Book picks similar to
Emily: My True Story of Chronic Illness and Missing Out On Life by Emily Smucker
non-fiction
chronic-illness
nonfiction
young-adult
Banished: Surviving My Years in the Westboro Baptist Church
Lauren Drain - 2013
Perhaps you've seen their pickets on the news, the members holding signs with messages that are too offensive to copy here, protesting at events such as the funerals of soldiers, the 9-year old victim of the recent Tucson shooting, and Elizabeth Edwards, all in front of their grieving families. The WBC is fervently anti-gay, anti-Semitic, and anti- practically everything and everyone. And they aren't going anywhere: in March, the U.S. Supreme Court ruled in favor of the WBC's right to picket funerals.Since no organized religion will claim affiliation with the WBC, it's perhaps more accurate to think of them as a cult. Lauren Drain was thrust into that cult at the age of 15, and then spat back out again seven years later.Lauren spent her early years enjoying a normal life with her family in Florida. But when her formerly liberal and secular father set out to produce a documentary about the WBC, his detached interest gradually evolved into fascination, and he moved the entire family to Kansas to join the church and live on their compound. Over the next seven years, Lauren fully assimilated their extreme beliefs, and became a member of the church and an active and vocal picketer. But as she matured and began to challenge some of the church's tenets, she was unceremoniously cast out from the church and permanently cut off from her family and from everyone else she knew and loved.Banished is the story of Lauren's fight to find herself amidst dramatic changes in a world of extremists and a life in exile.
Between Two Kingdoms: A Memoir of a Life Interrupted
Suleika Jaouad - 2021
She had fallen in love and moved to Paris to pursue her dream of becoming a war correspondent. The real world she found, however, would take her into a very different kind of conflict zone.It started with an itch—first on her feet, then up her legs, like a thousand invisible mosquito bites. Next came the exhaustion, and the six-hour naps that only deepened her fatigue. Then a trip to the doctor and, a few weeks shy of her twenty-third birthday, a diagnosis: leukemia, with a 35 percent chance of survival. Just like that, the life she had imagined for herself had gone up in flames. By the time Jaouad flew home to New York, she had lost her job, her apartment, and her independence. She would spend much of the next four years in a hospital bed, fighting for her life and chronicling the saga in a column for The New York Times.When Jaouad finally walked out of the cancer ward—after three and a half years of chemo, a clinical trial, and a bone marrow transplant—she was, according to the doctors, cured. But as she would soon learn, a cure is not where the work of healing ends; it’s where it begins. She had spent the past 1,500 days in desperate pursuit of one goal—to survive. And now that she’d done so, she realized that she had no idea how to live.How would she reenter the world and live again? How could she reclaim what had been lost? Jaouad embarked—with her new best friend, Oscar, a scruffy terrier mutt—on a 100-day, 15,000-mile road trip across the country. She set out to meet some of the strangers who had written to her during her years in the hospital: a teenage girl in Florida also recovering from cancer; a teacher in California grieving the death of her son; a death-row inmate in Texas who’d spent his own years confined to a room. What she learned on this trip is that the divide between sick and well is porous, that the vast majority of us will travel back and forth between these realms throughout our lives. Between Two Kingdoms is a profound chronicle of survivorship and a fierce, tender, and inspiring exploration of what it means to begin again.
Fierce: How Competing for Myself Changed Everything
Aly Raisman - 2017
Aly Raisman first stepped onto a gymnastics mat as a toddler in a "mommy & me" gymnastics class. No one could have predicted then that sixteen years later, she'd be standing on an Olympic podium, having achieved her dreams. Aly's road to success was full of hard work, perseverance, and victories, but not without its hardships. Aly faced many obstacles, from naysayers who said she'd never make it in gymnastics to classmates who shamed her for her athletic body to a devastating betrayal of trust. Through it all, Aly surrounded herself with supportive family, friends, and teammates and found the inner strength to remain positive and believe in herself. Now, in her own words, Aly shows what it takes to be a champion on and off the floor, and takes readers on a behind-the-scenes journey before, during, and after her remarkable achievements in two Olympic Games--through her highest highs, lowest lows, and all the moments in between. Honest and heartfelt, frank and funny, Aly's story is enhanced with never-before-published photos, excerpts from the personal journals she's kept since childhood that chronicle memorable moments with her teammates, and hard-won advice for readers striving to rise above challenges, learn to love themselves, and make their own dreams come true.
Don't Kill the Birthday Girl: Tales from an Allergic Life
Sandra Beasley - 2011
Like twelve million other Americans, Sandra Beasley suffers from food allergies. Her allergies—severe and lifelong—include dairy, egg, soy, beef, shrimp, pine nuts, cucumbers, cantaloupe, honeydew, mango, macadamias, pistachios, cashews, swordfish, and mustard. Add to that mold, dust, grass and tree pollen, cigarette smoke, dogs, rabbits, horses, and wool, and it’s no wonder Sandra felt she had to live her life as “Allergy Girl.” When butter is deadly and eggs can make your throat swell shut, cupcakes and other treats of childhood are out of the question—and so Sandra’s mother used to warn guests against a toxic, frosting-tinged kiss with “Don’t kill the birthday girl!” It may seem that such a person is “not really designed to survive,” as one blunt nutritionist declared while visiting Sandra’s fourth-grade class. But Sandra has not only survived, she’s thrived—now an essayist, editor, and award-winning poet, she has learned to navigate a world in which danger can lurk in an unassuming corn chip. Don’t Kill the Birthday Girl is her story. With candor, wit, and a journalist’s curiosity, Sandra draws on her own experiences while covering the scientific, cultural, and sociological terrain of allergies. She explains exactly what an allergy is, describes surviving a family reunion in heart-of-Texas beef country with her vegetarian sister, delves into how being allergic has affected her romantic relationships, exposes the dark side of Benadryl, explains how parents can work with schools to protect their allergic children, and details how people with allergies should advocate for themselves in a restaurant. A compelling mix of memoir, cultural history, and science, Don’t Kill the Birthday Girl is mandatory reading for the millions of families navigating the world of allergies—and a not-to-be-missed literary treat for the rest of us.
I Forgot to Remember: A Memoir of Amnesia
Su Meck - 2014
Although her body healed rapidly, her memories never returned. Yet after just three weeks in the hospital, Su was released and once again charged with the care of two toddlers and a busy household. Adrift in a world about which she understood almost nothing, Su became an adept mimic, gradually creating routines and rituals that sheltered her and her family, however narrowly, from the near-daily threat of disaster, or so she thought. Though Su would eventually relearn to tie her shoes, cook a meal, and read and write, nearly twenty years would pass before a series of personally devastating events shattered the normal life she had worked so hard to build, and she realized that she would have to grow up all over again.In her own indelible voice, Su offers us a view from the inside of a terrible injury, with the hope that her story will help give other brain injury sufferers and their families the resolve and courage to build their lives anew. Piercing, heartbreaking, but finally uplifting, this book is the true story of a woman determined to live life on her own terms.
Manic: A Memoir
Terri Cheney - 2008
But behind her seemingly flawless façade lay a dangerous secret—for the better part of her life Cheney had been battling debilitating bipolar disorder and concealing a pharmacy's worth of prescriptions meant to stabilize her moods and make her "normal."In bursts of prose that mirror the devastating highs and extreme lows of her illness, Cheney describes her roller-coaster life with shocking honesty—from glamorous parties to a night in jail; from flying fourteen kites off the edge of a cliff in a thunderstorm to crying beneath her office desk; from electroshock therapy to a suicide attempt fueled by tequila and prescription painkillers.With Manic, Cheney gives voice to the unarticulated madness she endured. The clinical terms used to describe her illness were so inadequate that she chose to focus instead on her own experience, in her words, "on what bipolar disorder felt like inside my own body." Here the events unfold episodically, from mood to mood, the way she lived and remembers life. In this way the reader is able to viscerally experience the incredible speeding highs of mania and the crushing blows of depression, just as Cheney did. Manic does not simply explain bipolar disorder—it takes us in its grasp and does not let go.In the tradition of Darkness Visible and An Unquiet Mind, Manic is Girl, Interrupted with the girl all grown up. This harrowing yet hopeful book is more than just a searing insider's account of what it's really like to live with bipolar disorder. It is a testament to the sharp beauty of a life lived in extremes.
A Face for Picasso: Coming of Age with Crouzon Syndrome
Ariel Henley - 2021
There's a mathematical equation to prove it.At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome -- a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease.Growing up, Ariel and her sister endured numerous appearance-altering procedures. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement.Ariel explores beauty and identity in her young-adult memoir about resilience, sisterhood, and the strength it takes to put your life, and yourself, back together time and time again.
Smashed: Story of a Drunken Girlhood
Koren Zailckas - 2005
Eye-opening and utterly gripping, Koren Zailckas’s story is that of thousands of girls like her who are not alcoholics yet but who routinely use booze as a shortcut to courage and a stand-in for good judgment.With one stiff sip of Southern Comfort at the age of fourteen, Zailckas is initiated into the world of drinking. From then on, she will drink faithfully, fanatically. In high school, her experimentation will lead to a stomach pumping. In college, her excess will give way to a pattern of self-poisoning that will grow more destructive each year. At age twenty-two, Zailckas will wake up in an unfamiliar apartment in New York City, elbow her friend who is passed out next to her, and ask, "Where are we?" Smashed is a sober look at how she got there and, after years of blackouts and smashups, what it took for her to realize she had to stop drinking. Smashed is an astonishing literary debut destined to become a classic.
Obsessed: A Memoir of My Life with OCD
Allison Britz - 2017
She was a dedicated student with tons of extracurricular activities, friends, and loving parents at home.But after awakening from a vivid nightmare in which she was diagnosed with brain cancer, she was convinced the dream had been a warning. Allison believed that she must do something to stop the cancer in her dream from becoming a reality.It started with avoiding sidewalk cracks and quickly grew to counting steps as loudly as possible. Over the following weeks, her brain listed more dangers and fixes. She had to avoid hair dryers, calculators, cell phones, computers, anything green, bananas, oatmeal, and most of her own clothing.Unable to act “normal,” the once-popular Allison became an outcast. Her parents questioned her behavior, leading to explosive fights. When notebook paper, pencils, and most schoolbooks were declared dangerous to her health, her GPA imploded, along with her plans for the future.Finally, she allowed herself to ask for help and was diagnosed with obsessive-compulsive disorder. This brave memoir tracks Allison’s descent and ultimately hopeful climb out of the depths.
Grief Girl: My True Story
Erin Vincent - 2007
Now you, your 17-year-old sister, and your three-year-old brother are on your own.Imagine what that would be like. Then read this book and find out.
My Story
Elizabeth Smart - 2013
She has created a foundation to help prevent crimes against children and is a frequent public speaker. In 2012, she married Matthew Gilmour, whom she met doing mission work in Paris for her church, in a fairy tale wedding that made the cover of People magazine.
Hello Darkness, My Old Friend: How Daring Dreams and Unyielding Friendship Turned One Man's Blindness into an Extraordinary Vision for Life
Sanford D. Greenberg - 2020
A junior at Columbia University from a Jewish family that struggled to stay above the poverty line, Sandy had just started to see the world open up to him. Now, instead of his plans for a bright future—Harvard Law and politics—Sandy faces a new reality, one defined by a cane or companion dog, menial work, and a cautious path through life. But that’s not how this story ends. In the depth of his new darkness, Sandy faces a choice—play it “safe” by staying in his native Buffalo or return to Columbia to pursue his dreams. With the loving devotion of his girlfriend (and now wife) Sue and the selflessness of best friends Art Garfunkel and Jerry Speyer, Sandy endures unimaginable adversity while forging a life of exceptional achievement. From his time in the White House working for President Lyndon B. Johnson to his graduate studies at Harvard and Oxford under luminaries such as Archibald Cox, Sir Arthur Goodhart, and Samuel Huntington, and through the guidance of his invaluable mentor David Rockefeller, Sandy fills his life and the lives of those around him with a radiant light of philanthropy, entrepreneurship, art, and innovation.
Trying to Float: Coming of Age in the Chelsea Hotel
Nicolaia Rips - 2016
Meet the family Rips: father Michael, a lawyer turned writer with a penchant for fine tailoring; mother Sheila, a former model and renowned artist who matches her welding outfits with couture; and daughter Nicolaia, a precocious high school junior at work on a record of her peculiar seventeen years.Nicolaia is a perpetual outsider who has struggled to find her place in public schools populated by cliquish girls and loudmouthed boys. But at the Chelsea, Nicolaia need not look far to find her tribe. There’s her neighbor Stormé, a tall woman who keeps a pink handgun strapped to her ankle; her babysitter, Paris, who may or may not have a second career as an escort; her friend Artie, former proprietor of New York’s most famous nightclubs. The kids at school might never understand her, but as Nicolaia endeavors to fit in she begins to understand that the Chelsea’s motley crew could hold the key to surviving the perils of a Manhattan childhood.Not since Holden Caulfield has there been such a fabulously compelling teen guide to New York City: Nicolaia Rips’s debut is a disarming, humble, heartfelt, and wise tale of coming-of-age amid the contradictions, complexities, and shifting identities of life in New York City. A bohemian Eloise for our times, Trying to Float is a triumphant parable for the power of embracing difference in all its forms.
Passport
Sophia Glock - 2021
Stationed now with her family in Central America because of her parents' work, Sophia feels displaced as an American living abroad, when she has hardly spent any of her life in America.Everything changes when she reads a letter she was never meant to see and uncovers her parents' secret. They are not who they say they are. They are working for the CIA. As Sophia tries to make sense of this news, and the web of lies surrounding her, she begins to question everything. The impact that this has on Sophia's emerging sense of self and understanding of the world makes for a page-turning exploration of lies and double lives.In the hands of this extraordinary graphic storyteller, this astonishing true story bursts to life.
The Valedictorian of Being Dead: The True Story of Dying Ten Times to Live
Heather B. Armstrong - 2019
Armstrong writes about her experience as one of only a few people to participate in an experimental treatment for depression involving ten rounds of a chemically induced coma approximating brain death.For years, Heather B. Armstrong has alluded to her struggle with depression on her website. But in 2016, Heather found herself in the depths of a depression she just couldn’t shake, an episode darker and longer than anything she had previously experienced. This book recalls the torturous eighteen months of suicidal depression she endured and the month-long experimental study in which doctors used propofol anesthesia to quiet all brain activity for a full fifteen minutes before bringing her back from a flatline. Ten times. The experience wasn’t easy. Not for Heather or her family. But a switch was flipped, and Heather hasn’t experienced a single moment of suicidal depression since. The Valedictorian of Being Dead brings to light a groundbreaking new treatment for depression.