Americans are dying sooner, and living in poorer health. Alexander argues that no plan will solve America’s health crisis until the deeper causes of that crisis are addressed. Bryan, Ohio's hospital, is losing money, making it vulnerable to big health systems seeking domination and Phil Ennen, CEO, has been fighting to preserve its independence. Meanwhile, Bryan, a town of 8,500 people in Ohio’s northwest corner, is still trying to recover from the Great Recession. As local leaders struggle to address the town’s problems, and the hospital fights for its life amid a rapidly consolidating medical and hospital industry, a 39-year-old diabetic literally fights for his limbs, and a 55-year-old contractor lies dying in the emergency room. With these and other stories, Alexander strips away the wonkiness of policy to reveal Americans’ struggle for health against a powerful system that’s stacked against them, but yet so fragile it blows apart when the pandemic hits. Culminating with COVID-19, this book offers a blueprint for how we created the crisis we're in.

    Months later, several health professionals faced criminal allegations that they deliberately injected numerous patients with drugs to hasten their deaths. Five Days at Memorial, the culmination of six years of reporting, unspools the mystery of what happened in those days, bringing the reader into a hospital fighting for its life and into a conversation about the most terrifying form of health care rationing.In a voice at once involving and fair, masterful and intimate, Fink exposes the hidden dilemmas of end-of-life care and reveals just how ill-prepared we are in America for the impact of large-scale disasters—and how we can do better. A remarkable book, engrossing from start to finish, Five Days at Memorial radically transforms your understanding of human nature in crisis.

    What happened during those blackouts has made Sybil's experience one of the most famous psychological cases in the world.

    But all of these plans changed when Ronan was diagnosed at nine months old with Tay-Sachs disease, a rare and always-fatal degenerative disorder.  Ronan was not expected to live beyond the age of three; he would be permanently stalled at a developmental level of six months.  Rapp and her husband were forced to re-evaluate everything they thought they knew about parenting.  They would have to learn to live with their child in the moment; to find happiness in the midst of sorrow; to parent without a future.The Still Point of the Turning World is the story of a mother’s journey through grief and beyond it.  Rapp’s response to her son’s diagnosis was a belief that she needed to “make my world big”—to make sense of her family’s situation through art, literature, philosophy, theology and myth.  Drawing on a broad range of thinkers and writers, from C.S. Lewis to Sylvia Plath, Hegel to Mary Shelley’s Frankenstein, Rapp learns what wisdom there is to be gained from parenting a terminally ill child.  In luminous, exquisitely moving prose she re-examines our most fundamental assumptions about what it means to be a good parent, to be a success, and to live a meaningful life.

    He writes about families coping with deafness, dwarfism, Down's syndrome, autism, schizophrenia, or multiple severe disabilities; with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, and Solomon documents triumphs of love over prejudice in every chapter.All parenting turns on a crucial question: to what extent should parents accept their children for who they are, and to what extent they should help them become their best selves. Drawing on ten years of research and interviews with more than three hundred families, Solomon mines the eloquence of ordinary people facing extreme challenges.Elegantly reported by a spectacularly original and compassionate thinker, Far from the Tree explores how people who love each other must struggle to accept each other—a theme in every family’s life.

    The tumour was located in the area of the brain that controls speech and language, and would eventually rob him of the ability to speak. Tom was 53 when he died, leaving Marion and their son Eugene, just two years old, alone. In short bursts of beautiful, textured prose, Coutts describes the eighteen months leading up to Tom's death. The Iceberg is an unflinching, honest exploration of staring death in the face, finding solace in strange places, finding beauty and even joy in the experience of dying. Written with extraordinary narrative force and power, it is almost shocking in its rawness. Nothing is kept from the reader: the fury, the occasional spells of selfishness, the indignity of being trapped in a hopeless situation. It is a story of pain and sadness, but also an uplifting and life-affirming tale of great fortitude, courage, determination – and above all, love.

    There have been exhilarating highs and devastating lows, but his love for the practice of neurosurgery has never wavered. Following the publication of his celebrated New York Times bestseller Do No Harm, Marsh retired from his full-time job in England to work pro bono in Ukraine and Nepal. In Admissions, he describes the difficulties of working in these troubled, impoverished countries and the further insights it has given him into the practice of medicine. Marsh also faces up to the burden of responsibility that can come with trying to reduce human suffering. Unearthing memories of his early days as a medical student and the experiences that shaped him as a young surgeon, he explores the difficulties of a profession that deals in probabilities rather than certainties and where the overwhelming urge to prolong life can come at a tragic cost for patients and those who love them. Reflecting on what forty years of handling the human brain has taught him, Marsh finds a different purpose in life as he approaches the end of his professional career and a fresh understanding of what matters to us all in the end.

    But it wasn’t long before they noticed a marked difference between Jonas and his brother, Wyatt. Jonas preferred sports and trucks and many of the things little boys were “supposed” to like; but Wyatt liked princess dolls and dress-up and playing Little Mermaid. By the time the twins were toddlers, confusion over Wyatt’s insistence that he was female began to tear the family apart. In the years that followed, the Maineses came to question their long-held views on gender and identity, to accept and embrace Wyatt’s transition to Nicole, and to undergo an emotionally wrenching transformation of their own that would change all their lives forever.Becoming Nicole chronicles a journey that could have destroyed a family but instead brought it closer together. It’s the story of a mother whose instincts told her that her child needed love and acceptance, not ostracism and disapproval; of a Republican, Air Force veteran father who overcame his deepest fears to become a vocal advocate for trans rights; of a loving brother who bravely stuck up for his twin sister; and of a town forced to confront its prejudices, a school compelled to rewrite its rules, and a courageous community of transgender activists determined to make their voices heard. Ultimately, Becoming Nicole is the story of an extraordinary girl who fought for the right to be herself.Granted wide-ranging access to personal diaries, home videos, clinical journals, legal documents, medical records, and the Maineses themselves, Amy Ellis Nutt spent almost four years reporting this immersive account of an American family confronting an issue that is at the center of today’s cultural debate. Becoming Nicole will resonate with anyone who’s ever raised a child, felt at odds with society’s conventions and norms, or had to embrace life when it plays out unexpectedly. It’s a story of standing up for your beliefs and yourself—and it will inspire all of us to do the same.

    Matt and Liz Logelin were high school sweethearts. After years of long-distance dating, the pair finally settled together in Los Angeles, and they had it all: a perfect marriage, a gorgeous new home, and a baby girl on the way. Liz's pregnancy was rocky, but they welcomed Madeline, beautiful and healthy, into the world. Just twenty-seven hours later, Liz suffered a pulmonary embolism and died instantly, without ever holding the daughter whose arrival she had so eagerly awaited. Though confronted with devastating grief and the responsibilities of a new and single father, Matt did not surrender to devastation; he chose to keep moving forward-to make a life for Maddy. In this memoir, Matt shares bittersweet and often humorous anecdotes of his courtship and marriage to Liz; of relying on his newborn daughter for the support that she unknowingly provided; and of the extraordinary online community of strangers who have become his friends. In honoring Liz's legacy, heartache has become solace.

    She was four years old. Marina Chapman was stolen from her housing estate and then abandoned deep in the Colombian jungle. That she survived is a miracle. Two days later, half-drugged, terrified, and starving, she came upon a troop of capuchin monkeys. Acting entirely on instinct, she tried to do what they did: she ate what they ate and copied their actions, and little by little, learned to fend for herself.So begins the story of her five years among the monkeys, during which time she gradually became feral; she lost the ability to speak, lost all inhibition, lost any real sense of being human, replacing the structure of human society with the social mores of her new simian family. But society was eventually to reclaim her. At age ten she was discovered by a pair of hunters who took her to the lawless Colombian city of Cucuta where, in exchange for a parrot, they sold her to a brothel. When she learned that she was to be groomed for prostitution, she made her plans to escape. But her adventure wasn’t over yet...In the vein of "Slumdog Millionaire" and "City of God," this rousing story of a lost child who overcomes the dangers of the wild and the brutality of the streets to finally reclaim her life will astonish readers everywhere.

    Extraordinary.” — Elizabeth Cohen, MPH, CNN Senior Medical CorrespondentCritical Care is the powerful and absorbing memoir of Theresa Brown—a regular contributor to the New York Times blog “Well”—about her experiences during the first year on the job as an oncology nurse; in the process, Brown sheds brilliant light on issues of mortality and meaning in our lives.

    The Survivors Club: The Secrets and Science that Could Save Your Life

    You will be hooked from start to finish, as you go from the labs, where obsessive, fiercely competitive scientists struggle for a breakthrough, to Wall Street, where the wheeling and dealing takes on a life of its own, as Boger courts investors and finally decides to take Vertex public. Here is a fascinating no-holds-barred account of the business of science, which includes an updated epilogue about the most recent developments in the quest for a drug to cure AIDS.

    By the time Molly was old enough to begin to know him, he was frequently delusional, heavily medicated, living in hospitals or care homes or on the road. This title tells her story.

    What she did not count on was how much death would be a part of her work. Almost immediately, Chen found herself wrestling with medicine’s most profound paradox, that a profession premised on caring for the ill also systematically depersonalizes dying. Final Exam follows Chen over the course of her education, training, and practice as she grapples at strikingly close range with the problem of mortality, and struggles to reconcile the lessons of her training with her innate knowledge of shared humanity, and to separate her ideas about healing from her fierce desire to cure.From her first dissection of a cadaver in gross anatomy to the moment she first puts a scalpel to a living person; from the first time she witnesses someone flatlining in the emergency room to the first time she pronounces a patient dead, Chen is struck by her own mortal fears: there was a dying friend she could not call; a young patient’s tortured death she could not forget; even the sense of shared kinship with a corpse she could not cast aside when asked to saw its pelvis in two. Gradually, as she confronts the ways in which her fears have incapacitated her, she begins to reject what she has been taught about suppressing her feelings for her patients, and she begins to carve out a new role for herself as a physician and as human being. Chen’s transfixing and beautiful rumination on how doctors negotiate the ineluctable fact of death becomes, in the end, a brilliant questioning of how we should live.Moving and provocative, motored equally by clinical expertise and extraordinary personal grace, this is a piercing and compassionate journey into the heart of a world that is hidden and yet touches all of our lives. A superb addition to the best medical literature of our time.