Book picks similar to
Trapped: My Life with Cerebral Palsy by Fran Macilvey
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The Diary of a Single Parent Abroad
Jill Pennington - 2012
Shortly after the move, she discovered her husband had been having an affair and had no intentions of staying in Italy. Despite being in a foreign country with no income, limited language skills, a house that needed rebuilding and three young children to care for, she never once considered returning to the UK. With strength and determination she accepted any challenge, dismantling a derelict house to ground level, digging out a three metre deep well with her hands to get free water and overcoming her fear of the chainsaw to cut the winter wood. When there was very little money for food she made risotto with nettles collected from the roadside. She overcame many problems learned new skills and discovered that money is not important, and the only things in life that matters are health, happiness and her children. Jill's story is delivered with an ever present hint of humour, because, she says, "Without laughter life wouldn't be funny!"
Riding the Bus with My Sister: A True Life Journey
Rachel Simon - 2002
Beth spends her days riding the buses in her Pennsylvania city. The drivers, a lively group, are her mentors; her fellow passengers are her community. One day, Beth asked Rachel to accompany her on the buses for an entire year; the book is the chronicle of that remarkable time. Rachel, a writer and college teacher whose hyperbusy life camouflaged her emotional isolation, had much to learn in her sister's extraordinary world. Here are life lessons from which every reader can profit: how to live in the moment, how to pay attention to what really matters, how to change, how to love, and how to slow down and enjoy the ride. Simon elegantly braids together riveting memories of terrifying maternal abandonment, fierce sisterly loyalty, and astonishing forgiveness. She brings to light the almost invisible world of mental retardation, finds unlikely heroes in everyday life, and portrays her very special sister Beth as the endearing and indomitable person she is. This heartwarming book takes the reader on an inspirational journey, at once unique and universal.
Cheer Up, Love: Adventures in Depression with the Crab of Hate
Susan Calman - 2016
Her solo stand up show, Susan Calman is Convicted, was broadcast on BBC Radio 4 and dealt with subjects like the death penalty, appearance and depression. The reaction to the show she wrote about mental health was so positive that she wanted to expand on the show and write a more detailed account of surviving when you're the world's most negative person. The Crab of Hate is the personification of Calman's depression and her version of the notorious Black Dog. A constant companion in her life, the Crab has provided her with the best, and very worst of times. This is a very personal memoir of how, after many years and with a lot of help and talking, she has embraced her dark side and realised that she can be the most joyous sad person you'll ever meet.
The Neuroscientist Who Lost Her Mind: My Tale of Madness and Recovery
Barbara K. Lipska - 2018
As the cancer progressed and was treated, the author experienced behavioral and cognitive symptoms connected to a range of mental disorders, including her professional specialty, schizophrenia. Lipska's family and associates were alarmed by the changes in her behavior, which she failed to acknowledge herself. Gradually, after a course of immunotherapy, Lipska returned to normal functioning, recalled her experience and, through her knowledge of neuroscience, identified the ways in which her brain changed during treatment. Lipska admits her condition was unusual; after recovery she was able to return to her research and resume her athletic training and compete in a triathalon. Most patients with similar brain cancers rarely survive to describe their ordeal. Lipska's memoir, coauthored with journalist McArdle, shows that strength and courage but also a encouraging support network are vital to recovery
Ghost Boy: My Miraculous Escape from a Life Locked Inside My Own Body
Martin Pistorius - 2011
But he was alive and trapped inside his own body for ten years.In January 1988 Martin Pistorius, aged twelve, fell inexplicably sick. First he lost his voice and stopped eating. Then he slept constantly and shunned human contact. Doctors were mystified. Within eighteen months he was mute and wheelchair-bound. Martin's parents were told an unknown degenerative disease left him with the mind of a baby and less than two years to live.Martin was moved to care centers for severely disabled children. The stress and heartache shook his parents’ marriage and their family to the core. Their boy was gone. Or so they thought.Ghost Boy is the heart-wrenching story of one boy’s return to life through the power of love and faith. In these pages, readers see a parent’s resilience, the consequences of misdiagnosis, abuse at the hands of cruel caretakers, and the unthinkable duration of Martin’s mental alertness betrayed by his lifeless body.We also see a life reclaimed—a business created, a new love kindled—all from a wheelchair. Martin's emergence from his own darkness invites us to celebrate our own lives and fight for a better life for others.
Old Before My Time: Hayley Okines' Life with Progeria
Hayley Okines - 2011
Born with the rare genetic condition progeria, she ages eight times faster than the average person. In medical terms her body is like that of a 100-year-old woman. Yet she faces her condition with immense courage and a refreshing lack of self-pity. In Old Before My Time, Hayley and her mum Kerry reflect on her unusual life. Share Hayley's excitement as she travels the world meeting her pop heroes Kylie, Girls Aloud and Justin Bieber and her sadness as she loses her best friend to the disease at the age of 11. Now as she passes the age of 13 -- the average life expectancy for a child with progeria -- Hayley talks frankly about her hopes for the future and her pioneering drug trials in America which could unlock the secrets of ageing for everyone...
Two Kisses for Maddy: A Memoir of Loss and Love
Matthew Logelin - 2011
Matt and Liz Logelin were high school sweethearts. After years of long-distance dating, the pair finally settled together in Los Angeles, and they had it all: a perfect marriage, a gorgeous new home, and a baby girl on the way. Liz's pregnancy was rocky, but they welcomed Madeline, beautiful and healthy, into the world. Just twenty-seven hours later, Liz suffered a pulmonary embolism and died instantly, without ever holding the daughter whose arrival she had so eagerly awaited. Though confronted with devastating grief and the responsibilities of a new and single father, Matt did not surrender to devastation; he chose to keep moving forward-to make a life for Maddy. In this memoir, Matt shares bittersweet and often humorous anecdotes of his courtship and marriage to Liz; of relying on his newborn daughter for the support that she unknowingly provided; and of the extraordinary online community of strangers who have become his friends. In honoring Liz's legacy, heartache has become solace.
If at Birth You Don't Succeed: My Adventures with Disaster and Destiny
Zach Anner - 2016
Two months early, underweight and under-prepared for life, he entered the world with cerebral palsy and an uncertain future. So how did this hairless mole-rat of a boy blossom into a viral internet sensation who's hosted two travel shows, impressed Oprah, driven the Mars Rover, and inspired a John Mayer song? (It wasn't Your Body is a Wonderland.)Zach lives by the mantra: when life gives you wheelchair, make lemonade. Whether recounting a valiant childhood attempt to woo Cindy Crawford, encounters with zealous faith healers, or the time he crapped his pants mere feet from Dr. Phil, Zach shares his fumbles with unflinching honesty and characteristic charm. By his thirtieth birthday, Zach had grown into an adult with a career in entertainment, millions of fans, a loving family, and friends who would literally carry him up mountains.If at Birth You Don't Succeed is a hilariously irreverent and heartfelt memoir about finding your passion and your path even when it's paved with epic misadventure. This is the unlikely but not unlucky story of a man who couldn't safely open a bag of Skittles, but still became a fitness guru with fans around the world. You'll laugh, you'll cry, you'll fall in love with the Olive Garden all over again, and learn why cerebral palsy is, definitively, "the sexiest of the palsies."
Until I Say Goodbye: A Book about Living
Susan Spencer-Wendel - 2012
She was forty-four years old, with a devoted husband and three young children, and she had only one year of health remaining.Susan decided to live that year with joy.She quit her job as a journalist and spent time with her family. She built an outdoor meeting space for friends in her backyard. And she took seven trips with the seven most important people in her life. As her health declined, Susan journeyed to the Yukon, Hungary, the Bahamas, and Cyprus. She took her sons to swim with dolphins, and her teenage daughter, Marina, to Kleinfeld's bridal shop in New York City to see her for the first and last time in a wedding dress.She also wrote this book. No longer able to walk or even to lift her arms, she tapped it out letter by letter on her iPhone using only her right thumb, the last finger still working.However, Until I Say Good-Bye is not angry or bitter. It is sad in parts--how could it not be?--but it is filled with Susan's optimism, joie de vivre, and sense of humor. It is a book about life, not death. One that, like Susan, will make everyone smile.From the Burger King parking lot where she cried after her diagnosis to a snowy hot spring near the Arctic Circle, from a hilarious family Christmas disaster to the decrepit monastery in eastern Cyprus where she rediscovered her heritage, Until I Say Good-Bye is not only Susan Spencer-Wendel's unforgettable gift to her loved ones--a heartfelt record of their final experiences together--but an offering to all of us: a reminder that "every day is better when it is lived with joy."
When Breath Becomes Air
Paul Kalanithi - 2016
One day he was a doctor treating the dying, and the next he was a patient struggling to live. And just like that, the future he and his wife had imagined evaporated. When Breath Becomes Air chronicles Kalanithi's transformation from a naïve medical student "possessed," as he wrote, "by the question of what, given that all organisms die, makes a virtuous and meaningful life" into a neurosurgeon at Stanford working in the brain, the most critical place for human identity, and finally into a patient and new father confronting his own mortality. What makes life worth living in the face of death? What do you do when the future, no longer a ladder toward your goals in life, flattens out into a perpetual present? What does it mean to have a child, to nurture a new life as another fades away? These are some of the questions Kalanithi wrestles with in this profoundly moving, exquisitely observed memoir. Paul Kalanithi died in March 2015, while working on this book, yet his words live on as a guide and a gift to us all. "I began to realize that coming face to face with my own mortality, in a sense, had changed nothing and everything," he wrote. "Seven words from Samuel Beckett began to repeat in my head: 'I can't go on. I'll go on.'" When Breath Becomes Air is an unforgettable, life-affirming reflection on the challenge of facing death and on the relationship between doctor and patient, from a brilliant writer who became both.
Everybody's Got Something
Robin Roberts - 2014
Or you already have or you will. As momma always said, "Everybody's got something." So begins beloved Good Morning America anchor Robin Roberts's new memoir in which she recounts the incredible journey that's been her life so far, and the lessons she's learned along the way. With grace, heart, and humor, she writes about overcoming breast cancer only to learn five years later that she will need a bone marrow transplant to combat a rare blood disorder, the grief and heartbreak she suffered when her mother passed away, her triumphant return to GMA after her medical leave, and the tremendous support and love of her family and friends that saw her through her difficult times. Following her mother's advice to "make your mess your message," Robin taught a nation of viewers that while it is true that we've all got something -- a medical crisis to face, aging parents to care for, heartbreak in all its many forms --- we've also all got something to give: hope, encouragement, a life-saving transplant or a spirit-saving embrace. As Robin has learned, and what readers of her remarkable story will come to believe as well, it's all about faith, family and friends. And finding out that you are stronger, much stronger, than you think.
Where the Light Gets In: Losing My Mother Only to Find Her Again
Kimberly Williams-Paisley - 2016
But behind the scenes, Kim was dealing with a tragic secret: her mother, Linda, was suffering from a rare form of dementia that slowly crippled her ability to talk, write and eventually recognize people in her own family. Where the Light Gets In tells the full story of Linda’s illness—called primary progressive aphasia—from her early-onset diagnosis at the age of 62 through the present day. Kim draws a candid picture of the ways her family reacted for better and worse, and how she, her father and two siblings educated themselves, tried to let go of shame and secrecy, made mistakes, and found unexpected humor and grace in the midst of suffering. Ultimately the bonds of family were strengthened, and Kim learned ways to love and accept the woman her mother became. With a moving foreword by actor and advocate Michael J. Fox, Where the Light Gets In is a heartwarming tribute to the often fragile yet unbreakable relationships we have with our mothers.
Born on a Blue Day: Inside the Extraordinary Mind of an Autistic Savant
Daniel Tammet - 2006
Tammet's ability to think abstractly, deviate from routine, and empathize, interact and communicate with others is impaired, yet he's capable of incredible feats of memorization and mental calculation. Besides being able to effortlessly multiply and divide huge sums in his head with the speed and accuracy of a computer, Tammet, the subject of the 2005 documentary Brainman, learned Icelandic in a single week and recited the number pi up to the 22,514th digit, breaking the European record. He also experiences synesthesia, an unusual neurological syndrome that enables him to experience numbers and words as "shapes, colors, textures and motions." Tammet traces his life from a frustrating, withdrawn childhood and adolescence to his adult achievements, which include teaching in Lithuania, achieving financial independence with an educational Web site and sustaining a long-term romantic relationship. As one of only about 50 people living today with synesthesia and autism, Tammet's condition is intriguing to researchers; his ability to express himself clearly and with a surprisingly engaging tone (given his symptoms) makes for an account that will intrigue others as well.
Failing Up: How to Take Risks, Aim Higher, and Never Stop Learning
Leslie Odom Jr. - 2018
Jr, burst on the scene in 2015, originating the role of Aaron Burr in the Broadway musical phenomenon Hamilton. Since then, he has performed for sold-out audiences, sung for the Obamas at the White House, and won a Tony Award for Best Leading Actor in a Musical. But before he landed the role of a lifetime in one of the biggest musicals of all time, Odom put in years of hard work as a singer and an actor.With personal stories from his life, Odom asks the questions that will help you unlock your true potential and achieve your goals even when they seem impossible. What work did you put in today that will help you improve tomorrow? How do you surround yourself with people who will care about your dreams as much as you do? How do you know when to play it safe and when to risk it all for something bigger and better?These stories will inspire you, motivate you, and empower you for the greatness that lies ahead, whether you're graduating from college, starting a new job, or just looking to live each day to the fullest.
The Prison Doctor
Amanda Brown - 2019
From miraculous pregnancies to dirty protests, and from violent attacks on prisoners to heartbreaking acts of self-harm, she has witnessed it all. In this memoir, Amanda reveals the stories, the patients and the cases that have shaped a career helping those most of us would rather forget.