Elijah's Cup: A Family's Journey into the Community and Culture of High-functioning Autism and Asperger's Syndrome (Revised edition)


Valerie Paradiž - 2002
    Her inspiring narrative offers compelling insights into daily life with Elijah's Asperger's syndrome and her own 'shadow syndrome', which affects many family members of autistics. It is also a celebration of the idiosyncratic beauty of the Asperger mind and the sense of mutual support and self-respect in the ASD community.This revised edition includes a contribution from Elijah and a new chapter that brings the story up-to-date: the author successfully sets up a specialist educational unit for Asperger pupils, Elijah experiences his first two years of school, and the author's dawning recognition of her own Asperger's Syndrome leads to major life changes.Elijah's Cup offers moving and insightful observations as well as factual information for parents and anyone working with people with ASDs.

Identical Strangers: A Memoir of Twins Separated and Reunited


Elyse Schein - 2007
    You discover that she has the same birthday, the same allergies, the same tics, and the same way of laughing. Looking at this person, you are able to gaze into your own eyes and see yourself from the outside. This identical individual has the exact same DNA as you and is essentially your clone.We don’t have to imagine.Elyse Schein had always known she was adopted, but it wasn’t until her mid-thirties while living in Paris that she searched for her biological mother. When Elyse contacted her adoption agency, she was not prepared for the shocking, life-changing news she received: She had an identical twin sister. Elyse was then hit with another bombshell: she and her sister had been separated as infants, and for a time, had been part of a secret study on separated twins.Paula Bernstein, a married writer and mother living in New York, also knew she was adopted, but had no inclination to find her birth mother. When she answered a call from the adoption agency one spring afternoon, Paula’s life suddenly divided into two starkly different periods: the time before and the time after she learned the truth. As they reunite and take their tentative first steps from strangers to sisters, Paula and Elyse are also left with haunting questions surrounding their origins and their separation. They learn that the study was conducted by a pair of influential psychiatrists associated with a prestigious adoption agency. As they investigate their birth mother’s past, Paula and Elyse move closer toward solving the puzzle of their lives.In alternating voices, Paula and Elyse write with emotional honesty about the immediate intimacy they share as twins and the wide chasm that divides them as two complete strangers. Interweaving eye-opening studies and statistics on twin science into their narrative, they offer an intelligent and heartfelt glimpse into human nature. Identical Strangers is the amazing story of two women coming to terms with the strange and unbelievable hand fate has dealt them, an account that broadens the definition of family and provides insight into our own DNA and the singularly exceptional imprint it leaves on our lives.

January First: A Child's Descent into Madness and Her Father's Struggle to Save Her


Michael Schofield - 2012
    In January's case, she is hallucinating 95 percent of the time that she is awake. Potent psychiatric drugs that would level most adults barely faze her. January, "Jani" to her family, has literally hundreds of imaginary friends. They go by names like 400-the-Cat, 100 Degrees, and 24 Hours and live on an island called "Calalini," which she describes as existing "on the border of my world and your world." Some of these friends are good, and some of them, such as 400, are very bad. They tell her to jump off buildings, attack her brother, and scream at strangers.In the middle of these never-ending delusions, hallucinations, and paroxysms of rage are Jani's parents, who have gone to the ends of the earth to keep both of their children alive and unharmed. They live in separate one-bedroom apartments in order to keep her little brother, Bohdi, safe from his big sister—and wage a daily war against a social system that has all but completely failed them. January First is the story of the daily struggles and challenges they face as they do everything they can to help their daughter while trying to keep their family together. It is the inspiring tale of their resolute determination and faith.

Schuyler's Monster: A Father's Journey with His Wordless Daughter


Robert Rummel-Hudson - 2008
    Once they knew why she couldn’t speak, they needed to determine how to help her learn. They didn’t know that Schuyler was going to teach them a thing or two about fearlessness, tenacity, and joy.Schuyler’s Monster is more than the memoir of a parent dealing with a child’s disability. It is the story of the relationship between a unique and ethereal little girl floating through the world without words, and her earthbound father who struggles with whether or not he is the right dad for the job. It is the story of a family seeking answers to a child’s dilemma, but it is also a chronicle of their unique relationships, formed without traditional language against the expectations of a doubting world. It is a story that has equal measure of laughter and tears. Ultimately, it is the tale of a little girl who silently teaches a man filled with self-doubt how to be the father she needs. Schuyler can now communicate through assistive technology, and continues to be the source of her father's inspiration, literary and otherwise.

Once More We Saw Stars: A Memoir


Jayson Greene - 2019
    She is immediately rushed to the hospital. Once More We Saw Stars begins with this event, leading the reader into the unimaginable.But although it begins with the anguish Jayson and his wife Stacy confront in the wake of their daughter’s trauma and the hours leading up to her death, it quickly becomes a narrative that is as much about hope and healing as it is about grief and loss. Jayson recognizes, even in the very midst of his ordeal, that there will be a life for him beyond it—that if only he can continue moving forward, from one moment to the next, he will survive what seems un-survivable.With raw honesty, deep emotion, and exquisite tenderness, he captures both the fragility of life and absoluteness of death, and most important of all, the unconquerable power of love. This is an unforgettable memoir of courage and transformation—and a book that will change the way you look at the world.

Somebody Else's Kids


Torey L. Hayden - 1981
    . . "A small seven-year-old boy who couldn't speak except to repeat weather forecasts and other people's words . . . A beautiful little girl of seven who had been brain damaged by terrible parental beatings and was so ashamed because she couldn't learn to read . . . A violently angry ten-year-old who had seen his stepmother murder his father and had been sent from one foster home to another . . . A shy twelve-year-old from a Catholic school which put her out when she became pregnant . . ."What do we matter?""Why do you care?"They were four problem children-put in Torey Hayden's class because no one else knew what to do with them. Together, with the help of a remarkable teacher who cared too much to ever give up, they became almost a family, able to give each other the love and understanding they had found nowhere else.

There's a Boy in Here: Emerging from the Bonds of Autism


Judy Barron - 1992
    Together, they chronicle Sean’s young life and the effects of autism on him and his family. As a youngster, Sean was confrontational, uncontrollable, “isolated and desperately unhappy.” Baffled about how to interact with others, he felt “like an alien from outer space.” Then, at seventeen, Sean experienced a breakthrough that began his release from autism. Today he’s a public speaker, college student, and reporter—and close to his family. You absolutely must read this book.

Sickened: The Memoir of a Munchausen by Proxy Childhood


Julie Gregory - 2003
    Just twelve, she’s tall, skinny, and weak. It’s four o’clock, and she hasn’t been allowed to eat anything all day. Her mother, on the other hand, seems curiously excited. She's about to suggest open-heart surgery on her child to "get to the bottom of this." She checks her teeth for lipstick and, as the doctor enters, shoots the girl a warning glance. This child will not ruin her plans.SickenedFrom early childhood, Julie Gregory was continually X-rayed, medicated, and operated on—in the vain pursuit of an illness that was created in her mother’s mind. Munchausen by proxy (MBP) is the world’s most hidden and dangerous form of child abuse, in which the caretaker—almost always the mother—invents or induces symptoms in her child because she craves the attention of medical professionals. Many MBP children die, but Julie Gregory not only survived, she escaped the powerful orbit of her mother's madness and rebuilt her identity as a vibrant, healthy young woman.Sickened is a remarkable memoir that speaks in an original and distinctive Midwestern voice, rising to indelible scenes in prose of scathing beauty and fierce humor. Punctuated with Julie's actual medical records, it re-creates the bizarre cocoon of her family's isolated double-wide trailer, their wild shopping sprees and gun-waving confrontations, the astonishing naïveté of medical professionals and social workers. It also exposes the twisted bonds of terror and love that roped Julie's family together—including the love that made a child willing to sacrifice herself to win her mother's happiness. The realization that the sickness lay in her mother, not in herself, would not come to Julie until adulthood. But when it did, it would strike like lightning. Through her painful metamorphosis, she discovered the courage to save her own life—and, ultimately, the life of the girl her mother had found to replace her. Sickened takes us to new places in the human heart and spirit. It is an unforgettable story, unforgettably told.

A Slant of Sun: One Child's Courage


Beth Kephart - 1998
    Like Operating Instructions and The Liars' Club, A Slant of Sun is a contemporary classic.Nearly one in five children grow up facing a developmental or behavioral challenge, and like them, Beth Kephart's son, Jeremy, showed early signs of being different: language eluded him, he preferred playing alone to an afternoon on the jungle gym. Doctors diagnosed Jeremy with a mild form of autism called Pervasive Developmental Disorder Not Otherwise Specified. A Slant of Sun is a passionate memoir about how Kephart, guided by the twin tools of intuition and imagination, helped lead her son toward wholeness. Pulsing with the questions, "Is normal possible? Definable?" A Slant of Sun speaks to everyone not just parents of the redemptive power of love.

Making Peace with Autism: One Family's Story of Struggle, Discovery, and Unexpected Gifts


Susan Senator - 2005
    In this insightful narrative, a courageous and inspiring mother explains why a diagnosis of autism doesn't have to shatter a family's dreams of happiness. Senator offers the hard-won, in-the-trenches wisdom of someone who's been there and is still there today and she demonstrates how families can find courage, contentment, and connection in the shadow of autism.In Making Peace with Autism, Susan Senator describes her own journey raising a child with a severe autism spectrum disorder, along with two other typically developing boys. Without offering a miracle treatment or cure, Senator offers valuable strategies for coping successfully with the daily struggles of life with an autistic child.Along the way she models the combination of stamina and courage, openness, and humor that has helped her family to survive and even to thrive. Topics include: the agony of diagnosis, grieving and acceptance, finding the right school program, helping siblings with their struggles and concerns, having fun together, and keeping the marriage strong.

Operating Instructions: A Journal of My Son's First Year


Anne Lamott - 1993
    A gifted writer and teacher, Lamott (Crooked Little Heart) is a single mother and ex-alcoholic with a pleasingly warped social circle and a remarkably tolerant religion to lean on. She responds to the changes, exhaustion, and love Sam brings with aplomb or outright insanity. The book rocks from hilarious to unbearably poignant when Sam's burgeoning life is played out against a very close friend's illness. No saccharine paean to becoming a parent, this touches on the rage and befuddlement that dog sweeter emotions during this sea change in one's life.

The Boy Who Loved Windows: Opening The Heart And Mind Of A Child Threatened With Autism


Patricia Stacey - 2003
    It is also a first-hand account of the new model of research and treatment pioneered by Stanley Greenspan, M.D. that makes this recovery possible for others. Walker, whom pediatricians worried would never walk, talk, or perhaps even hear or see, was lucky enough to be born to a family who would not accept defeat. Pat Stacey reveals the darkest fears, struggles, exhaustion, tiny victories, and eventual joys her family faced as they gradually brought Walker into full contact with the world.

My Thirteenth Winter: A Memoir


Samantha Abeel - 2003
    For a straight-A student like Samantha, problems like these made no sense. She dreaded school, and began having anxiety attacks. In her thirteenth winter, she found the courage to confront her problems -- and was diagnosed with a learning disability. Slowly, Samantha's life began to change again. She discovered that she was stronger than she'd ever thought possible -- and that sometimes, when things look bleakest, hope is closer than you think.

The Horse Boy: A Father's Quest to Heal His Son


Rupert Isaacson - 2009
    But when Isaacson, a lifelong horseman, rode their neighbor's horse with Rowan, Rowan improved immeasurably. He was struck with a crazy idea: why not take Rowan to Mongolia, the one place in the world where horses and shamanic healing intersected? THE HORSE BOY is the dramatic and heartwarming story of that impossible adventure. In Mongolia, the family found undreamed of landscapes and people, unbearable setbacks, and advances beyond their wildest dreams. This is a deeply moving, truly one-of-a-kind story--of a family willing to go to the ends of the earth to help their son, and of a boy learning to connect with the world for the first time.

A Friend Like Henry: The Touching True Story of an Autistic Boy and His Dog


Nuala Gardner - 2007
    Dale was still a baby when his parents realised that something wasn't right. Worried, his mother Nuala took him to see several doctors, before finally hearing the word 'autism' for the first time in a specialist's office. Scared but determined that Dale should live a fulfilling life, Nuala describes her despairat her son's condition, her struggle to prevent Dale being excluded from a 'normal' education and her sense of hopeless isolation. Dale's autism was severe and violent and family life was a daily battleground. But the Gardner's lives were transformed when they welcomed a gorgeous Golden Retriever into the family. The special bond between Dale and his dog Henry helped them to produce the breakthrough in Dale they had long sought. From taking a bath to saying 'I love you', Henry helped introduce Dale to all the normal activities most parents take for granted, and set him on the road to being the charming and well-adjusted young man he is today. This is a heartrending and fascinating account of how one devoted and talented dog helped a little boy conquer his autism.