Good Kings Bad Kings


Susan Nussbaum - 2013
    Nussbaum crafts a multifaceted portrait of a way of life hidden from most of us. In this isolated place on Chicago's South Side, friendships are forged, trust is built, and love affairs begin. It's in these alliances that the residents of this neglected community ultimately find the strength to bond together, resist their mistreatment, and finally fight back. And in the process, each is transformed.

Chronic: The Hidden Cause of the Autoimmune Pandemic--and How to Get Healthy Again


Steven Phillips - 2021
    What is fueling this twenty-first century pandemic?  In this eye-opening tour de force, Steven Phillips, MD, and his former patient, singer-songwriter Dana Parish, take on the medical establishment. Backed by a trove of published data, Chronic reveals striking evidence that a broad range of microbes, including the Lyme bacteria, cause a variety of recurrent conditions and autoimmune diseases. Chronic delves into the history and science behind common infections that are difficult to diagnose and treat, debunks widely held beliefs by doctors and patients alike, shows how medicine got the facts patently wrong, and provides solutions that empower readers to get their lives back. Dr. Phillips was already an internationally renowned physician specializing in complex chronic diseases when he became a patient himself. After nearly dying from his own mystery illness, he experienced firsthand the medical community’s ignorance about the pathogens that underlie a deep spectrum of chronic conditions—from fibromyalgia, lupus, multiple sclerosis, chronic fatigue syndrome, and rheumatoid arthritis to depression, anxiety, and neurodegenerative disorders. Parish, too, watched her health spiral after twelve top doctors missed an underlying infection that caused heart failure and other sudden debilitating physical and psychiatric symptoms. Now, they’ve come together with a mission: to change the current model of simply treating symptoms, often with dangerous, lifelong drugs, and shift the focus to finding and curing root causes of chronic diseases that affect millions around the world.

Break the Mould: How to Take Your Place in the World


Sinead Burke - 2020
    'This book made me feel proud to be different' - Rosie Jones. Break the Mould with Sinéad Burke - teacher, activist, author and little person. Sometimes we can feel like we are not good enough. That we don't belong. Or that we want to be more like our friends. In this empowering guide, Sinéad Burke draws on her own experiences and encourages young readers to believe in themselves, have pride in who they are and use their voice to make the world a fairer, more inclusive place.From the power of being different, to celebrating the things you love about yourself and helping others do the same, this is a brilliantly inspirational handbook for breaking the mould and finding your place in the world. 'A very important book encouraging us all to celebrate the uniqueness and gift of our own and others' differences, while recognising all of that which we share in common.' - Michael D. Higgins, President of Ireland

Academic Ableism: Disability and Higher Education


Jay Timothy Dolmage - 2017
    For too long, argues Jay Timothy Dolmage, disability has been constructed as the antithesis of higher education, often positioned as a distraction, a drain, a problem to be solved. The ethic of higher education encourages students and teachers alike to accentuate ability, valorize perfection, and stigmatize anything that hints at intellectual, mental, or physical weakness, even as we gesture toward the value of diversity and innovation. Examining everything from campus accommodation processes, to architecture, to popular films about college life, Dolmage argues that disability is central to higher education, and that building more inclusive schools allows better education for all.

Custom Reality and You


Peter Coffin - 2018
    The effects have manifested in our news, entertainment, and Google searches, we’re finding that a lot of things we thought were objective aren’t automatically so.Reality is not a concept we want to flush down the toilet with yesterday's food, though. However, we must begin to understand how it works in a world where profit is the driving force.

Being Heumann: An Unrepentant Memoir of a Disability Rights Activist


Judith Heumann - 2020
    From fighting to attend grade school after being described as a "fire hazard" to later winning a lawsuit against the New York City school system for denying her a teacher's license because of her paralysis, Judy's actions set a precedent that fundamentally improved rights for disabled people.As a young woman, Judy rolled her wheelchair through the doors of the US Department of Health, Education, and Welfare in San Francisco as a leader of the Section 504 Sit-In, the longest takeover of a governmental building in US history. Working with a community of over 150 disabled activists and allies, Judy successfully pressured the Carter administration to implement protections for disabled peoples' rights, sparking a national movement and leading to the creation of the Americans with Disabilities Act.Candid, intimate, and irreverent, Judy Heumann's memoir about resistance to exclusion invites readers to imagine and make real a world in which we all belong.

Demystifying Disability: What to Know, What to Say, and How to Be an Ally


Emily Ladau - 2021
    But many of us–disabled and non-disabled alike–don’t know how to act, what to say, or how to be an ally to the disability community. Demystifying Disability is a friendly handbook on important disability issues you need to know about, including: • How to appreciate disability history and identity • How to recognize and avoid ableism (discrimination toward disabled people) • How to be mindful of good disability etiquette • How to appropriately think, talk, and ask about disability • How to ensure accessibility becomes your standard practice, from everyday communication to planning special events • How to identify and speak up about disability stereotypes in mediaAuthored by celebrated disability rights advocate, speaker, and writer Emily Ladau, this practical, intersectional guide offers all readers a welcoming place to understand disability as part of the human experience.

Crippled: Austerity and the Demonization of Disabled People


Frances Ryan - 2019
    In the age of austerity, it's disabled people who are hardest hit, affecting over 3.7 million people. This is in addition to a situation in which half of those in poverty are either disabled or living with a disabled person.In Crippled, leading commentator Frances Ryan tells the story of those most affected by this devastating regime, people who have been too often been silenced. This includes the tetraplegic living in a first floor flat forced to crawl down flights of stairs because the council doesn't provide accessible housing; the young girl forced to sleep in her wheelchair and admitted to hospital with malnutrition because cuts mean she no longer had a carer to help her get to bed or cook; or the Londoner with schizophrenia found 'fit for work', and with nothing to live on was found dead at home three months later.Through these personal stories the book shows the scale of the crisis, while also showing how the disabled community is fighting back. It is a passionate demand for the recognition of disability rights and a call for an end to austerity policies that disproportionately affect those most in need.

The Wrong Carlos: Anatomy of a Wrongful Execution


James S. Liebman - 2012
    His execution passed unnoticed for years until a team of Columbia Law School faculty and students almost accidentally chose to investigate his case and found that DeLuna almost certainly was innocent. They discovered that no one had cared enough about either the defendant or the victim to make sure the real perpetrator was found. Everything that could go wrong in a criminal case did. This book documents DeLuna's conviction, which was based on a single, nighttime, cross-ethnic eyewitness identification with no corroborating forensic evidence. At his trial, DeLuna's defense, that another man named Carlos had committed the crime, was not taken seriously. The lead prosecutor told the jury that the other Carlos, Carlos Hernandez, was a "phantom" of DeLuna's imagination. In upholding the death penalty on appeal, both the state and federal courts concluded the same thing: Carlos Hernandez did not exist.The evidence the Columbia team uncovered reveals that Hernandez not only existed but was well known to the police and prosecutors. He had a long history of violent crimes similar to the one for which DeLuna was executed. Families of both Carloses mistook photos of each for the other, and Hernandez's violence continued after DeLuna was put to death. This book and its website (thewrongcarlos.net) reproduce law-enforcement, crime lab, lawyer, court, social service, media, and witness records, as well as court transcripts, photographs, radio traffic, and audio and videotaped interviews, documenting one of the most comprehensive investigations into a criminal case in U.S. history.The result is eye-opening yet may not be unusual. Faulty eyewitness testimony, shoddy legal representation, and prosecutorial misfeasance continue to put innocent people at risk of execution. The principal investigators conclude with novel suggestions for improving accuracy among the police, prosecutors, forensic scientists, and judges.

Disability Visibility: First-Person Stories from the Twenty-first Century


Alice WongChristie Thompson - 2020
    Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.

The World Was Whole


Fiona Wright - 2018
    But what about those who feel anxious, uncomfortable, unsettled within these havens? In The World Was Whole, Fiona Wright examines how we inhabit and remember the familiar spaces of our homes and suburbs, as we move through them and away from them into the wider world, devoting ourselves to the routines and rituals that make up our lives. These affectingly personal essays consider how all-consuming the engagement with the ordinary can be, and how even small encounters and interactions can illuminate our lives. Many of the essays are set in the inner and south-western suburbs of a major Australian city in the midst of rapid change. Others travel to the volcanic coastline of Iceland, the mega-city of Shanghai, the rugged Surf Coast of southern Victoria. The essays are poetic and observant, and often funny, animated by curiosity and candour. Beneath them all lies the experience of chronic illness and its treatment, and the consideration of how this can reshape and reorder our assumptions about the world and our place within it.

Claiming Disability: Knowledge and Identity


Simi Linton - 1998
    Claiming Disability captures this moment in the first comprehensive examination of disability studies as a field of inquiry. Arguing that disability studies takes for its subject matter not simply the variations that exist in human behavior, appearance, functioning, sensory acuity, and cognitive processing, but the meaning we make of those variations, this work offers both a passionate challenge to status quo definitions of disability and a methodology for reexamining it.

Haben: The Deafblind Woman Who Conquered Harvard Law


Haben Girma - 2019
    However, she had difficulty reading facial features or distinguishing people in group conversations. Relying on her own problem-solving skills, Girma overcame roadblocks while simultaneously obtaining her undergraduate and then law degree. In the process, she developed new methods of communication and found her calling in advocating for the deaf and blind communities in more accessible communication, education, and employment opportunities. As a lawyer and advocate, Girma shares a collection of vignettes illustrating the defining points in her life. She peppers her writing with a witty sense of humor and showcases her strength in facing obstacles, along with challenging antiquated societal beliefs about people with disabilities, whether describing her experience climbing Alaska's Mendenhall Glacier or helping a drunk friend get to his dorm by using her seeing-eye dog that he adores as a lure

Body Toxic


Susanne Paola Antonetta - 2001
    This is an American story. Two immigrant families drawn together from wildly different parts of the world, Italy on one side and Barbados on the other, pursued their vision of the American dream by building a summer escape in the boglands of New Jersey, where the rural and industrial collide. They picked gooseberries on hot afternoons and spent lazy days rowing dinghies down creeks. But the gooseberry patch was near a nuclear power plant that released record levels of radiation, and the creeks were invisibly ruined by illegally dumped toxic waste. One by one, family members found their bodies mirroring the compromised landscape of the Barrens: infertile and damaged by inexplicable growths. Soon the area parents were being asked to donate their children's baby teeth to be tested for radiation. Body Toxic is an environmental memoir--merging the personal and familial with the political and environmental. Intensely intimate and starkly contemporary, it is a story of bravery and resignation, of great hope and great loss. This beautifully composed book presents American families in the midst of the wreckage of the American dream.

The Two Kinds of Decay


Sarah Manguso - 2008
    In this captivating story, Manguso recalls her struggle: arduous blood cleansings, collapsed veins, multiple chest catheters, depression, the deaths of friends and strangers, addiction, and, worst of all for a writer, the trite metaphors that accompany prolonged illness. A book of tremendous grace, The Two Kinds of Decay transcends the very notion of what an illness story can and should be.