Spectrum Women: Walking to the Beat of Autism


Barb CookJeanette Purkis - 2018
    Michelle Garnett's comments validate and expand the experiences described from a clinician's perspective, and provide extensive recommendations.Autistic advocates including Liane Holliday Willey, Anita Lesko, Jeanette Purkis, Artemisia and Samantha Craft offer their personal guidance on significant issues that particularly affect women, as well as those that are more general to autism. Contributors cover issues including growing up, identity, diversity, parenting, independence and self-care amongst many others. With great contributions from exceptional women, this is a truly well-rounded collection of knowledge and sage advice for any woman with autism.

The Oasis Guide to Asperger Syndrome: Advice, Support, Insight, and Inspiration


Patricia Romanowski Bashe - 2001
    One in 300 individuals may have AS--exhibiting characteristics such as average to high intelligence, obsessive behavior, intense special interests, and difficulty dealing with everyday social situations--and it is now more prevalent than childhood cancer and Down's syndrome. As the mother of a boy diagnosed with AS in 1994, Barbara Kirby found scant resources and support. She developed the internationally renowned OASIS (Online Asperger Syndrome Information and Support) Web site in 1995 to help other parents find the information they need. She teamed up with Patricia Romanowski Bashe, now co-owner of OASIS and herself the mother of a son with AS, to write "The OASIS Guide to Asperger Syndrome," which has become the standout authority in the field and a must-have for this growing audience. Now Bashe and Kirby have crafted a fully revised edition of this comprehensive resource for parents, teachers, therapists, and anyone who knows or works with someone with AS. In addition to discussing what AS looks like and how parents can guide their unique child through the social, emotional, and intellectual challenges of growing up, this edition includes new developments made in AS research over the past four years, new thinking on diagnosis and evaluation, the latest approaches to medication and social skills development, and tips on navigating the maze of interventions, therapies, and special education. The authors know firsthand the joys and frustrations of raising children with AS, and they share their own experiences as well as those of dozens of parents facing the same issues. Filled with practical information and emotional support, this is the most complete and authoritative guide available. Whether your child has been diagnosed or troubling symptoms are just becoming apparent, this book will point you in the right direction as you face the particular challenges of loving and raising a child with Asperger Syndrome.

Everyday Aspergers


Samantha Craft - 2016
    A former schoolteacher and mother of three boys, Craft doesn't experience ordinary everyday happenings like most. In her vivid world, nothing is simple and everything appears pertinent. Even an average trip to the grocery store is a feat and cause for reflection. From being a dyslexic cheerleader with dysgraphia going the wrong direction, to bathroom stalking, to figuring out if she can wear that panty-free dress, Craft explores the profoundness of daily living through hilarious anecdotes and heartwarming childhood memories. When she's not laughing at the bizarreness of her days or reflecting back, then she's sharing the serious and relevant challenges of everyday living on the autism spectrum. Ten years in the making, Craft's revealing memoir brings Asperger's Syndrome into a spectrum of brilliant light-exposing the day-to-day interactions and complex inner workings of an autistic female from childhood to midlife.

We're Not Broken: Changing the Autism Conversation


Eric Garcia - 2021
    It’s also my love letter to autistic people. For too long, we have been forced to navigate a world where all the road signs are written in another language.”With a reporter’s eye and an insider’s perspective, Eric Garcia shows what it’s like to be autistic across America.Garcia began writing about autism because he was frustrated by the media’s coverage of it; the myths that the disorder is caused by vaccines, the narrow portrayals of autistic people as white men working in Silicon Valley. His own life as an autistic person didn’t look anything like that. He is Latino, a graduate of the University of North Carolina, and works as a journalist covering politics in Washington D.C. Garcia realized he needed to put into writing what so many autistic people have been saying for years; autism is a part of their identity, they don’t need to be fixed. In We’re Not Broken, Garcia uses his own life as a springboard to discuss the social and policy gaps that exist in supporting those on the spectrum. From education to healthcare, he explores how autistic people wrestle with systems that were not built with them in mind. At the same time, he shares the experiences of all types of autistic people, from those with higher support needs, to autistic people of color, to those in the LGBTQ community. In doing so, Garcia gives his community a platform to articulate their own needs, rather than having others speak for them, which has been the standard for far too long.

Uniquely Human: A Different Way of Seeing Autism


Barry M. Prizant - 2015
    This perspective leads to therapies focused on ridding individuals of autistic symptoms. In Uniquely Human, Dr. Barry M. Prizant suggests a major shift in understanding autism: Instead of classifying "autistic" behaviors as signs of pathology, he sees them as strategies to cope with a world that feels chaotic and overwhelming. Rather than curb these behaviors, it's better to enhance abilities, build on strengths, and offer supports that will naturally lead to more desirable behavior and a better quality of life. In fact, argues Dr. Prizant, attempts to eliminate autistic behaviors may actually interfere with important developmental processes.Including inspiring stories and practical advice drawn from Dr. Prizant's four-decade career working in universities, schools, hospitals, and in private practice, Uniquely Human offers a compassionate and insightful perspective that parents, professionals, and family members will find uplifting and hopeful.

The Girl with the Curly Hair - Asperger's and Me


Alis Rowe - 2013
    They have been by my side at the doctor’s. They have brought me out of shutdowns. They have supported me through depression. Yet, despite being a part of all of these things, they still don’t really know what it’s like being me, having Asperger’s Syndrome. So I wrote this book.The hardest thing about having Asperger’s Syndrome is that it can seem like an invisible condition. Females in particular, can be expert at masking their symptoms. Tomorrow I will get up and leave the house, go into work and get on with things, my challenges totally oblivious to the people around me. The next day will be the same. And the day after. I hope this book will build the bridge between people with Asperger’s Syndrome and the rest of the world. Most people with Asperger’s Syndrome are able and willing to work and live a “normal” life, with the right support and adjustment. The main problem is that most people are just unaware of how they can help. So, let us begin our journey into the wearing but wonderful world that is Asperger’s Syndrome.

Loving Someone with Asperger's Syndrome: Understanding and Connecting with your Partner


Cindy N. Ariel - 2012
    Other times, he or she may have emotional outbursts for no apparent reason. And in those moments when you can’t understand each other at all, you both feel fed up, frustrated, and confused.The behavior of people with Asperger’s can be hard to understand and easy to misinterpret, which is why it’s so important to learn more about your partner’s condition. The tools presented in Loving Someone with Asperger’s Syndrome will help you build intimacy and improve the way you and your partner communicate. Filled with assessments and exercises for both you and your partner, this book will help you forge a deeper, more fulfilling relationship.This book will teach you how to: • Understand the effect of Asperger’s syndrome on your partner • Practice effective communication skills • Constructively work through frustrations and fights • Establish relationship ground rules to help you fulfill each others’ needs

An Adult with an Autism Diagnosis: A Guide for the Newly Diagnosed


Gillan Drew - 2017
    Through an introduction to the autism spectrum, and how the Level 1 diagnosis is characterised, the author draws on personal experiences to provide positive advice on dealing with life, health, and relationships following an adult diagnosis.The effect of autism on social skills is described with tips for dealing with family and personal relationships, parenting, living arrangements, and employment. Important topics include disclosure, available resources, and options for different therapeutic routes. On reading this book, you will learn a lot more about the autism spectrum at Level 1, be able to separate the facts from the myths, and gain an appreciation of the strengths of autism, and how autism can affect many aspects of everyday life. Drawing from the author's lived experience, this book is an essential guide for all newly diagnosed adults on the autism spectrum, their families and friends, and all professionals new to working with adults with ASDs.

Loud Hands: Autistic People, Speaking


Julia Bascom - 2012
    Loud Hands: Autistic People, Speaking is a collection of essays written by and for Autistic people. Spanning from the dawn of the Neurodiversity movement to the blog posts of today, Loud Hands: Autistic People, Speaking catalogues the experiences and ethos of the Autistic community and preserves both diverse personal experiences and the community’s foundational documents together side by side.-from ASAN

Carly's Voice: Breaking Through Autism


Arthur Fleischmann - 2012
    Doctors predicted that she would never intellectually develop beyond the abilities of a small child. Although she made some progress after years of intensive behavioral and communication therapy, Carly remained largely unreachable. Then, at the age of ten, she had a breakthrough. While working with her devoted therapists Howie and Barb, Carly reached over to their laptop and typed in "HELP TEETH HURT," much to everyone's astonishment. This was the beginning of Carly's journey toward self-realization. Although Carly still struggles with all the symptoms of autism, which she describes with uncanny accuracy and detail, she now has regular, witty, and profound conversations on the computer with her family, her therapists, and the many thousands of people who follow her via her blog, Facebook, and Twitter. In Carly's Voice, her father, Arthur Fleischmann, blends Carly's own words with his story of getting to know his remarkable daughter. One of the first books to explore firsthand the challenges of living with autism, it brings readers inside a once-secret world and in the company of an inspiring young woman who has found her voice and her mission.

Freaks, Geeks and Asperger Syndrome: A User Guide to Adolescence


Luke Jackson - 2002
    Over the years Luke has learned to laugh at such names but there are other aspects of life which are more difficult. Adolescence and the teenage years are a minefield of emotions, transitions and decisions and when a child has Asperger Syndrome, the result is often explosive. Luke has three sisters and one brother in various stages of their adolescent and teenage years but he is acutely aware of just how different he is and how little information is available for adolescents like himself. Drawing from his own experiences and gaining information from his teenage brother and sisters, he wrote this enlightening, honest and witty book in an attempt to address difficult topics such as bullying, friendships, when and how to tell others about AS, school problems, dating and relationships, and morality. Luke writes briefly about his younger autistic and AD/HD brothers, providing amusing insights into the antics of his younger years and advice for parents, carers and teachers of younger AS children. However, his main reason for writing was because "so many books are written about us, but none are written directly to adolescents with Asperger Syndrome. I thought I would write one in the hope that we could all learn together."

The Journal of Best Practices: A Memoir of Marriage, Asperger Syndrome, and One Man's Quest to Be a Better Husband


David Finch - 2012
    Five years after he married Kristen, the love of his life, they learn that he has Asperger syndrome. The diagnosis explains David’s ever-growing list of quirks and compulsions, his lifelong propensity to quack and otherwise melt down in social exchanges, and his clinical-strength inflexibility. But it doesn’t make him any easier to live with.Determined to change, David sets out to understand Asperger syndrome and learn to be a better husband—no easy task for a guy whose inability to express himself rivals his two-year-old daughter's, who thinks his responsibility for laundry extends no further than throwing things in (or at) the hamper, and whose autism-spectrum condition makes seeing his wife's point of view a near impossibility.Nevertheless, David devotes himself to improving his marriage with an endearing yet hilarious zeal that involves excessive note-taking, performance reviews, and most of all, the Journal of Best Practices: a collection of hundreds of maxims and hard-won epiphanies that result from self-reflection both comic and painful. They include "Don’t change the radio station when she's singing along," "Apologies do not count when you shout them," and "Be her friend, first and always." Guided by the Journal of Best Practices, David transforms himself over the course of two years from the world’s most trying husband to the husband who tries the hardest, the husband he’d always meant to be.Filled with humor and surprising wisdom, The Journal of Best Practices is a candid story of ruthless self-improvement, a unique window into living with an autism-spectrum condition, and proof that a true heart can conquer all.

Nobody Nowhere: The Extraordinary Autobiography of an Autistic Girl


Donna Williams - 1992
    Although labeled, at times, deaf, retarded, or disturbed, Donna Williams is autistic--afflicted by a baffling condition of heightened sensory perception that imprisons the sufferer in a private, almost hallucinatory universe of patterns and colors. Nobody Nowhere is Donna's story in her own words--a haunting, courageous memoir of the titanic struggles she has endured in her quest to merge "my world" with "the world."

In a Different Key: The Story of Autism


John Donvan - 2016
    Beginning with his family’s odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, and of the civil rights battles waged by the families of those who have it. Unfolding over decades, it is a beautifully rendered history of ordinary people determined to secure a place in the world for those with autism—by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different.  It is the story of women like Ruth Sullivan, who rebelled against a medical establishment that blamed cold and rejecting “refrigerator mothers” for causing autism; and of fathers who pushed scientists to dig harder for treatments. Many others played starring roles too: doctors like Leo Kanner, who pioneered our understanding of autism; lawyers like Tom Gilhool, who took the families’ battle for education to the courtroom; scientists who sparred over how to treat autism; and those with autism, like Temple Grandin, Alex Plank, and Ari Ne’eman, who explained their inner worlds and championed the philosophy of neurodiversity. This is also a story of fierce controversies—from the question of whether there is truly an autism “epidemic,” and whether vaccines played a part in it; to scandals involving “facilitated communication,” one of many treatments that have proved to be blind alleys; to stark disagreements about whether scientists should pursue a cure for autism. There are dark turns too: we learn about experimenters feeding LSD to children with autism, or shocking them with electricity to change their behavior; and the authors reveal compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death.<

Unstrange Minds: Remapping the World of Autism


Roy Richard Grinker - 2007
    His search took him to Africa, India, and East Asia, to the National Institutes of Mental Health, and to the mountains of Appalachia. What he discovered is both surprising and controversial: There is no true increase in autism. Grinker shows that the identification and treatment of autism depends on culture just as much as on science. As more and more cases of autism are documented, doctors are describing the disorder better, school systems are coding it better--and children are benefiting. Filled with moving stories and informed by the latest science, Unstrange Minds is unlike any other book on autism. It is a powerful testament to a father's quest for the truth, and is urgently relevant to anyone whose life is touched by one of history's most puzzling disorders.