The Horse Boy: A Father's Quest to Heal His Son


Rupert Isaacson - 2009
    But when Isaacson, a lifelong horseman, rode their neighbor's horse with Rowan, Rowan improved immeasurably. He was struck with a crazy idea: why not take Rowan to Mongolia, the one place in the world where horses and shamanic healing intersected? THE HORSE BOY is the dramatic and heartwarming story of that impossible adventure. In Mongolia, the family found undreamed of landscapes and people, unbearable setbacks, and advances beyond their wildest dreams. This is a deeply moving, truly one-of-a-kind story--of a family willing to go to the ends of the earth to help their son, and of a boy learning to connect with the world for the first time.

Son Rise: The Miracle Continues


Barry Neil Kaufman - 1976
    It is the science of love, compassion and insight that will transform the world.

Engaging Autism: Helping Children Relate, Communicate and Think with the DIR Floortime Approach (A Merloyd Lawrence Book)


Stanley I. Greenspan - 2006
    Stanley Greenspan's unique approach to autism and ASD (autistic spectrum disorders) is known to grateful parents and to professionals throughout the world. Now at last his highly effective and influential program is presented in one clear and accessible volume. A number of innovative, exciting features distinguish Greenspan's approach to autism:First, his program has demonstrated that children with signs of autism or autistic spectrum disorders do not have a fixed, limited potential, but in many cases can join their peers and lead full, healthy lives, emotionally and intellectually. Secondly, his approach can be applied at a very early stage, when signs of autism first appear. Thus, the hope of preventing the full onset of autism becomes a real possibility. Third, the approach empowers the entire family to promote their child's development throughout each day. Also, the DIR Floortime approach guides the efforts of speech pathologists, occupational therapists, and educators to work with the family and builds on the latest research on the development of the mind and brain. As cases of autism continue to rise worldwide, Dr. Greenspan's extremely successful Floortime approach is producing very promising results that could one day stem the tide against this dread disorder. No one involved in the care of children with autism, parent or professional, can afford to be without this landmark work.

I Am in Here: The Journey of a Child with Autism Who Cannot Speak But Finds Her Voice


Elizabeth M. Bonker - 2011
    I stroked her hair softly. 'I know you're in there, honey, ' I told her. 'We'll get you out.'" Despite the horror of seeing fifteen-month-old Elizabeth slip away into autism, her mother knew that her bright little girl was still in there. When Elizabeth eventually learned to communicate, first by using a letterboard and later by typing, the poetry she wrote became proof of a glorious, life-affirming victory for this young girl and her family. I Am in Here is the spiritual journey of a mother and daughter who refuse to give up hope, who celebrate their victories, and who keep trying to move forward despite the obstacles. Although she cannot speak, Elizabeth writes poetry that shines a light on the inner world of autism and the world around us. That poetry and her mother's stirring storytelling combine in this inspirational book to proclaim that there is always a reason to take the next step forward--with hope.

About Us: Essays from the Disability Series of the New York Times


Peter Catapano - 2019
    Speaking not only to those with disabilities, but also to their families, coworkers and support networks, the authors in About Us offer intimate stories of how they navigate a world not built for them.Since its 2016 debut, the popular New York Times’ “Disability” column has transformed the national dialogue around disability. Now, echoing the refrain of the disability rights movement, “Nothing about us without us,” this landmark collection gathers the most powerful essays from the series that speak to the fullness of human experience—stories about first romance, childhood shame and isolation, segregation, professional ambition, child-bearing and parenting, aging and beyond.Reflecting on the fraught conversations around disability—from the friend who says “I don’t think of you as disabled,” to the father who scolds his child with attention differences, “Stop it stop it stop it what is wrong with you?”—the stories here reveal the range of responses, and the variety of consequences, to being labeled as “disabled” by the broader public.Here, a writer recounts her path through medical school as a wheelchair user—forging a unique bridge between patients with disabilities and their physicians. An acclaimed artist with spina bifida discusses her art practice as one that invites us to “stretch ourselves toward a world where all bodies are exquisite.” With these notes of triumph, these stories also offer honest portrayals of frustration over access to medical care, the burden of social stigma and the nearly constant need to self-advocate in the public realm.In its final sections, About Us turns to the questions of love, family and joy to show how it is possible to revel in life as a person with disabilities. Subverting the pervasive belief that disability results in relentless suffering and isolation, a quadriplegic writer reveals how she rediscovered intimacy without touch, and a mother with a chronic illness shares what her condition has taught her young children.With a foreword by Andrew Solomon and introductory comments by co-editors Peter Catapano and Rosemarie Garland-Thomson, About Us is a landmark publication of the disability movement for readers of all backgrounds, forms and abilities.Topics Include: Becoming Disabled • Mental Illness is not a Horror Show • Disability and the Right to Choose • Brain Injury and the Civil Right We Don’t Think • The Deaf Body in Public Space • The Everyday Anxiety of the Stutterer • I Use a Wheelchair. And Yes, I’m Your Doctor • A Symbol for “Nobody” That’s Really for Everybody • Flying While Blind • My $1,000 Anxiety Attack • A Girlfriend of My Own • The Three-Legged Dog Who Carried Me • Passing My Disability On to My Children • I Have Diabetes. Am I to Blame? • Learning to Sing Again • A Disabled Life is a Life Worth Living

Now I See the Moon: A Mother, a Son, a Miracle


Elaine Hall - 2010
    In the process, she founded The Miracle Project, a groundbreaking organization that uses the performing arts to connect with children with autism. Both controversial and unorthodox, Hall's innovative approach has been praised by leaders in the field of autism, including Temple Grandin, Barry Prizant, and Dr. Stanley Greenspan. She was also the subject of the Emmy Award-winning documentary Autism: The Musical. Hall now speaks around the country sharing her wisdom. Now I See the Moon is a story of hope, faith, and miracles; it is a story only a mother could tell.

Changing the Course of Autism: A Scientific Approach for Parents and Physicians


Bryan Jepson - 2007
    Most books on this subject describe educational and behavioural therapies, but autism is a medical disease, not a psychological disorder. This groundbreaking books shows that the disease can be treated by reducing the neurological inflammation that is part of the disease process, rather than simply masking the symptoms with drugs like Ritalin and Prozac. The authors have seen autistic behaviours improve dramatically or disappear completely with appropriate medical treatment. The book reviews the medical literature regarding the biological nature of the disease, including the potential connection between vaccines and autism. angry at the rise in this disease and the way it is treated. It is the only book on this subject written by an MD who is also the parent of an autistic child. In 2001, the second son of Jepson was diagnosed with autism. treatment options and found that the medical community knew very little about the cause, the treatment, or the prognosis of this disease. After a year of research, the couple established the non-profit Children's Biomedical Center of Utah. There autistic children could receive the most up-to-date care available. From 2002-2005, Dr Jepson treated hundreds of children on the autism spectrum and the clinic raised awareness throughout the intermountain West concerning issues related to autism and other childhood developmental disorders. join the team at Thoughtful House Center for Children, a multidisciplinary clinic dedicated to caring for children with autism and related conditions. The Thoughtful House is designed to integrate biomedical, gastrointestinal, and educational intervention into a coordinated effort, and to use this model to perform clinical research. It officially opened January 1st, 2006, and Dr Jepson is now its Medical Director.

How to Be Autistic


Charlotte Amelia Poe - 2020
    From food and fandom, to body modification and comic conventions, Charlotte’s experiences through the torments of schooldays and young adulthood leave us with a riot of conflicting emotions: horror, empathy, despair, laugh-out-loud amusement and, most of all, respect.For Charlotte, autism is a fundamental aspect of their identity and art. They address the reader in a voice that is direct, sharply clever and ironic. They witness their own behaviour with a wry humour as they sympathises with those who care for them, yet all the while challenging the neurotypical narratives of autism as something to be ‘fixed’.‘I wanted to show the side of autism that you don’t find in books and on Facebook. My story is about survival, fear and, finally, hope. There will be parts that make you want to cover your eyes, but I beg you to read on, because if I can change just one person’s perceptions, if I can help one person with autism feel like they’re less alone, then this will all be worth it.’This is an exuberant, inspiring, life-changing insight into autism from a viewpoint almost entirely missing from public discussion.Charlotte uses they/them pronouns.

ADHD and Me: What I Learned from Lighting Fires at the Dinner Table


Blake E.S. Taylor - 2008
    As time went by, Blake developed a reputation for being hyperactive and impulsive. He launched rockets (accidentally) into neighbor's swimming pools and set off alarms in museums. Blake was diagnosed formally with ADHD when he was five years old. In ADHD and Me, he tells about the next twelve years as he learns to live with both the good and bad sides of life with ADHD.Blake's memoir offers, for the first time, a young person's account of what it's like to live and grow up with this common condition. Join Blake as he foils bullies, confronts unfair teachers, struggles with distraction and disorganization on exams, and goes sailing out-of-bounds and ends up with a boatload of spiders. It will be an inspiration and companion to the thousands of others like him who must find a way to thrive with a different perspective than many of us. The book features an introduction by psychologist Lara Honos-Webb, author of The Gift of ADHD, and a leading advocate for kids with ADHD.

They Don't Play Hockey in Heaven: A Dream, A Team, and My Comeback Season


Ken Baker - 2003
    . . colorful descriptions make this a fun read." -Los Angeles Times "One of the best sports books of the year." -Booklist Ken Baker wanted nothing more than to play ice hockey with the pros-until a brain tumor cut his dreams short while in college. After surgery and several years of rehab, Baker, who in high school was a top prospect for the U.S. Olympic team, put his successful journalism career on hold to attempt the seemingly impossible: a comeback. He moved away from his family to become the third-string goalie for the Bakersfield Condors, an AA-level minor-league team in the dusty oil town of Bakersfield, California. At the age of thirty-one, Baker became the oldest rookie in all of pro-hockey, facing 100-m.p.h. slap shots and long bus rides, hostile fans and cheap motel rooms, body bruises, and battle-worn teammates. From his visit to an NHL training camp to his first nerve-rattled minutes as a pro, Baker joins the rookies who still dream of making it to the Show, the veterans long past their prime, and the obsessive fans who keep them going. When the season is over, Baker's pro-hockey adventure ends up teaching him nearly everything he will ever need to know about life.

Supporting Positive Behavior in Children and Teens with Down Syndrome: The Respond But Don't React Method


David Stein - 2016
    Another bolts across a busy parking lot, turns and smiles at his mom. An eighteen-year-old student bursts into tears when asked to change activities at school. Sound familiar? These and other common behavior issues in children with Down syndrome can quickly become engrained and may even persist into adulthood. No parent wants that to happen, and thankfully, help is available! Dr. David Stein, a psychologist and Co-Director of the Down Syndrome Program at Boston Children's Hospital, shares his approach to behavior management in this new book for parents. Supporting Positive Behavior in Children and Teens with Down Syndrome examines how the brain of a person with Down syndrome works, how those differences impact behavior, and why bad behavior should not be viewed as a willful act. Governed by this new awareness, parents are in a better position to change and manage their child's behavior using these guiding principles: [[Be proactive, not reactive [[Be consistent [[Use visual schedules & Social Stories to direct behavior [[Develop a token reward chart [[Keep gut reactions in check [[Teach siblings to ignore bad behavior [[Learn effective disciplinary techniques [[Know when professional help is needed Some of these parenting concepts are intuitive, others are not, but when they are followed consistently, children and teens with Down syndrome do their best behaviorally and the parent-child relationship remains as positive and loving as it should be.

Life, Interrupted


James McConnel - 2006
    He finds some solace in his talent for piano playing but slowly comes to realise that the incontrollable sniffs, coughs, and faces night not just be a funny, little habit.

Disability Visibility: First-Person Stories from the Twenty-first Century


Alice WongChristie Thompson - 2020
    Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.

Women from Another Planet? Our Lives in the Universe of Autism


Jean Kearns Miller - 2003
    It’s the dreaded A word. People’s attention turns to late night TV public service ads declaring that autistic children are “imprisoned” by autism and need curing at all cost. Recent autobiographies have helped dispel this dire description by suggesting that autism is not a prison and that the door is unlocked and you’re free to come in. Women from Another Planet? moves beyond these autistic life stories in important ways. It’s a collection of stories and conversations, all of them by women on the autism spectrum who speak candidly, insightfully, and often engagingly about both their gender in terms of their autism and their autism in terms of their gender. It is written not just for parents and professionals, like the other works, but also to those women still searching for ways to understand the unnamed difference they live with, as well as the wider audience of discerning readers. If you enter the unlocked door of these Women from Another Planet? you may end up with a question mark or two about your planet. Is normalcy really all it’s cracked up to be?

Growing Up Disabled in Australia


Carly FindlayEmma Di Bernardo - 2020
    A problem those around me wanted to fix.’‘We have all felt that uncanny sensation that someone is watching us.’‘The diagnosis helped but it didn’t fix everything.’‘Don’t fear the labels.’One in five Australians have a disability. And disability presents itself in many ways. Yet disabled people are still underrepresented in the media and in literature.Growing Up Disabled in Australia is the fifth book in the highly acclaimed, bestselling Growing Up series. It includes interviews with prominent Australians such as Senator Jordon Steele-John and Paralympian Isis Holt, poetry and graphic art, as well as more than 40 original pieces by writers with a disability or chronic illness.Contributors include Dion Beasley, Astrid Edwards, Jessica Walton, Carly-Jay Metcalfe, Gayle Kennedy and El Gibbs.