Boy Alone: A Brother's Memoir


Karl Taro Greenfeld - 2009
    He couldn't crawl, and he had trouble making eye contact or interacting with his family. As Noah grew older, his differences became even more pronounced—he was unable to communicate verbally, use the toilet, or tie his shoes, and despite his angelic demeanor, he often had violent outbursts.No doctor, social worker, or specialist could pinpoint what was wrong with Noah beyond a general diagnosis: autism. The boys' parents, Josh and Foumi, dedicated their lives to caring for their younger son with myriad approaches—a challenging, often painful experience that the devoted father detailed in a bestselling trilogy of books.Now, for the first time, acclaimed journalist Karl Taro Greenfeld speaks out about growing up in the shadow of his autistic brother, revealing the complex mix of rage, confusion, and love that defined his childhood. Boy Alone is his brutally honest memoir of the hopes, dreams, and realities of life with a mentally disabled sibling.Seamlessly weaving together the social history of autism and autism research—as the Greenfelds lived through it in seeking treatment for Noah—with the deeply affecting story of two very different boys growing up side by side, this book raises crucial philosophical questions: Can relationships exist without language? How should aging parents care for a nonverbal, violent child, and then a grown man who is not self-sufficient? Is there anything that can be done to help an extremely autistic child or adult become a member of mainstream society?Haunting, tragic, and unforgettable, this chronicle of autism is a beautiful, wholly original exploration of what it means to be a family, a brother, and a person.

Raising A Thief


Paul Podolsky - 2020
    

Beyond the Wall: Personal Experiences with Autism and Asperger Syndrome


Stephen M. Shore - 2002
    Drawing on personal and professional experience, Stephen Shore, who is currently completing his doctoral degree in special education, combines three voices to create a touching and, at the same time, highly informative book for professionals as well as individuals who have Asperger Syndrome. Get a unique perspective on AS across the years!

What Made Maddy Run: The Secret Struggles and Tragic Death of an All-American Teen


Kate Fagan - 2017
    This was a girl who succeeded at everything she tried, and who was only getting started.But when Maddy began her long-awaited college career, her parents noticed something changed. Previously indefatigable Maddy became withdrawn, and her thoughts centered on how she could change her life. In spite of thousands of hours of practice and study, she contemplated transferring from the school that had once been her dream. When Maddy's dad, Jim, dropped her off for the first day of spring semester, she held him a second longer than usual. That would be the last time Jim would see his daughter.What Made Maddy Run began as a piece that Kate Fagan, a columnist for espnW, wrote about Maddy's life. What started as a profile of a successful young athlete whose life ended in suicide became so much larger when Fagan started to hear from other college athletes also struggling with mental illness. This is the story of Maddy Holleran's life, and her struggle with depression, which also reveals the mounting pressures young people, and college athletes in particular, face to be perfect, especially in an age of relentless connectivity and social media saturation.

Autism Every Day: Over 150 Strategies Lived and Learned by a Professional Autism Consultant with 3 Sons on the Spectrum


Alyson Beytien - 2011
    Autism consultant Alyson Beytien outlines over 150 tried-and-true techniques for home, school, and community. Alyson’s three boys cover the whole spectrum of autism—Asperger’s syndrome, high-functioning autism, and classic autism. She understands the wide range of needs these children have and has discovered what helps and what hinders. Covering a full gamut of issues—from picky-eating and echolalia to IEPs and “The Woes of Walmart”—Alyson’s ideas and interventions will inspire and inform all those who are connected to a person with autism. Alyson believes that each day brings more opportunities to learn, problem-solve, and celebrate the joys that children with autism bring to our world—after all, today’s crisis is tomorrow’s humor. Her family’s motto will soon become your everyday mantra:  “Improvise and Overcome!”

The Chicken Who Saved Us: The Remarkable Story of Andrew and Frightful


Kristin Jarvis Adams - 2017
    He spoke English – and Chicken. But the day he told his pet chicken Frightful that his body was trying to kill him, Andrew’s family and an entire medical community were launched into a decade-long quest for answers. This honest memoir of fierce and faithful parenting takes readers on a heartfelt journey through chronic illness and Asperger’s syndrome to discover the healing bond between a boy and his chicken. Navigating the complex landscape of modern medicine and genetics, through a rare diagnosis of Trisomy 8 Mosaicism and an experimental bone marrow transplant, readers venture to places where chickens talk, superheroes come alive, and a boy on the brink of death finds the courage to survive.

We're Not Broken: Changing the Autism Conversation


Eric Garcia - 2021
    It’s also my love letter to autistic people. For too long, we have been forced to navigate a world where all the road signs are written in another language.”With a reporter’s eye and an insider’s perspective, Eric Garcia shows what it’s like to be autistic across America.Garcia began writing about autism because he was frustrated by the media’s coverage of it; the myths that the disorder is caused by vaccines, the narrow portrayals of autistic people as white men working in Silicon Valley. His own life as an autistic person didn’t look anything like that. He is Latino, a graduate of the University of North Carolina, and works as a journalist covering politics in Washington D.C. Garcia realized he needed to put into writing what so many autistic people have been saying for years; autism is a part of their identity, they don’t need to be fixed. In We’re Not Broken, Garcia uses his own life as a springboard to discuss the social and policy gaps that exist in supporting those on the spectrum. From education to healthcare, he explores how autistic people wrestle with systems that were not built with them in mind. At the same time, he shares the experiences of all types of autistic people, from those with higher support needs, to autistic people of color, to those in the LGBTQ community. In doing so, Garcia gives his community a platform to articulate their own needs, rather than having others speak for them, which has been the standard for far too long.

Understanding Pathological Demand Avoidance Syndrome in Children: A Guide for Parents, Teachers and Other Professionals


Phil Christie - 2011
    The main characteristic is a continued resistance to the ordinary demands of life through strategies of social manipulation, which originates from an anxiety-driven need to be in control.This straightforward guide is written collaboratively by professionals and parents to give a complete overview of PDA. Starting with an exploration into the syndrome, it goes on to answer the immediate questions triggered when a child is first diagnosed, and uses case examples throughout to illustrate the impact of the condition on different areas of the child's life. Early intervention options and workable strategies for managing PDA positively will make day-to-day life easier for the child, their family and peers. New problems faced in the teenage years and how to assist a successful transition from adolescence to adulthood are also tackled. The book concludes with a valuable resources list.Full of helpful guidance and support, this user-friendly introductory handbook is essential reading for families, carers and anyone who knows a child with PDA.

Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives


Kathryn Lynard Soper - 2006
    Yet many who travel this path discover rich, unexpected rewards along the way. In this candid and poignant collection of personal stories, sixty-three mothers describe the gifts of respect, strength, delight, perspective, and love, which their child with Down syndrome has brought into their lives. perspectives, and draw from a wide spectrum of ethnicity, world views, and religious beliefs. Some are parenting within a traditional family structure; some are not. Some never considered terminating their pregnancy; some struggled with the decision. Some were calm at the time of diagnosis; some were traumatised. Some write about their pregnancy and the months after giving birth; some reflect on years of experience with their child. Their diverse experiences point to a common truth: the life of a child with Down syndrome is something to celebrate. These women have something to say - not just to other mothers but to all of us.

My Lobotomy: A Memoir


Howard Dully - 2007
    Yet somehow, this normal boy became one of the youngest people on whom Dr. Walter Freeman performed his barbaric transorbital—or ice pick—lobotomy.Abandoned by his family within a year of the surgery, Howard spent his teen years in mental institutions, his twenties in jail, and his thirties in a bottle. It wasn’t until he was in his forties that Howard began to pull his life together. But even as he began to live the “normal” life he had been denied, Howard struggled with one question: Why?“October 8, 1960. I gather that Mrs. Dully is perpetually talking, admonishing, correcting, and getting worked up into a spasm, whereas her husband is impatient, explosive, rather brutal, won’t let the boy speak for himself, and calls him numbskull, dimwit, and other uncomplimentary names.”There were only three people who would know the truth: Freeman, the man who performed the procedure; Lou, his cold and demanding stepmother who brought Howard to the doctor’s attention; and his father, Rodney. Of the three, only Rodney, the man who hadn’t intervened on his son’s behalf, was still living. Time was running out. Stable and happy for the first time in decades, Howard began to search for answers. “December 3, 1960. Mr. and Mrs. Dully have apparently decided to have Howard operated on. I suggested [they] not tell Howard anything about it.”Through his research, Howard met other lobotomy patients and their families, talked with one of Freeman’s sons about his father’s controversial life’s work, and confronted Rodney about his complicity. And, in the archive where the doctor’s files are stored, he finally came face to face with the truth.Revealing what happened to a child no one—not his father, not the medical community, not the state—was willing to protect, My Lobotomy exposes a shameful chapter in the history of the treatment of mental illness. Yet, ultimately, this is a powerful and moving chronicle of the life of one man. Without reticence, Howard Dully shares the story of a painfully dysfunctional childhood, a misspent youth, his struggle to claim the life that was taken from him, and his redemption.

A Boy Made of Blocks


Keith Stuart - 2016
    A father who rediscovers loveAlex loves his wife Jody, but has forgotten how to show it. He loves his son Sam, but doesn't understand him. He needs a reason to grab his future with both hands.A son who shows him how to liveMeet eight-year-old Sam: beautiful, surprising - and different. To him the world is a frightening mystery. But as his imagination comes to life, his family will be changed . . . for good.

Far from the Tree: Parents, Children, and the Search for Identity


Andrew Solomon - 2012
    He writes about families coping with deafness, dwarfism, Down's syndrome, autism, schizophrenia, or multiple severe disabilities; with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, and Solomon documents triumphs of love over prejudice in every chapter.All parenting turns on a crucial question: to what extent should parents accept their children for who they are, and to what extent they should help them become their best selves. Drawing on ten years of research and interviews with more than three hundred families, Solomon mines the eloquence of ordinary people facing extreme challenges.Elegantly reported by a spectacularly original and compassionate thinker, Far from the Tree explores how people who love each other must struggle to accept each other—a theme in every family’s life.

Battle Hymn of the Tiger Mother


Amy Chua - 2011
    This was supposed to be a story of how Chinese parents are better at raising kids than Western ones. But instead, it's about a bitter clash of cultures, a fleeting taste of glory, and how I was humbled by a thirteen-year-old." —Amy ChuaAll decent parents want to do what's best for their children. What Battle Hymn of the Tiger Mother reveals is that the Chinese just have a totally different idea of how to do that. Western parents try to respect their children's individuality, encouraging them to pursue their true passions and providing a nurturing environment. The Chinese believe that the best way to protect your children is by preparing them for the future and arming them with skills, strong work habits, and inner confidence. Battle Hymn of the Tiger Mother chronicles Chua's iron-willed decision to raise her daughters, Sophia and Lulu, her way—the Chinese way—and the remarkable results her choice inspires.Here are some things Amy Chua would never allow her daughters to do:- have a playdate- be in a school play- complain about not being in a school play- not be the #1 student in every subject except gym and drama- play any instrument other than the piano or violin- not play the piano or violinThe truth is Lulu and Sophia would never have had time for a playdate. They were too busy practicing their instruments (two to three hours a day and double sessions on the weekend) and perfecting their Mandarin.Of course no one is perfect, including Chua herself. Witness this scene:"According to Sophia, here are three things I actually said to her at the piano as I supervised her practicing:- Oh my God, you're just getting worse and worse.- I'm going to count to three, then I want musicality.- If the next time's not PERFECT, I'm going to take all your stuffed animals and burn them!"But Chua demands as much of herself as she does of her daughters. And in her sacrifices—the exacting attention spent studying her daughters' performances, the office hours lost shuttling the girls to lessons—the depth of her love for her children becomes clear. Battle Hymn of the Tiger Mother is an eye-opening exploration of the differences in Eastern and Western parenting—and the lessons parents and children everywhere teach one another.

Love That Boy: What Two Presidents, Eight Road Trips, and My Son Taught Me About a Parent's Expectations


Ron Fournier - 2016
    He’s practicing his handshake and hello: “It’s a pleasure to meet you, Mr. President. It’s a pleasure to meet you, Mr. President. It’s a pleasure to meet you, Mr. President.” When the couple in front of us steps forward for their picture, my teenager with sky-blue eyes and a soft heart looks up at me and says, “I hope I don’t let you down, Dad.” What kind of father raises a son to worry about embarrassing his dad? I want to tell Tyler not to worry, that he’d never let me down. That there’s nothing wrong with being different. That I actually am proud of what makes him special. But we are next in line to meet the president of the United States in a room filled with fellow strivers, and all I can think about is the real possibility that Tyler might embarrass himself. Or, God forbid, me.LOVE THAT BOY is a uniquely personal story about the causes and costs of outsized parental expectations. What we want for our children—popularity, normalcy, achievement, genius—and what they truly need—grit, empathy, character—are explored by National Journal’s Ron Fournier, who weaves his extraordinary journey to acceptance around the latest research on childhood development and stories of other loving-but-struggling parents.

Now I See the Moon: A Mother, a Son, a Miracle


Elaine Hall - 2010
    In the process, she founded The Miracle Project, a groundbreaking organization that uses the performing arts to connect with children with autism. Both controversial and unorthodox, Hall's innovative approach has been praised by leaders in the field of autism, including Temple Grandin, Barry Prizant, and Dr. Stanley Greenspan. She was also the subject of the Emmy Award-winning documentary Autism: The Musical. Hall now speaks around the country sharing her wisdom. Now I See the Moon is a story of hope, faith, and miracles; it is a story only a mother could tell.