In the age of austerity, it's disabled people who are hardest hit, affecting over 3.7 million people. This is in addition to a situation in which half of those in poverty are either disabled or living with a disabled person.In Crippled, leading commentator Frances Ryan tells the story of those most affected by this devastating regime, people who have been too often been silenced. This includes the tetraplegic living in a first floor flat forced to crawl down flights of stairs because the council doesn't provide accessible housing; the young girl forced to sleep in her wheelchair and admitted to hospital with malnutrition because cuts mean she no longer had a carer to help her get to bed or cook; or the Londoner with schizophrenia found 'fit for work', and with nothing to live on was found dead at home three months later.Through these personal stories the book shows the scale of the crisis, while also showing how the disabled community is fighting back. It is a passionate demand for the recognition of disability rights and a call for an end to austerity policies that disproportionately affect those most in need.

    However, she had difficulty reading facial features or distinguishing people in group conversations. Relying on her own problem-solving skills, Girma overcame roadblocks while simultaneously obtaining her undergraduate and then law degree. In the process, she developed new methods of communication and found her calling in advocating for the deaf and blind communities in more accessible communication, education, and employment opportunities. As a lawyer and advocate, Girma shares a collection of vignettes illustrating the defining points in her life. She peppers her writing with a witty sense of humor and showcases her strength in facing obstacles, along with challenging antiquated societal beliefs about people with disabilities, whether describing her experience climbing Alaska's Mendenhall Glacier or helping a drunk friend get to his dorm by using her seeing-eye dog that he adores as a lure

    Speaking not only to those with disabilities, but also to their families, coworkers and support networks, the authors in About Us offer intimate stories of how they navigate a world not built for them.Since its 2016 debut, the popular New York Times’ “Disability” column has transformed the national dialogue around disability. Now, echoing the refrain of the disability rights movement, “Nothing about us without us,” this landmark collection gathers the most powerful essays from the series that speak to the fullness of human experience—stories about first romance, childhood shame and isolation, segregation, professional ambition, child-bearing and parenting, aging and beyond.Reflecting on the fraught conversations around disability—from the friend who says “I don’t think of you as disabled,” to the father who scolds his child with attention differences, “Stop it stop it stop it what is wrong with you?”—the stories here reveal the range of responses, and the variety of consequences, to being labeled as “disabled” by the broader public.Here, a writer recounts her path through medical school as a wheelchair user—forging a unique bridge between patients with disabilities and their physicians. An acclaimed artist with spina bifida discusses her art practice as one that invites us to “stretch ourselves toward a world where all bodies are exquisite.” With these notes of triumph, these stories also offer honest portrayals of frustration over access to medical care, the burden of social stigma and the nearly constant need to self-advocate in the public realm.In its final sections, About Us turns to the questions of love, family and joy to show how it is possible to revel in life as a person with disabilities. Subverting the pervasive belief that disability results in relentless suffering and isolation, a quadriplegic writer reveals how she rediscovered intimacy without touch, and a mother with a chronic illness shares what her condition has taught her young children.With a foreword by Andrew Solomon and introductory comments by co-editors Peter Catapano and Rosemarie Garland-Thomson, About Us is a landmark publication of the disability movement for readers of all backgrounds, forms and abilities.Topics Include: Becoming Disabled • Mental Illness is not a Horror Show • Disability and the Right to Choose • Brain Injury and the Civil Right We Don’t Think • The Deaf Body in Public Space • The Everyday Anxiety of the Stutterer • I Use a Wheelchair. And Yes, I’m Your Doctor • A Symbol for “Nobody” That’s Really for Everybody • Flying While Blind • My $1,000 Anxiety Attack • A Girlfriend of My Own • The Three-Legged Dog Who Carried Me • Passing My Disability On to My Children • I Have Diabetes. Am I to Blame? • Learning to Sing Again • A Disabled Life is a Life Worth Living

    In this volume, Russell’s various essays are brought together in one place in order to provide a useful and expansive resource to those interested in better understanding the ways in which the modern phenomenon of disability is shaped by capitalist economic and social relations. The essays range in analysis from the theoretical to the topical, including but not limited to: the emergence of disability as a “human category” rooted in the rise of industrial capitalism and the transformation of the conditions of work, family, and society corresponding thereto; a critique of the shortcomings of a purely “civil rights approach” to addressing the persistence of disability oppression in the economic sphere, with a particular focus on the legacy of the Americans with Disabilities Act of 1990; an examination of the changing position of disabled people within the overall system of capitalist production utilizing the Marxist economic concepts of the reserve army of the unemployed, the labor theory of value, and the exploitation of wage-labor; the effects of neoliberal capitalist policies on the living conditions and social position of disabled people as it pertains to welfare, income assistance, health care, and other social security programs; imperialism and war as a factor in the further oppression and immiseration of disabled people within the United States and globally; and the need to build unity against the divisive tendencies which hide the common economic interest shared between disabled people and the often highly-exploited direct care workers who provide services to the former.

    Drawn from the Auschwitz-Birkenau State Museum and other collections around the world, they range from the intimate (such as victims’ family snapshots and personal belongings) to the immense (an actual surviving barrack from the Auschwitz III–Monowitz satellite camp); all are eloquent in their testimony. An authoritative yet accessible text weaves the stories behind these artifacts into an encompassing history of Auschwitz—from a Polish town at the crossroads of Europe, to the dark center of the Holocaust, to a powerful site of remembrance. Auschwitz: Not long ago. Not far away. is an essential volume for everyone who is interested in history and its lessons.

    Calling for a politics of integrity that recognizes the complicated wholeness of individual and collective lives, Levins Morales delves among the interwoven roots of multiple oppressions, exposing connections, crafting strategies, and uncovering the wellsprings of resilience and joy. Throughout these twenty-eight essays—twenty-one of which are new or extensively revised—she exposes the structures and mechanisms that silence voices and divide movements. The result is a medicine bag full of techniques and perspectives to build a universal solidarity that is flexible, nuanced, and strong enough to fundamentally shift our world toward justice. Intimately personal and globally relevant, Medicine Stories brings clarity and hope to tangled, emotionally charged social issues in beautiful and accessible language.

    But even as churches today seek to follow the way of Jesus, people with disabilities all too often experience the very opposite of healing and life-giving community: exclusion, judgment, barriers. Misinterpretation and misapplication of biblical healing narratives can do great damage, yet those who take the Bible as authoritative mustn't avoid these passages either. Bethany McKinney Fox believes that Christian communities are better off when people with disabilities are an integral part of our common life. In Disability and the Way of Jesus, she considers how the stories of Jesus' healings can guide us toward mutual thriving. How did Jesus' original audience understand his works of healing, and how should we relate to these texts today? After examining the healing narratives in their biblical and cultural contexts, Fox considers perspectives from medical doctors, disability scholars, and pastors to more fully understand what Jesus does as he heals and how he points the way for relationships with people with disabilities. Personal reflections from Christians with disabilities are featured throughout the book, which concludes with suggestions for concrete practices adaptable to a variety of church settings. Bridging biblical studies, ethics, and disability studies with the work of practitioners, Fox provides a unique resource that is both theologically grounded and winsomely practical. Disability and the Way of Jesus provides new lenses on holistic healing for scholars, laypeople, and church and parachurch leaders who care about welcoming all people as Jesus would.

    Capturing her own struggles as she emerges from shock in the wake of her son’s unexpected death at age thirty-seven, author and storyteller Sheree Fitch writes lyrically and unabashedly, with deep sorrow, unexpected rage, and boundless love. She discovers that she “dwells in a thin place now,” that she has crossed a threshold only to find herself in “the quicksand that is grief.” The result is a memoir in verse of immense power and pain, a collection of moments, and a journey of resilience.Divided into three parts, like the memorial labyrinth Fitch walks every day, You Won’t Always Be This Sad offers words that will stir the heart, inviting readers on a raw and personal odyssey through excruciating loss, astonishing gratitude, and a return to a different world with new insights, rituals, faith, and hope. Readers, bearing witness to the immeasurable depths of a mother’s love, will be forever changed.

    In our electric world, we are everywhere surrounded by effortlessly glowing lights that simply exist, as they should, seemingly clear and comforting proof that human genius means the present will always be better than the past, and the future better still. At best, this is half the story. At worst, it is a lie.From whale oil to kerosene, from the colonial period to the end of the U.S. Civil War, modern, industrial lights brought wonderful improvements and incredible wealth to some. But for most workers, free and unfree, human and nonhuman, these lights were catastrophes. This book tells their stories. The surprisingly violent struggle to produce, control, and consume the changing means of illumination over the eighteenth and nineteenth centuries transformed slavery, industrial capitalism, and urban families in profound, often hidden ways. Only by taking the lives of whalers and enslaved turpentine makers, match-manufacturing children and coal miners, night-working seamstresses and the streetlamp-lit poor--those American lucifers--as seriously as those of inventors and businessmen can the full significance of the revolution of artificial light be understood.

    

    In her latest poetry collection, Jillian Weise investigates and challenges the ways that nondisabled writers represent disability in their work. From an acerbic letter calling out William Carlos Williams’s medical conviction that “poetry heals” to a reverse-perspective biohack of Raymond Carver’s “Cathedral” to a stark chronicle of violence against “disabled women” in international headlines, no metaphor for “blind moon” or “deaf skies” goes unquestioned. Part invective, part love poem, Cyborg Detective holds a magnifying glass to the fetishization and marginalization of disabled people, in particular women, while claiming space and pride for the people who already use technology and cybernetic implants to survive.

    Their stories are raw and painful but also surprisingly funny and deeply moving—describing anger, independence, bigotry, solidarity, and love, in the family, at school, and in the workplace.  Inspired by the oral historians Studs Terkel and Svetlana Alexievich, From the Periphery will become a classic oral history collection that increases the understanding of the lived experiences of people with disabilities, their responses to oppression, and the strategies they use to fight for empowerment.

    But war affects the body in countless ways, many of them understudied by historians. In Bodies in Blue, Sarah Handley-Cousins expands and complicates our understanding of wartime disability by examining a variety of bodies and ailments, ranging from the temporary to the chronic, from disease to injury, and encompassing both physical and mental conditions. She studies the cases of well-known individuals, such as Union general Joshua Lawrence Chamberlain, alongside many cases drawn from the ranks to provide a more comprehensive view of how soldiers, civilians, and institutions grappled with war-related disability in the Civil War-era North.During the Civil War and long after, the bodies of Union soldiers and veterans were sites of powerful cultural beliefs about duty and sacrifice. However, the realities of living with a disability were ever at odds with the expectations of manhood. As a consequence, men who failed to perform the role of wounded warrior properly could be scrutinized for failing to live up to standards of martial masculinity. Under the gaze of surgeons, officers, bureaucrats, and civilians, disabled soldiers made difficult negotiations in their attempts to accommodate impaired bodies and please observers. Some managed this process with ease; others struggled and suffered. Embracing and exploring this apparent contradiction, Bodies in Blue pushes Civil War history in a new direction.

    Typically, we’re faced with stories about us crafted by people who really don’t get us. We’re turned into pathetic, tragic souls; we merely exist to inspire the abled main characters to thrive; or even worse, we’re to overcome “what’s wrong with us” and be cured.Nothing Without Us combines both realistic and speculative fiction, starring protagonists who are written “by us and for us.” From hospital halls to jungle villages, from within the fantastical plane to deep into outer space, our heroes take us on a journey, make us think, and prompt us to cheer them on.These are bold tales, told in our voices, which are important for everyone to experience.

    Stahl recounts her life from eleven to twenty-six years old. She shares the hardships of crippling pain, depression, sex, infertility, and the struggle to find a doctor to take her symptoms seriously.Join her in uncovering the truth as she strives to find the silver lining to living with an "invisible illness".ALSO INCLUDES: Symptom checklistSurgery checklistExamples of the financial cost of endometriosisPages to keep notes and more!

    This user-friendly guide will help you engage in effective, compassionate discussions with family, friends, colleagues, and even strangers about race, immigration, gender, marriage equality, sexism, marginalization, and more. We talk every day—and we often do it without thinking. But, as you well know, there are some things that are harder to talk about—especially issues pertaining to politics, culture, lifestyle, and diversity. If you’ve ever struggled in a conversation about a “controversial” topic with a loved one, work colleague, or even a stranger, you know exactly how uncomfortable and heated the discussion can become. And even if you are one of the lucky few that expresses themselves eloquently, how do you move beyond mere “lip service” and turn words into actionable change?This groundbreaking book will show you how to get to that important next level in difficult conversations, to talk in an authentic and straightforward way about culture and diversity, and to speak from the heart with tools from the head. Using a simple eight-step approach, you’ll learn communication strategies that are supported by research and have been practiced in classrooms, work meetings, therapy sessions, and more.We constantly hear about friends and colleagues whose family members are not speaking to each other because of different political opinions, who’ve exchanged words that have mutually offended one another. If silence is one end of the continuum and verbal conflict anchors the other, how do we reach a middle ground? How do we take part in the “in between” spaces where both parties can speak and listen?With this book as your guide, you’ll learn to navigate these difficult conversations, and take what you’ve learned beyond the conversation and out into the world—whether it’s through politics, social justice movements, or simply expanding the minds of those around you.

    But it can sometimes be an obstacle to full participation in the life of the Church, simply because many do not understand what is needed to help people with disabilities overcome any physical, mental, or interpersonal challenges they may face in church and in leading an Orthodox Christian life. This book addresses the question from theological, practical, and experiential perspectives, giving individuals and families with disabilities the opportunity to voice their needs and suggest some things the rest of us can do to make them welcome in the household of God.About the Author: As an autistic mother rearing autistic children in the Faith, Summer Kinard knows firsthand many of the challenges of life with disabilities. She brings her extensive background in patristic theology and catechesis (B.A. in religion, M.Div., Th.M. in early church history and theology) to skillfully weave together the healing patterns of Holy Tradition with the daily patterns of life with disabilities. Summer has become acquainted with hundreds of Orthodox families with disabilities through sharing on her website the resources she has developed to make faith accessible to them. At a time when at least twenty percent of people live with disabilities and two percent are autistic, there is an urgent need to apply church teachings to questions about the care and inclusion of persons with disabilities as full members of Christ’s Body. Summer brings the grace, kindness, and insight of an experienced teacher and mother to begin answering those questions. Summer Kinard is a Greek Orthodox Christian in the Metropolis of Denver. She lives with her husband Andrew and five children in Texas.

    The text features narrative portraits of six immigrant families and their children with disabilities, including their cultural histories and personal perspectives regarding assessment, diagnosis, Individualized Education Program (IEP) meetings, and other instances in which families engaged with the special education process. Using guiding questions for reflection and "Talk Back" comments from preservice students throughout the text, readers are encouraged to reflect on their own positionality and to develop nuanced and dynamic understandings of CLD children, youth, and families--countering persistent and stereotypical deficit views.Book Features: In-depth descriptions of immigrant family ecologies. Strategies for challenging a system that has been implicated in the overrepresentation of minorities in special education. Artwork, photographs, and other materials from students and families. "Talk Back" sections featuring personal reflections and feedback on the portrait narratives from preservice teachers. Questions to facilitate meaningful classroom discussions. A personal action plan framework to guide improvements in cultural competence and inclusive special education practices.

    Critical phenomenology foregrounds experiences of marginalization, oppression, and power in order to identify and transform common experiences of injustice that render “the familiar” a site of oppression for many. In Fifty Concepts for a Critical Phenomenology, leading scholars present fresh readings of classic phenomenological topics and introduce newer concepts developed by feminist theorists, critical race theorists, disability theorists, and queer and trans theorists that capture aspects of lived experience that have traditionally been neglected. By centering historically marginalized perspectives, the chapters in this book breathe new life into the phenomenological tradition and reveal its ethical, social, and political promise. This volume will be an invaluable resource for teaching and research in continental philosophy; feminist, gender, and sexuality studies; critical race theory; disability studies; cultural studies; and critical theory more generally.

    Pickens shows how Black speculative and science fiction authors such as Octavia Butler, Nalo Hopkinson, and Tananarive Due craft new worlds that reimagine the intersection of Blackness and madness. These creative writer-theorists formulate new parameters for thinking through Blackness and madness. Pickens considers Butler's Fledgling as an archive of Black madness that demonstrates how race and ability shape subjectivity while constructing the building blocks for antiracist and anti-ableist futures. She examines how Hopkinson's Midnight Robber theorizes mad Blackness and how Due's African Immortals series contests dominant definitions of the human. The theorizations of race and disability that emerge from these works, Pickens demonstrates, challenge the paradigms of subjectivity that white supremacy and ableism enforce, thereby pointing to the potential for new forms of radical politics.

    Into Sanity includes personal essays by contributors from all over the United States and a preface by Mark Vonnegut, who judged the contest at Talking Writing magazine that sparked these true stories. The media has paid more attention to suicide risks and depression in recent years, especially after the death of well-loved celebrities. And yet, mental illness remains misunderstood. Into Sanity offers the lived reality. These writers underscore why the stigma makes mental illness so hard to talk about—and why it takes courage to speak up.

    As Eva Feder Kittay points out, however, there is a flaw in the essential premise of these questions: they seem oblivious to the verynature of the ways in which humans live, omitting a world of co-dependency, and of the fact that we live in and through our bodies, whether they are fully abled or disabled. Our dependent, vulnerable, messy, changeable, and embodied experience colors everything about our lives both on the surfaceand when it comes to deeper concepts, but we tend to leave aside the body for the mind when it comes to philosophical matters. Disability offers a powerful challenge to long-held philosophical views about the nature of the good life, what provides meaning in our lives, and the centrality of reason, as well as questions of justice, dignity, and personhood. These concepts need not be distant and idealized; the answers are right before us, in the way humans interact with one another, care for one another, and need one another--whether they possess full mental capacities or have cognitivelimitations. We need to revise our concepts of things like dignity and personhood in light of this important correction, Kittay argues.This is the first of two books in which Kittay will grapple with just how we need to revisit core philosophical ideas in light of disabled people's experience and way of being in the world. Kittay, an award-winning philosopher who is also the mother to a multiply-disabled daughter, interweaves thepersonal voice with the philosophical as a critical method of philosophical investigation. Here, she addresses why cognitive disability can reorient us to what truly matters, and questions the centrality of normalcy as part of a good life. With profound sensitivity and insight, Kittay examines otherdifficult topics: How can we look at the ethical questions regarding prenatal testing in light of a new appreciation of the personhood of disabled people? What do new possibilities in genetic testing imply for understanding disability, the family, and bioethics? How can we reconsider the importanceof care, and how does it work best? In the process of pursuing these questions, Kittay articulates an ethic of care, which is the ethical theory most useful for claiming full rights for disabled people and providing the opportunities for everyone to live joyful and fulfilling lives. She applies thelessons of care to the controversial alteration of severely cognitively disabled children known as the Ashley Treatment, whereby a child's growth is halted with extensive estrogen treatment and related bodily interventions are justified.This book both imparts lessons that advocate on behalf of those with significant disabilities, and constructs a moral theory grounded on our ability to give, receive, and share care and love. Above all, it aims to adjust social attitudes and misconceptions about life with disability.

    Women from all walks of life—from household caregivers and nurses to nuns working as apothecaries—drove the Italian medical economy. In convent pharmacies, pox hospitals, girls’ shelters, and homes, women were practitioners and purveyors of knowledge about health and healing, making significant contributions to early modern medicine.Sharon Strocchia offers a wealth of new evidence about how illness was diagnosed and treated, whether by noblewomen living at court or poor nurses living in hospitals. She finds that women expanded on their roles as health care providers by participating in empirical work and the development of scientific knowledge. Nuns, in particular, were among the most prominent manufacturers and vendors of pharmaceutical products. Their experiments with materials and techniques added greatly to the era’s understanding of medical care. Thanks to their excellence in medicine urban Italian women had greater access to commerce than perhaps any other women in Europe.Forgotten Healers provides a more accurate picture of the pursuit of health in Renaissance Italy. More broadly, by emphasizing that the frontlines of medical care are often found in the household and other spaces thought of as female, Strocchia encourages us to rethink the history of medicine.

    But, as Owen Whooley’s sweeping new book tells us, the history of American psychiatry is really a record of ignorance. On the Heels of Ignorance begins with psychiatry’s formal inception in the 1840s and moves through two centuries of constant struggle simply to define and redefine mental illness, to say nothing of the best way to treat it. Whooley’s book is no antipsychiatric screed, however; instead, he reveals a field that has muddled through periodic reinventions and conflicting agendas of curiosity, compassion, and professional striving. On the Heels of Ignorance draws from intellectual history and the sociology of professions to portray an ongoing human effort to make sense of complex mental phenomena using an imperfect set of tools, with sometimes tragic results.

    This commitment has often meant that patients spend their last days suffering from heroic interventions that extend their life by only weeks or months. Increasingly, this approach to end-of-life care is coming under scrutiny, from a moral as well as a financial perspective. Sociologist Roi Livne documents the rise and effectiveness of hospice and palliative care, and growing acceptance of the idea that a life consumed by suffering may not be worth living.Values at the End of Life combines an in-depth historical analysis with an extensive study conducted in three hospitals, where Livne observed terminally ill patients, their families, and caregivers negotiating treatment. Livne describes the ambivalent, conflicted moments when people articulate and act on their moral intuitions about dying. Interviews with medical staff allowed him to isolate the strategies clinicians use to help families understand their options. As Livne discovered, clinicians are advancing the idea that invasive, expensive hospital procedures often compound a patient's suffering. Affluent, educated families were more readily persuaded by this moral calculus than those of less means.Once defiant of death--or even in denial--many American families and professionals in the health care system are beginning to embrace the notion that less treatment in the end may be better treatment.

    The author describes the pressure from medical institutions to undergo screening during pregnancy and assumptions that a child with Trisomy 21 should not live, even though people with Down syndrome do live rich lives. Years later, Fiona’s son, Fraser, has become an artist. His prize-winning paintings have been exhibited in galleries in Sydney and Canberra. How does a mother get from the grieving silence of the birthing room through the horrified comments of other mothers to the applause at gallery openings? This is a story of commitment to the idea that all people, including those who are ‘less than perfect,’ have a right to be welcomed into this increasingly imperfect world.