Best of
Illness

2009

Saving Sammy: Curing the Boy Who Caught OCD


Beth Alison Maloney - 2009
    Maloney's debut chronicles her son, Sammy, and the illness that, almost overnight, transformed him from a sunny, bright boy into an antisocial stranger 'so dominated by obsessions, compulsions, and rules that daily life becomes impossible.'

Josie's Story: A Mother's Inspiring Crusade to Make Medical Care Safe


Sorrel King - 2009
    All that changed with Josie. Sorrel King's eighteen-month-old daughter was badly burned by a faulty water heater in the family's new home, but was taken to the world-renowned Johns Hopkins Hospital, where she made a remarkable recovery. But as she was preparing to leave, the hospital's system of communication broke down and Josie was given a fatal shot of methadone, sending her into cardiac arrest. Within forty-eight hours, the King family went from planning a homecoming to planning a funeral. Dizzy with grief and close to ending her marriage, Sorrel slowly pulled herself and her life back together. Accepting Hopkins' settlement, she and her husband established the Josie King Foundation. They began to implement basic programs in hospitals emphasizing communication between patients, family, and medical staff--practices which can now be found in hospitals around the country. The account of one woman's unlikely path from full-time mom to nationally renowned patient advocate, Josie's Story is the inspirational chronicle of how a mother--and her unforgettable daughter--are transforming the face of American medicine.

A Tiny Feast


Chris Adrian - 2009
    To save their marriage, they adopt a mortal toddler and begin to raise him, only to discover he has developed terminal leukemia. What follows, set in a fairy den and an oncology ward, is one of the best (and, somehow, realest) short stories ever written, a haunting exploration of love and death that has followed this reader, at least, into marriage, parenthood, and nearly every subsequent day spent on this earth.

Invisible Sisters


Jessica Handler - 2009
    To any family, the diagnosis would have been upending, but to the Handlers, whose youngest daughter Sarah had been born with a rare congenital blood disorder, it was an unimaginable verdict. By the time Jessica Handler turned nine, she had begun to introduce herself as the “well sibling;” and her family had begun to come apart.Invisible Sisters is Handler’s powerfully told story of coming of age—as the daughter of progressive Jewish parents who move south to participate in the social-justice movement of the 1960s; as a healthy sister living in the shadow of her siblings’ illness; and as a young woman struggling to step out of the shadow of her sisters’ deaths, to find and redefine herself anew. With keen-eyed sensitivity, Handler’s brave account explores family love and loss, and what it takes not just to survive, but to keep living.

The Pure Lover: A Memoir of Grief


David Plante - 2009
    Written in vivid fragments that, like the pieces of a mosaic, come together into a glimmering whole, it shows us both the wild nature of grief and the intimate conversation that is love.From the Trade Paperback edition.

Missed Diagnoses: Myalgic Encephalomyelitis & Chronic Fatigue Syndrome


Byron Hyde - 2009
    

Sick: A Compilation Zine on Physical Illness


Ben Holtzman - 2009
    The zine is meant to be a resource for those who are living with illness as well as those who have not directly experienced it themselves. Contributors discuss personal experiences as well as topics such as receiving support, providing support, and being an informed patient. These writings are meant to increase understandings of illness and further discussion as well as action towards building communities of care.

The Rocky Shore


Jenny Bornholdt - 2009
    Skillfully crafted, the images evoked in each poem offer a chance to view everyday life through a different lens.