her pain amidst a turmoil of emotion, all told with tremendous humour, charm and heart. For Diana loves to tell stories. Especially true ones. A brutally honest, heartwarming memoir that shocks and delights in equal measure – when you're not crying for her you're laughing with her: "A computer is a thing that can be disabled, not a person." Diana Morgan-Hill

    Becca surprised everyone with a rare genetic disorder called Noonan's syndrome. As Becca struggled to survive her family plunged into poverty. Their remarkable journey out of poverty is a story of it's own, but within the pages lie secrets much more important we all should know.Tiny Titan by Ann Yurcek launches a new kind of Mother’s Day story for all the countless mothers in America who dedicate their lives to exceptional children with special medical and mental health care needs. The story and the children are real. BOOK ONE - BECCA'S STORYIn 1989, the Yurceks sixth child, Becca was born with a rare genetic disorder, and while she struggled to survive, her family tumbled into poverty. This is the true and inspirational story of their journey out of poverty and the many miracles they received along the way. BOOK 2 - GIVING BACK In the spirit of giving back, they adopted and reunited five siblings separated in foster care. And for their new children they fought for resources in mental health and child welfare with the same tenacity they had fought for Becca in the medical world. Others' said their journey was impossible, but they proved them wrong.Winner Gold Mom's Choice - Best Adult Non-Fiction5 Star Dove AwardBooks & Authors - Best InspirationalTINY TITAN SAMPLE CHAPTERBy Ann Yurcek -9- Christmas I sunk into despair. The holiday was fast approaching and Christmas was the last thing on our minds with Becca critically ill in the PICU and everyone else sick too. There was no money for gifts, and there was no time to buy or make anything. I was sick, tired and depressed over the circumstances we found ourselves in. If the phone rang, I was afraid to answer it because it might carry the news that Becca was worsening or no longer here. The phone was a constant reminder of trouble. It rang with bill collectors waiting for money. It rang when medical personnel had more dreaded news or another crisis for Becca. My emotions rose and fell like tidal waves, up, up, up and down, down, down. I tried not to think; not thinking was how I coped. It was like the stairs I ran at the hospital, up and down, and then I’d stop and sit, empty and mindless. I could not think about my children going without gifts at Christmas, but our lives were impossibly out of control. We had fallen into a dark hole due to no fault of my innocent children. At any moment they were going to lose their new baby sister. They were caught in the tidal wave of catastrophic illness when they needed a Santa most to give them hope. How would I explain to my children that Santa forgot them?I was used to planning ahead and beginning in July bought two presents each month to cover birthdays and Christmas. Over the years my frugal plan had worked flawlessly. I squirreled away the hottest toys for Christmas gifts with early season purchases. While other families were school shopping I was making wishes come true. It was a challenge to make my kids birthdays and Christmas memorable. I love the holidays and I began to bargain shop for Marissa’s September birthday gift. I budgeted a little each month until Christmas, finding sale and clearance treasures, completing my shopping race under budget. In November we celebrated Jim, Nathan and Ian’s birthdays followed in December by Matt’s birthday, and then Kristy’s birthday in early January. The gifts I bought with Jim’s carpet points guaranteed the boys November birthday gifts. Matt at age three was easy; all I needed was something big. Big for my little kids were exciting and ten dollars went a long way. Other than that I had nothing.

    Now the true inside story of the sports agent business is exposed as never before.During baseball's evolution from national pastime to a $3.6 billion business, the game's agents have played a pivotal role in driving and (some might say) ruining the sport. In a world of unchecked egos and minimal regulation, client-stealing and financial inducements have become commonplace, leading many to label the field a cesspool, devoid of loyalties and filled with predators.Matt Sosnick entered these shark-infested waters in 1997, leaving a job as CEO of a San Francisco high-tech company to represent ballplayers--and hoping to do so while keeping his romantic love of baseball and his integrity intact. License to Deal follows Sosnick as he deals with his up-and-coming clients (his most famous is the 2003 rookie-of-the-year pitching sensation Dontrelle Willis). We become privy to never-before-disclosed stories behind the rise of baseball's most powerful agent, Scott Boras. And we get a novel perspective on the art of the deal and the economics of baseball.By one of baseball's most respected sportswriters, who is now ESPN.com's lead Insider baseball reporter, License to Deal, like Michael Lewis's bestselling Moneyball, will provide fuel for many a heated baseball discussion.

    He won two stages at the Tour de France and an Olympic medal. But after years of feeling off, he was diagnosed with early-onset Parkinson’s. The body that had been his ally was now something else: a prison. The Happiness of Pursuit is the story of how Davis sought to overcome his Parkinson’s by reaching back to what had made him so successful on the bike and adjusting his perspective on what counted as a win. The news of his diagnosis began a dark period for this vibrant athlete, but there was also light. His son Taylor’s own bike-racing career was taking off. Determined to beat the Body Snatcher, Davis underwent a procedure called deep brain stimulation. Although not cured, his symptoms abated enough for him to see Taylor compete in the Beijing Olympics. Davis Phinney had won another stage. But the joy, he discovered, was in the pursuit. With humor and grace, Phinney weaves the narrative of his battle with Parkinson’s with tales from his cycling career and from his son’s emerging career. The Happiness of Pursuit is a remarkable story of fathers and sons and bikes, of victories large and small.

    MacLean tells the story of how he came to write his Edgar Award-winning book in his new true crime short, “The Story Behind 'In Broad Daylight.'” MacLean had doors slammed in his face, guns pulled on him, and was bitten by a dog. Eventually, he won over the closed community of Skidmore, Mo. The inhabitants shared with him the reign of terror Ken Rex McElroy inflicted for twenty years in Northwest Missouri, and information about his murder on the main street of Skidmore in 1981. Despite 45 witnesses, the case remains unsolved. MacLean tells the story in his book “In Broad Daylight,” first published in 1988.“The Story Behind 'In Broad Daylight'” brings the book up to date and includes several previously unpublished pictures. It also answers many questions about the killing itself, such as who was involved, and what has become of them. The author discusses the nature of the moral consequences of the killing for the town and those involved in the killing. MacLean describes the breakthrough events when key characters agreed to speak with him, and he realized he would finally get the story.“In Broad Daylight” was a New York Times bestseller for 12 weeks and was made into a movie starring Brian Denehey, Cloris Leachman and Chris Cooper. It was re-released as an e-book on Amazon on July 10, the 31st anniversary of the killing.Praise for Harry N. MacLean’s The Story Behind In Broad Daylight“A riveting behind the scenes look at an author in pursuit of the story about the bully who brought down a town and paid for his sins with his life.”—Diane Fanning, author of “Mommy’s Little Girl”“Honest and intriguing. The riveting backstory of MacLean's true crime classic...a can't miss read!”"— Kathryn Casey, bestselling author of “Deadly Little Secrets”“The Edgar Award winner takes readers right where they want to go—inside the story.”—Gregg Olsen, bestselling author of “”Fear Collector”“To understand and truly experience any story in its absolute wholeness, one must go ‘behind the scenes’ and learn the mechanics of what made it so riveting in the first place. Here, Harry MacLean takes us on a thrill ride into the crazy world beyond one of the most compelling true-crime stories of our time.”— M. William Phelps, star of the hit Investigation Discovery series “Dark Minds" and national bestselling author of 23 books, including “Nathan Hale and his latest, “Kiss of the She-Devil”

    A dramatic and carefully detailed account of one family's journey through the maze of genetic counseling, medical technology, and disability rights; destined to become required reading for anyone touched by any of these issues.

    But Jen’s success didn’t arrive overnight. Her glamorous, jet-setting lifestyle came from years of hard work, humility, and hustle. In Blowing My Way to the Top, Jen shatters the illusion of effortless, instant success that permeates social media to reveal the sweat, dedication, and drive it really takes to make it.In this inspiring, insightful, and laugh-out-loud funny book, Jen chronicles her remarkable journey and shares what she’s learned along the way. From growing up in a conservative Mormon community where girls were discouraged from pursuing their ambitions, to striking out on her own and finding success on the celebrity style circuit, to building the cult-status brand OUAI—Jen reveals with refreshing candour the lessons, mistakes, and memorable moments that have paved her road to success.Jen also offers insight into the values that have allowed her to thrive in the modern, digital landscape, including the importance of creating authentic content, investing in the community, and building social consciousness into the ethos of a business. And as a trailblazer in a male-dominated industry, Jen speaks frankly about the challenges she’s faced and provides crucial advice for other women, from the importance of running your business like a feminist to building camaraderie amid the competition to learning to navigate the work and life issues that impact women most.At the end of the day, Jen has one simple message: If I can do it, you can too. Blowing My Way to the Top is destined to become the must-read career guide for a new generation, empowering readers everywhere with the permission to dream big—and the tools to make those dreams a reality.

    Paul Kalanithi. As he nears the end of his 7-year residency he gets the report no one wants, cancer. Now his forty-year plan is scrapped. The hopes and dreams he and Lucy, his wife, have held to are dramatically altered. In this book you will find the story of a man that seeks out truth and meaning in a very detailed way. From his undergraduate literary pursuits to his combined goal of neuroscience and surgery Dr. Kalanithi desires to connect meaning to every aspect of human life. As cancer becomes his story the reader will see the emotional decisions made about starting a family and continuing his beloved career. Dr. Kalanithi begins to see how his care for his patients would be altered as he experiences the treatments himself. Through every emotion Paul and Lucy share the love for each other and life. Inside this SUMMARY READS Summary & Highlights of When Breath Becomes Air: Summary of Each Chapter Highlights (Best Quotes) BONUS: Critics Corner BONUS: Free Report about The Tidiest and Messiest Places on Earth - http: //sixfigureteen.com/messy.

    Rough receives the test results that confirm she is a carrier of the genetic condition "hypohidrotic ectodermal dysplasia," or H.E.D., it propels her on a journey deep into her family's past in the American West.At first glance, H.E.D. seems only to be a superficial condition: a peculiar facial bone structure, sparse hair, few teeth, and an inability to sweat. But a closer look reveals the source of a lifetime of infections, breathing problems, and drug dependency for Bonnie's grandfather Earl, who suffered from the disorder. After a boyhood as a small-town oddity and an adulthood fraught with disaster, Earl died penniless and alone at the age of 49. Bonnie's mother was left with an inheritance that included not just the gene for H.E.D., but also the emotional pain that came from witnessing her father's misery.As Bonnie and her husband consider becoming parents themselves, their biological legacy haunts every decision. The availability of genetic testing gives them new choices to make, choices more excruciating than any previous generation could have imagined. Ultimately, Carrier is a story of a modern moral crisis, one that reveals the eternal tension between past and future."

    A mix of Tony Hawk and Brian Welch comes together in skateboarding legend Christian Hosoi, who reveals everything about his rise, fall, and redemption, in this amazing tell-all—from being named the greatest skater of all time to bottoming out on drugs to finally finding redemption through God.Fans of Slater Kelly’s Pipe Dreams and Brian Welch’s Save Me From Myself, and followers of Tony Alva, Jay Adams, and Steve Caballero, will be captivated by this extraordinary, star-studded story, a gripping read that ranges from the heart of the 1980s skateboarding scene to the inside of a prison, from Hollywood parties to intense prayer sessions.Hosoi: My Life as a Skateboarder Junkie Inmate Pastor takes readers to the heart of one little-known world after another—and he portrays them in all their gore and glory for all the world to see.

    starving. It is a story of courage, determination, perseverance and the power of the human spirit. Irene spent 8 years of her life in orphanages, but this did not destroy her dreams and desire to live live a full and rich life.

    Twenty-one-year-old Laura Rothenberg has always tried to live a normal life--even with lungs that betray her, and a sober awareness that she may not live to see her next birthday. Like most people born with cystic fibrosis, the chronic disease that affects lungs and other organs, Rothenberg struggles to come to grips with a life that has already been compromised in many ways. Sometimes healthy and able to go to school, other times hospitalized for months on end, Rothenberg finds solace in keeping a diary. In her writing, she can be open, honest, and irreverent, like the young person she is. Yet mixed in with this voice is an incredible maturity about her mortality. The memoir opens with Rothenberg's decision to accept a lung transplant. From the waiting--and all it implies to the surgery, recovery, and her new life, Rothenberg muses on mortality in journal entries and poetry. Through it all, she reveals a will and temperament that is strong and wise despite her years. Laura Rothenberg's story, recorded and shared on NPR's Radio Diaries, was awarded the prestigious Third Coast Audio Festival Award, it also received an unprecedented listener response and generated more e-mail than any other story the producers could recall. Rothenberg's story was also featured in the New York Times and U.S. News & World Report.