The Boy Who Loved Tornadoes


Randi Davenport - 2010
    And at fifteen, her son Chase entered an unremitting psychosis—pursued by terrifying images, unable to recognize his own mother, unwilling to eat or even talk—becoming ever more tortured and unreachable.Beautifully written and profoundly moving, this is the heartbreaking yet triumphant story of how Randi Davenport navigated the byzantine and broken health care system and managed not just to save her son from the brink of suicide but to bring him back to her again, and make her family whole.In The Boy Who Loved Tornadoes, she gives voice to the experiences of countless families whose struggles with mental illness are likewise invisible to the larger world.

Schuyler's Monster: A Father's Journey with His Wordless Daughter


Robert Rummel-Hudson - 2008
    Once they knew why she couldn’t speak, they needed to determine how to help her learn. They didn’t know that Schuyler was going to teach them a thing or two about fearlessness, tenacity, and joy.Schuyler’s Monster is more than the memoir of a parent dealing with a child’s disability. It is the story of the relationship between a unique and ethereal little girl floating through the world without words, and her earthbound father who struggles with whether or not he is the right dad for the job. It is the story of a family seeking answers to a child’s dilemma, but it is also a chronicle of their unique relationships, formed without traditional language against the expectations of a doubting world. It is a story that has equal measure of laughter and tears. Ultimately, it is the tale of a little girl who silently teaches a man filled with self-doubt how to be the father she needs. Schuyler can now communicate through assistive technology, and continues to be the source of her father's inspiration, literary and otherwise.

Uniquely Human: A Different Way of Seeing Autism


Barry M. Prizant - 2015
    This perspective leads to therapies focused on ridding individuals of autistic symptoms. In Uniquely Human, Dr. Barry M. Prizant suggests a major shift in understanding autism: Instead of classifying "autistic" behaviors as signs of pathology, he sees them as strategies to cope with a world that feels chaotic and overwhelming. Rather than curb these behaviors, it's better to enhance abilities, build on strengths, and offer supports that will naturally lead to more desirable behavior and a better quality of life. In fact, argues Dr. Prizant, attempts to eliminate autistic behaviors may actually interfere with important developmental processes.Including inspiring stories and practical advice drawn from Dr. Prizant's four-decade career working in universities, schools, hospitals, and in private practice, Uniquely Human offers a compassionate and insightful perspective that parents, professionals, and family members will find uplifting and hopeful.

The Psychopath Inside: A Neuroscientist's Personal Journey into the Dark Side of the Brain


James Fallon - 2013
    While studying brain scans of several family members, he discovered that one perfectly matched a pattern he d found in the brains of serial killers. This meant one of two things: Either his family s scans had been mixed up with those of felons or someone in his family was a psychopath.Even more disturbing: The scan in question was his own.This is Fallon s account of coming to grips with this discovery and its implications. How could he, a happy family man who had never been prone to violence, be a psychopath? How much did his biology influence his behavior?Fallon shares his journey to answer these questions and the discoveries that ultimately led to his conclusion: Despite everything science can teach, humans are even more complex than we can imagine."

Educating Esmé: Diary of a Teacher's First Year


Esmé Raji Codell - 1999
    Fresh-mouthed and free-spirited, the irrepressible Madame Esmé—as she prefers to be called—does the cha-cha during multiplication tables, roller-skates down the hallways, and puts on rousing performances with at-risk students in the library. Her diary opens a window into a real-life classroom from a teacher’s perspective. While battling bureaucrats, gang members, abusive parents, and her own insecurities, this gifted young woman reveals what it takes to be an exceptional teacher.  Heroine to thousands of parents and educators, Esmé now shares more of her ingenious and yet down-to-earth approaches to the classroom in a supplementary guide to help new teachers hit the ground running. As relevant and iconoclastic as when it was first published, Educating Esmé is a classic, as is Madame Esmé herself.

The Boy Who Loved Windows: Opening The Heart And Mind Of A Child Threatened With Autism


Patricia Stacey - 2003
    It is also a first-hand account of the new model of research and treatment pioneered by Stanley Greenspan, M.D. that makes this recovery possible for others. Walker, whom pediatricians worried would never walk, talk, or perhaps even hear or see, was lucky enough to be born to a family who would not accept defeat. Pat Stacey reveals the darkest fears, struggles, exhaustion, tiny victories, and eventual joys her family faced as they gradually brought Walker into full contact with the world.

Sickened: The Memoir of a Munchausen by Proxy Childhood


Julie Gregory - 2003
    Just twelve, she’s tall, skinny, and weak. It’s four o’clock, and she hasn’t been allowed to eat anything all day. Her mother, on the other hand, seems curiously excited. She's about to suggest open-heart surgery on her child to "get to the bottom of this." She checks her teeth for lipstick and, as the doctor enters, shoots the girl a warning glance. This child will not ruin her plans.SickenedFrom early childhood, Julie Gregory was continually X-rayed, medicated, and operated on—in the vain pursuit of an illness that was created in her mother’s mind. Munchausen by proxy (MBP) is the world’s most hidden and dangerous form of child abuse, in which the caretaker—almost always the mother—invents or induces symptoms in her child because she craves the attention of medical professionals. Many MBP children die, but Julie Gregory not only survived, she escaped the powerful orbit of her mother's madness and rebuilt her identity as a vibrant, healthy young woman.Sickened is a remarkable memoir that speaks in an original and distinctive Midwestern voice, rising to indelible scenes in prose of scathing beauty and fierce humor. Punctuated with Julie's actual medical records, it re-creates the bizarre cocoon of her family's isolated double-wide trailer, their wild shopping sprees and gun-waving confrontations, the astonishing naïveté of medical professionals and social workers. It also exposes the twisted bonds of terror and love that roped Julie's family together—including the love that made a child willing to sacrifice herself to win her mother's happiness. The realization that the sickness lay in her mother, not in herself, would not come to Julie until adulthood. But when it did, it would strike like lightning. Through her painful metamorphosis, she discovered the courage to save her own life—and, ultimately, the life of the girl her mother had found to replace her. Sickened takes us to new places in the human heart and spirit. It is an unforgettable story, unforgettably told.

All I Can Handle: I'm No Mother Teresa: A Life Raising Three Daughters with Autism


Kim Stagliano - 2010
    Spock? Check. Penelope Ann Leach (remember her?)? Check. What to Expect When You’re Expecting? Check. I had a seven hundred dollar Bellini crib for God’s sake! I was perfect. And so was Mia when she was born . . ." ...and so begins Kim Stagliano’s electrifying and hilarious memoir of her family’s journey raising three daughters with autism. In these stories, Stagliano has joined the ranks of David Sedaris and Augusten Burroughs with her amazing ability to lay everything on the table—from family, friends, and enemies to basement floods to birthdays to (possible) heroin addictions—eviscerating and celebrating the absurd. From her love of Howard Stern to her increasing activism in the autism community and exhaustive search for treatments that will help her daughters, she covers it all. Always outspoken, often touching, and sometimes heartbreaking, Kim Stagliano is a powerful new voice in comedic writing—her “Kimoir” (as she calls it) will be a must-read within the autism community and the literary world at large.

My Thirteenth Winter: A Memoir


Samantha Abeel - 2003
    For a straight-A student like Samantha, problems like these made no sense. She dreaded school, and began having anxiety attacks. In her thirteenth winter, she found the courage to confront her problems -- and was diagnosed with a learning disability. Slowly, Samantha's life began to change again. She discovered that she was stronger than she'd ever thought possible -- and that sometimes, when things look bleakest, hope is closer than you think.

Son Rise: The Miracle Continues


Barry Neil Kaufman - 1976
    It is the science of love, compassion and insight that will transform the world.

Let Me Hear Your Voice: A Family's Triumph over Autism


Catherine Maurice - 1993
    In her first year, she picked up words, smiled and laughed, and learned to walk. But then Anne-Marie began to turn inward. And when her little girl lost some of the words she had acquired, cried inconsolably, and showed no interest in anyone around her, Catherine Maurice took her to doctors who gave her a devastating diagnosis: autism.In their desperate struggle to save their daughter, the Maurices plunged into a medical nightmare of false hopes, "miracle cures," and infuriating suggestions that Anne-Marie's autism was somehow their fault. Finally, Anne-Marie was saved by an intensive behavioral therapy.Let Me Hear Your Voice is a mother's illuminating account of how one family triumphed over autism. It is an absolutely unforgettable book, as beautifully written as it is informative.

We're Not Broken: Changing the Autism Conversation


Eric Garcia - 2021
    It’s also my love letter to autistic people. For too long, we have been forced to navigate a world where all the road signs are written in another language.”With a reporter’s eye and an insider’s perspective, Eric Garcia shows what it’s like to be autistic across America.Garcia began writing about autism because he was frustrated by the media’s coverage of it; the myths that the disorder is caused by vaccines, the narrow portrayals of autistic people as white men working in Silicon Valley. His own life as an autistic person didn’t look anything like that. He is Latino, a graduate of the University of North Carolina, and works as a journalist covering politics in Washington D.C. Garcia realized he needed to put into writing what so many autistic people have been saying for years; autism is a part of their identity, they don’t need to be fixed. In We’re Not Broken, Garcia uses his own life as a springboard to discuss the social and policy gaps that exist in supporting those on the spectrum. From education to healthcare, he explores how autistic people wrestle with systems that were not built with them in mind. At the same time, he shares the experiences of all types of autistic people, from those with higher support needs, to autistic people of color, to those in the LGBTQ community. In doing so, Garcia gives his community a platform to articulate their own needs, rather than having others speak for them, which has been the standard for far too long.

3500: An Autistic Boy's Ten-Year Romance with Snow White


Ron Miles - 2013
    The last thing his parents expected was to see him come alive.What followed was a remarkable tale of inspiration, heartbreak, dedication and joy as Benjamin's family relocated from Seattle to Orlando in order to capture that magic and put it to practical use. Amidst the daily challenges of life for an autistic child, Benjamin's passion for one particular theme park attraction would lead his family on a breathtaking journey of hope and discovery.How many rides does it take for an ending to become a new beginning?

The Valedictorian of Being Dead: The True Story of Dying Ten Times to Live


Heather B. Armstrong - 2019
    Armstrong writes about her experience as one of only a few people to participate in an experimental treatment for depression involving ten rounds of a chemically induced coma approximating brain death.For years, Heather B. Armstrong has alluded to her struggle with depression on her website. But in 2016, Heather found herself in the depths of a depression she just couldn’t shake, an episode darker and longer than anything she had previously experienced. This book recalls the torturous eighteen months of suicidal depression she endured and the month-long experimental study in which doctors used propofol anesthesia to quiet all brain activity for a full fifteen minutes before bringing her back from a flatline. Ten times. The experience wasn’t easy. Not for Heather or her family. But a switch was flipped, and Heather hasn’t experienced a single moment of suicidal depression since. The Valedictorian of Being Dead brings to light a groundbreaking new treatment for depression.

My Lobotomy: A Memoir


Howard Dully - 2007
    Yet somehow, this normal boy became one of the youngest people on whom Dr. Walter Freeman performed his barbaric transorbital—or ice pick—lobotomy.Abandoned by his family within a year of the surgery, Howard spent his teen years in mental institutions, his twenties in jail, and his thirties in a bottle. It wasn’t until he was in his forties that Howard began to pull his life together. But even as he began to live the “normal” life he had been denied, Howard struggled with one question: Why?“October 8, 1960. I gather that Mrs. Dully is perpetually talking, admonishing, correcting, and getting worked up into a spasm, whereas her husband is impatient, explosive, rather brutal, won’t let the boy speak for himself, and calls him numbskull, dimwit, and other uncomplimentary names.”There were only three people who would know the truth: Freeman, the man who performed the procedure; Lou, his cold and demanding stepmother who brought Howard to the doctor’s attention; and his father, Rodney. Of the three, only Rodney, the man who hadn’t intervened on his son’s behalf, was still living. Time was running out. Stable and happy for the first time in decades, Howard began to search for answers. “December 3, 1960. Mr. and Mrs. Dully have apparently decided to have Howard operated on. I suggested [they] not tell Howard anything about it.”Through his research, Howard met other lobotomy patients and their families, talked with one of Freeman’s sons about his father’s controversial life’s work, and confronted Rodney about his complicity. And, in the archive where the doctor’s files are stored, he finally came face to face with the truth.Revealing what happened to a child no one—not his father, not the medical community, not the state—was willing to protect, My Lobotomy exposes a shameful chapter in the history of the treatment of mental illness. Yet, ultimately, this is a powerful and moving chronicle of the life of one man. Without reticence, Howard Dully shares the story of a painfully dysfunctional childhood, a misspent youth, his struggle to claim the life that was taken from him, and his redemption.