Book picks similar to
The Development of Disability Rights Under International Law: From Charity to Human Rights by Arlene S. Kanter
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The Good Doctor: A Father, a Son, and the Evolution of Medical Ethics
Barron H. Lerner - 2014
Barron Lerner thought he had heard it all. But in the mid-1990s, his father, an infectious diseases physician, told him a stunning story: he had physically placed his body over an end-stage patient who had stopped breathing, preventing his colleagues from performing cardiopulmonary resuscitation, even though CPR was the ethically and legally accepted thing to do. Over the next few years, the senior Dr. Lerner tried to speed the deaths of his seriously ill mother and mother-in-law to spare them further suffering.These stories angered and alarmed the younger Dr. Lerner—an internist, historian of medicine and bioethicist—who had rejected physician-based paternalism in favor of informed consent and patient autonomy. The Good Doctor is a fascinating and moving account of how Dr. Lerner came to terms with two very different images of his father: a revered clinician, teacher and researcher who always put his patients first, but also a physician willing to “play God,” opposing the very revolution in patients' rights that his son was studying and teaching to his own medical students.But the elder Dr. Lerner’s journals, which he had kept for decades, showed his son how his outdated paternalism had grown out of a fierce devotion to patient-centered medicine that was rapidly disappearing in a world of managed care, spiraling costs and health care reform. And they raised questions: Are paternalistic doctors just relics or should their expertise be used to overrule patients and families that make ill-advised choices? Does the growing use of personalized medicine—in which specific interventions may be best for specific patients—change the calculus between autonomy and paternalism? And how can we best use technologies that were invented to save lives but now too often prolong death? In an era of high-technology medicine, spiraling costs and healthcare reform, these questions could not be more relevant. As his father slowly died of Parkinson’s disease, Dr. Lerner faced these questions both personally and professionally. He found himself being pulled into his dad’s medical care, even though he had criticized his father for making medical decisions for his relatives. Did playing God—at least in some situations—actually make sense? Did doctors sometimes “know best?” A timely and compelling story of one family’s engagement with medicine over the last half century, The Good Doctor is an important book for those who treat illness—and those who struggle to overcome it.
The Illness Narratives: Suffering, Healing, And The Human Condition
Arthur Kleinman - 1988
But humans are not machines. When we are ill, we experience our illness: we become scared, distressed, tired, weary. Our illnesses are not just biological conditions, but human ones. It was Arthur Kleinman, a Harvard psychiatrist and anthropologist, who saw this truth when most of his fellow doctors did not. Based on decades of clinical experience studying and treating chronic illness, The Illness Narratives makes a case for interpreting the illness experience of patients as a core feature of doctoring.Before Being Mortal, there was The Illness Narratives. It remains today a prescient and passionate case for bridging the gap between patient and practitioner.
Witkin
Joel-Peter Witkin - 1995
Shocking and compelling, the photographs in this retrospective collection reach to the outer limits of human nature. 100 full-page reproductions, printed in four colors.
Firewater: How Alcohol Is Killing My People (and Yours)
Harold R. Johnson - 2016
Drawing on his years of experience as a Crown Prosecutor in Treaty 6 territory, Harold Johnson challenges readers to change the story we tell ourselves about the drink that goes by many names─booze, hooch, spirits, sauce, and the evocative firewater. Confronting the harmful stereotype of the lazy, drunken Indian, and rejecting medical, social and psychological explanations of the roots of alcoholism, Johnson cries out for solutions, not diagnoses, and shows how alcoholism continues to kill so many. Provocative, irreverent, and keenly aware of the power of stories, Firewater calls for people to make decisions about their communities and their lives on their own terms.
Sick From Freedom: African-American Illness and Suffering during the Civil War and Reconstruction
Jim Downs - 2012
But the war produced the largest biological crisis of the nineteenth century, and as historian Jim Downs reveals in this groundbreaking volume, it had deadly consequences for hundreds of thousands of freed people.In Sick from Freedom, Downs recovers the untold story of one of the bitterest ironies in American history--that the emancipation of the slaves, seen as one of the great turning points in U.S. history, had devastating consequences for innumerable freed people. Drawing on massive new research into the records of the Medical Division of the Freedmen's Bureau-a nascent national health system that cared for more than one million freed slaves-he shows how the collapse of the plantation economy released a plague of lethal diseases. With emancipation, African Americans seized the chance to move, migrating as never before. But in their journey to freedom, they also encountered yellow fever, smallpox, cholera, dysentery, malnutrition, and exposure. To address this crisis, the Medical Division hired more than 120 physicians, establishing some forty underfinanced and understaffed hospitals scattered throughout the South, largely in response to medical emergencies. Downs shows that the goal of the Medical Division was to promote a healthy workforce, an aim which often excluded a wide range of freedpeople, including women, the elderly, the physically disabled, and children. Downs concludes by tracing how the Reconstruction policy was then implemented in the American West, where it was disastrously applied to Native Americans.The widespread medical calamity sparked by emancipation is an overlooked episode of the Civil War and its aftermath, poignantly revealed in Sick from Freedom.
Fallen Soldiers: Reshaping the Memory of the World Wars
George L. Mosse - 1990
Over the next four years, that cause claimed the lives of some 13 million soldiers--more than twice the number killed in all the major wars from 1790 to 1914. But despite this devastating toll, the memory of the war was not, predominantly, of the grim reality of its trench warfare and battlefield carnage. What was most remembered by the war's participants was its sacredness and the martyrdom of those who had died for the greater glory of the fatherland. War, and the sanctification of it, is the subject of this pioneering work by well-known European historian George L. Mosse. Fallen Soldiers offers a profound analysis of what he calls the Myth of the War Experience--a vision of war that masks its horror, consecrates its memory, and ultimately justifies its purpose. Beginning with the Napoleonic wars, Mosse traces the origins of this myth and its symbols, and examines the role of war volunteers in creating and perpetuating it. But it was not until World War I, when Europeans confronted mass death on an unprecedented scale, that the myth gained its widest currency. Indeed, as Mosse makes clear, the need to find a higher meaning in the war became a national obsession. Focusing on Germany, with examples from England, France, and Italy, Mosse demonstrates how these nations--through memorials, monuments, and military cemeteries honoring the dead as martyrs--glorified the war and fostered a popular acceptance of it. He shows how the war was further promoted through a process of trivialization in which war toys and souvenirs, as well as postcards like those picturing the Easter Bunny on the Western Front, softened the war's image in the public mind. The Great War ended in 1918, but the Myth of the War Experience continued, achieving its most ruthless political effect in Germany in the interwar years. There the glorified notion of war played into the militant politics of the Nazi party, fueling the belligerent nationalism that led to World War II. But that cataclysm would ultimately shatter the myth, and in exploring the postwar years, Mosse reveals the extent to which the view of death in war, and war in general, was finally changed. In so doing, he completes what is likely to become one of the classic studies of modern war and the complex, often disturbing nature of human perception and memory.
Material Feminisms
Stacy AlaimoCatriona Mortimer-Sandilands - 2007
In lively and timely essays, an international group of feminist thinkers challenges the assumptions and norms that have previously defined studies about the body. These wide-ranging essays grapple with topics such as the material reality of race, the significance of sexual difference, the impact of disability experience, and the complex interaction between nature and culture in traumatic events such as Hurricane Katrina. By insisting on the importance of materiality, this volume breaks new ground in philosophy, feminist theory, cultural studies, science studies, and other fields where the body and nature collide.
The Medicalization of Society: On the Transformation of Human Conditions into Treatable Disorders
Peter Conrad - 2007
What were once considered normal human events and common human problems—birth, aging, menopause, alcoholism, and obesity—are now viewed as medical conditions. For better or worse, medicine increasingly permeates aspects of daily life.Building on more than three decades of research, Peter Conrad explores the changing forces behind this trend with case studies of short stature, social anxiety, "male menopause," erectile dysfunction, adult ADHD, and sexual orientation. He examines the emergence of and changes in medicalization, the consequences of the expanding medical domain, and the implications for health and society. He finds in recent developments—such as the growing number of possible diagnoses and biomedical enhancements—the future direction of medicalization.Conrad contends that the impact of medical professionals on medicalization has diminished. Instead, the pharmaceutical and biotechnical industries, insurance companies and HMOs, and the patient as consumer have become the major forces promoting medicalization. This thought-provoking study offers valuable insight into not only how medicalization got to this point but also how it may continue to evolve.
Manliness
Harvey Mansfield Jr. - 2006
It is impossible not to be drawn in to the provocative (often contentious) discussion that Harvey Mansfield sets before us. This is the first comprehensive study of manliness, a quality both bad and good, mostly male, often intolerant, irrational, and ambitious. Our “gender-neutral society” does not like it but cannot get rid of it.Drawing from science, literature, and philosophy, Mansfield examines the layers of manliness, from vulgar aggression, to assertive manliness, to manliness as virtue, and to philosophical manliness. He shows that manliness seeks and welcomes drama, prefers times of war, conflict, and risk, and brings change or restores order at crucial moments. Manly men in their assertiveness raise issues, bring them to the fore, and make them public and political—as for example, the manliness of the women’s movement.After a wide-ranging tour from stereotypes to Hemingway and Achilles, to Nietzsche, to feminism, and to Plato, the author returns to today’s problem of “unemployed manliness.” Formulating a reasoned defense of a quality hardly obedient to reason, he urges men, and especially women, to understand and accept manliness, and to give it honest and honorable employment.