And Now I Spill the Family Secrets: An Illustrated Memoir


Margaret Kimball - 2021
    As she searches for answers nearly thirty years later, Kimball embarks on a journey into the secrets her family has kept for decades. Using old diary entries, hospital records, home videos, and other archives, Margaret pieces together a narrative map of her childhood—her mother's bipolar disorder, her grandmother's institutionalization, and her brother's increasing struggles—in an attempt to understand what no one likes to talk about: the fractures in her family.

Memory's Last Breath: Field Notes on My Dementia


Gerda Saunders - 2017
    Saunders' book is uncharted territory in the writing on dementia, a diagnosis one in nine Americans will receive. Based on the "field notes" she keeps in her journal, Memory's Last Breath is Saunders' astonishing window into a life distorted by dementia. She writes about shopping trips cut short by unintentional shoplifting, car journeys derailed when she loses her bearings, and the embarrassment of forgetting what she has just said to a room of colleagues. Coping with the complications of losing short-term memory, Saunders nonetheless embarks on a personal investigation of the brain and its mysteries, examining science and literature, and immersing herself in vivid memories of her childhood in South Africa. Written in a distinctive voice without a trace of self-pity, Memory's Last Breath is a remarkable, aphorism-free contribution to the literature of dementia--and an eye-opening personal memoir that will grip all adventurous readers.

Somebody I Used to Know: A Memoir


Wendy Mitchell - 2018
    Then, slowly, a mist settled deep inside the mind she once knew so well, blurring the world around her. She didn't know it then, but dementia was starting to take hold. In 2014, at age fifty-eight, she was diagnosed with young-onset Alzheimer's.Mitchell shares the heartrending story of her cognitive decline and how she has fought to stave it off. What lay ahead of her after the diagnosis was scary and unknowable, but Mitchell was determined and resourceful, and she vowed to outwit the disease for as long as she could.As Mitchell learned to embrace her new life, she began to see her condition as a gift, a chance to experience the world with fresh eyes and to find her own way to make a difference. Even now, her sunny outlook persists: She devotes her time to educating doctors, caregivers, and other people living with dementia, helping to reduce the stigma surrounding this insidious disease.Still living independently, Mitchell now uses Post-it notes and technology to remind her of her routines and has created a "memory room" where she displays photos--with labels--of her daughters, friends, and special places. It is a room where she feels calm and happy, especially on days when the mist descends.

The Last Kiss: A True Story of Love, Joy and Loss


Leslie Brody - 2012
    But six years after their wedding, they learned that Elliot, only 55, had pancreatic cancer - and would be lucky to live for a year or two.With a journalist's eye for intimate detail, Leslie shows how they made the very most of the time they had left together. Told with heart, humor and compelling immediacy, The Last Kiss is a love story about the life-affirming power of a passionate marriage, the importance of loyal friends, and the resilience of children growing up through one of life's harshest trials.This is the most important story she has ever told.

The Memory Palace


Mira Bartok - 2011
    It is a poignant observation about the relationship between Mira, her sister, and their mentally ill mother. Before she was struck with schizophrenia at the age of nineteen, beautiful piano protégé Norma Herr had been the most vibrant personality in the room. She loved her daughters and did her best to raise them well, but as her mental state deteriorated, Norma spoke less about Chopin and more about Nazis and her fear that her daughters would be kidnapped, murdered, or raped. When the girls left for college, the harassment escalated--Norma called them obsessively, appeared at their apartments or jobs, threatened to kill herself if they did not return home. After a traumatic encounter, Mira and her sister were left with no choice but to change their names and sever all contact with Norma in order to stay safe. But while Mira pursued her career as an artist--exploring the ancient romance of Florence, the eerie mysticism of northern Norway, and the raw desert of Israel--the haunting memories of her mother were never far away. Then one day, Mira’s life changed forever after a debilitating car accident. As she struggled to recover from a traumatic brain injury, she was confronted with a need to recontextualize her life--she had to relearn how to paint, read, and interact with the outside world. In her search for a way back to her lost self, Mira reached out to the homeless shelter where she believed her mother was living and discovered that Norma was dying. Mira and her sister traveled to Cleveland, where they shared an extraordinary reconciliation with their mother that none of them had thought possible. At the hospital, Mira discovered a set of keys that opened a storage unit Norma had been keeping for seventeen years. Filled with family photos, childhood toys, and ephemera from Norma’s life, the storage unit brought back a flood of previous memories that Mira had thought were lost to her forever. The Memory Palace is a breathtaking literary memoir about the complex meaning of love, truth, and the capacity for forgiveness among family. Through stunning prose and original art created by the author in tandem with the text, The Memory Palace explores the connections between mother and daughter that cannot be broken no matter how much exists--or is lost--between them.

Rosemary: The Hidden Kennedy Daughter


Kate Clifford Larson - 2015
    The daughter they secreted away made all the difference.Joe and Rose Kennedy’s strikingly beautiful daughter Rosemary attended exclusive schools, was presented as a debutante to the Queen of England, and traveled the world with her high-spirited sisters. And yet, Rosemary was intellectually disabled — a secret fiercely guarded by her powerful and glamorous family.  Major new sources — Rose Kennedy’s diaries and correspondence, school and doctors' letters, and exclusive family interviews — bring Rosemary alive as a girl adored but left far behind by her competitive siblings. Kate Larson reveals both the sensitive care Rose and Joe gave to Rosemary and then — as the family’s standing reached an apex — the often desperate and duplicitous arrangements the Kennedys made to keep her away from home as she became increasingly intractable in her early twenties. Finally, Larson illuminates Joe’s decision to have Rosemary lobotomized at age twenty-three, and the family's complicity in keeping the secret.  Rosemary delivers a profoundly moving coda: JFK visited Rosemary for the first time while campaigning in the Midwest; she had been living isolated in a Wisconsin institution for nearly twenty years. Only then did the siblings understand what had happened to Rosemary and bring her home for loving family visits. It was a reckoning that inspired them to direct attention to the plight of the disabled, transforming the lives of millions.

The Power of Different: The Link Between Disorder and Genius


Gail Saltz - 2017
    Saltz shows how the very conditions that cause people to experience difficulty at school, in social situations, at home, or at work, are inextricably bound to creative, disciplinary, artistic, empathetic, and cognitive abilities.In this pioneering work, readers will find engaging scientific research and stories from historical geniuses and everyday individuals who have not only made the most of their conditions, but who have flourished because of them. They are leaning into their brain differences to:*Identify areas of interest and expertise*Develop work arounds*Create the environments that best foster their talents*Forge rewarding interpersonal relationshipsEnlightening and inspiring, The Power of Different proves that the unique wiring of every brain can be a source of strength and productivity, and contributes to the richness of our world.

What Doesn't Kill You: A Life with Chronic Illness - Lessons from a Body in Revolt


Tessa Miller - 2021
    At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a yearslong nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better.Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn's, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications.Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all.

Know the Night: A Memoir of Survival in the Small Hours


Maria Mutch - 2013
    A chronicle of the witching hours between midnight and six a.m., this meditative book takes place during the twoyear period in which Mutch’s son Gabriel, who is autistic and also has Down syndrome, rarely slept through the night. In this tapestry composed of interwoven memories, we see both Gabriel’s difficult childhood and Maria’s introduction to the world of multiple disability parenting. As a counterpoint to Gabriel’s figurative isolation is the story of Admiral Richard Byrd, the polar explorer who journeyed alone into the Antarctic wilderness in the 1930s. His story creates a shared and powerful language for the experience of feeling alone. In these three characters—mother, son, and explorer—Mutch reveals overlapping and layered themes of solitude that, far from driving us apart, enlighten, uplift, and connect.

A Slant of Sun: One Child's Courage


Beth Kephart - 1998
    Like Operating Instructions and The Liars' Club, A Slant of Sun is a contemporary classic.Nearly one in five children grow up facing a developmental or behavioral challenge, and like them, Beth Kephart's son, Jeremy, showed early signs of being different: language eluded him, he preferred playing alone to an afternoon on the jungle gym. Doctors diagnosed Jeremy with a mild form of autism called Pervasive Developmental Disorder Not Otherwise Specified. A Slant of Sun is a passionate memoir about how Kephart, guided by the twin tools of intuition and imagination, helped lead her son toward wholeness. Pulsing with the questions, "Is normal possible? Definable?" A Slant of Sun speaks to everyone not just parents of the redemptive power of love.

The PDA Paradox: The Highs and Lows of My Life on a Little-Known Part of the Autism Spectrum


Harry Thompson - 2019
    The memoir brings to life Harry's past experiences and feelings, from his torrid time at school to the peaceful and meaningful moments when he is alone with a book, writing or creating YouTube videos.Eloquent and insightful, The PDA Paradox will bring readers to shock, laughter and tears through its overwhelming honesty. It is a turbulent memoir, but it ends with hope and a positive outlook to the future.

Temple Grandin: How the Girl Who Loved Cows Embraced Autism and Changed the World


Sy Montgomery - 2012
    Years later she was diagnosed with autism.   While Temple’s doctor recommended a hospital, her mother believed in her. Temple went to school instead.   Today, Dr. Temple Grandin is a scientist and professor of animal science at Colorado State University. Her world-changing career revolutionized the livestock industry. As an advocate for autism, Temple uses her experience as an example of the unique contributions that autistic people can make.   This compelling biography complete with Temple’s personal photos takes us inside her extraordinary mind and opens the door to a broader understanding of autism.

They Cage the Animals at Night


Jennings Michael Burch - 1984
    This is the story of how he grew up and gained the courage to reach out for love.