Illness as Metaphor and AIDS and its Metaphors


Susan Sontag - 1989
    By demystifying the fantasies surrounding cancer, Sontag shows cancer for what it is--just a disease. Cancer, she argues, is not a curse, not a punishment, certainly not an embarrassment and, it is highly curable, if good treatment is followed.Almost a decade later, with the outbreak of a new, stigmatized disease replete with mystifications and punitive metaphors, Sontag wrote a sequel to Illness as Metaphor, extending the argument of the earlier book to the AIDS pandemic.These two essays now published together, Illness as Metaphor and AIDS and Its Metaphors, have been translated into many languages and continue to have an enormous influence on the thinking of medical professionals and, above all, on the lives of many thousands of patients and caregivers.

This Chair Rocks: A Manifesto Against Ageism


Ashton Applewhite - 2016
    Beauty and pharmaceutical companies work overtime to convince people to purchase products that will retain their youthful appearance and vitality. Wrinkles are embarrassing. Gray hair should be colored and bald heads covered with implants. Older minds and bodies are too frail to keep up with the pace of the modern working world and olders should just step aside for the new generation. Ashton Applewhite once held these beliefs too until she realized where this prejudice comes from and the damage it does. Lively, funny, and deeply researched, This Chair Rocks traces her journey from apprehensive boomer to pro-aging radical, and in the process debunks myth after myth about late life. Explaining the roots of ageism in history and how it divides and debases, Applewhite examines how ageist stereotypes cripple the way our brains and bodies function, looks at ageism in the workplace and the bedroom, exposes the cost of the all-American myth of independence, critiques the portrayal of elders as burdens to society, describes what an all-age-friendly world would look like, and offers a rousing call to action. It’s time to create a world of age equality by making discrimination on the basis of age as unacceptable as any other kind of bias. Whether you’re older or hoping to get there, this book will shake you by the shoulders, cheer you up, make you mad, and change the way you see the rest of your life. Age pride!“Wow. This book totally rocks. It arrived on a day when I was in deep confusion and sadness about my age. Everything about it, from my invisibility to my neck. Within four or five wise, passionate pages, I had found insight, illumination, and inspiration. I never use the word empower, but this book has empowered me.”—Anne Lamott, New York Times bestselling author

Final Exit: The Practicalities of Self-deliverance & Assisted Suicide for the Dying


Derek Humphry - 1991
    It helped thousands by giving clear instructions to doctors, nurses, and families on how to handle a patient's request for euthanasia.In the wake of court cases and legislative mandates, this revised and updated third edition goes far beyond the original to provide new information about the legality of euthanasia and assisted suicide, and a thoughtful examination of the personal issues involved. It has become the essential source to help loved ones and supportive doctors remain within existing laws and keep a person's dying intimate, private, and dignified.With deep compassion and sensitivity, it spells out why a living will may not be sufficient to have a person's wishes carried out—and what document is a better alternative. It updates where to get proper drugs and exactly how to carry out the quickest, most peaceful way to make a final exit. Finally, it gently talks to a person considering self-deliverance about alternatives, planning, and the means to make every death a "good death" at our time of greatest need.

On Vanishing: Mortality, Dementia, and What It Means to Disappear


Lynn Casteel Harper - 2020
    Diseases such as Alzheimer’s erase parts of one’s memory but are also often said to erase the self. People don’t simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsize fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.”Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the U.S. health-care system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject.Expanding our understanding of dementia beyond progressive vacancy and dread, On Vanishing makes room for beauty and hope, and opens a space in which we might start to consider better ways of caring for, and thinking about, our fellow human beings. It is a rich and startling work of nonfiction that reveals cognitive change as an essential aspect of what it means to be mortal.

The American Way of Death Revisited


Jessica Mitford - 1963
    When first published in 1963 this landmark of investigative journalism became a runaway bestseller and resulted in legislation to protect grieving families from the unscrupulous sales practices of those in "the dismal trade."Just before her death in 1996, Mitford thoroughly revised and updated her classic study. The American Way of Death Revisited confronts new trends, including the success of the profession's lobbyists in Washington, inflated cremation costs, the telemarketing of pay-in-advance graves, and the effects of monopolies in a death-care industry now dominated by multinational corporations. With its hard-nosed consumer activism and a satiric vision out of Evelyn Waugh's novel The Loved One, The American Way of Death Revisited will not fail to inform, delight, and disturb.

A Grace Disguised: How the Soul Grows through Loss


Jerry Sittser - 1995
    In an instant, a tragic car accident claimed three generations of his family: his mother, his wife, and his young daughter. While most of us will not experience such a catastrophic loss in our lifetime, all of us will taste it. And we can, if we choose, know as well the grace that transforms it. A Grace Disguised plumbs the depths of sorrow, whether due to illness, divorce, or the loss of someone we love. The circumstances are not important; what we do with those circumstances is. In coming to the end of ourselves, we can come to the beginning of a new life one marked by spiritual depth, joy, compassion, and a deeper appreciation of simple blessings.

Invisible: How Young Women with Serious Health Issues Navigate Work, Relationships, and the Pressure to Seem Just Fine


Michele Lent Hirsch - 2018
    She did.Sophie navigates being the only black scientist in her lab while studying the very disease, HIV, that she hides from her coworkers.For Victoria, coming out as a transgender woman was less difficult than coming out as bipolar.Author Michele Lent Hirsch knew she couldn't be the only woman who's faced serious health issues at a young age, as well as the resulting effects on her career, her relationships, and her sense of self. What she found while researching Invisible was a surprisingly large and overlooked population with important stories to tell.Though young women with serious illness tend to be seen as outliers, young female patients are in fact the primary demographic for many illnesses. They are also one of the most ignored groups in our medical system--a system where young women, especially women of color and trans women, are invisible.And because of expectations about gender and age, young women with health issues must often deal with bias in their careers and personal lives. Not only do they feel pressured to seem perfect and youthful, they also find themselves amid labyrinthine obstacles in a culture that has one narrow idea of womanhood.Lent Hirsch weaves her own harrowing experiences together with stories from other women, perspectives from sociologists on structural inequality, and insights from neuroscientists on misogyny in health research. She shows how health issues and disabilities amplify what women in general already confront: warped beauty standards, workplace sexism, worries about romantic partners, and mistrust of their own bodies. By shining a light on this hidden demographic, Lent Hirsch explores the challenges that all women face.

Food of the Gods: The Search for the Original Tree of Knowledge


Terence McKenna - 1992
    Illustrated.

How to Be a Patient: The Essential Guide to Navigating the World of Modern Medicine


Sana Goldberg - 2019
    From the routine to the unexpected, How to Be a Patient is your ultimate guide to better healthcare.Let’s face it: nobody likes going to the doctor. It can be uncomfortable, nerve wracking, expensive—and that’s just for routine care! When it’s an emergency—how do you choose between the ER, Urgent Care, or waiting-until-Monday? And for everything in between, how do you get an accurate diagnosis and timely treatment when something is off? In How to Be a Patient, registered nurse and outspoken public health advocate Sana Goldberg provides readers with an honest guide to the complicated and often-intimidating medical landscape.At once a quick-reference pocket guide and a lifelong framework for approaching your healthcare, this invaluable resource empowers readers to take charge of their wellbeing. It lifts the veil on a complicated, fractured system, giving patients the tools communicate with its players and sidestep its most vexing realities. Warm and trustworthy, Goldberg’s advice is as expert as it is easy-to-understand, as she calls on years of first-hand nursing experience to help readers confront challenges, take advantage of opportunities, and maximize insurance resources while fending off hidden fees that slip by unnoticed.From setting yourself up when all is well and making the most of routine appointments, to understanding hospital culture for a more positive experience, How to Be a Patient is relevant for readers at any age. With sections including When It’s An Emergency, When It’s Chronic, When You Have to Stand Up to Insurance, and When It’s Your Person, Goldberg ensures patients have what they need in their hands to feel informed and confident as they move through the world of modern medicine.Containing glossaries of medical jargon, lists of free, essential screenings and unnecessary medical tests, as well as helpful appendices to assist patients in tracking their family history, prescriptions, and more, How to Be a Patient is a must-have book for anyone invested in their long-term health.

The Empty Room: Surviving the Loss of a Brother or Sister at Any Age


Elizabeth DeVita-Raeburn - 2004
    Her parents explain that he went to the hospital for a while. "A while" turns out to be eight years in a plastic bubble, where he dies of a rare autoimmune disease at age seventeen. "The Empty Room" is DeVita-Raeburn's unflinching, often haunting recollection of life with Ted, woven into a larger exploration of the enormous -- and often unacknowledged -- impact of a sister's or brother's death on remaining siblings.With an inspired blend of life experience, journalistic acumen, and research training, DeVita-Raeburn draws on interviews of more than two hundred survivors to render a powerful portrait of the range of conditions and emotions, from withdrawal to guilt to rage, that attend such loss. Finding little in professional literature, she realizes that those who suffer are the experts. And in the end, it is DeVita-Raeburn and her experts who present a larger, more complex understanding of the sibling bond, the lifelong impact of the severing of that bond, and the tools needed to heal and move forward."The Empty Room" is a fascinating literary hybrid in which Elizabeth DeVita-Raeburn seamlessly fuses deeply affecting remembrance with a pragmatic, lucidly written exploration of the healing journey.

Heartwood: The Art of Living with the End in Mind


Barbara Becker - 2021
    Can we live our lives more fully knowing some day we will die?With a keen eye towards that which makes life worth living, Barbara Becker—a perpetual seeker, a mom, and an interfaith leader—recounts stories where life and death intersect in unexpected ways. She volunteers on a hospice floor, becomes an eager student of the many ways people find meaning at the end of life, and accompanies her parents in their final days.Becker inspires readers to live with the end in mind and proves that turning toward loss rather than away from it is the only true way to live life to its fullest. Just as with the heartwood of a tree—the central core that is no longer alive yet supports the newer growth rings—the dead become an enduring source of strength to the living.With life-affirming prose, Becker helps us see that that grief is not a problem to be solved, but rather a sacred invitation—an opportunity to let go into something even greater…a love that will inform all the days of our lives.

Ageless Body, Timeless Mind: The Quantum Alternative to Growing Old


Deepak Chopra - 1993
    Deepak Chopra. "Once again Dr. Chopra presents us with information that can help us live long, healthy lives. For all those interested in a long, full life, this book is a valuable resource."--Bernie Siegel, M.D., author of Love, Medicine and Miracles Over 1.5 million copies sold. National bestseller. Line drawings.

The Beauty of What Remains: How Our Greatest Fear Becomes Our Greatest Gift


Steve Leder - 2021
    Yet even after having sat beside thousands of deathbeds, Steve Leder the rabbi was not fully prepared for the loss of his own father. It was only then that Steve Leder the son truly learned how loss makes life beautiful by giving it meaning and touching us with love that we had not felt before.Enriched by Rabbi Leder's irreverence, vulnerability, and wicked sense of humor, this heartfelt narrative is filled with laughter and tears, the wisdom of millennia and modernity, and, most of all, an unfolding of the profound and simple truth that in loss we gain more than we ever imagined.

Critical Decisions: How You and Your Doctor Can Make the Right Medical Choices Together


Peter A. Ubel - 2012
    Sometimes it’s simple and treatable. Other times we get news we can’t fathom, and then are faced with decisions that are literally life and death. How do we decide?In this revolutionary book, practicing physician, behavioural scientist, and bioethicist Peter Ubel reveals how hidden dynamics in the doctor-patient relationship keep us, and our loved ones, from making the best medical choices. From doctors who struggle to explain, to patients who fail to properly listen, countless factors alter the course of our care, causing things to go seriously awry.Dr Ubel has been on both ends of the stethoscope and Critical Decisions will forever change the way we communicate at a time where thoughtful decision-making matters the most.Praise for Critical Decisions:‘The doctor’s office is the worst place to make a mistake. As a physician and a social scientist, Peter Ubel is unparalleled in his understanding of some of the most important decisions we are all facing, or will face.’Dan Ariely, author of Predictably Irrational‘Peter Ubel is a top notch scientist and writer. His ideas are important, his stye is accesible (with the right balance of humour and compassion) and his topic is timely. We need someone like Peter, no—we need Peter—to help us sort out how patients and their doctors can better work together to make these important decisions.’Dan Gilbert, author of Stumbling on Happiness‘The time is right for a book exploring the moral and psychological “mess” that often characterises the doctor/patient relationship. And Peter Ubel has a unique perspective on how to fix this mess. This book could easily become required reading in medical schools. But patients (and aren’t all of us potential patients?) need to read this book too. Required reading in waiting rooms? We can hope.’Carl Elliot, author of Better Than Well

The Wisdom of Menopause: Creating Physical and Emotional Health and Healing During the Change


Christiane Northrup - 2006
    Christiane Northrup has earned a place as one of America’s most trusted medical advisors.In The Wisdom of Menopause, she once again challenges convention with this inspiring look at one of the most commonly misunderstood female health issues. The “change” is not simply a collection of physical symptoms to be “fixed,” Dr. Northrup claims, but a mind/body revolution that brings the greatest opportunity for growth since adolescence. The choices a woman makes now–from the quality of her relationships to the quality of her diet–have the power to secure her health and well-being for the rest of her life. Through her personal story and many fascinating case histories, Dr. Northrup shows:• How menopause jump-starts changes in the brain, issuing a dramatic wake-up call to body, mind, and emotions• How to ensure the long-term health of breasts, bones, and heart• How the body adjusts naturally to changing hormones• Why bestselling drugs like Premarin may not be the best choice• How to deal with metabolism shifts, weight gain, sexual problems, and appearance issues• How to negotiate the challenges of “the empty nest” and midlife marriageAnd much more. In a book destined to be a classic, Dr. Northrup shows women how they can make menopause a time of personal empowerment and positive energy–emerging wiser, healthier, and stronger in both mind and body than ever before.