Book picks similar to
The Irregular School: Exclusion, Schooling and Inclusive Education by Roger Slee
disability-studies
ed-policy-history
equity
disability
Jabberwocky: Lessons of Love from a Boy Who Never Spoke
Steven Gardner - 2021
“Graham’s story is a tribute to the human spirit and the invisible bonds which connect us to each other” (Ken Burns).
The Cancer Journals
Audre Lorde - 1980
Includes photos and tributes to Lorde written after her death in 1992."Grief, terror, courage, the passion for survival and for more than survival, are here in the searchings of a great poet." —Adrienne Rich"This book teaches me that with one breast or none, I am still me." —Alice Walker"The forthrightness and ferocity with which Audre Lorde greeted every social injustice is in full force in this courageous exploration." —Amazon.com
Still Standing: What I've learnt from a life lived differently
Jessica Quinn - 2021
Her body has been completely restructured so that she could survive an aggressive cancer.Jess's leg was amputated just before her ninth birthday, and she has had to adapt to living with a prosthetic leg. The challenges Jess has faced ever since have given her a unique outlook. Growing up, she felt alone in her difference, but she has learnt that the one thing people have in common is that we are all different.She is on a mission to normalise 'different', speaking out on social media, creating diversity through her work as a model and helping people see we have a choice over how we respond to hardship.This is a story of body acceptance, finding ways to live through life's adversities, and perseverance.Jess's inspirational 'you've got this' attitude has seen her through every struggle she's faced. Her philosophy embraces the fact that none of us gets to keep the body we were born in; we all bear scars that become part of our stories. She's learnt to change the narrative and be grateful for what she can do, rather than focusing on the things she can't.
Not Even Wrong: Adventures in Autism
Paul Collins - 2004
A casual conversation-or any social interaction that the rest of us take for granted-will, for Morgan, always be a cryptogram that must be painstakingly decoded. He lives in a world of his own: an autistic world.In Not Even Wrong, Paul Collins melds a memoir of his son's autism with a journey into this realm of permanent outsiders. Examining forgotten geniuses and obscure medical archives, Collins's travels take him from an English churchyard to the Seattle labs of Microsoft, and from a Wisconsin prison cell block to the streets of Vienna. It is a story that reaches from a lonely clearing in the Black Forest into the London palace of King George I, from Defoe and Swift to the discovery of evolution; from the modern dawn of the computer revolution to, in the end, the author's own household.Not Even Wrong is a haunting journey into the borderlands of neurology - a meditation on what normal is, and how human genius comes to us in strange and wondrous forms.
Send in the Idiots: Stories from the Other Side of Autism
Kamran Nazeer - 2006
In 1982, when he was four years old, Kamran Nazeer was enrolled in a small school in New York City alongside a dozen other children diagnosed with autism. Calling themselves the Idiots, these kids received care that was at the cutting edge of developmental psychology. Twenty-three years later, the school no longer exists.Send in the Idiots is the always candid, often surprising, and ultimately moving investigation into what happened to those children. Now a policy adviser in England, Kamran decides to visit four of his old classmates to find out the kind of lives that they are living now, how much they've been able to overcome—and what remains missing. A speechwriter unable to make eye contact; a messenger who gets upset if anyone touches his bicycle; a depressive suicide victim; and a computer engineer who communicates difficult emotions through the use of hand puppets: these four classmates reveal an astonishing, thought-provoking spectrum of behavior.Bringing to life the texture of autistic lives and the pressures and limitations that the condition presents, Kamran also relates the ways in which those can be eased over time, and with the right treatment. Using his own experiences to examine such topics as the difficulties of language, conversation as performance, and the politics of civility, Send in the Idiots is also a rare and provocative exploration of the way that people—all people—learn to think and feel. Written with unmatched insight and striking personal testimony, Kamran Nazeer's account is a stunning, invaluable, and utterly unique contribution to the literature of what makes us human.
The Wounded Storyteller: Body, Illness, and Ethics
Arthur W. Frank - 1995
That book ended by describing the existence of a "remission society," whose members all live with some form of illness or disability. The Wounded Storyteller is their collective portrait.Ill people are more than victims of disease or patients of medicine; they are wounded storytellers. People tell stories to make sense of their suffering; when they turn their diseases into stories, they find healing.Drawing on the work of authors such as Oliver Sacks, Anatole Broyard, Norman Cousins, and Audre Lorde, as well as from people he met during the years he spent among different illness groups, Frank recounts a stirring collection of illness stories, ranging from the well-known—Gilda Radner's battle with ovarian cancer—to the private testimonials of people with cancer, chronic fatigue syndrome, and disabilties. Their stories are more than accounts of personal suffering: they abound with moral choices and point to a social ethic.Frank identifies three basic narratives of illness in restitution, chaos, and quest. Restitution narratives anticipate getting well again and give prominence to the technology of cure. In chaos narratives, illness seems to stretch on forever, with no respite or redeeming insights. Quest narratives are about finding that insight as illness is transformed into a means for the ill person to become someone new.
Illness
Havi Carel - 2008
She argues that illness should be seen not simply as a localized biological dysfunction but as a transformation of our social, psychological, and physical worlds and our temporal existence. By focusing on illness as a lived experience, she reveals illness as a life-changing event rather than a limited physiological problem, showing that the body is not a lifeless container for the self but the core of human subjectivity and embodied existence.
She Touched the World: Laura Bridgman, Deaf-Blind Pioneer
Sally Hobart Alexander - 2008
At the time, no one believed a child with such severe disabilities could be taught to communicate, much less lead a full and productive life. But then a progressive doctor, who had just opened the country’s first school for the blind in Boston, took her in. Laura learned to communicate, read, and write—and eventually even to teach. By the age of 12, she was world famous.Audiences flocked to see her, and she was loved and admired by children everywhere. This fascinating and moving biography shows how Laura Bridgman paved the way for future generations of children with disabilities, making possible important advances in the way they would be educated. As a blind person with some hearing loss, Sally Hobart Alexander lends a unique and intimate perspective to this inspiring account. At last, the story of Laura Bridgman can find its long-deserved place alongside those of Louis Braille and Helen Keller.
Love & Justice: A Compelling True Story Of Triumph Over Tragedy
Diana Morgan-Hill - 2015
At the age of 29, Diana Hill fell under a London train. In 7 seconds the tall, glamorous businesswoman went from busy woman of the world with everything to live for to double-leg amputee, her life in ruins. Then it got worse. A few days after her accident, as she lay in hospital, traumatised and heavily sedated, she learnt via a newspaper article that the railway’s Transport Police were to interview “The Fall Girl”, as the Press had labelled her, with a view to prosecution. She had boarded a moving train, they said, and trespassed onto their railway line. Her fight for justice took 5 years and was, she declares with no hesitation, a more harrowing experience than having both of her legs ‘stolen’ from her. As any young, single woman would be, Diana was shocked to the core by the sudden, catastrophic change in her body image. What man would ever love her now? The issues surrounding sexuality and disability are explored here with stark honesty as she recalls her complicated love life, the High Court dramas, and the rawness of her pain amidst a turmoil of emotion, all told with tremendous humour, charm and heart. For Diana loves to tell stories. Especially true ones. A brutally honest, heartwarming memoir that shocks and delights in equal measure – when you're not crying for her you're laughing with her: "A computer is a thing that can be disabled, not a person." Diana Morgan-Hill
Freaks, Geeks and Asperger Syndrome: A User Guide to Adolescence
Luke Jackson - 2002
Over the years Luke has learned to laugh at such names but there are other aspects of life which are more difficult. Adolescence and the teenage years are a minefield of emotions, transitions and decisions and when a child has Asperger Syndrome, the result is often explosive. Luke has three sisters and one brother in various stages of their adolescent and teenage years but he is acutely aware of just how different he is and how little information is available for adolescents like himself. Drawing from his own experiences and gaining information from his teenage brother and sisters, he wrote this enlightening, honest and witty book in an attempt to address difficult topics such as bullying, friendships, when and how to tell others about AS, school problems, dating and relationships, and morality. Luke writes briefly about his younger autistic and AD/HD brothers, providing amusing insights into the antics of his younger years and advice for parents, carers and teachers of younger AS children. However, his main reason for writing was because "so many books are written about us, but none are written directly to adolescents with Asperger Syndrome. I thought I would write one in the hope that we could all learn together."
The Fearless Benjamin Lay: The Quaker Dwarf Who Became the First Revolutionary Abolitionist
Marcus Rediker - 2017
Mocked and scorned by his contemporaries, Lay was unflinching in his opposition to slavery, often performing colorful guerrilla theater to shame slave masters, insisting that human bondage violated the fundamental principles of Christianity. He drew on his ideals to create a revolutionary way of life, one that embodied the proclamation "no justice, no peace."Lay was born in 1682 in Essex, England. His philosophies, employments, and places of residence--spanning England, Barbados, Philadelphia, and the open seas--were markedly diverse over the course of his life. He worked as a shepherd, glove maker, sailor, and bookseller. His worldview was an astonishing combination of Quakerism, vegetarianism, animal rights, opposition to the death penalty, and abolitionism.While in Abington, Philadelphia, Lay lived in a cave-like dwelling surrounded by a library of two hundred books, and it was in this unconventional abode where he penned a fiery and controversial book against bondage, which Benjamin Franklin published in 1738. Always in motion and ever confrontational, Lay maintained throughout his life a steadfast opposition to slavery and a fierce determination to make his fellow Quakers denounce it, which they finally began to do toward the end of his life.With passion and historical rigor, Rediker situates Lay as a man who fervently embodied the ideals of democracy and equality as he practiced a unique concoction of radicalism nearly three hundred years ago. Rediker resurrects this forceful and prescient visionary, who speaks to us across the ages and whose innovative approach to activism is a gift, transforming how we consider the past and how we might imagine the future.
Design Meets Disability
Graham Pullin - 2009
This revolution has come about through embracing the design culture of the fashion industry. Why shouldn't design sensibilities also be applied to hearing aids, prosthetic limbs, and communication aids? In return, disability can provoke radical new directions in mainstream design. Charles and Ray Eames's iconic furniture was inspired by a molded plywood leg splint that they designed for injured and disabled servicemen. Designers today could be similarly inspired by disability.In Design Meets Disability, Graham Pullin shows us how design and disability can inspire each other. In the Eameses' work there was a healthy tension between cut-to-the-chase problem solving and more playful explorations. Pullin offers examples of how design can meet disability today. Why, he asks, shouldn't hearing aids be as fashionable as eyewear? What new forms of braille signage might proliferate if designers kept both sighted and visually impaired people in mind? Can simple designs avoid the need for complicated accessibility features? Can such emerging design methods as "experience prototyping" and "critical design" complement clinical trials?Pullin also presents a series of interviews with leading designers about specific disability design projects, including stepstools for people with restricted growth, prosthetic legs (and whether they can be both honest and beautifully designed), and text-to-speech technology with tone of voice. When design meets disability, the diversity of complementary, even contradictory, approaches can enrich each field.
My Thirteenth Winter: A Memoir
Samantha Abeel - 2003
For a straight-A student like Samantha, problems like these made no sense. She dreaded school, and began having anxiety attacks. In her thirteenth winter, she found the courage to confront her problems -- and was diagnosed with a learning disability. Slowly, Samantha's life began to change again. She discovered that she was stronger than she'd ever thought possible -- and that sometimes, when things look bleakest, hope is closer than you think.
The Two-Headed Boy, and Other Medical Marvels
Jan Bondeson - 2000
The dicephalous Tocci brothers and Lazarus Colloredo (from whose belly grew his malformed conjoined twin), the Swedish giant, and the king of Poland's dwarf--Bondeson considers these individuals not as freaks but as human beings born with sometimes appalling congenital deformities.He makes full use of original French, German, Dutch, Polish, and Scandinavian sources and explores elements of ethnology, literature, and cultural history in his diagnoses. Heavily illustrated with woodcuts, engravings, oil paintings, and photographs, The Two-Headed Boy and Other Medical Marvels combines a scientist's scrutiny with a humanist's wonder at the endurance of the human spirit. Contents:The Two Inseparable Brothers, and a PrefaceThe Hairy Maid at the HarpsichordThe Stone-childThe Woman Who Laid an EggThe Strangest Miracle in the WorldSome Words about Hog-faced GentlewomenHorned HumansThe Biddenden MaidsThe Tocci Brothers, and Other DicephaliThe King of Poland's CourtDwarf Daniel Cajanus, the Swedish GiantDaniel Lambert, the Human ColossusCat-eating Englishmen and French Frog-swallowers