Annie's Ghosts: A Journey Into a Family Secret


Steve Luxenberg - 2009
    It will leave you breathless." --Walter Isaacson, author of Leonardo da Vinci, Steve Jobs, and other bestselling biographies.The Great Michigan Read for 2013-14. A Washington Post Best Book, 2009. A 2010 Michigan Notable Book.Beth Luxenberg was an only child, or so her son Steve believed. But secrets have a way of working free of their keepers, as this true story reveals. Approaching her 80th birthday, Steve's mother told a doctor that she had a disabled sister, without saying that she had always pretended that she was an only child. When Steve learned of his mother's slip, he was mystified. If his mom had a sibling, why had her existence been resolutely concealed for decades? Following the trail took Steve to Depression-era Detroit and tsarist Russia, the Holocaust in Ukraine and the Philippine war zone. Fascinating human interest; a real-life whodunit.Beautifully complex, raw and revealing.” -- Kirkus Reviews (starred review)A wise, affecting new memoir of family secrets and posthumous absolution. . . a poignant investigative exercise, full of empathy and sorrowful truth." -- The Washington Post

The Silent Twins


Marjorie Wallace - 1986
    As they grew up, love, hate, and genius united to push them to the extreme margins of society and, following a five-week spree of vandalism and arson, the silent twins were sentenced to a grueling twelve-year detention in Broadmoor.Award-winning investigative journalist Marjorie Wallace delves into the twins' silent world, revealing their genius, alienation, and the mystic bond by which the extremes of good and evil ended in possession and death.

George and Sam


Charlotte Moore - 2004
    George and Sam are autistic. George and Sam takes the reader from the births of each of the two boys, along the painstaking path to diagnosis, interventions, schooling and more. She writes powerfully about her family and her sons, and allows readers to see the boys behind the label of autism. Their often puzzling behavior, unusual food aversions, and the different ways that autism effects George and Sam lend deeper insight into this confounding disorder.George and Sam emerge from her narrative as distinct, wonderful, and at times frustrating children who both are autistic through and through. Moore does not feel the need to search for cause or cure, but simply to find the best ways to help her sons. She conveys to readers what autism is and isn't, what therapies have worked and what hasn't been effective, and paints a moving, memorable portrait of life with her boys.

The Still Point of the Turning World


Emily Rapp - 2013
    But all of these plans changed when Ronan was diagnosed at nine months old with Tay-Sachs disease, a rare and always-fatal degenerative disorder.  Ronan was not expected to live beyond the age of three; he would be permanently stalled at a developmental level of six months.  Rapp and her husband were forced to re-evaluate everything they thought they knew about parenting.  They would have to learn to live with their child in the moment; to find happiness in the midst of sorrow; to parent without a future.The Still Point of the Turning World is the story of a mother’s journey through grief and beyond it.  Rapp’s response to her son’s diagnosis was a belief that she needed to “make my world big”—to make sense of her family’s situation through art, literature, philosophy, theology and myth.  Drawing on a broad range of thinkers and writers, from C.S. Lewis to Sylvia Plath, Hegel to Mary Shelley’s Frankenstein, Rapp learns what wisdom there is to be gained from parenting a terminally ill child.  In luminous, exquisitely moving prose she re-examines our most fundamental assumptions about what it means to be a good parent, to be a success, and to live a meaningful life.

You Don't Look Like Anyone I Know: A True Story of Family, Face Blindness, and Forgiveness


Heather Sellers - 2010
     Heather Sellers is face-blind-that is, she has prosopagnosia, a rare neurological condition that prevents her from reliably recognizing people's faces. Growing up, unaware of the reason for her perpetual confusion and anxiety, she took what cues she could from speech, hairstyle, and gait. But she sometimes kissed a stranger, thinking he was her boyfriend, or failed to recognize even her own father and mother. She feared she must be crazy. Yet it was her mother who nailed windows shut and covered them with blankets, made her daughter walk on her knees to spare the carpeting, had her practice secret words to use in the likely event of abduction. Her father went on weeklong "fishing trips" (aka benders), took in drifters, wore panty hose and bras under his regular clothes. Heather clung to a barely coherent story of a "normal" childhood in order to survive the one she had. That fairy tale unraveled two decades later when Heather took the man she would marry home to meet her parents and began to discover the truth about her family and about herself. As she came at last to trust her own perceptions, she learned the gift of perspective: that embracing the past as it is allows us to let it go. And she illuminated a deeper truth-that even in the most flawed circumstances, love may be seen and felt. Watch a Video

The Spark: A Mother's Story of Nurturing Genius


Kristine Barnett - 2013
    At nine he started working on an original theory in astrophysics that experts believe may someday put him in line for a Nobel Prize, and at age twelve he became a paid researcher in quantum physics. But the story of Kristine’s journey with Jake is all the more remarkable because his extraordinary mind was almost lost to autism. At age two, when Jake was diagnosed, Kristine was told he might never be able to tie his own shoes. The Spark is a remarkable memoir of mother and son. Surrounded by “experts” at home and in special ed who tried to focus on Jake’s most basic skills and curtail his distracting interests—moving shadows on the wall, stars, plaid patterns on sofa fabric—Jake made no progress, withdrew more and more into his own world, and eventually stopped talking completely. Kristine knew in her heart that she had to make a change. Against the advice of her husband, Michael, and the developmental specialists, Kristine followed her instincts, pulled Jake out of special ed, and began preparing him for mainstream kindergarten on her own. Relying on the insights she developed at the daycare center she runs out of the garage in her home, Kristine resolved to follow Jacob’s “spark”—his passionate interests. Why concentrate on what he couldn’t do? Why not focus on what he could? This basic philosophy, along with her belief in the power of ordinary childhood experiences (softball, picnics, s’mores around the campfire) and the importance of play, helped Kristine overcome huge odds. The Barnetts were not wealthy people, and in addition to financial hardship, Kristine herself faced serious health issues. But through hard work and determination on behalf of Jake and his two younger brothers, as well as an undying faith in their community, friends, and family, Kristine and Michael prevailed. The results were beyond anything anyone could have imagined. Dramatic, inspiring, and transformative, The Spark is about the power of love and courage in the face of overwhelming obstacles, and the dazzling possibilities that can occur when we learn how to tap the true potential that lies within every child, and in all of us.

Inferno: A Memoir of Motherhood and Madness


Catherine Cho - 2020
    Before the trip’s end, she develops psychosis. In desperation, her husband admits her to a nearby psychiatric hospital, where she begins the hard work of rebuilding her identity.In this memoir Catherine reconstructs her sense of self, starting with her childhood as the daughter of Korean immigrants, moving through a traumatic past relationship, and on to the early years of her courtship with and marriage to her husband, James. She interweaves these parts of her past with an immediate recounting of the days she spent in the ward.

Against Medical Advice


James Patterson - 2008
    From that day forward his life became a hell of uncontrollable tics, urges, and involuntary utterances. Eventually he is diagnosed with Tourette's Syndrome and Obsessive Compulsive disorder, and Cory embarks on an excruciating journey from specialist to specialist, enduring countless combinations of medications in wildly varying doses. Soon it becomes unclear what tics are symptoms of his disease and what are side effects of the drugs. The only certainty is that it kept getting worse. Despite his lack of control, Cory is aware of every embarrassing movement, and sensitive to every person's reaction to his often aggravating presence. Simply put: Cory Friedman's life is a living hell.Against Medical Advice is the true story of one family's decades-long battle for survival in the face of extraordinary difficulties and a rigid medical establishment.

Devil in the Details: Scenes from an Obsessive Girlhood


Jennifer Traig - 2004
    The result is a book so relentlessly funny and frank, it's totally refreshing.

Following Ezra: What One Father Learned About Gumby, Otters, Autism, and Love From His Extraordinary Son


Tom Fields-Meyer - 2011
    Full of tender moments and unexpected humor, Following Ezra is the story of a father and son on a ten-year journey from Ezra's diagnosis to the dawn of his adolescence. It celebrates his growth from a remote toddler to an extraordinary young man, connected in his own remarkable ways to the world around him.

Life Will Be the Death of Me: . . . and You Too!


Chelsea Handler - 2019
    in the fall of 2016, Chelsea Handler daydreams about what life will be like with a woman in the White House. And then Donald Trump happens. In a torpor of despair, she decides that she's had enough of the privileged bubble she's lived in--a bubble within a bubble--and that it's time to make some changes, both in her personal life and in the world at large.At home, she embarks on a year of self-sufficiency--learning how to work the remote, how to pick up dog shit, where to find the toaster. She meets her match in an earnest, brainy psychiatrist and enters into therapy, prepared to do the heavy lifting required to look within and make sense of a childhood marked by love and loss and to figure out why people are afraid of her. She becomes politically active--finding her voice as an advocate for change, having difficult conversations, and energizing her base. In the process, she develops a healthy fixation on Special Counsel Robert Mueller and, through unflinching self-reflection and psychological excavation, unearths some glittering truths that light up the road ahead.

The World's Strongest Librarian: A Memoir of Tourette's, Faith, Strength, and the Power of Family


Josh Hanagarne - 2013
    Although he wouldn't officially be diagnosed with Tourette Syndrome until his freshman year of high school, Josh was six years old and onstage in a school Thanksgiving play when he first began exhibiting symptoms. By the time he was twenty, the young Mormon had reached his towering adult height of 6'7" when — while serving on a mission for the Church of Latter Day Saints — his Tourette's tics escalated to nightmarish levels.Determined to conquer his affliction, Josh underwent everything from quack remedies to lethargy-inducing drug regimes to Botox injections that paralyzed his vocal cords and left him voiceless for three years. Undeterred, Josh persevered to marry and earn a degree in Library Science. At last, an eccentric, autistic strongman — and former Air Force Tech Sergeant and guard at an Iraqi prison — taught Josh how to "throttle" his tics into submission through strength-training.Today, Josh is a librarian in the main branch of Salt Lake City's public library and founder of a popular blog about books and weight lifting—and the proud father of four-year-old Max, who has already started to show his own symptoms of Tourette's.The World's Strongest Librarian illuminates the mysteries of this little-understood disorder, as well as the very different worlds of strongman training and modern libraries. With humor and candor, this unlikely hero traces his journey to overcome his disability — and navigate his wavering Mormon faith — to find love and create a life worth living.

Strange Son: Two Mothers, Two Sons, and the Quest to Unlock the Hidden World of Autism


Portia Iversen - 2006
    Tito Mukhopadhyay, an autistic boy from India who spends most of his time flapping his fingers in front of his eyes, has an IQ of 185. He favors the writings of Wordsworth and Ibsen. He loves philosophy, reads "People," and worries about conflict in the Middle East. He also writes beautiful poetry. That Tito can communicate at all is due to his mother, Soma, who single-handedly developed a revolutionary method of teaching him in their one-room apartment in Bangalore, a "classroom" that lacked even running water. Portia Iversen, an Emmy-winning art director whose life was turned upside down when her own son Dov was diagnosed with autism, heard of Soma's miraculous story in the course of her own desperate search for a cure. Under the auspices of Cure Autism Now, the foundation she started with her husband that is now one of the largest funds for autism research in the world, Portia brought Soma and Tito to America to help researchers understand how Soma accomplished this amazing feat and to determine what can be learned from their success. Together, Soma and Portia have made remarkable progress in teaching their sons how to break through the walls of autism. And, in the process, they have assisted scientists in making astonishing discoveries about the nature of autism itself. "Strange Son" is the extraordinary account of two families who redefined how autism-and autistic people-should be treated, all the while helping to answer some of autism's most baffling questions and prompting new research. Iversen weaves the twin stories of Soma and Tito (and how Soma's methods mystified experts) together with her own story of how she and her family came to understand Dov. The result is a book suffused with uplifting human drama.

The Center Cannot Hold: My Journey Through Madness


Elyn R. Saks - 2007
    She has managed to achieve this in spite of being diagnosed as schizophrenic and given a "grave" prognosis—and suffering the effects of her illness throughout her life.Saks was only eight, and living an otherwise idyllic childhood in sunny 1960s Miami, when her first symptoms appeared in the form of obsessions and night terrors. But it was not until she reached Oxford University as a Marshall Scholar that her first full-blown episode, complete with voices in her head and terrifying suicidal fantasies, forced her into a psychiatric hospital.Saks would later attend Yale Law School where one night, during her first term, she had a breakdown that left her singing on the roof of the law school library at midnight. She was taken to the emergency room, force-fed antipsychotic medication, and tied hand-and-foot to the cold metal of a hospital bed. She spent the next five months in a psychiatric ward.So began Saks's long war with her own internal demons and the equally powerful forces of stigma. Today she is a chaired professor of law who researches and writes about the rights of the mentally ill. She is married to a wonderful man.In The Center Cannot Hold, Elyn Saks discusses frankly and movingly the paranoia, the inability to tell imaginary fears from real ones, and the voices in her head insisting she do terrible things, as well as the many obstacles she overcame to become the woman she is today. It is destined to become a classic in the genre.

The Broken Cord


Michael Dorris - 1989
    Winner of the 1989 National Book Critics Circle Award.