Book picks similar to
Choosing Down Syndrome: Ethics and New Prenatal Testing Technologies by Chris Kaposy
ethics
parenting
disability-books
genetics
Babies with Down Syndrome: A New Parents' Guide
Susan Skallerup - 2008
Covering the best practices for raising and caring for children with Down syndrome through age five, this book is invaluable to new parents who have welcomed a baby with Down syndrome into their lives. This new edition incorporates the latest scientific, medical, educational research, and practical information available, as well as parents' suggestions and feedback. Existing chapters have been revised, some completely rewritten by new authors, and in keeping with its parent-friendly reputation, most of the book's contributors are parents of children with Down syndrome Chapters cover: - What Is Down Syndrome?: A primer on the causes, characteristics, and diagnosis, including the latest information on genetics and prenatal testing;- Adjusting to Your Baby: Advice from an experienced mother on coping with common emotions and announcing the news to friends and family;- Medical Concerns & Treatments: An overview of possible health issues including celiac disease, sleep apnea, diabetes, reflux, and skin problems, with an emphasis on detecting signs early for needed treatment;- Daily Care: The gamut of care from feeding to bathing, with expanded information about toilet training;- Family Life: The impact on siblings and couples, discipline issues, and new material to help everyone understand that a child's behavior is a form of communication;- Development & Learning: Expectations about development plus new material on variability in development, learning styles, using reading todevelop language, memory strengths and weaknesses, and using play to encourage learning;- Early Intervention: An overview of services and therapies for babies & toddlers with new information on the transdisciplinary approach, providing services in the natural environment, transitioning preschool, and common questions & answers;- Legal Rights & Financial Issues: Explains your child's educational and legal rights, and financial information, including the latest on federal education and civil rights laws, sources of financial assistance, health insurance, trusts, and guardianship.Full of new photos, parent statements, updated and expanded resources and reading lists, this build everything parents need to build a bright and healthy future for their child with Down syndrome.
Aching Joy: Following God Through the Land of Unanswered Prayer
Jason Hague - 2018
But when the boy regressed into the distant, wordless world of severe autism, those hopes were crushed.As Jason walked through the barren land of unanswered prayer, he discovered that he was not alone--so many in the church today are overwhelmed with pain and doubt. We think our faith is supposed to guarantee us a sense of emotional stability, even in the midst of soul-crushing circumstances; but by avoiding the brokenness inside ourselves, we end up missing the beauty of a God at work deep within us.Aching Joy is a road map for anyone facing a difficult, unresolved situation. We can embrace both the sorrow and beauty of the land of unanswered prayer in order to find renewed hope in the greatness of God and the expectation of good.The goal of Aching Joy is not to see the silver lining in the midst of our hardships but to encourage us to follow the example of Christ, who entered fully into both the joy and the sorrow of human experiences with confidence that His Father's eternal kingdom would outlast and outshine them. When we open our hearts to the restoration that only Christ can perform, we will begin to find a deeper gladness that has no veneer and wears no mask. We will find a joy in the midst of the aching.
Supporting Positive Behavior in Children and Teens with Down Syndrome: The Respond But Don't React Method
David Stein - 2016
Another bolts across a busy parking lot, turns and smiles at his mom. An eighteen-year-old student bursts into tears when asked to change activities at school. Sound familiar? These and other common behavior issues in children with Down syndrome can quickly become engrained and may even persist into adulthood. No parent wants that to happen, and thankfully, help is available! Dr. David Stein, a psychologist and Co-Director of the Down Syndrome Program at Boston Children's Hospital, shares his approach to behavior management in this new book for parents. Supporting Positive Behavior in Children and Teens with Down Syndrome examines how the brain of a person with Down syndrome works, how those differences impact behavior, and why bad behavior should not be viewed as a willful act. Governed by this new awareness, parents are in a better position to change and manage their child's behavior using these guiding principles: [[Be proactive, not reactive [[Be consistent [[Use visual schedules & Social Stories to direct behavior [[Develop a token reward chart [[Keep gut reactions in check [[Teach siblings to ignore bad behavior [[Learn effective disciplinary techniques [[Know when professional help is needed Some of these parenting concepts are intuitive, others are not, but when they are followed consistently, children and teens with Down syndrome do their best behaviorally and the parent-child relationship remains as positive and loving as it should be.
Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives
Kathryn Lynard Soper - 2006
Yet many who travel this path discover rich, unexpected rewards along the way. In this candid and poignant collection of personal stories, sixty-three mothers describe the gifts of respect, strength, delight, perspective, and love, which their child with Down syndrome has brought into their lives. perspectives, and draw from a wide spectrum of ethnicity, world views, and religious beliefs. Some are parenting within a traditional family structure; some are not. Some never considered terminating their pregnancy; some struggled with the decision. Some were calm at the time of diagnosis; some were traumatised. Some write about their pregnancy and the months after giving birth; some reflect on years of experience with their child. Their diverse experiences point to a common truth: the life of a child with Down syndrome is something to celebrate. These women have something to say - not just to other mothers but to all of us.
12 Principles for Raising a Child with ADHD
Russell A. Barkley - 2020
Barkley has become a leading authority on attention-deficit/hyperactivity disorder (ADHD) in kids and teens. He has learned what a huge difference parents can make in supporting their children's success--as well as how overwhelming it can be. This concise guide presents 12 key parenting principles for dealing with common behavioral, emotional, and school challenges. By cultivating a mindset of acceptance and compassion--together with an understanding of the executive function deficits of ADHD--you can strengthen your loving connection with your child and help your whole family thrive. Filled with practical suggestions and quick-reference lists and tips, this is the perfect book to read cover to cover or pick up any time you need extra support.
Beautiful Eyes: A Father Transformed
Paul Austin - 2014
He was a medical student and she was a nurse. Everything changed the moment the doctor rushed their infant daughter from the room just after her birth, knowing instantly that something was wrong. Sarah had almond-shaped eyes, a single crease across her palm instead of three, and low-set ears all of which suggested that the baby had Down syndrome.Beginning on the day Sarah is born and ending when she is a young adult living in a group home, Beautiful Eyes is the story of a father's journey toward acceptance of a child who is different. In a voice that is unflinchingly honest and unerringly compassionate, Austin chronicles his life with his daughter: watching her learn to walk and talk and form her own opinions, making decisions about her future, and navigating cultural assumptions and prejudices all the while confronting, with poignancy and moving candor, his own limitations as her father.It is Sarah herself, who, in her own coming of age and her own reconciling with her difference, teaches her father to understand her. Time and again, she surprises him: performing Lady Gaga s "Poker Face" at a talent show; explaining how the word "retarded" is hurtful; reacting to the events of her life with a mixture of love, pain, and humor; and insisting on her own humanity in a world that questions it. As Sarah begins to blossom into herself, her father learns to look past his daughter's disability and see her as the spirited, warmhearted, and uniquely wise person she is.
Late-Talking Children: A Symptom or a Stage?
Stephen M. Camarata - 2014
And no delay causes more parental anxiety than late talking, which is associated in many parents' minds with such serious conditions as autism and severe intellectual disability. In fact, as children's speech expert Stephen Camarata points out in this enlightening book, children are late in beginning to talk for a wide variety of reasons. For some children, late talking may be a symptom of other, more serious, problems; for many others, however, it may simply be a stage with no long-term complications.Camarata describes in accessible language what science knows about the characteristics and causes of late talking. He explains that late talking is only one of a constellation of autism symptoms. Although all autistic children are late talkers, not all late-talking children are autistic.Camarata draws on more than twenty-five years of professional experience diagnosing and treating late talkers--and on his personal experience of being a late talker himself and having a late-talking son. He provides information that will help parents navigate the maze of doctors, speech therapists, early childhood services, and special education; and he describes the effect that late talking may have on children's post-talking learning styles.
Raising Henry: A Memoir of Motherhood, Disability, and Discovery
Rachel Adams - 2013
She had an adoring husband, a beautiful two-year-old son, a sunny Manhattan apartment, and a position as a tenured professor at Columbia University. Everything changed with the birth of her second child, Henry. Just minutes after he was born, doctors told her that Henry had Down syndrome, and she knew that her life would never be the same. In this honest, self-critical, and surprisingly funny book, Adams chronicles the first three years of Henry’s life and her own transformative experience of unexpectedly becoming the mother of a disabled child. A highly personal story of one family’s encounter with disability, Raising Henry is also an insightful exploration of today’s knotty terrain of social prejudice, disability policy, genetics, prenatal testing, medical training, and inclusive education. Adams untangles the contradictions of living in a society that is more enlightened and supportive of people with disabilities than ever before, yet is racing to perfect prenatal tests to prevent children like Henry from being born. Her book is gripping, beautifully written, and nearly impossible to put down. Once read, her family’s story is impossible to forget.
So Help Me God
Larry D. Thompson - 2004
Lord “The courtroom drama and testimony are brilliantly conceived and carried out…a thoughtful, complex and timely novel, a compelling story one is loath to put aside to do one’s daily work.”—Galveston Daily News "So Help Me God is not only a page-turner but a warning as well. Through a deft, fascinating storyline Larry D. Thompson shows us what can happen here if we're not careful."—Ed Gorman“So Help Me God is an exciting legal thriller that takes the reader on a sizzling ride as a courtroom becomes the battlefield over one of the most controversial social issues of our time. Not since the Scopes Monkey Trial has a man of religion and a man of ideas clashed so dramatically and brilliantly in a courtroom.” –Junius Podrug, award winning author of Presumed Guilty“I don’t think I have ever read anything quite so compelling. Everything was woven together beautifully and could only have been done so by someone who had actually lived through similar experiences in the courtroom.”—pennyterk.com“Move over John Grisham!”—Denton A. Cooley, MD, world-renowned pioneer heart surgeon“Seldom does a first effort at courtroom fiction find itself in the class of such notables as Inherit the Wind, The Verdict, and The Rainmaker. But Larry Thompson’s So Help Me God belongs there. I predict it will become a modern day classic courtroom tale.”—Jim Perdue, Sr., nationally renowned trial lawyer and author of I Remember Atticus“I hated to finish that last page of So Help Me God…the courtroom scenes are both realistic and spell-binding.”—Hartley Hampton, past president of the Texas Trial Lawyers AssociationAbout the AuthorA veteran Texas trial lawyer, LARRY D. THOMPSON has drawn upon decades of experience in the courtroom to produce his first novel, So Help Me God. Thompson, a one-time journalism major who used his talent for writing to excel at the University of Texas School of Law, is now managing partner of the Houston trial firm he founded. Recently honored by Texas Monthly Magazine as a "Texas Super Lawyer," he is the proud father of three grown children, an active golfer, SCUBA diver, runner, and outdoor enthusiast. His biggest inspiration both in life and literature is his late brother, best-selling author Thomas Thompson.
The Shape of the Eye: A Memoir
George Estreich - 2011
Estreich writes with a poet's eye and gift of language, weaving this personal journey into the larger history of his family, exploring the deep and often hidden connections between the past and the present. Engaging and unsentimental, The Shape of the Eye taught me a great deal. It is a story I found myself thinking about long after I'd finished the final pages." --Kim Edwards, author of The Memory Keeper's Daughter "The Shape of the Eye personalizes Down syndrome, bringing a condition abstracted in the medical literature into the full dimensionality of one family's life. It's brave of George Estreich to make what has befallen his family so public, trusting of him to let an unknown audience second-guess the family's choices. Because he's opened his home and heart in this memoir, we are privileged to witness in chaotic, heart-wrenching, joyous detail what it means to have and to love a child with Down syndrome." --Marcia Childress, Associate Professor of Medical Education (Medical Humanities), University of Virginia School of Medicine, from her Afterword for the book When Laura Estreich is born, her appearance presents a puzzle: does the shape of her eyes indicate Down syndrome, or the fact that she has a Japanese grandmother? In this powerful memoir, George Estreich, a poet and stay-at-home dad, tells his daughter's story, reflecting on her inheritance --- from the literal legacy of her genes, to the family history that precedes her, to the Victorian physician John Langdon Down's diagnostic error of "Mongolian idiocy." Against this backdrop, Laura takes her place in the Estreich family as a unique child, quirky and real, loved for everything ordinary and extraordinary about her.
PREGNANCY: What You Need To Know When You're Expecting - The Complete Pregnancy Guide For Moms And Dads (Pregnancy Books) (Pregnancy Books for First Time Moms Book 1)
Jyothi Shenoy - 2016
Jyothi Shenoy explains EXACTLY what you need to do, why you need to do it, and when you need to do it...all in an easy to understand, step-by-step fashion. Inside this complete pregnancy guide, you will learn: - The 11 most important facts about pregnancy that all mom's and dad's need to know - The top 10 pregnancy myths - The most recent developments in obstetrics that will save you time and energy - The physical symptoms you will experience and the solutions - Dangerous pregnancy symptoms that should not be ignored - Diet and nutrition tips for a pregnant woman - Guidelines for safe exercises during pregnancy - How to handle the emotional roller coaster during pregnancy - The most current lifestyle trends in the pregnancy world - What’s hot and what's not for sex during pregnancy - How to juggle a busy career with your pregnancy - Travel tips for pregnant women - What a man needs to know about pregnancy - Safe skin-care products during pregnancy - What clothes you should and shouldn't wear during pregnancy - The packing list for the hospital or birth center
Power Brain Kids: 12 Easy Lessons to Ignite Your Child's Potential
Ilchi Lee - 2007
Yoga-like exercises and brain development exercises are fully illustrated and explained in detail. This is a must-have book for any parent of children ages 6-12.
Don't Call Me Mum: A mother's story of being pushed to the brink
Maria Frankland - 2019
In infancy, he screams all night. As a toddler he is destructive and fearless. At school, he is disruptive and lacking in concentration. As he grows, so does the havoc, reaching a crescendo in his teenage years. In her quest for support, Sarah consults every specialist available to her, to be met with blame and indifference. This memoir, which tells the story of a mother and son ostracised, challenges the ‘I blame the parents’ view. It is a ‘must-read’ for any parent who struggles and feels alone.
Choosing Naia: A Family's Journey
Mitchell Zuckoff - 2002
A dramatic and carefully detailed account of one family's journey through the maze of genetic counseling, medical technology, and disability rights; destined to become required reading for anyone touched by any of these issues.